The Building Volume IX Issue 1 January - March 2015 Block An e-newsletter of the J. D. McCarty Center for children with developmental disabilities Camp ClapHans to start year three Summer sessions start in June at camp for kids with special needs Camp ClapHans will begin its third year of operation on Sunday, June 14, with a full camp. Camp registration opened on Monday, January 12, and all 60 bunks were filled by the first week in March. “We are really happy about how quickly our camp filled this year,” said Kyle Cottrell, camp director. “I think it’s a testament to two things; the demand for a camp like ours and the quality of the program we offer.” This camp is located on the south end of the hospital’s 80-acre campus at 2002 E. Robinson in Norman. The camp features two cabins and a multipurpose building that are located next to an 11-acre lake. Activities for campers include archery, arts & crafts, camp fires, canoeing, fishing, horseback riding, talent shows and swimming. Cottrell said the camp offers kids with special needs a place where they can discover a new activity, make new friends and develop more independence. “Camp ClapHans is a great program that provides our campers with a fantastic experience. During their week at camp, our campers will participate in activities like horseback riding, archery, canoeing, crafting and games,” Cottrell said. “Our hope is that by participating in these activities, campers will have a boost in their self-confidence and a willingness to try new things that will stay with them even after camp is over.” Emily Reimer, 17, has attended Camp ClapHans for two summers and describes it as “one of the best experiences of my life.” “It has given me more confidence,” said Reimer, who has Asperger syndrome and cerebral palsy. Her mother, Traci, agrees. “Camp has been such a positive experience for Emily. She came home from the first year with a confidence that I had never seen before,” Traci Reimer said. “It was a life-changing experience that she talked about to everyone she saw.” Taylor Cannon, left, a counselor at Camp ClapHans, and camper Emily Reimer, 17, show off artwork they painted on their hands during a camp session in 2014. Reimer has attended Camp ClapHans for two summers and describes it as “one of the best experiences of my life.” Traci Reimer, of Mustang, said one of the reasons the family chose Camp ClapHans is because her daughter loves to camp and “we were interested in fostering some independence for her in a safe way.” “Emily has watched her two younger sisters go to camp/ sleepovers at friends, etc. with a great deal of envy. We were very excited with the idea that she could experience this without mom having to attend with her.” Continued on page 2 See Camp ClapHans Camp ClapHans “I would encourage other parents to send their kids to Camp ClapHans to give them the opportunity to have a safe place to experience independence,” Traci Reimer said. Camp ClapHans also features a 1-to-1 staff to camper ratio, registered dietitians on site to address dietary needs for campers and a physician and nurses are available to assist with any medical needs, Cottrell said. allied health care fields, such as physical therapy, occupational therapy and speech-language pathology; special and general education; outdoor recreation; nutrition and other related fields, he said. This summer camp will feature a superhero theme. The camp sessions will start on Sundays and end on Wednesdays. The schedule for 2015 is: • Session 1: June 14 - June 17 • Session 2: June 21 - June 24 • Session 3: June 28 - July 1 • Session 4: July 12 - July 15 • Session 5: July 19 - July 22 Also, camp staff members work with the McCarty Center therapists and psychological clinicians “to ensure campers’ social and emotional needs are being fulfilled,” Cottrell said. Camp staff members are typically university students who are working toward a degree in The Building Block The Building Block is published by the J. D. McCarty Center for children with developmental disabilities in Norman, Oklahoma, and is authorized by Vicki Kuestersteffen, director and ceo. This publication is distributed via e-mail. If you would like your name removed from our mailing list, please send an e-mail to ggaston@jdmc.org. Write The Building Block on the subject line. Write Please Remove in the message box. Director: Vicki Kuestersteffen Editor: Greg Gaston Associate Editor: Sharla Bardin Cerebral Palsy Commission: Rob McCalla Karen Rieger Joe Sher Joe Steil Chuck Thompson J. D. McCarty Center for children with developmental disabilities 2002 East Robinson Street o Norman, Oklahoma 73071 405.307.2800 o 800.777.1272 o www.jdmc.org Page 2 Eagle Scout candidate Nicholas Butler delivered a large box of coats and jackets he collected for an Eagle Scout project. Scout project brings warmth to JDM patients Boy Scout Nicholas Butler, 15, recently coordinated a winter clothes drive for the patients at the McCarty Center. Camper Jackson Cross demonstrates his balance during his horseback riding session at last year’s camp. Cross is riding an American Quarter Horse named King Glo Jessie. Fast Facts About Camp ClapHans Registration: Opened Monday, January 12 and closes Thursday, April 23. For registration information, contact Camp Director Kyle Cottrell at 405.307.2814 or e-mail kcottrell@jdmc.org or visit www.campclaphans.org. Age Limit: The camp is for kids ages 8 to 18. Cost: The cost to attend a three-day camp session is $325, and scholarships are available to families who quallify. Camp Location: The camp is located on the south end of the McCarty Center property at 2002 E. Robinson in Norman. Camp History: The camp opened in 2013 and is accredited by the American Camp Association. The camp is named in honor of the late Sammy Jack Claphan, a citizen of the Cherokee Nation and Oklahoma native. Claphan played football at the University of Oklahoma and graduated with a degree in special education. He played in the NFL with the Cleveland Browns and the San Diego Chargers. After retiring from the NFL, he returned to Oklahoma and taught special education. He died in 2001. The project was a part of his work to earn the rank of Eagle Scout. Nicholas, of Norman, is a member of Troop 242. He collected coats, sweaters, earmuffs and scarves that were donated by students from Norman North High School and Norman High School. Nicholas and other members of Troop 242 then delivered the clothes to the McCarty Center. The project helps kids at the hospital, and Nicholas said it also is a tribute to his late aunt, a former patient at the McCarty Center who died in 1986. “I think it was a really good project,” Nicholas said. Dance classes offered for kids with special needs Page 3 Program helps kids learn steps & to express themselves Children with special needs can learn to dance through a program at the McCarty Center. The classes started Feb 5 and will run for 12 weeks at the hospital. The classes are open to all children with special needs in the community who are 4 to 21 years old. “Dance gives kids an opportunity to try a new activity in a supportive environment, express themselves through movement, make new friends and discover new talents,” said Beth Morton, director of physical therapy at the McCarty Center. The classes were from 4 to 5 p.m. each Thursday at the McCarty Center at 2002 E. Robinson Street in Norman. Classes conclude with a recital April 24. Classes are led by volunteers with the Expressive Movement Initiative, a student organization at the University of Oklahoma that aims to introduce the art of movement as an expressive outlet for children with developmental disabilities. “The setup is unique in that every child is partnered with one volunteer throughout the course, so dance moves can be tailored to each child’s interests and abilities,” Morton said. “A therapist is also present to provide assistance and insight.” The hospital began hosting the dance classes in 2013 for inpatients and outpatients at the hospital, and later expanded to include children with special needs from the community. Morton said she often hears from kids who participate in the program about how much they look forward to the classes and how excited they are to perform for family and friends during the recitals. “As therapists, we stress the importance of children with disabilities getting to participate in the same activities as their typically-developing peers, and it’s exciting to offer and be a part of a program that does just that,” she said. Follow the McCarty Center on: Madison Deere, right, an OU student who volunteers with the dance program, works on a routine with dancer Mia Green during class last fall. Gutter Dance XII charity bowling event The Gutter Dance will be held on Thursday, May 7 at the Sooner Bowling Center in Norman from 6 to 9 p.m. The cost is $200 for a team of four and includes dinner, two lines of bowling, shoes and ball. Lots of fun and prizes are in store. For more information, contact Greg Gaston at 405.307.2807 or ggaston @jdmc.org. Gutter Dancer Page 4 On the road again! McCarty Center’s mobile screening program offers information, free screenings to families of children with special needs Team will visit Ringling at the end of March Families in southern Oklahoma who have children with special needs can learn about services to assist their children during a mobile screening program offered by the McCarty Center on March 27 in Ringling. Families have the opportunity to meet with the hospital’s screening team to find out about resources available through the McCarty Center and through state and federal programs. The hospital’s team will offer free screenings to children, including autism spectrum disorder screenings, to determine what services are available at the McCarty Center and throughout the state that could benefit them. Screenings will take place from 9 a.m. to 4 p.m. at the Ringling City Hall meeting room at 122 N. Fifth Street. The mobile screening program aims to reach more families in the state who have children with disabilities. Typically, a family must travel to Norman for a screening. Now, the mobile program brings that service to them. “We want to create opportunities for more of Oklahoma’s children with special needs to be reached and served by our staff,” said Vicki Kuestersteffen, director and CEO of the McCarty Center. The McCarty Center’s mobile screening team members are a nurse, social worker and psychological clinician. During the screening, the team meets with parents and their children to talk about the child’s medical, social and behavioral history. Team members also share information about the hospital’s inpatient evaluations, inpatient respite care and outpatient services along with information about state programs. Ringling marks the seventh stop for the mobile screening program. The screening team also has visited Holdenville, Tishomingo, Okmulgee, Perry, Atoka and Watonga. A trip to Alva earlier this year was canceled due to inclement weather. Kuestersteffen said one of the goals with the program is to meet with families in rural communities who may have limited access to services for children with disabilities. “Oftentimes, families in rural areas have time and distance as a barrier to receiving services. We want to eliminate that barrier and can do so with our mobile screenings, coupled with our teletherapy and home computer programs,” she said. The J. D. McCarty Center in Norman is Oklahoma’s center of excellence in the care and treatment of children with developmental disabilities from birth to 21. The hospital offers a free mobile screening program to reach more families in Oklahoma. Reaching out to more families The hospital started the mobile screening program in 2012 to reach out to more families, including those who live in counties that have not received McCarty Center services within a year. The McCarty Center, which is a state agency, provided services to children from 57 of Oklahoma’s 77 counties last year. Another benefit with the program is that it can help save time and transportation costs for families since they can meet with the screening team in a community near them, instead of traveling to the McCarty Center in Norman, said Darcie Ware, the hospital’s director of social services and a member of the screening team. Continued on page 5 See Mobile Screening Mobile screening Page 5 provided by Eskimo Sno. Live music will be provided by John the Franklin. The Norman Fire Department will have a fire truck on display. “As the only hospital of our kind in Oklahoma, reaching out to these areas through the mobile screenings has allowed children to receive services that might otherwise remain unavailable to them,” Ware said. Families who have participated in the mobile program said they appreciated the opportunity to learn about resources available for their children. John Al-Dabbagh brought his son, Randall, to the hospital’s first mobile screening in Holdenville in 2012. Al-Dabbagh said his son has an intellectual disability and he was looking for services that could help. Al-Dabbagh signed up for an appoiontment and is grateful he did. “I thought it was awesome. I was so happy,” he said about the screening. “I didn’t know that there were people out there that would help us like that.” Randall, 6, has stayed as an inpatient at the hospital, and his father has noticed a new maturity and independence in his son and cognitive improvements, such as Randall’s ability to put puzzles together. Al-Dabbagh said his son’s speech has also improved and he credits that success to Randall’s work with the McCarty Center’s speechlanguage pathologists. “Everyone has been great,” Al-Dabbagh said about the McCarty Center. Randall Al-Dabbagh, left, plays a game during his session with Jackie DeSpain, an occupational therapist at the McCarty Center. Randall’s family learned about the McCarty Center during a free mobile screening. McCarty Center hosts second annual Disabilities Awareness Week In 1987, President Ronald Reagan declared March to be Developmental Disabilities Awareness Month. The McCarty Center observed the occasion with a Developmental Disabilities Week event culminating with the second annual Developmental Disabilities Week carnival on Saturday, March 28. The carnival is open to the public, said Elizabeth Le, speechlanguage pathologist and carnival chairwoman. “The purpose of the carnival is to communicate to the public that people with disabilities are more than their diagnosis,” explained Le. “They are people first, with abilities, talents and dreams. People with disabilities, kids particularly, don’t see their disability. Ask them who they are and they will answer, ‘I am a student or artist or athlete or computer gamer.’ They never answer, ‘I am a person with a disability.’” The carnival will have games, arts and crafts, a balloon artist, inflatables, therapy dogs, photo booth, a dunk tank, food and snow cones Besides fun and games, various organizations and associations were on hand to provide information about their services and volunteer opportunities. The groups included: SibShops, The Oklahoma Autism Network, AutismOklahoma.org, Ability Connections, Humana, Dynavox communication devices, Fiddle Focus, an educational strategies and services company, Easter Seals and more. In conjunction with Oklahoma Safe Kids, the McCarty Center will conduct a child’s safety car seat check. Several of the McCarty Center staff are certified child safety car seat technicians. Carnival volunteer Amanda Gold completes painting a moustache on carnival attendee Cameron during last year’s Disabilities Awareness Week carnival. McCarty Center Speech-Language Pathologists (l-r) Randi Wilkie, Steffan Spain and Elizabeth Le stand behind their information table at last year’s Disabilities Awareness Week carnival. They shared information with the public about different kinds of augmentative communications devices that are available to children.
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