1. No category

Beth A. Tarini, MD, MS
Assistant Professor
Child Health Evaluation and Research (CHEAR) Unit
University of Michigan
300 North Ingalls, Room 6D19
Ann Arbor, MI 48109-5456
Office: (734) 615-8153
Mobile: (734) 223-4416
Email: btarini@umich.edu
Education
Undergraduate
BA Biology, cum laude
Harvard University; Cambridge, MA, (1993–1997)
Medical School
MD
Albert Einstein College of Medicine; Bronx, NY, (1997–2001)
Health Services
MS, Health Services
University of Washington, Seattle, WA, (2004–2006)
Post-Doctoral and Research Training
Residency
Pediatric Residency
Children’s Hospital and Regional Medical Center
University of Washington, Seattle, WA, (2001–2004)
Fellowship
Robert Wood Johnson Clinical Scholars Program
University of Washington, Seattle, WA, (2004–2006)
Fellowship
Health Policy Fellow
Center for Healthcare Research and Transformation (CHRT)
University of Michigan (2014–2014)
Certification and Licensure
06/2006 – present
Michigan State License Number 4301088113
10/2004 – present
Diplomate, American Board of Pediatrics
05/2004 – 05/2007
Washington State License Number MD00043640
Academic, Administrative, and Clinical Appointments
Academic Appointments
09/2008 – present
08/2006 – 08/2008
Assistant Professor
Division of General Pediatrics
University of Michigan, Ann Arbor, MI
Clinical Lecturer
Division of General Pediatrics
University of Michigan, Ann Arbor, MI
1
07/2004 – 07/2006
Acting Instructor
Division of General Pediatrics
University of Washington, Seattle, WA
Administrative Appointments
10/2014 – present
Co-Director, Pathway of Excellence in Health Policy Program
University of Michigan Medical School, Ann Arbor, MI
Research Interests
1. Organization and delivery of care following positive newborn screening results
2. Risk communication with parents about genetic testing for their children
3. Effect of genetic testing on parental behavior
Grants
Present
Extramural
02/2015 – 01/2017
Principal Investigator: Improving the Efficiency of Newborn Screening
from Collection to Test Results
Robert Wood Johnson Foundation
Public Health Services and Systems Research Grant
$350,000 (total)
04/2014 – 03/2016
Principal Investigator: Improving the Newborn Screening System in the
Genomic Era
Health Resources and Services Administration, Health and Human
Services Department
R40 Policy Analysis Grant
$302,919 (direct)
08/2013 – 07/2015
Principal Investigator: Intervention to Improve PCP-Parent
Communication about CF NBS Results
Cystic Fibrosis Foundation Quality Improvement Grant
$40,000 (direct)
07/2011 – 06/2016
Co-Investigator: Health and Economic Outcomes for Newborn
Screening
Agency for Healthcare Research and Quality
$346,288 (direct, annual)
Principal Investigator: Lisa Prosser, PI
08/2011 – 08/2013
Principal Investigator: Improving Parent & Provider Understanding of
Positive CF Newborn Screens
Cystic Fibrosis Foundation
$40,000 (direct)
2
Intramural
04/2014
02/2013 – 02/2015
Principal Investigator: The Martial Arts as ADHD Treatment (MAAT)
Trial
Department of Pediatrics Intramural Award, University of Michigan
$30,000 (direct)
Principal Investigator: Knowing Your Child’s Genome: Exploring
Parents’ Decision-Making Process Regarding Genomic Sequencing of
Children
Benz Birth Defects Research Award
Department of Pediatrics Intramural Award, University of Michigan
$20,000 (direct)
Past
Extramural
02/2014 – 08/2014
01/2013 – 05/2013
06/2012 – 03/2014
Principal Investigator: In My Shoes: Using Parent Narratives as a NBS
Educational Tool
Genetic Alliance
$15,873 (direct)
Principal Investigator: Understanding the Payment and Funding
Structure of Newborn Screening Programs in the Region 4 Genetics
Collaborative
Health Resources and Services Administration, Health and Human
Services Department
$15,395 (total)
Co-Investigator, concurrent with K23: Biobanking at Birth: Parental
Attitudes Towards the Use Of Perinatal Samples
National Human Genome Research Institute
R21HG006470-02
10/2012 – 08/2013
Principal Investigator: Impact of Secretary's Advisory Committee on
Heritable Disorders in Newborns and Children (SACHDNC)
Recommendations and Policies
Health Resources and Services Administration, Health and Human
Services Department
$39,175 (total)
06/2009 – 05/2014
Principal Investigator: Improving Healthcare Delivery for Infants with
Positive Newborn Screening Results
Mentored Patient-Oriented Research Career Development Award K23,
National Institute of Child Health and Human Development
K23HD057994
$132,300 (annual)
3
Intramural
02/2010 – 12/2012
Principal Investigator: Development of a chronic illness risk adjustment
method to assess the effect of false positive newborn screening results on
future healthcare utilization
Amendt-Heller Award for Newborn Research,
Department of Pediatrics, University of Michigan
$20,000 (direct)
01/2010 – 12/2010
Principal Investigator: Parents’ experiences with healthcare delivery for
Infants with Positive Newborn Screening Results
Elizabeth Caroline Crosby Faculty Grant Program,
University of Michigan, Total cost: $10,000
03/2008 – 03/2010
Planning Committee Member, The Ethical, Legal, and Social
Implications of Personal Genomics: A proposed interdepartmental
seminar/workshop series for 2009-2010
Distinguished Faculty & Graduate Student Seminars program
Horace H. Rackham School of Graduate Studies & the Office of the
Vice President for Research, University of Michigan
Total cost: $10,000
08/2007 – 08/2010
Principal Investigator: Assessing Expanded Newborn Screening in
Michigan
Michigan Institute for Clinical and Health Research,
University of Michigan. Total cost: $50,000.
05/2007 – 05/2008
Principal Investigator: Assessing the Impact of Expanded Newborn
Screening in Michigan
Robert Wood Johnson Health & Society Scholars Program,
University of Michigan. Total cost: $36,697.
07/2006
Principal Investigator: Newborn Screening: A paradigm for the future of
population-based screening
Clinical Science Scholars Program, University of Michigan
Total cost: $40,000.
Honors and Awards
National
2012
American Academy of Medical Colleges Early Career Women Faculty
Professional Development Seminar (Invited)
2009-2011
NIH Loan Repayment Award for Pediatric Research
2007-2009
NIH Loan Repayment Award for Pediatric Research
2004-2006
NIH Loan Repayment Award for Pediatric Research
2001
Alpha Omega Alpha Medical Honor Society
4
2001
Institutional
2012
Janet M. Glasgow Achievement Citation,
American Medical Women’s Association
Albert Einstein College of Medicine
Outstanding Educator of the Year
Division of General Pediatrics
University of Michigan, Ann Arbor, MI
2006
Clinical Science Scholar
University of Michigan, Ann Arbor, MI
2004
Family Centered Care Award,
Children’s Hospital and Regional Medical Center, Seattle, WA
1996
Radcliffe Traveling Fellowship Recipient, traveled to Italy to research
Italian nurses during WWI, Radcliffe College
1994-1997
Harvard College Scholarship, Harvard University
1994-1997
Elizabeth Cary Agassiz Certificate of Merit, Harvard University
Memberships in Professional Societies
2008 – present
Society for Pediatric Research
1997 – present
American Academy of Pediatrics
2008 – 2011
International Society for Neonatal Screening
2004 – 2006
National Physicians Alliance
Editorial Positions, Boards, and Peer-Review Service
EDITORIAL POSITIONS
01/2014 – present
Editorial Advisory Board, Chronicle of Rare Diseases
10/2013 – 9/12016 Editorial Board, Pediatrics
01/2012 – 03/2014 Consulting Editor, American Academy of Pediatrics Grand Rounds
12/2011
Associate Editor, Pediatrics Special Issue: “Visioning, Measuring, and
Improving the Quality of Health Care for Children – Insights from the Robert
Wood Johnson Foundation Clinical Scholars Program”
BOARDS
03/2010 – 03/2012
GRANT REVIEW
International
04/2015
Scientific Advisory Board, Michigan BioTrust for Health, Michigan
Department of Community Health, Lansing, MI
Great Ormond Street Hospital Charity, London, England
5
05/2011
External Reviewer, Wellcome Trust, London, England
04/2009
External reviewer, Career Scientist Grant Program, Ontario Ministry of
Health and Long-Term Care, Ontario, Canada
National
04/2015
Special Emphasis Panel, Grant Reviewer, National Center for Chronic
Disease Prevention and Health Promotion, Centers for Disease Control
and Prevention, Atlanta, GA
05/2014
Early Career Reviewer (ECR) program at the Center for Scientific
Review (CSR), National Institutes of Health, Washington, DC
02/2012
Health Research Services Administration/Maternal Child Health Bureau
Grant Review Committee, Washington, DC
07/2011
Special Emphasis Panel, Grant Reviewer, National Center for
Environmental Health, Centers for Disease Control and Prevention,
Atlanta, GA
03/2010
Health Research Services Administration/Maternal Child Health Bureau
Grant Review Committee, Washington, DC
State
05/2010 – present
Institutional
01/2015 – present
Michigan Biotrust for Health, Michigan Department of Community
Health, Lansing, Michigan
Department of Pediatrics Intramural Grant Program, University of
Michigan
05/2010
Office of the Vice President for Research Grant Program, University of
Michigan
12/2008 – present
Michigan Institute for Clinical and Health Research (MICHR) Pilot and
Collaborative Grant Program, University of Michigan
AD HOC MANUSCRIPT REVIEW
12/2014 – present
Applied Health Economics and Health Policy
11/2014 – present
JAMA
06/2014 – present
Italian Journal of Pediatrics
04/2014 – present
Clinical Genetics
03/2014 – present
Public Health Genomics
02/2014 – present
American Journal of Medical Genetics, Part A
12/2014 – present
Human Heredity
07/2013 – present
Journal of Inherited Metabolic Disease
02/2013 – present
American Journal of Bioethics
02/2013 – present
Personalized Medicine
6
01/2013 – present
03/2013 – present
07/2012 – present
02/2012 – present
10/2011 – present
10/2011 – present
06/2011 – present
05/2011 – present
04/2011 – present
01/2011 – present
01/2011 – present
05/2009 – present
02/2009 – present
08/2008 – present
05/2008 – present
11/2007 – present
09/2007 – present
06/2007 – present
03/2007 – present
12/2006 – present
12/2006 – present
08/2006 – present
06/2004 – present
Health Psychology
American Journal of Bioethics
American Journal of Public Health
Pediatric Blood & Cancer
Journal of Perinatology
Journal of Community Genetics
Genetic Testing and Molecular Biomarkers
Journal of Mixed Methods Research
Academic Pediatrics
Health Services Research
Social Science & Medicine
American Journal of Epidemiology
European Journal of Human Genetics
Journal of Pediatrics
Allergy
Annals of Family Medicine
Genetics in Medicine
Ambulatory Pediatrics
Annals of Epidemiology
Pediatrics
Clinical Chemistry
Neonatology
Archives of Pediatrics & Adolescent Medicine
ABSTRACT REVIEW
05/2012
12/2006 – present
Society of Medical Decision Making Annual Meeting
Pediatric Academic Society Annual Meeting
Teaching
Undergraduates
09/2007 – 01/2010
01/2008 – 04/2009;
09/2010 – 06/2012
Medical Students
06/1/2014 – 08/01/2014
Faculty mentor for genetic test design project
Engineering 100– Biotechnology and Human Values
University of Michigan, Ann Arbor, MI
Faculty advisor, Undergraduate Research Opportunity Program (UROP)
University of Michigan; Ann Arbor, MI
Faculty mentor, Student Biomedical Research Program (SBRP)
University of Michigan; Ann Arbor, MI
10/2007 – 10/2011
Faculty leader, Small group session for Medical Students on EvidenceBased Medicine
University of Michigan; Ann Arbor, MI
08/2006 – present
Medical Student Supervision, Pediatric Clerkship
University of Michigan; Ann Arbor, MI
7
Residents
01/2013 – present
Committee Member, Pediatric Critical Care Fellowship
University of Michigan Pediatrics (Stephanie Kukora, Parent Decision
Making in the NICU)
07/2009 – 06/2013
Faculty Advisor, University of Michigan Pediatrics Residency Program
06/2009 – present
Noon conference, Pediatric Residents, “Ethics of Newborn Screening”
(annual presentation)
University of Michigan; Ann Arbor, MI
08/2006 – present
Faculty mentor, Evidence-Based Pediatrics Residency Curriculum
University of Michigan; Ann Arbor, MI
07/2004 – 06/2006
Pediatric Continuity Clinic Education
University of Washington; Seattle, WA
Created teaching modules for pediatrics residents
07/2004 – 06/2006
Continuity Clinic Preceptor, Roosevelt Pediatric Clinic
University of Washington; Seattle, WA
03/2005 – 06/2006
Lecturer, Noon Conference Series for Pediatric Residents
University of Washington; Seattle, WA
Graduate Students, Medical Students
10/2014
Committee Member, Scholarship Oversight Committee, Pediatric
Pulmonary, University of Michigan, (Aarti Shakkottai, CF Interventions
for Adherence)
04/2014 – present
Committee Member, Masters Thesis Committee, Genetic Counseling,
Northwestern University, (Megan Bunnell, Newborn Screening)
02/2014
Guest Lecture, Medical Ethics Path Lecture Series, University of
Michigan
08/2013
Faculty Mentor, American Medical Women's Association, University of
Michigan Chapter
07/2012
Committee Member, Doctoral Thesis Committee, Health Behavior and
Health Education PhD Candidate, University of Michigan, (Sarah Lillie,
Decision-Making in Newborn Screening)
12/2010
Guest Lecture, Medical Genetics, HG651; Genetic counseling masters
students
02/2010
Guest Lecture, Research on Health Care Delivery, Financing & Policy
HHCR 740/741, Robert Wood Johnson Clinical Scholars Program
8
10/2007 – 06/2012
Faculty mentor, genetic counseling students, research projects,
University of Michigan; Ann Arbor, MI
04/2007 – present
Guest Lecture, Health Behavior & Health Education 659:
Genetics, Health Behavior, and Health Education,
University of Michigan, Ann Arbor, MI
Intramural Presentations
05/2006
“Cascade Testing”, Lab Medicine Grand Rounds (Co-presenter),
University of Washington; Seattle, WA
Committee, Organizational, and Volunteer Service
National Committees
09/2014 – 09/2018
Co-Chair, Steering Committee: Newborn Screening Clearinghouse
Genetic Alliance (funded by Health Resources and Services
Administration)
07/2011 – 05/2014
Co-Medical Director, Genetics in Primary Care Institute
American Academy of Pediatrics
01/2015
Search Committee Member, Director of Special Healthcare Needs Clinic
& Education, University of Michigan Dental School
12/2014
PCORI Stakeholder Panel on Genetic Testing in Children
01/2012 – present
Co-Chair of Education Subcommittee, Secretary's Advisory Committee
on Heritable Disorders in Newborns and Children, Department of Health
& Human Services, Washington, DC
01/2012 – present
Health Services Work Group, Hemoglobinopathies Uniform Medical
Language Ontology Project, National Heart, Lung, and Blood
Institute/NIH (NHLBI) and Health Resources Services Administration
(HRSA)
10/2011 – present
American Academy of Pediatrics Liaison, Secretary's Advisory
Committee on Heritable Disorders in Newborns and Children,
Department of Health & Human Services, Washington, DC
09/2011 – 06/2015
External Advisory Committee, Parent Education and Choice about
Newborn Screening and Bloodspot Retention (5R01HG006266)
05/2011 – 05/2012
Carrier Screening Working Group, Secretary's Advisory Committee on
Heritable Disorders in Newborns and Children, Department of Health &
Human Services, Washington, DC
08/2010 – 08/2011
Carrier Screening Task Force, Health Resources and Services
Administration, Washington, DC
9
03/2009 – 03/2010
Newborn Screening Translational Research Network Laboratory
Working Group, Washington, DC
06/2009 – 06/2010
Planning Committee, ELSI Personal Genomics Seminar Series
University of Michigan; Ann Arbor, MI
07/2009 – 07/2015
Member, American Academy of Pediatrics’ Committee on Genetics, Elk
Grove, IL
09/2008 – present
Care Coordination Working Group, Region 4 Genetics Collaborative
Program, Health Resources Services Administration (HRSA),
Washington DC
State Committees
10/2013 – present
Chair, State of Michigan Newborn Screening Newborn Screening
Quality Assurance Advisory Committee, Lansing, MI
11/2012 – 10/2016
Member, State of Michigan Newborn Screening Newborn Screening
Quality Assurance Advisory Committee (Representative of Michigan
Health and Hospital Association)
Lansing, MI
02/2007 – 02/2009
Member, Medical Home Committee, Michigan Department of
Community Health, Lansing, MI
Institutional Committees
01/2015 – present
Selection Committee, Dean’s Research Award, University of Michigan
Medical School
01/2014 – present
Committee for Student Biomedical Research, Department of Pediatrics
Representative, University of Michigan Medical School
01/2014 – present
Post-doctoral Fellow Selection Committee, Center for Bioethics and
Social Sciences in Medicine (CBSSM), University of Michigan Medical
School
11/2013 – present
Department of Pediatrics Task Force on Emerging Technologies:
Roadmap for a Connected Future, University of Michigan Medical
School
02/2013 – 09/2013
Peer Mentoring Committee, University of Michigan Medical School
10/2010 – present
Resident Selection Committee, Department of Pediatrics, University of
Michigan
09/2006 – present
Resident Applicant Interviewer, Department of Pediatrics, University of
Michigan
10
05/2005 – 07/2006
Other
06/2011
Volunteer
08/2006 – present
Newborn Screening Working Group, Center for Genomics and
Public Health, University of Washington, Seattle, WA
Invited Attendee, Multidisciplinary Meeting, NICHD’s Scientific Vision
Meeting, Leesburg, VA
Camp Physician, Stanley Stamm Children’s Hospital Camp, Seattle, WA
Visiting Professorships, Seminars, and Extramural Presentations
Upcoming
05/2015
05/2015
“The Role of Genetics in Primary Care”
Maimonides Infants and Children’s Hospital, Brooklyn, NY
Navigating Career Development Awards: Best Practices
Panelist, Pediatric Academic Society, San Diego, CA
Invited
03/2015
“Newborn Screening: The Cost Of Delays”
Panelist, Livingston Awards, Knight-Wallace Fellows,
University of Michigan
07/2014
“The Challenge of Integrating Genetics into Primary Care Pediatrics –
Can We Get the Camel Through the Eye of the Needle?”
Keynote Speaker, Joint meeting of the Southeast Regional NBS and
Genetics Collaborative (SERC) and the 30th annual meeting of the
Southeastern Regional Genetics Group (SERGG), Ponte Vedre, FL
05/2014
“Reimbursement and Payment Structure for Region 4 NBS Programs.”
Invited Speaker, Region 4 Genetics Collaborative Annual Meeting,
Lansing, MI.
05/2014
“Delivering Positive NBS Results: Improving Communication Between
Providers and Families.” Invited Speaker, Region 4 Genetics
Collaborative Annual Meeting, Lansing, MI.
03/2014
“Making Genetics Relevant for Primary Care Pediatricians: An Exercise
in Translation.” Keynote Speaker, Fourth Annual Retreat of the Center
for Medical Genomics. Hershey Medical Center, Hershey, PA.
03/2014
“The Dark Side of Comparative Effectiveness: Expanding the Diagnosis
of Disease.” Invited Speaker, Second Annual Children’s Health
Services Research Symposium, Indianapolis, IN
11
09/2013
"Ethical Challenges Faced by Newborn Screening.” Invited Speaker,
Michigan State Medical Society Foundation (MSMSF) 17th Annual
Conference on Bioethics, Ann Arbor, MI
05/2013
“Optimizing Physician-Parent Communication: How to Avoid Making
Healthy Children Sick.” Grand Rounds, Le Bonheur Children's
Hospital, University of Tennessee, Memphis, Tennessee.
07/2012
“Myths of Primary Care Providers and Patients/Families Regarding
Genetics—Setting the Record Straight.” Time out for Genetics Webinar
Series, Genetics in Primary Care Institute, American Academy of
Pediatrics
03/2012
“What Newborn Screening Can Teach Us About Biobanking and LargeScale Genetic Screening Programs.” Invited Speaker, Pediatric
Pharmacogenomics and Personalized Medicine Conference, Children’s
Mercy Hospitals and Clinics, Kansas City, Missouri.
05/2010
“Exploring Genetic Testing in Pediatrics” Invited Speaker. Social and
Behavioral Research Branch, National Human Genome Research
Institute, Washington, DC.
12/2009
“Childhood Screening: The New Frontier?” Presenter & Panelist,
Genetic Alliance Newborn Screening Summit Conference, Washington,
DC.
11/2009
“Bloodspots and Bioethics: Clinical and Ethical Challenges of
Expanded Newborn Screening Programs.” Grand Rounds Speaker,
Department of Bioethics, Cleveland Clinic, Cleveland, OH.
07/2009
“Data Collection and Specimen Storage: How Do We Talk about Blood
Spots.” Presenter & Panelist, Genetic Alliance 2009 Annual Conference,
Washington, DC
06/2009
“Research Use of Residual Newborn Screening Bloodspots.”
Invited Co-Speaker, Genetic Alliance Webinar.
03/2009
“Healthcare Implications of Copy Number Variants: A Pediatrician’s
Perspective.” Invited Speaker, American College of Medical Genetics
Annual Meeting, Tampa, FL.
04/2009
“Parent Support of Storage and Use of Newborn Screening Samples for
Research Purposes.” Invited Presentation, National Newborn Screening
Translational Research Network Meeting, Washington DC, April 2009.
12/2008
“Integrating the Public Health Perspective Back into Newborn
Screening.” Invited Co-Speaker, Genetic Alliance Webinar.
12
10/2008
“Parent Support of Storage and Use of Newborn Screening Samples for
Research Purposes.” Invited Speaker, Newborn Screening and Genetic
Testing Symposium, San Antonio, TX
07/2008
“Newborn Screening: The Future Revolution.” Invited Speaker,
Treuman Katz Center for Pediatric Bioethics Conference, Seattle, WA
05/2007
“The Final Translation: Hurdles in Bringing the Promise of New
Technology into Practice.” Invited State of the Art Plenary, Pediatric
Academic Societies Meeting, Toronto, ON, Canada
Refereed
05/2010
“Engineering Young Athletes: Genetic Testing and Performance
Enhancement in Youth Sports” Workshop Co-Leader, Pediatric
Academic Societies Meeting, 2010, Vancouver, BC.
10/2009
“Use of Biological Samples Collected by Public Health Programs for
Research Purposes: Ethics at the Intersection of Public Health and
Biobanking.” Presenter & Panelist, American Society of Bioethics and
Humanities 2009 Annual Conference, Washington, DC.
10/2008
“The Future of Genetic Research in Children: Rethinking Consent, Data
Sharing, and Clinical Translation.” Panelist, American Society for
Bioethics and Humanities, Cleveland, OH.
05/2008
“Government DNA Biobanks for Children: Will Parents Make a
Deposit?” Panel Presentation, Ethical, Legal, Social Issues Conference
for National Human Genome Research Institute, Cleveland, OH.
03/2008
“'Parents’ Interest in Having Their Children Undergo Predictive Genetic
Testing.” Platform Presentation, American College of Medical Genetics
Annual Meeting, Phoenix, AZ
05/2007
“Afraid in the Hospital: Parental Concern about Medical Errors during a
Child’s Hospitalization.” Platform Presentation, Pediatric Academic
Societies Meeting, Toronto, ON, Canada
13
Bibliography
Under Review
1. Lillie SE, Tarini BA, Janz NK, Zikmund-Fisher BJ. Framing optional genetic testing in the
context of mandatory newborn screening tests. (Under Review- BMC Medical Informatics
and Decision Making).
2. Scherer LD, Finan C, Simancek D, Finkelstein J, Tarini BA. The effect of the term “pink
eye” on perceived contagiousness and intent to use antibiotics. (Under Review- Academic
Pediatrics).
3. Gornick MC, Fagerlin A, Exe N, Larkin N, Magoc E, Roberts JS, Tarini B, Stoffel
E, Lipkus-Reiner I, Matta R, Saini A, Zikmund-Fisher BJ. Lack of reassurance from
negative genetic test results in the contact of family history. (Under Review).
4. Rinke ML, Driscoll A, Mikat-Stevens N, Healy J, Colantuoni E, Elias AF, Pletcher BA,
Gubernick R, Larson I, Chung WK, Tarini BA. A Quality Improvement Collaborative to
Improve Pediatric Primary Care Genetic Services. (Revise & Resubmit - Pediatrics).
5. Tarini BA, Zikmund-Fisher BJ, Saal HM, Edmondson L, Uhlmann WR. National Survey
of Primary Care Providers’ Evaluation of Children with Global Developmental Delay.
(Under Review – J Pediatrics).
6. Scherer LD, Finan C, Simancek D, Finkelstein J, Tarini BA. Effect of pink eye label on
childcare centers’ exclusion decisions. (Under Review).
7. Childerhose J, Tarini BA. Understanding Outcomes in Adolescent Bariatric Surgery:
Patient Perspectives are Needed. (Revise & Resubmit, Pediatrics)
Peer-Reviewed Publications
1. Carroll AE, Sox CM, Tarini BA, Ringold S, Christakis DA. Does presentation format at
the Pediatric Academic Societies’ Annual Meeting predict subsequent publication?
Pediatrics. 2003;112(6 Pt 1):1238-41.
2. Tarini BA, Carroll AE, Sox CM, Christakis DA. Systematic review of the relationship
between timing of introduction of solid foods to infants and the development of allergic
disease. Arch Pediatr Adolesc Med. 2006;160(5):502-7.
3. Tarini BA, Christakis DA, Welch HG. State newborn screening in the era of tandem mass
spectrometry: more tests, more false positive results. Pediatrics. 2006;118:448-56.
4. Tarini BA, Garrison MM, Christakis DA. Institutional variation in repeat ordering of a
complete blood count (CBC) in children hospitalized with bronchiolitis. J Hosp Med.
2007;2(2):69-73.
5. Tarini BA, Freed GL. Keeping up with the newborn screening revolution. Contemp
Pediatr. 2007;24(4):36-48.
6. Tarini BA. The current revolution in newborn screening: new technology, old
controversies. Arch Pediatr Adolesc Med. 2007;161(8):767-72.
7. Tarini BA, Christakis DA, Lozano P. Towards family-centered inpatient medical care: the
role of parents as participants in medical decisions. J Pediatrics. 2007;151(6):690-95.
14
8. Tarini BA, Burke W, Wilfond BS. Waiving informed consent in newborn screening
research: balancing social value and respect. Am J Med Genet C Semin Med Genet.
2008;148C(1):23-30.
9. Tarini BA, Singer DD, Clark SJ, Davis MM. Parents’ concerns about their own and their
child’s risk of disease: potential effects of family history vs. genetic test results. Arch
Pediatr Adolesc Med. 2008;162:1079-83.
10. Tarini BA, Lozano P, Christakis DA. Afraid in the hospital: parental concern for errors
during a child’s hospitalization. J Hosp Med. 2009;4(9):521-7.
11. Tarini BA, Singer DD, Clark SJ, Davis MM. Parents’ interest in predictive genetic testing
for their children when a disease has no effective treatment. Pediatrics. 2009; 124
(3):e432-e438.
12. Tarini BA, Goldenberg A, Singer DD, Clark SJ, Davis MM. Not without my permission:
parents’ willingness to permit use of newborn screening samples for research. Public
Health Genomics. 2010;13(3):125-30.
13. Lee JM, Wu E, Herman WH, Tarini BA, Yoon E. Diagnosis of diabetes using hemoglobin
HbA1c: should recommendations in adults be extrapolated to adolescents? Journal of
Pediatrics. 2011;158(6):947-952.
14. Brooks MA, Tarini BA. Genetics and youth sports. JAMA. 2011; 305(10):1033-1034.
15. Burke W, Tarini BA, Press NA, Evans JP. Genetic screening. Epidemiol Rev.
2011;33(1):148-64.
16. Tarini BA, Clark S, Pilli S, Dombkowski K, Korzeniewski S, Gebremariam A,
Eisenhandler J, Grigorescu V. False positive newborn screening result and future
healthcare use in a state Medicaid cohort. Pediatrics. 2011;128(4):715-22.
17. Tarini BA, Tercyak KP, Wilfond BS. Children and predictive genomic testing: disease
prevention, research protection, and our future. Journal of Pediatr Psychol.
2011;36(10):1113-21.
18. Tarini BA, Brooks MA, Bundy DG. A policy impact analysis of the mandatory NCAA
Sickle Cell Trait screening program. Health Services Research. 2012;47(1 Pt 2):446-61.
19. Prosser LA, Grosse SD, Kemper AR, Tarini BA, Perrin JM. Decision analysis, economic
evaluation, and newborn screening: challenges and opportunities. Genet Med.
2012;14(8):703-712
20. Tarini BA, Goldenberg AJ. Ethical issues with newborn screening in the genomics era.
Annu Rev Genomics Hum Genet. 2012;13:381-93.
21. Allexan SS, Byington CL, Finkelstein JI, Tarini BA. Blindness in Walnut Grove: how did
Mary Ingalls lose her sight? Pediatrics. 2013;131(3):404-6.
15
22. Laventhal N, Tarini B, Lantos J. Ethical issues in neonatal and pediatric clinical trials.
Pediatr Clin North Am. 2012;59(5):1205-20.
23. Tarini BA, Lantos J. Lessons that newborn screening in the USA can teach us about
biobanking and large-scale genetic studies. Personalized Medicine. 2013; 10(1):81-87.
24. Scherer L, Fagerlin A, Zikmund-Fisher BJ, Tarini BA. Influence of “GERD” label on
parents’ decision to medicate infants with excessive crying and reflux. Pediatrics. 2013
May;131(5):839-45.
25. Tarini BA, Exe N, Zikmund-Fisher BJ. Anticipating the arrival of low penetrance genetic
testing to primary care medicine. J Comm Genetics. 2013; 4(2): 285-288.
26. Lee JM, Gebremariam A,Woolford S, Tarini BA, Valerio MA, Bashir S, Eason AJ, Choi
PY, Gurney J. A clinical risk score for identifying adolescents with dysglycemia. J of
Pediatr Endocrinol Metab. 2013; 26(5-6):477-88.
27. Wade CH, Tarini BA, Wilfond BS. Growing up in the genomic era: implications of wholegenome sequencing for children, families, and pediatric practice. Annu. Rev. Genomics
Hum. Genet. 2013; 14:535-55.
28. Tarini BA, Konczal L, Goldenberg AJ, Goldman EB, McCandless SE. The perils of SNP
array testing: uncovering unexpected consanguinity. Pediatric Neurology. Volume 49,
Issue 1, Jul 2013; 49(1):50-3.
29. Tarini BA, Herman WH, Lee JM. Effects of hypothetical type 2 diabetes genetic testing
on parents' efforts to prevent diabetes in children. Clin Pediatr (Phila). 2013 Sep;
52(9):821-8.
30. Goldenberg AJ, Dodson DS, Davis MM, Tarini BA. Parental interest in whole genome
sequencing of newborns. Genet Med. 2013 Jan; 16(1):78-84.
31. Lee JM, Eason A, Nelson C, Kazzi NG, Cowan AE, Tarini BA. Screening practices for
identifying type 2 diabetes in adolescents. J Adol Health 2013 Feb;54(2):139-43.
32. Madeo AC, Tercyak KP, Tarini BA, McBride CM. Effects of undergoing multiplex
genetic susceptibility testing on parent's attitudes towards testing their children. Ann Behav
Med. 2014 Jun;47(3):388-94.
33. Tarini BA, McInerney JI. Family history in primary care pediatrics. Pediatrics. 2013
Dec;132(Suppl 3):S203-10.
34. Rinke ML, Mikat-Stevens N, Saul R, Driscoll A, Healy J, Tarini BA. Genetic services in
primary care pediatrics: a survey of the quality improvement innovation networks’
physicians. Am J Med Genet A. 2014 Feb;164A(2):449-55.
35. Botkin JR, Lewis MH, Watson, Swoboda KJ, Anderson R, Berry S, Bonhomme N, Brosco
JP, Comeau AM, Goldenberg A, Goldman E, Therrell B, Levy-Fisch J, Tarini B, Wilfond
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B on behalf of the Bioethics and Legal Work Group of the Newborn Screening
Translational Research Network Parental Permission for Pilot Newborn Screening
Research: Guidelines from the NBSTRN Pediatrics. 2014 Feb;133(2):e410-7.
36. Roberts JS, Dolinoy DC, Tarini BA. Emerging Issues in Public Health Genetics. Annu.
Rev. Genomics Hum. Genet. Annu Rev Genomics Hum Genet. 2014 Aug 31;15:461-80.
37. Mikat-Stevens NA, Larson IA, Tarini BA. Primary care providers’ perceived barriers
towards integration of genetic services – a systematic review of the literature. Genetics in
Medicine (In Press).
38. Finan C, Nasr C, Rothwell E, Tarini BA. Primary Care Providers’ Experiences Notifying
Parents about Positive Cystic Fibrosis Newborn Screening Results. Clin Pediatr (Phila).
2014 Aug 6.
39. Tarini BA, Rothwell E, Allexan S, Finan C, Bottex MG, Schuen J, Nasr S. Parents’
Experiences Communicating About Positive Cystic Fibrosis Newborn Screening Results.
2014 Aug 6. [Epub ahead of print]
40. Dodson DS, Goldenberg AJ, Davis MM, Singer DC, Tarini BA. Parent and Public Interest
in Whole Genome Sequencing. Public Health Genomics. 2015 Mar 6. [Epub ahead of
print]
Editorials and Commentaries in Peer-Reviewed Journals
1. Tarini BA. Storage and use of residual newborn screening blood spots: a public policy
emergency. Genet Med. 2011;13(7):619-20.
2. Tarini BA. Communicating with parents about newborn screening: the skill of eliciting
unspoken emotions. Arch Pediatr Adolesc Med. 2012;166(1):95-96.
3. Tarini BA, Saul RA. Personalized Medicine in Primary Care: The Need for Relevance.
Personalized Medicine 2013; 10(6): 515-517.
4. Tarini BA. The Value of Time in Assessing the Effectiveness of Newborn Screening for
Congenital Adrenal Hyperplasia. JAMA Pediatrics2014 Jun;168(6):515-6.
Non-Peer-Reviewed Publications
1. Decamp LR, Dempsey AF, Tarini BA. Neonatal sepsis: looking beyond the blood culture evaluation of a study of universal primer polymerase chain reaction for identification of
neonatal sepsis. Arch Pediatr Adolesc Med. 2009;163:12-14.
2. Tarini BA. Delayed introduction of solids does not decrease the incidence of asthma or
allergic rhinitis. J Pediatrics. 2008;153(3):440.
3. Tarini BA, Christakis DA, Welch HG. False positive results in expanded newborn
screening: goat’s milk acidopathy: in reply. Pediatrics. 2008;122(1):211.
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4. Tarini BA, Christakis DA, Welch HG. False positive results in expanded newborn
screening: in reply. Pediatrics. 2007;119(2):415.
5. Tarini BA, Mendoza J. Use of serum electrolyte panels in gastroenteritis. Pediatrics. 2005
Apr; 115(4):1109.
6. Ringold S, Mendoza JA, Tarini BA, Sox C. Is duct tape occlusion therapy as effective as
cryotherapy for the treatment of the common wart? Arch Pediatr Adolesc Med.
2002;156(10):975-7.
Research and Policy Briefs (not peer-reviewed)
1. Tarini BA, Singer DC, Clark SJ, Davis MM. DNA Biobanks and Genetic Testing - For
Whom, and When? C.S. Mott Children’s Hospital National Poll on Children’s Health,
University of Michigan. 2007, Vol. 1, Issue 4, June 2007. Available at:
http://www.med.umich.edu/mott/research/cheargenetictesting.html
2. Tarini BA, Singer DC, Clark SJ, Davis MM. Most Parents Interested in At-Home
Personal Genetic Testing for Their Kids. C.S. Mott Children’s Hospital National Poll on
Children’s Health, University of Michigan 2010, Vol. 10, Issue 2, July 19, 2010.
Available at http://www.med.umich.edu/mott/npch/reports/genetic.html
Opinion/Editorial Publications in Lay Press (non peer-reviewed)
1. Tarini BA, Davis MM. Laws won’t erase genetic dilemmas. The Detroit News. May 28,
2008. Available at:
www.detnews.com/apps/pbcs.dll/article?AID=/20080528/OPINION01/805280315/1007/O
PINION
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