1. art and entertainment
2. radio

Data, Website and You
Sunday April 26th 2015
Semi‐Annual appeal
vs Hemophilia Alliance
Public radio's fund drive: An inevitable rite of spring
By Robert Zaretsky:A professor in the Honors College and Department of History at the University of Houston and contributor to "The Occupy Handbook."
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Story:
The signs of spring in Houston abound: buttercups are flowering along our highways, mosquitoes are strafing our Sunday picnics, and our local NPR station is threatening us with their upcoming fund drive. This event evokes, for me, the same mixture of dread and resignation I experience with the perennial flourishing of billboards asking if we've prepared for hurricane season
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Hemophilia Alliance
Members Meeting is coming up in spring.
SEND US YOUR DATA
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Story
The one difference is that the fundraising drives, though less catastrophic than a hurricane, last far longer.
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Alliance
We are always asking for your data.
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Story
As with the pounding and relentless warnings about the fund drive, all we can think is, "They're back!"
I confess a sense of guilt plays a role in my reaction. Though I regularly listen to KUHF, I have been an irregular member. Like the rest of us, I suspect, I have a number of strategies for dealing with this form of guilt.
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Story
Obviously, these are ethical feints: They no more address the real problem than does turning up my radio when I hear an odd clanking sound from my car's engine. The real problem is, as real problems often are, complicated. www.hemoalliance.org
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Alliance Members
DELETE, DELETE, DELETE ‐ emails
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Alliance Members
Sean who, never heard of him.
Audra, I know I have seen that name before.
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Story
Where does this leave us? Perhaps a helpful comparison is to the individual mandate in the health reform law. The mandate's rationale is that everyone must pay into a system from which everyone benefits. Otherwise, those who decided to opt out but then fall ill would become an even greater financial burden for the rest of society. This logic, impeccable for universal health care, clearly falls short when it comes to public radio's commitment to classical music. www.hemoalliance.org
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Alliance Members
Who supports who?
Feel guilty yet???
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Shows
All Things Considered
Ask Me Another
The Best Of Car Talk
Bullseye
Invisibilia
The Diane Rehm Show
Fresh Air
Here & Now
Latino USA
Morning Edition
On The Media
On Point
Radiolab
Snap Judgment
StoryCorps
TED Radio Hour
Wait Wait...Don't Tell Me!
Weekend Edition Saturday
Weekend Edition Sunday
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NPR Morning Edition
Every weekday (around 7am to 9am)for over three decades, NPR's Morning Edition has taken listeners around the country and the world with two hours of multi‐faceted stories and commentaries that inform, challenge and occasionally amuse. Morning Edition is the most listened‐to news radio program in the country.
Steve Inskeep
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Renee Montagne David Greeen
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Alliance Morning Edition
From: Joe Pugliese Sent: Thursday, April 9, 2015 5:44 AM
To: Sean Singh
Subject: Data Update How are the numbers looking?
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Alliance Morning Edition
From: Sean Singh
6:15 AM
Sent: Thursday, April 9, 2015 To: Joe Pugliese
Subject: Data Update Joe, Here is the update:
January February March
86%
86%
86%
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Alliance Morning Edition
From: Sean Singh
6:17 AM
Sent: Thursday, April 9, 2015 To: Audra Ames
Subject: Data Update Audra, Any updates on the numbers? Who do I need to reach out to? (code for sending out an email begging the HTC to send data to us)
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About Invisibilia
Invisibilia (Latin for "all the invisible things") explores the intangible forces that shape human behavior – things like ideas, beliefs, assumptions and emotions.
Alix Spiegel
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Lulu Miller
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Alliance Morning Edition
From: Audra Ames
8:41 AM
Sent: Thursday, April 9, 2015 To: Sean Singh
Subject: Data Update Sean, I sent out an email yesterday reminding the centers that we need their data. I will let you know the response today and then you can reach out to the centers (code for bringing down the hammer and really begging by phone). www.hemoalliance.org
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Ask me Another
Ask Me Another is the rambunctious live show from NPR and WNYC that blends brainteasers, pub trivia, comedy and music into an hour of mind‐bending fun. Host Ophira Eisenberg
invites guests and listeners alike to stretch their noggins, tickle their funny bones and be serenaded by house musician Jonathan Coulton. What you'll hear resembles the casual intimacy of game night at a friend's house: one where scores are forgotten in favor of hilarious gaffes.
Ophira Eisenberg Jonathan Coulton
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Data compilation is not simple
Baxter
Purchases made in calendar month
Based on delivery date not order date
Example: Order placed March 29th delivered March 30th – recorded in March
March 30th delivered April 1st – recorded in April
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Data compilation is not simple
Baxter
All Baxter Products
Advate
Recombinate
Rixubis
Feiba
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Data compilation is not simple
CSL
Purchases made in calendar month
Based on order date not delivery date
Example: Order placed March 29th delivered March 30th – recorded in March
March 30th delivered April 1st – recorded in March
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Data compilation is not simple
CSL
All CSL Products
Helixate
Monoclate
Mononine
Humate
Stimate
Corifact
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Data compilation is not simple
Pfizer
Purchases made in calendar month
Based on order date not delivery date
Example: Order placed March 29th delivered March 30th – recorded in March
March 30th delivered April 1st – recorded in March
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Data compilation is not simple
Pfizer
A little more information
Redistribution Benefix and Xyntha:
Assay size
Number of vials
Total units
Day of dispensation
NDC number
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Data compilation is not simple
Grifols
Products
Alphanate
Alphanine
Thrombate
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Data compilation is not simple
All Products purchased in a calendar month
Email – in the body of an email
Email – your reports that you run internally
Use the portal on our website – Data From
Send us postcards
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How can you get your data?
Manufacturer Summary of orders for previous month
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When do we need your data?
Contract for the 15th of the month
Takes time to compile
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On Point
Hosted by award‐winning journalist Tom Ashbrook, On Point is broadcast for two hours daily across the country on NPR. The show’s lively conversation covers everything from breaking news to ancient poetry, and features writers, politicians, journalists, artists, scientists and ordinary citizens from around the world.
Tom Ashbrook
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Why do all this?
Our members saved over $20 million in 2014 (includes Apexus savings)
For every $0.01 we save it has a big impact.
We purchase 800,000,000 (million) units
Savings $8,000,000
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Hemophilia Alliance 340B 2014 Savings = $7,105,311
Total 2014 Sub‐Ceiling Savings = $5,828,294
2014 Total Prompt Pay Discounts = $1,277,017
66.66% of Discounts Taken
FEIBA, $103,104 , 2%
RIXUBIS, $138,081 , 2%
rFVIII, $5,587,109 96%
Discounts Missed
$638,741
33.3%Discounts Taken
$1,277,017
66.7%
'All Things Considered'
On May 3, 1971, at 5 p.m., All Things Considered debuted on 90 public radio stations.
In the 40 years since, almost everything about the program has changed, from the hosts, producers, editors and reporters to the length of the program, the equipment used and even the audience.
However there is one thing that remains the same: each show consists of the biggest stories of the day, thoughtful commentaries, insightful features on the quirky and the mainstream in arts and life, music and entertainment, all brought alive through sound.
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Melissa Block Robert Siegel info@hemoalliance.org
Audie Cornish www.hemoalliance.org
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Secure Server
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Shows
All Things Considered
Ask Me Another
The Best Of Car Talk
Bullseye
Invisibilia
The Diane Rehm Show
Fresh Air
Here & Now
Latino USA
Morning Edition
On The Media
On Point
Radiolab
Snap Judgment
StoryCorps
TED Radio Hour
Wait Wait...Don't Tell Me!
Weekend Edition Saturday
Weekend Edition Sunday
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Bullseye
Bullseye is a public radio show about what's good in popular culture. With a keen editorial eye, Bullseye sifts the wheat from the chaff, and brings you hot culture picks, in‐depth interviews with the most revered and revolutionary creative people and irreverent original comedy.
Bullseye is equal parts funny and fascinating. Whether you're already plugged in to the culture map, or looking for a signpost, Bullseye will keep you on target.
Jesse Thorn
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What do you want?
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Searchable
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Email Upgrade
Secure Emails
Easier to share information internally
Spam – to you
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Radiolab
Radiolab is a show about curiosity. Where sound illuminates ideas, and the boundaries blur between science, philosophy, and human experience.
Jad Abumrad
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Robert Krulwich
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Newsletter
April 2015 Update
In this Issue...
Notes from Joe
· Stacia is Retiring?!?!?!?
Alliance Update
· All About the Alliance Pharmacy
· Reminder: Inaugural Physician-Led Meeting Scheduled for May 20th 2015 in Chicago
· Please Update your Information!
Payer Update
· Payer Survey Released!
· Key Health Insurance Terms
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Articles
What do you want to hear about?
Share a topic of interest….
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Snap Judgement
It's not just one thing, it's several things, back to back, that leave you in a place you never expected to be. Snap Judgment, storytelling with a beat...from PRX and NPR.
Glynn Washington
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Guest Writers
Get some feedback?
Planning an event to educate HTCs?
Just want to get your picture in public
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TED Radio Hour
An idea is the one gift that you can hang onto even after you've given it away. A journey through fascinating ideas: astonishing inventions, fresh approaches to old problems, new ways to think and create.
Based on Talks given by riveting speakers on the world‐
renowned TED stage, each show is centered on a common theme – such as the source of happiness, crowd‐sourcing innovation, power shifts, or inexplicable connections – and injects soundscapes and conversations that bring these ideas to life.
Guy Raz
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Webinars
Timely topics
Action Items
Contract Partners
Next Schedule
May 19th on Feiba
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Shows
All Things Considered
Ask Me Another
The Best Of Car Talk
Bullseye
Invisibilia
The Diane Rehm Show
Fresh Air
Here & Now
Latino USA
Morning Edition
On The Media
On Point
Radiolab
Snap Judgment
StoryCorps
TED Radio Hour
Wait Wait...Don't Tell Me!
Weekend Edition Saturday
Weekend Edition Sunday
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Wait Wait…Don’t Tell Me!
Wait Wait... Don't Tell Me! is NPR's weekly hour‐long quiz program. Each week on the radio you can test your knowledge against some of the best and brightest in the news and entertainment world while figuring out what's real news and what's made up.
Peter Segal
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Inaugural Physician‐Led Meeting Peer‐to‐peer conversation about the future of HTCs and how a 340B program can help HTCs serve their patients. The meeting will focus on the HTC network of 340B programs and how they can work together to continue to support and care for the bleeding disorders community. www.hemoalliance.org
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Inaugural Physician‐Led Meeting www.hemoalliance.org
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Inaugural Physician‐Led Meeting When: Wednesday May 20th 11 am to 3 pm CDT. Lunch will be served.
Who is invited: Members of HTCs who receive federal funds through a grant from MCHB.
Who should attend: Medical Directors, junior faculty, key administrative personnel.
Cost: There are no registration fees.
Where: Crowne Plaza Chicago O’Hare 5400 North River Road, Rosemont IL 60018. www.hemoalliance.org
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Logistics for Hill Day
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Here and Now
Here & Now reflects the fluid world of news as it’s happening in the middle of the day, with timely, smart and in‐depth news, interviews and conversation.
Co‐hosted by award‐winning journalists Robin Young and Jeremy Hobson, the show’s daily lineup includes interviews with NPR reporters, editors and bloggers, as well as leading newsmakers, innovators and artists from across the U.S. and around the globe. Robin Young Jeremy Hobson www.hemoalliance.org
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The Best of Car Talk
Car Talk is a Peabody Award–winning radio talk show broadcast weekly. Its subjects were automobiles and automotive repair, discussed often in a humorous way. It was hosted by brothers Tom and Ray Magliozzi, known also as "Click and Clack, the Tappet Brothers".
The show was produced from 1977 to October 2012, when the Magliozzi brothers retired. Edited reruns continue to be available for airing.
Tom Magliozzi Ray Magliozzi
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On the Media
While maintaining the civility and fairness that are the hallmarks of public radio, OTM tackles sticky issues with a frankness and transparency that has built trust with listeners and led to more than a tripling of its audience in five years.
Bob Garfield Brooke Gladstone
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StoryCorps
Since 2003, StoryCorps has collected and archived more than 50,000 interviews with over 90,000 participants. Each conversation is recorded on a CD to share, and is preserved at the American Folklife Center at the Library of Congress. StoryCorps is one of the largest oral history projects of its kind.
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The Diane Rehm Show
In 1979, Diane Rehm took over as host of WAMU’s midday program, Kaleidoscope, and in 1984, the name was changed to The Diane Rehm Show. In all the ensuing years, Diane has offered listeners thoughtful and lively conversations on an array of topics with many of the most distinguished people of our times.
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Paperless
We save paper and everything will be posted online
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Weekend Edition Saturday
Saturday mornings are made for Weekend Edition Saturday, the program wraps up the week's news and offers a mix of analysis and features on a wide range of topics, including arts, sports, entertainment, and human interest stories. The two‐hour program is hosted by NPR's Peabody Award‐winning Scott Simon.
Scott Simon
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Weekend Edition Sunday
Weekend Edition Sunday features interviews with newsmakers, artists, scientists, politicians, musicians, writers, theologians and historians. Every week listeners tune in to hear a unique blend of news, features and the regularly scheduled puzzle segment with Puzzlemaster Will Shortz, the crossword puzzle editor of The New York Times.
Rachel Martin
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Shows
All Things Considered
Ask Me Another
The Best Of Car Talk
Bullseye
Invisibilia
The Diane Rehm Show
Fresh Air
Here & Now
Latino USA
Morning Edition
On The Media
On Point
Radiolab
Snap Judgment
StoryCorps
TED Radio Hour
Wait Wait...Don't Tell Me!
Weekend Edition Saturday
Weekend Edition Sunday
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info@hemoalliance.org
Latino USA
Maria Hinojosa is an award‐winning news anchor and reporter for PBS and NPR, who covers America’s untold stories and highlights today’s critical issues. As the anchor and executive producer of long‐running weekly NPR show Latino USA she has informed millions about the changing cultural and political landscape in America and abroad. Maria Hinojosa
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Story
This particular culture, unlike health care, has no claim to universal status. Yet, because it is an increasingly marginalized and embattled culture, should public radio at the very least force its listeners to wonder if they are under a different kind of mandate to support the station? Despite the Hoboken listings, underwriter listings and Prairie Home Companion listings, I suspect we are.
I'll mutter, but I'll also write a check. www.hemoalliance.org
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How do you support….
YOUR HEMOPHILIA ALLIANCE????
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Thank You
We work for you
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