Progress Report Q1 2013 • P R OGRESS RE P O RT JA NUA RY - M A R C H 2 01 3 Hope Through Health Progress Report Q1 2013, Page 1 Dear Friends, I am excited to share Hope Through Health’s first quarterly progress report. Our hope is that this report will keep you informed about the impact that your support is having on the patients we serve in Togo, West Africa. In the following pages we share with you an honest portrayal of the successes and challenges we face in attempting to improve quality and expand access to health care for the most underserved in northern Togo. The first quarter of 2013 was an exciting period of growth for Hope Through Health and our partner organization, AED-Lidaw. • Our central Kara Clinic was recognized by the Ministry of Health for maintaining the highest adherence and lowest rates of loss to follow up in the Kara Region. • Staff implemented a new Monitoring, Evaluation and Quality dashboard designed with the help of Partners In Health and participated in computer literacy training conducted by MIT students from our partner organization, GlobeMed. • In the US, our first annual report was released (http://hthglobal.org/files/ HTH_2012_Annual_Report.pdf), we launched a new partnership with One Day’s Wages and our Annual NYC Benefit, held in January, was a huge success. As with all of our efforts, this report is a work in progress and we welcome your feedback. Please reach out to me or any member of our team with your questions and suggestions. We would love to hear from you and continue this dialogue about the transformative impact your support has on improving the health of individuals and communities in Togo. With gratitude, Jennifer Schechter, Executive Director e| jschechter@hthglobal.org c| 631.721.5917 Hope Through Health Progress Report Q1 2013, Page 2 About HTH MISSION Hope Through Health works to expand access to health care for all individuals through community driven initiatives in partnership with the public sector in Togo, West Africa. VISION Hope Through Health envisions a world in which high quality health care is available to all individuals regardless of their ability to pay thereby promoting equity and human dignity. VALUES HOPE | HTH believes that better health outcomes are possible even when there is some evidence to the contrary. HEALTH | HTH believes that health is more than the absence of disease or infection but includes the promotion of social, economic, educational and spiritual wellbeing. EQUITY | HTH believes in working to address the root causes of social and economic injustice to ensure that all individuals have an equal right to live healthy and productive lives. SOLIDARITY | HTH believes in working alongside and in collaboration with the people we serve to ensure responsiveness to their specific needs. COMMITMENT | HTH believes in making long-term investments to address global health inequities and bring about greater justice. OPERATING PRINCIPLES PARTNERSHIP | Establishing long-term relationships with local governments and communities in which all parties have an equal voice. HEALTH SYSTEMS STRENGTHENING | Strengthening the capacity of the public sector to effectively scale up quality health care services. COMMUNITY CAPACITY BUILDING | Supporting local groups engaged in improving the health of their own communities through medical, psychological and/or educational activities. ACCESS TO HEALTH CARE | Eliminating barriers in order to improve access to quality health care for all. GENDER BASED PROGRAMMING | Prioritizing services for women and children as the most effective means to strengthening entire communities. EVIDENCE BASED PRACTICE | Implementing medical and public health interventions through decision-making based on the best available evidence and information. MOVEMENT BUILDING | Fostering engagement and building connections across the globe in order to combine efforts into a larger movement for social justice. Hope Through Health Progress Report Q1 2013, Page 3 Selected Indicators Thanks to the generous support of Dr. Lisa Hirschhorn and her team at Partners in Health, especially Dan Chiu, Hope Through Health has piloted a new Monitoring, Evaluation and Quality (MEQ) dashboard which enables our team to easily analyze data and make program improvements in real time. A selection of indicators from the dashboard are presented here. Central Clinic 1 Satellite Clinics Kara Bafilo Ketao Kante Kabou Total 1110 229 124 79 39 1581 % Children 8% 14% 6% 15% 8% 10% % Women 71% 63% 69% 65% 82% 70% Number of Active Patients 2 Number of Patients on Antiretroviral Therapy 614 119 44 28 26 831 3 % ART Refill Appointments Respected 95% 61% 55% 48% 45% 61% 4 % ART Patients who had a CD4 Count in Last 6 Months 6% 0% 0% 0% 0% 1% 5 % Infants Who Test Positive for HIV 0% 0% 0% 0% 0% 0% 6 Number of Patients Benefiting from a Community Visit 435 160 61 62 24 742 7 Number of Beneficiaries at the Community Pharmacy 561 118 73 50 13 815 8 Number of Patients Participating in a Support Group 134 13 3 26 0 176 9 Number of Patients Receiving Psychosocial Counseling 142 70 45 21 0 278 120 0 0 0 0 120 10 Number of People Tested for HIV Highlights: - Extremely high adherence rate at central Kara site (Row 3) - Zero infants born to mothers living with HIV tested positive for HIV at 18 months (Row 5) Challenges: - Relatively low reported adherence rates at satellite sites (Row 3) - Extremely low percentage of patients having CD4 count due to lack of availability of CD4 testing reagents (Row 4) Hope Through Health Progress Report Q1 2013, Page 4 Case Study The purpose of this case study is to share stories of our work which illustrate the successes and challenges characterizing our efforts to improve global health equity. Introduction The indicators highlighted on the previous page reflect differences between Hope Through Health’s central Kara Clinic and our four satellite clinics. The Kara Clinic is a full-service health center providing comprehensive care to individuals living with HIV. HTH staff oversee every aspect of service delivery at this clinic from hiring, training and supervision through data collection and analysis. At the four satellite clinics, HTH works in partnership with the local district hospital. Hospital staff provide clinical services and HTH staff provide the wraparound services required to support patients in care, including home visits, access to the community pharmacy, food assistance, counseling and support groups. The central Kara clinic was born out of the necessity to provide HIV treatment services when none existed and demonstrates the impact of providing high quality care. In order to expand access to care for all Togolese, HTH believes that integration with public health centers, as modeled in our satellite centers, is the most effective way to scale our model. The following case study highlights both the need and challenges inherent in this approach. Background *All names have been changed to protect patient confidentiality Working in partnership with the National AIDS Program, HTH staff from our Ketao satellite center organized a day of HIV education and testing in a remote corner of their district. While this effort expanded access to necessary education and tesing services, the follow up required to ensure Hope Through Health HTH Counselor Sylvie providing home-based HIV counseling and testing access to care proved challenging both for community members and HTH staff. The First Failure An HTH staff member recalled the sad day, “Awa approached me holding the emaciated body of her dying child. I asked the baby’s age and she told me he was five months old, but from his size I would have guessed he was two months. We watched his little chest rise and fall with each breath, but any attempts to rouse him elicited no more than a fluttering of his eyelids. We took immediate action in getting permission from Awa’s family to take him to the hospital right away, but the baby’s life ebbed away between the time that permission was granted and when we reached the truck to leave.” For far too many of our patients, losing a child is often the first indication that there may be concerns about their own health. For Awa, the death of her child represented the end of a long and ardous struggle to access the health care her family so desparetely needed. Awa had taken her child to the health center in her village. Her house was just a ten-minute walk from the local health care provider, so she could access its services with ease whenever she needed them. Unfortunately, this local clinic did not provide the level of care required to save Awa’s child’s life. Progress Report Q1 2013, Page 5 Nana lives about a quarter of a mile away from Awa’s family in the same small village on the border with Benin. Both Awa and Nana tested positive for HIV during the rural HIV education and testing day organized by HTH. Sadly their stories illustrate two very different outcomes. When Awa tested positive for HIV, she had a CD4 count of just 57, a critically low value suggestive of advanced AIDS. Despite her own poor health, Awa fought hard to save the life of her child. After her child’s death, Awa’s family was reluctant to continue to invest in the health care system that had failed them. Awa’s family was poor even by the standards of the remote village in which they live. Awa never received antiretroviral therapy or any other treatment for HIV. Awa passed away within a year. The system failed her. A Second Chance When Nana’s brother-in-law heard that a day of HIV education and testing was being organized in his village he gathered all his family to come. These services rarely come to places as remote as his village, and the expense to go into town to access such services is considerable. This was an opportunity that he didn’t want any of his loved ones to miss. On the day of testing, Nana learned that she was HIV positive. Although she spoke to a counselor, like with Awa, no one followed up with Nana to ensure she had access to the necessary treatment services. The lack of follow up on the part of HTH following this rural testing program represents a tragic failure to serve those patients most in need. The fact that these two women were not immediately enrolled in care, quickly followed up on at home by a community health worker and provided with the highest possible quality of care and treatment represents a tragic failure in the delivery of our approach. The system that HTH is striving to build failed in this instance and the consequence was the loss of two lives, a mother and her child. Fortunately Nana’s health was strong Hope Through Health enough to give HTH a second chance. It took a valiant and creative effort on the part of one HTH staff person, but Nana was located and finally enrolled in care more than a year after initially testing positive for HIV. Thanks to the addition of an excellent new counselor to the HTH team, Nana was able to be counseled, retested and enrolled in care without leaving her village. Since that time, Nana has found that she has a healthy CD4 count, and established a relationship with a doctor who can monitor her HIV as well as treat her for epilepsy. Now HTH must ensure that Nana is assigned a community health worker who will provide home-based support and ensure Nana is retained in care for the long-term. “Hope Through Health believes that integration with public health centers is the most effective way to scale our approach.” Decentralized Care HTH’s philosophy of bringing necessary services as close as possible to patients guides our rural satellite strategy. While it is not always easy, relative to managing our own clinic in Kara, it is the most effective, scalable, long-term strategy to improve health outcomes for all Togolese. Acknowledging the tremendous barriers that patients must overcome to access care, we partner with district level hospitals and village health clinics to reinforce the services available closest to our patients. We support a network of community health workers who collaborate directly with public health facilities to ensure that patients can access and be retained in care at the local level. Awa and Nana’s stories illustrate the necessity of that approach. It is quite possible that bringing a counselor to Nana’s village made the difference between the loss of Awa and her child, and the health of Nana! We will make every attempt possible to learn from the failure of Awa’s story and to honor her memory by improving the care we provide to others. Progress Report Q1 2013, Page 6 Development Metrics Q1 Raised Q1 Target % Raised Annual Budget $71,699 $75,000 96% $282,350 January - March 2013 January - March 2012 Donation Amount Total Monies Raised Number of Donors Donation Amount Total Monies Raised Number of Donors <100 $4,552 82 <100 $4,106 80 100-499 $17,635 101 100-499 $6,260 33 500-999 $6,390 9 500-999 $2,750 4 1000-2499 $6,922 5 1000-2499 $4,200 3 2500-4999 $6,200 2 2500-4999 $5,000 2 10,000+ $30,000 2 10,000+ $20,000 1 TOTAL $71,699 201 TOTAL $42,316 123 Revenue by Campaign (January - March 2013) Grants Hope Through Health Progress Report Q1 2013, Page 7 Thank You to Our Supporters! January - March 2013 Stand With Us Members (Recurring Monthly Donors) Anonymous Kelsy Baker and Jeremy Dodd Paul and Sarah Balian William E. and Delphine Barron Jacqueline Bleazey Norbert and Catherine Chenard Al and Joanne Cimorelli Taylor and Cindy Corby Elia Cubillas-Saldana Peter Davenport Emma Davenport Abe and Alene de la Houssaye Aimee de la Houssaye Sam Eisner Laura Fiery Dawn Fiori Kevin and Deborah Fiori Kevin and Jennifer Fiori Thomas Fiori Devin Flaherty Daniel F. and Christiane D. Geisler Rachael Gerber Amy Glick Eric Goldman Nina Goldszejn Greg Hathaway Shannon Heuklom Karl Hofmann Katherine Holding Mark Ingram Fred Joiner Jr. Olgahelena Joos Ismail Kassam Amir Khastoo Chelsea Kocis Donald and Louise Krumm Mark Krumm Marybeth Krumm Paige Lapen Justin and Marjorie Locke Colleen Lynch Joan Marshall-Missiye Taylor Maturo Alyson McArdle Ryan McCannell Hope Through Health Josephine McCarthy Charles and Monica Merrill Joanie Smith Miller James Mills Danielle Jaeggi Murphy Gavin and Megan Oxman Michael and Christine Pata Camilla Pearson Natalie Powers John and April H. Quinlan Bryan and Alison Rash Jeremy Ritz-Totten Sabina Rogers Joanne Roll William Rubenstein Duncan and Eloise Schechter James D. Schechter Leslie Schechter John Simonetti Alisha Smith-Arthur Lindyn Soviero Melanie Spence Thomas and Karen Spence Kenneth Steward Michael Swor Paul and Kim Thomson Matthew Vaccaro Randy and Karen Veeh Casey and Jessica Whitsett Lanre Williams Founders Circle > $10,000 Anonymous William and Barbara Cowan Leaders Circle $2,500 - 5,000 Sarah Sallee William Racolin and Alison Williams Advocates Circle $1,000 - 2,499 Ivan Hageman and Carol Brown Partners Circle $500 - 999 Anonymous Michael and Rose Allocca Bill and Melinda Gates Foundation Matching Gifts Program Wayne and Ann Kennell Vincent and Jomarie Pica Helen Stein Mark and Jean Tansey Supporters Circle $100 - 499 Parham Alizadeh Evan Azus Elizabeth Bergold Annie-Norah Beveridge Elizabeth Bird Kelly Biscuso Tom and Linda Blucker Brian and Sandy Bochner John Buckley Mickey Chapman Jay Chen Anne Crisafulli Richard Cunningham Susie de la Houssaye Heather Dietrick Jonathan Dorfman Brittney Escovedo Daniel Fehlig Richard and Terry Landry Fisher Amanda Fitzsimons David Gold Zachary Goldsztejn Brian Hanlon Meghan Horstmann Alex Jacobs Isabella Johansen Ella Jolly Christina Kocis Marisa Lascher Rachel Lewis LG& Design Associates, LLC Michael LoBue Leah MacDonald Denise Maroney Dennis Math and Judith Ferbel Lisha McCormick Christine McKenna Joanna Merrill Kip Moncrief Lee Nussbaum Matthew Oxman Stephen and Patricia Oxman Justin Palmer Natalie Pica Lianne Pimentel Edward and Leslie Powers Ruth Rice Samantha Rosen Hilary Rovins Progress Report Q1 2013, Page 8 Kimberly Russell Rachel Sam Jackie Sansone Elizabeth Savetsky Douglas B. Schechter Jordan Sheff Tali Shmulovich Joshua and Juliana Simon Donna Slywka Michael and Grace Sole Douglas Soviero Masha Spaic Brian Spence Barbara Steward Brenda Steward Christine Walsh Cara Waltrip Ellen Wheeler Audrey White Pia Williams Deanna Witt Mira Nakashima Yarnall Victor Zonana Friends Circle < $100 Ken Ben-Ari Erinn Blicher Katie Callahan Kendra Elstad Jennifer A. Poulin Grden Chelsea Harris Jack Harris Amy Horne Daven Johansen Kathryn Kempton Amaral Chelsea Kilian Taylor Krauss Jon Lascher Ava Lentini Monica Lewis Philip Luloff Alena Lygate Liza Mackintosh Laura Mahony Tapan Maniar Kate McMullan Catherine Merschel Carolyn Mohsenzadeh Heidi Nakashima Vicki Nakashima Lauren Neidhardt Jenny Payne Tina Rojee Hope Through Health Michael Rudnick Jenni Samuels Xinshu She Laurie Sheff Gillian Singerman Socialvest Ventures LLC Chelsey Speir-Morrone Alexa Steponaitis Tida Tep Elizabeth Tung Ryan Turner Greta Velezdevilla Lauren Walsh Jackie Ward-Rebuck Ashley Waterman Elizabeth Weller *Every attempt has been made to ensure accuracy in the donor list. However, in compiling such a list, omissions and misspellings sometimes occur. Please advise us of any errors by emailing Kelly Lue at klue@hthglobal.org. Thank you. Progress Report Q1 2013, Page 9
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