Connecting Wisconsin ASW 2010 Annual Conference ―Positively Autism‖ March 18-20, 2010
Connecting Wisconsin Fall 2009 Volume 19, Issue 4 ASW 2010 Annual Conference ―Positively Autism‖ March 18-20, 2010 Hotel Sierra/KI Convention Center, 333 Main Street, Green Bay, WI Toll Free (800) 236-3330; (920) 432-4555 www.hotel-sierra.com/locations/green_bay/default.aspx Look inside for registration materials. They may also be found on the website at www.asw4autism.org. We hope to see you there! March 18 March 19 March 20 Keynote Presenters: Preconference workshop—Paula Kluth, Ph.D. Morning Keynote—Temple Grandin, Ph.D. Afternoon Keynote—Eric Courchesne, Ph.D. ASW Would Like to Thank our Major 2009 Conference Sponsors! * WEAC * Autism Society of the Fox Valley * Autism Society of Northeast Wisconsin * Chippewa Valley Autism Society For information on purchasing ad space for the ASW conference program contact Jane Pribek at (920) 973-4080 or email jpribek@asw4autism.org * Karen Gremminger & Mark Bullard Donor Advised Fund of the Oshkosh Area Community Foundation * Fox Valley Autism Treatment Program For 2010 Conference sponsorship opportunities contact Jane The ASW Annual Meeting will be held on Friday, March 19 at 4:45 pm. All ASW members are welcome to attend. Pribek at jpribek@asw4autism.org or phone (920) 973-4080. In This Issue: Presidents Message/Important Membership Information 2 2009 Holiday Appeal 3 General 2010 Conference Information― Thursday Preconference and Friday Keynote Friday Schedule and Evening Events 3/4 6 7/8 Saturday Schedule 9 2010 ASW Conference Registration Form 10 Special Events Registration 11 Youth Information Sheet 12 Wisconsin Chapter Updates 13 ASW 2010 ANNUAL ESSAY CONTEST ―My Friend with Autism” In recognition of Autism Awareness Month, the Autism Society of Wisconsin (ASW), with support from the Department of Public Instruction (DPI), is sponsoring its 5th Annual Autism Awareness Essay Contest. Information will be sent to every Public and Private School Building Principal in Wisconsin. Winners will be honored at the ASW Conference on Saturday, March 20th, at the Hotel Sierra/KI Convention Center in Green Bay. For an entry form, go to www.asw4autism.org, or email jpribek@asw4autism.org or call920-973-4080. Dear ASW Members, I would like to provide you with (1) a brief update on the Autism Insurance legislation, and (2) a heads up on a very important upcoming Annual 2010 ASW conference on March 18-20 at the Hotel Sierra (formerly the Regency Suites) in Green Bay. Autism Insurance Legislation The autism mandate, contained in the state budget, is effective for newly issued policies on or after November 1, 2009. For existing policies the law is effective upon the renewal date of the policies on or after November 1, 2009. (This means if a policy just renewed Sept 1 2009 the law would not be effective until the policy renewed Sept 1, 2010.) For plans or policies tied to a collective bargaining agreement, it first applies to the renewal date on or after November 1, 2009.The law applies to disability insurance policies, excluding limited services or specific/single disease policies (i.e., dental only, vision only), long-term care and Medicare supplement policies. The law also applies to self-funded governmental policies (i.e. state, county, city, town, village, or school district) plans but would not apply to a non-governmental self-funded plan (i.e., ABC company self-funded plan). This applies to both individual and group health insurance plans. If you are uncertain whether your employer sponsored health insurance is insured or self-funded you should ask your human resource department or call your insurer. Insurers or self-funded governmental plans shall provide coverage for the primary diagnosis of autism spectrum disorders for a minimum of $50,000 per year for intensive evidence-based behavioral services or $25,000 for non intensive evidence-based services. The Office of the Commissioner of Insurance promulgated emergency rules implementing and interpreting this law that are effective November 1, 2009 and there will be a public hearing for both the emergency and permanent rule later this fall. Frequently Asked Questions (FAQ) in plain language on the subject of Autism Insurance will soon be available on the ASW listserve and on the ASW website. ASW 2010 Annual Conference The conference keynote speakers are Temple Grandin, Paula Kluth and Eric Courchesne. As many of you know, Temple Grandin, Ph.D., is inarguably the most accomplished and well-known adult with autism in the world. She has been featured on major television programs, such as "ABC's Primetime Live", the "Today Show", "Larry King Live", "48 Hours" and "20/20" and written up in national publications, such as Time magazine, People magazine, Forbes, U.S. News and World Report, and New York Times. Paula Kluth, Ph.D., will be addressing the topic of ―The Problem with Behavior Problems: Supporting Students with Autism & Other Disabilities‖ Come and explore fresh ways to think about ―behavior problems‖ in inclusive schools. Dr. Kluth will examine where problems come from, who ―owns‖ them, and how our language and approaches can both create behavior struggles and minimize them. Eric Courchesne, Ph.D., is one of the world’s leading experts on the neurobiology of autism. He is the overall Director and principle investigator of the UCSD Autism Center of Excellence, and is also the director of the UCSD Autism Center’s MRI Project on early brain development in autism. In addition to these key speakers, a multitude of sectionals will be available as well. To register for the 2010 Annual Conference, please see page 10 of this newsletter. Nissan B. Bar-Lev, ASW President Dear ASW Members, Beginning January, 2010, your membership will be handled through the national office as part of a Unified Membership offered by the Autism Society of America. Recently we began offering just a local and state membership fee. The Autism Society of Wisconsin has joined with the Autism Society’s national headquarters to offer our members a single, unified membership program. We are very excited about this opportunity because it provides you with some real advantages: We are offering all of our current members one bundled price of $25 for a household membership – that’s more than 35% discount off the current national membership fee. You will continue to enjoy all of the benefits you have always received from the Autism Society of Wisconsin. PLUS you will receive 4 issues of Autism Advocate, the journal published by our national organization You will receive your renewal notifications from our National office only, so there’s less information you need to keep track of. ASW will no longer collect dues or send out reminder notices Please pay attention to your mail and know that when you receive a letter from the Autism Society, it is your membership renewal notification. I hope you will take advantage of this great opportunity and renew your membership in the Autism Society. Your membership is very important to us. In addition to the unified membership program, we are adding a ―new look‖ with the current ASW logo. We will be including the Autism Society Logo in our publications to reflect our long standing relationship as a chapter of the Autism Society of America. Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 2 Fall 2009 Dear ASW Members, Friends and Supporters, 2009 has been a year to celebrate! Due to the unwavering support of Governor Jim Doyle and the genuine commitments of key legislators, Wisconsin is about to inaugurate an unparalleled autism insurance coverage. It is head and shoulders above any other autism insurance program in the country. ASW is proud to be a part of this change. We thank each family who took the time to testify at the hearings or contact their legislators. Your voice was heard, loudly. Along with celebrating, there is a great cause for concern. The prevalence rate of autism is increasing. Estimates are now between 1-91 to 1-100 births, according to the Autism Society of America. ASW is not prepared for the growing numbers of autism in Wisconsin. We need your help. ASW is asking for your financial support during this season of holiday giving. How about giving the gift that will bring meaning and hope to families throughout Wisconsin? Because of supporters like you, ASW has been able to provide: A toll-free help line for families, educators and other community members The only annual conference on issues across the lifespan that affect families, educators and service providers A critical leadership role in legislative issues that impact families affected by autism in Wisconsin National connection with the Autism Society of America, the strongest grassroots autism organization in the country that provides advocacy at the national level Free Next Steps booklets, a resource for families new to the diagnosis of autism An online dialog for parents and the autism community that offers comfort, support, and the exchange of ideas and information FREE resource materials to families, therapists, educators and others affected by autism On-going statewide collaborative efforts with educational and human services agencies Promoting early identification and timely diagnosis by educating health care professionals about autism ASW is the ONLY sustaining autism organization that provides on-going support to families across the state— You can join us in helping make a difference for people affected by autism in Wisconsin. Please give generously to the ASW this holiday season. Children being diagnosed with autism today, are going to need services today, tomorrow and most likely, in the future. Help us make brighter futures for our children and families today. ALL MONIES STAY IN WISCONSIN to support Wisconsin families and others affected by autism IN WISCONSIN. You can donate safely and securely on our website at www.asw4autism.org and click the blue DONATE NOW button or if you wish, send a donation in the mail to: ASW, 1477 Kenwood Drive, Menasha, WI 54952 Please send my gift receipt to: Name Address City, State, Zip I want to donate anonymously The Autism Society of Wisconsin is a 501 c 3 organization, FEIN # 39-1353925. Your donation is fully tax deductible. With Sincere Appreciation and Best Wishes for the New Year, The Autism Society of Wisconsin Board of Directors Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 3 Fall 2009 General Conference Information Lodging reservations must be made directly with the hotel. Call: toll free 800-236-3330. Call soon; a limited number of rooms are blocked at a special rate of $105 per night for single or double occupancy standard double or king suite; $147 for a single or double occupancy executive suite. Room reservation cut off date is February 19, 2010; all unconfirmed rooms will then be released to the general public. Hotel Sierra / KI Convention Center, 333 Main Street, Green Bay, WI 54301. www.hotel-sierra.com. Directions can be found on the Hotel Sierra website at www.hotel-sierra.com. Parking: Complimentary parking is available for Hotel Sierra overnight guests. Additional parking is located at the Main Street Parking Ramp connected via skywalk to the hotel. The current charge is fifty (50) cents per hour. This is a city-owned parking structure, and the Hotel has no control over prevailing rates. Complimentary Breakfast & Beverages: All overnight guests will enjoy a full breakfast each morning from 6:30 a.m. to 9:30 a.m. Thursday and Friday, and 6:30 a.m. to 10:00 a.m. on Saturday and Sunday in the West Atrium. All overnight guests who are at least twenty-one (21) years of age are invited to enjoy complimentary beverages each evening in the West Atrium. Complimentary Amenities: All overnight guests are invited to indulge in the complimentary use of a large indoor pool, whirlpool, sauna, steam room, and exercise room. In order for ASW to NOT increase the conference fee during these difficult economic times, lunch will be provided Thursday ONLY, for the pre-conference workshop. Friday and Saturday, all attendees will be on their own for lunch. Lists of restaurants in the area will be available at the registration desk. Scholarships for Parents: WI FACETS, Wisconsin’s Parent Training and Information Center, has a limited number of partial scholarships available for parents of Birth to 6 year old special needs children to attend their first professional development conference. Please call 414-374- 4645 for more information. County Funded Programs/Waiver Programs: Check with your county coordinators. Most cover expenses for parent trainings. Local Chapters: Check with your local Autism Society chapter. Several of them offer scholarships. ASW: ASW has a limited number of Parent Scholarships available. Contact the ASW office to apply. REDUCED REGISTRATION FEE FOR CURRENT ASW/ASA MEMBERS: If you receive the ASW newsletter, this does not mean that you are an ASW member. Your newsletter mailing label states your status. If you are a current member with either a local chapter or ASW, your label will state your expiration date. You will not be able to register for a member discount unless you are a current member OR you are a parent of a child with an autism spectrum disorder. All registration forms must be complete and accompanied with a check, purchase order, or Visa or MasterCard information. Only an e-mail confirmation will be sent, if provided with an e-mail address. Registration deadline is March 5, 2010. On-site registration is subject to an additional $25 fee and space availability. Handouts are not guaranteed. Written cancellation requests must be received by March 5, and will be charged a $25.00 processing fee. No refunds after March 5, 2010. $30.00 fee for returned checks or denied charges. Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 4 Fall 2009 TIPS for conference attendees: Dress is casual; it is helpful to bring a pad of paper, pen/pencils and highlighter. Upon arrival, go to the ASW registration desk to check in and receive your name tag and conference book. If possible, arrive early, take time to browse through the conference information, check agenda to note any changes and check the hotel map to know where the sessions you plan to attend are located. Some sessions are very popular so try to get to the session as early as possible to be sure of having a seat. Take time to browse the bookstore and exhibits; talk to the exhibitors. Take time to network with others; Friday evening activities are a great place to do this. Realize that rooms will be too warm/cold for some, just right for others. Dress in layers. You can expect some sessions may have audio-visual equipment problems. ASW will make every effort to accommodate your individual needs. If you require assistance to fully participate in this conference, ASW requires notification by February 12, 2010. If you are registering your child with an autism spectrum disorder for the conference, please keep in mind that the child needs to be at least 10 years of age, and accompanied by a support person, if needed. Child care is not available! Questions or Special Needs: Email jpribek@asw4autism.org or call 920-973-4080. REGISTRATION FORMS Regular Registration Form: Parent/and or ASW Member – this is the fee if you are a family member of an individual on the autism spectrum, and/or if you are a current ASW dues paying member. Non-Member/Professional – this is the fee if you are NOT a dues paying member of ASW. Person with ASD – this is the fee for individuals with an autism spectrum disorder registering for the conference. Support Person – this is the fee for an individual attending the conference strictly to provide support for an individual on the autism spectrum that is also attending the conference. Special Events Registration Form: This form is used for individuals on the autism spectrum who are attending the conference and wish to participate in either or all of the following: Art Show, Favorite Things Display, or Talent Show. GRADUATE CREDIT: One Graduate Credit can be applied for, through Viterbo University, for attending any two days of the conference. Apply and pay for this credit when you arrive at the conference. Pre-Requisite: Bachelor’s Degree Fee: $160.00 ASW 2010 Conference Sponsorship and/or Advertising: Anyone interested in being a sponsor of the 2010 ASW Annual Conference, or in purchasing advertising space in our 2010 Conference Proceedings, should contact Jane Pribek at jpribek@asw4autism.org, or by calling 920-973-4080. You can also find the informational packet on the ASW website, www.asw4autism.org. RAFFLE: The ASW basket raffle will be available during the conference. If you or your organization would like to donate a themed basket or an item for the raffle, please contact Kelly Brodhagen at asw@asw4autism.org, or 888-4AUTISM. Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 5 Fall 2009 Pre-Conference Workshop Thursday, March 18th Paula Kluth, Ph.D. Registration: 7:30-8:15 AM Workshop: 8:15 AM–4:30 PM Break: 10:00–10:30 AM Lunch: 12:00-1:00 PM (included) Break: 2:30–3:00 PM Exhibits: 10:00 AM–5:00 PM “The Problem with Behavior Problems: Supporting Students with Autism and Other Disabilities” Come and explore fresh ways to think about “behavior problems” in inclusive schools. We will examine where problems come from, who “owns” them, and how our language and approaches can both create behavior struggles and minimize them. We will discuss how educators can avoid challenging moments by listening, teaching, collaborating, including and thinking out of the box. Paula Kluth Biography Dr. Paula Kluth is a consultant, teacher, author, advocate, and independent scholar who works with teachers and families to provide inclusive opportunities for students with disabilities and to create more responsive and engaging schooling experiences for all learners. Paula is a former special educator who has served as a classroom teacher, consulting teacher, and inclusion facilitator. Her research and professional interests include differentiating instruction, and supporting students with autism and significant disabilities in inclusive classrooms. She is the author of “You’re Going to Love This Kid”: Teaching Students with Autism in Inclusive Classrooms ; the lead editor of Access to Academics: Critical Approaches to Inclusive Curriculum, Instruction, and Policy, and the co-author of four texts: A Land We Can Share: Teaching Literacy to Students with Autism; Joyful Learning: Active and Collaborative Learning in the Inclusive Classroom; You’re Welcome: 30 Innovative Ideas for Inclusive Schools, and Just Give Him the Whale: 20 Ways to Support & Honor the Passions & Interests of Students with Autism. Registration: 7:30-8:15 AM Opening Keynote: 8:15 AM–10:30 AM Break: 10:30–11:00 AM Breakout Session: 11:00 AM–12:15 PM Lunch: 12:15-1:30 PM (on your own) Breakout Session: 1:30-2:45 PM Break: 2:45–3:15 PM Breakout Session: 3:15-4:30 PM Exhibits: 7:30 AM – 5:00 PM ASW Annual Meeting: 4:45-6:00 PM Pizza Buffet for Individuals with ASD: 5:30-6:30 PM Talent Show: 7:00-8:00 PM Reception/Dance: 8:00-10:30 PM Morning Keynote: 8:15 –10:30 AM Friday, March 19 Temple Grandin, Ph.D. “An Inside View of Autism” Temple Grandin, Ph.D. is inarguably the most accomplished and well-known adult with autism in the world. She has been featured on major television programs, such as “ABC’s Primetime Live”, the “Today Show”, “Larry King Live”, “48 Hours” and “20/20” and written up in national publications, such as “Time” magazine, “People” magazine, “Forbes”, “U.S. News and World Report”, and the “New York Times”. Dr. Grandin has become a prominent author and speaker on the subject of autism, presently working as an Associate Professor at Colorado State University, and speaking around the world on both autism and cattle handling. Dr. Grandin’s books include “The Way I See It”, “Animals Make us Human”, “Unwritten Rules of Social Relationships”, “Animals in Translation”, “Developing Pictures”, “Thinking in Pictures”, and “Emergence: Labeled Autistic”. Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 6 Fall 2009 Friday and Saturday Breakout Session Strands: Education: The Education Strand sessions are those that can benefit individuals with autism spectrum disorders in the educational setting. Home/Community: The Home/Community Strand sessions deal with issues that can benefit those on the autism spectrum in their home environment or in the community. Intervention: The Intervention Strand sessions are sessions dealing with different approaches of intervention for those on the autism spectrum. Across the Lifespan: This Strand includes topics of interest across the lifespan concerning those with Autism Spectrum Disorders. Youth Activities: This strand includes topics of interest to our younger conference attendees (and to all adults who are young at heart). Parent, guardian, or support person must accompany child, if registered as a support person for the conference. All STRANDS ARE OPEN TO ALL CONFERENCE ATTENDEES A. Friday Morning Breakout Sessions: 11:00 – 12:15 A1. Education I: Presenter – Susan L. Stokes, M.A., CCC-SLP, Educational Autism Consultant. “It’s All About Independent Functioning! Developing Critical Life-Skills for Students with Autism Spectrum Disorder” A2. Education II: Presenters – Susan Heighway, M.S., PNP-BC, APNP, Clinical Professor and Nurse Practitioner – Waisman Center, Madison, and Jo Cauley, Advocacy Specialist – Disability Rights Wisconsin. “How to Talk About Sexuality With Your Adolescent, Even when You’d Rather Not” A3. Home/Community: “Dad’s Panel” (for Dad’s only) A4. Intervention: Presenter – Kelly Bur Shariff, M.S., CCC-SLP. “Socialization Groups for Preteens to Young Adults” A5. Across the Lifespan: Presenter – Peggy Helm-Quest, M.S. Ed., MHA, Consultant for WI Children with Special Health Care Needs. “Autism for Action – Using Language, Messaging, and Videos to Change Culture and Support Inclusion” A6. Youth Strand: Presenter – Jeremiah Swisher, young adult with autism. “Living the College Life” B. Friday Afternoon Breakout Sessions: 1:30 – 2:45 B1. Education I: Presenters – Brian Johnson, Autism Educational Consultant – WI Department of Public Instruction, Ellen Franzone, Special Education Team – WI Department of Public Instruction, and Kate Luskin, Special Education Team – WI Department of Public Instruction. “Evidence Based Practices: What’s Working!” (C2 will be a continuation of this session.) B2. Education II: Presenters – Nelsinia Ramos, Youth Information Training & Resource Center Leader - WI FACETS, and Jenny Stonemeier, Parent Leadership Specialist – WI FACETS. “Meaningful Involvement in the IEP” B3. Home/Community: Presenter - Bob Johnston, MetDESK® Specialist, Financial Adviser, Financial Services Representative – MetLife’s Division of Estate Planning for Special Kids. “Your Dependant with Special Needs: Making Their Future More Secure” B4. Intervention: Pam Stoika, Ph.D., Developmental Psychologist – Integrated Development Services (IDS). “Play to Talk: Practical Strategies to Help Your Late-Talking Child Join the Conversation” Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 7 Fall 2009 B5. Across the Lifespan: Presenters – Wendy Partridge, M.S., Northern Illinois Field Organizer – Illinois Association of Microboards and Cooperatives, Quinn Partridge, sophomore – Guildford High School, Rockford, IL, person with autism, and Chris Beichler, Quinn’s long time friend, and Manager at Home Depot in LaCrosse. “Communication = Life”. B6. Youth Strand: Kelly Bur Shariff, M.S., CCC-SLP, and ASW Volunteers. “Not So Extreme Makeovers: ASW Edition” (open to female ASD youth and adults only.) C. Friday Afternoon Breakout Sessions: 3:15 – 4:30 C1. Education I: Presenters – Julie LaBerge, Director of Pupil Services/School Psychologist – Bonduel School District, Lisa Sorlie, Regular Education Teacher – Bonduel School District, Cheryl Turner, Speech and Language Therapist – Bonduel School District, and Lindsay Golbach, Special Education Teacher – Bonduel School District. “Peer Mediated Instruction & Intervention (PMII): An Evidence-Based Practice that Works!” (This session is a continuation of session B1.) C2. Education II: Presenter – Peggy Bartman, Autism Consultant/Occupational Therapist – CESA 6. “Understanding and Programming for Sensory Processing Differences in Children with Autism Spectrum Disorder” C3. Home/Community: Presenters – Sharon Hammer, Masters Level Psychotherapist/Educational and Behavioral Consultant – Imagine a Child’s Capacity, Lisa Hoeme, Masters Level Rehabilitation Counselor/Educational and Behavioral Consultant – Imagine a Child’s Capacity, and Lisa Ladson, Board Certified Associate Behavior Analyst/ Educational and Behavioral Consultant – Imagine a Child’s Capacity. “Bringing Home Autism Supports” C4. Intervention: Presenters – Julie Gamradt, M.S., CCC-SLP/Director and Therapist for Communication Aids & Systems Clinic and the Communication Development Program – Waisman Center, Madison, and Kristin Kraak, SpeechLanguage Pathologist/Augmentative Communication Specialist for Communication Aids and Systems Clinic – Waisman Center, Madison. “Augmentative & Alternative Communication Across the Spectrum: Options, Strategies & Issues” C5. Across the Lifespan: Presenter – Linda Nelson Keane, AIA, NCARB, Professor of Architecture – School of the Art Institute of Chicago, and advocate for children with autism in the public school setting. “Scripting Life: From Toddler to Teenager” C6. Youth Strand: Special event – to be announced. Friday Evening Activities Talent Show, Reception and Dance. This evening begins with a talent show, featuring individuals on the autism spectrum and their special talents. Please come and cheer them on! Following will be a reception, music and dance. These events are open to anyone who wishes to attend. A good time is usually had by all, so please join us! Registration: 8:00-8:30 AM Saturday, March 20th D. Saturday Morning Breakout Sessions: 8:30 – 9:45 Breakout Session: 8:30-9:45 AM Break: 9:45–10:15 AM Breakout Session: 10:15-11:30 AM Lunch: 11:30-12:45 PM (on your own) Closing Keynote/Essay Awards Presentation: 12:45-3:00 PM Exhibits: 7:30 AM–2:00 PM D1. Education I: Presenter – Judy Endow, MSW/International Speaker, Author and Consultant. “The Hidden Curriculum for Older Adolescents and Adults” D2. Education II: Presenters – Jan Serak, Executive Co-Director of WI FACETS, Partner in the Wisconsin Special Education Mediation System, and Nissan Bar-Lev, CESA #7 Director of Special Education, Partner in the Wisconsin Special Education Mediation System, President of the Autism Society of Wisconsin. “What Can Educators & Parents Do to More Effectively Manage Conflict at Earlier Stages?” D3. Home/Community: Presenter – Kelly Brodhagen, Administrative Coordinator – Autism Society of Wisconsin, parent of two sons with autism. “Autism Primer: Where Do I begin?” Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 8 Fall 2009 D4. Intervention: Presenters – Andrea Whalen, Senior Therapist – Wisconsin Early Autism Project, and Chris Polacek, Clinical Supervisor – Wisconsin Early Autism Project. “Maximizing Success: Ideas for Working with Individuals Who Have ASD with Additional Diagnoses” D5. Across the Lifespan: Presenters – Lynn Stansberry-Brusnahan, parent of young adult with autism, Assistant Professor in autism spectrum disorders certificate and master’s program – University of St. Thomas, Minnesota, and James Williams, young adult with autism and author of “Out to Get Jack”. “How to Help Teenagers and Adults with ASD to Make Social Connections” D6. Youth Strand: Presenter – Kelly Bur Shariff, M.S., CCC-SLP. “Autism Pride Phase 2: A Group Discussion of the Positive Aspects of Autism Spectrum Disorders” E. Saturday Morning Breakout Sessions: 10:15 – 11:30 E1 Education I: Presenter – Susan L. Stokes, M.A., CC-SLP, Educational Autism Consultant. “Applications Galore! Practical Solutions for Increasing Independent Functioning Using the iPhone / iTouch” E2. Education II: Presenter – Lisa Hoeme, Masters Level Rehabilitation Counselor/Educational and Behavioral Consultant – Imagine a Child’s Capacity. “Neurotypical Mistakes” E3. Home/Community: Presenters – Timothy Markle, Associate Outreach Specialist – Connections Initiative for ASDs and other Developmental Disabilities, and Kirsten Cooper, Autism Liaison Specialist – Northeast and Southeast Regional Centers for CYSHCN through the Autism Connections Initiative. “A Community Conversation on Resources Concerning Autism Spectrum Disorders and other Developmental Disabilities” E4. Intervention: Presenters – Kara Stevenson, M.S., Residential Services Director – Oconomowoc Developmental Training Center’s ICARE (Innovative Care for Autism and Related Disorders) Program, and Dr. Jeffrey Krukar, Licensed Psychologist – Oconomowoc Developmental Training Center. “ICARE: A Comprehensive Relationship-Based Intervention Program” E5. Across the Lifespan: “Panel of Experts”. E6. Youth Strand: Presenter – James Williams, young adult with autism and author of “Out to Get Jack”. “Facebook 101 for Individuals with Autism” Closing Keynote: 12:45-3:00 PM Dr. Eric Courchesne “The Neural Origins of Autism: Evidence of Prenatal and Early Postnatal Brain Growth Abnormalities” Research on possible brain growth defects in autism during early fetal development in autism will be presented. Such early abnormalities could lead to aberrant brain growth and function during the first two years of life and to the emergence of autistic behaviors. Eric Courchesne is one of the world’s leading experts on the neurobiology of autism. He is the overall Director and principle investigator of the UCSD Autism Center of Excellence, and is also the director of the UCSD Autism Center’s MRI Project on early brain development in autism. His research and the Center are dedicated to uncovering the brain bases and genetic causes of autism. Current MRI studies of autism aim to identify the brain structures that are abnormal at infancy in autism and to discover patterns of abnormal early brain growth. Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 9 Fall 2009 CONFERENCE REGISTRATION Autism Society of Wisconsin 2010 Annual Statewide Conference Thursday, March 18th – Saturday, March 20th, 2010 In order for us to serve you effectively, ASW recommends you pre-register for the conference. All prices listed are per person; you must be a current member for reduced fee; check the mailing label on your ASW newsletter for membership status and expiration date. Lunch will be provided for the Thursday Preconference ONLY. Purchase orders and/or group registrations must be submitted simultaneously. Registration will be accepted by mail or fax only. Registration forms must be filled out completely and a form of payment must be included; forms of payment include a purchase order, credit card authorization or a check, made payable to ASW Conference. Pre-registrations are due no later than Friday, March 5, 2010 via mail or fax. ASW will make every effort to accommodate your individual needs. For special assistance, ASW requires notification by February 12, 2010. Special meal requests should be made no later than March 5, 2010. Questions or special needs: email jpribek@asw4autism.org or call 920-973-4080. PLEASE PRINT; USE ONE FORM PER PERSON (make additional copies as needed) IF YOU HAVE AN AUTISM SPECTRUM DISORDER AND ARE INTERESTED IN PARTICIPATING IN THE TALENT SHOW/ART SHOW OR FAVORITE THINGS DISPLAYS, fill out the included form. NAME: _____________________________________________________________________________________________ (as you want it to appear on your name tag) STREET: __________________________________ CITY: _____________________ STATE: _____ ZIP:____________ PHONE: ( )____________________ EMAIL:__________________________________________________ (Provide for confirmation of registration) Circle appropriate registration fee: (Lunch will only be included on Thursday, March 18 th) Parent and/or/ASW Member Non-Member/ Professional Person with ASD March 18-20 $190.00 $240.00 $90 $90 March 18-19 $150.00 $190.00 $75 $75 March 19-20 $150.00 $190.00 $75 $75 Single Day $105.00 $130.00 $50 (circle one) Thurs. Fri. Sat. Thurs. Fri. Sat. $50 Thurs. Fri. Sat. Support Person Name of person with ASD you are supporting at the Conference: _________________________ PLEASE CHECK ALL THAT APPLY: ___ Parent/Family Member ___ EC ___ K-12 ___ Post-Secondary ___ Special Educator ___ Regular Educator ___ OT ___ PT ___ SLP ___ Other ___________ Fri. Sat. Check payment method; fill in corresponding information /__/__/__/__/-/__/__/__/__/-/__/__/__/__/-/__/__/__/__/ Credit Card Number ____________________________________ Print card holder’s name as it appears on card _____/_______ Expiration Date _________________________________________ Amount $____________ Signature of card holder Mail completed registration form with payment to: ASW Conference, PO Box 165, Two Rivers, WI 54241 OR Fax: 888-836-4082 Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 10 Fall 2009 2010 CONFERENCE SPECIAL EVENTS REGISTRATION FORM FOR INDIVIDUALS ON THE AUTISM SPECTRUM WHO ARE REGISTERED FOR THE CONFERENCE 1) Please print; USE ONE FORM PER PERSON (make additional copies as needed) NAME:_____________________________________________________________________________ STREET: ___________________________________________________________________________ CITY:___________________________________ STATE: __________ ZIP: __________________ PHONE: (home) ( ) ___________________________________ EMAIL: _______________________________________________ (provide for registration confirmation) ART SHOW FAVORITE THINGS DISPLAY TALENT SHOW My talent is: __________________________________________________________ Anything needed to perform your talent will need to be brought along, including a keyboard. ASW will provide a microphone and sound. 1) There are three optional activities for people on the spectrum. Indicate with a check mark if you are interested in participating in any or all of these areas. 2) Interested individuals need to sign up by March 5, but participation is accepted on a first come, first serve basis. You will be contacted regarding participation. 3) Mail completed registration form with payment to: ASW Conference P.O. Box 165 Two Rivers, WI 54241 OR Fax to 888-836-4082. Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 11 Fall 2009 Youth Information Sheet ASW Conference 2010 1. The Youth Activities Strand is a ―track‖ of presentations in the ASW conference designed specifically for youth on the autism spectrum. The underlying vision for the strand is to include, accept and validate the individuals whose very being is the driving force for ASW. 2. You must register specifically for the Youth Strand to participate in all its activities. Your nametag will be your ticket to get in. There will be a special registration area for Youth Strand participants. 3. Autism individuals of all functional levels, ages 10 and up, are welcome, but the Youth Strand will not provide care-giver or support services. If you need assistance in the Strand activities, please arrange for appropriate support. 4. Special care has been taken to include individuals with autism spectrum in planning these activities. Your unique characteristics (such as sensory defensiveness and communication needs) have been taken into account as much as possible. 5. All Youth Strand activities are listed in the program along with the rest of the conference information. All activities are optional. You can attend any session in any other track in the conference. Feel free to leave an activity at any time if you feel uncomfortable or tired. 6. Those under 18 will need to sign in and out of the hospitality rooms. This is to keep track of participants for safety reasons. For those under 18, we will ask you to please provide a cell phone number, or which session a parent or guardian is attending so we may contact them if needed, once you arrive at the conference. 7. There will be an Art Show again this year on Friday and Saturday. The art show set up starts at 7:30 am Friday. Items should be taken down by 2:00 pm on Saturday. You may sell your artwork in the exhibit area for a fee of $30, if interested. If you would like to take advantage of selling your artwork, or anything else, please fill out the Exhibitor Prospectus on the website, www.asw4autism.org, and send it to the address listed with a check for $30. Indicate your interest to participate in the Art Show on the appropriate registration form and you will be contacted with more details. Our definition of ―Art‖ is very broad and inclusive. Display anything you are proud of. 8. There will be a pizza supper at 5:30 pm on Friday night for conference participants who are on the spectrum and their families. This year we are not able to provide any special diets. We do encourage those with special dietary needs to attend and bring their own food. 9. There will be no quiet room provided this year. We encourage participants who need a break from the conference to either go to their hotel room or the adult hospitality room. 10. There will be one hospitality room for adults on the spectrum and two hospitality rooms for youth on the spectrum this year. The Youth hospitality rooms will consist of one for 10-14 year olds and one for 15-18 years olds. 11. Each Youth hospitality room will include one video game system. Usage on these systems will be monitored by volunteers. Our main priority is the safety of all conference participants. 12. There will be a Talent Show again this year on Friday Evening after the Pizza Supper. We will have time for twelve performances. Indicate your interest to participate in the Talent Show on the registration form and you will be contacted with more details. Talent show participation is first come first serve, with first choices going to those who haven’t participated in the year prior. 13. One goal of the ASW Conference is to treat everyone with respect and kindness. Differences are celebrated here. So relax, have fun and just be yourself. Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 12 Fall 2009 WISCONSIN CHAPTER EVENTS Fox Valley ASSEW- Southeast (Milwaukee area) The parent support group meets year-round on the 2nd Sunday of each month at 6:00-7:30 pm at the Ground Round Restaurant in Neenah. Contact Kathy for more information at Kathy_lett@hotmail.com December 3rd, Thursday — Morning Coffee Parent’s Support Group, 9:30-11:30 a.m. Enjoy coffee, donuts, and supportive conversation at the Autism Society office. The Teen Social group will be meeting for food and friendly conversation in December. For information, contact Peggy at peggybartman1@gmail.com or phone (920) 725-8613. Monkey Joe’s Indoor Air Gym is scheduled on Saturday, December 5, from 9-10:00 am. Monkey Joe’s is located at 1800 N. Casaloma Dr., Appleton. All other dates are the first Saturday of each month during the school year. Members are free, others pay $5 per family. For more information contact Michele Matz at (920) 540-0386. Greater Madison For information on the events from the ASGM chapter, please email autismmadison@gmail.com or visit their website at http://www.autismmadison.org/ CVAS (Chippewa Valley area) The Chippewa Valley chapter sends out information packets and a quarterly newsletter. For more information, contact Suzanne Gallagher at (715) 836-9507 or email her at sgallagher@ameritech.net or visit htpp://cvaswi.webs.com/ December 8th, Tuesday — Library Night, 5:00 — 8:00p.m. at the ASSEW office. Come browse the library and check out reading and viewing materials. December 12th, Saturday — Parenting Series, 9:30—11:30 a.m. at Nicolet High School, D-Wing Library, Glendale. ―How to Keep It Together When Things Are Coming Apart: Support and Nurturance for Family Members‖ presented by Stephen Levine, PhD. Free. Register at 414-427-9345 or email info@assew.org. December 12th, Saturday — Sensory Friendly Film at AMC Theater at Mayfair Mall, Wauwatosa, 10:00 a.m. ―The Princess and the Frog.‖ $5 adults/children, payable at the door. December 16th, Wednesday — Adults on the Spectrum support group, 6:30-8:30 p.m. at the office. Casual conversation, light refreshments. No pre-registration necessary. December 19th, Saturday — Hometown Holiday with the Milwaukee Symphony Orchestra. A concert, sing-a-long, and holiday party for the families of the Autism Society of Southeastern Wisconsin and the Down Syndrome Association of Wisconsin. 11:00 a.m. at Calvary Presbyterian Church, 935 W. Wisconsin Avenue, downtown Milwaukee. Treats and hot chocolate with Santa and Mrs. Claus after the one-hour concert/sing-a-long. Free for members. Please register by calling 414-427-9345 or by emailing info@assew.org. ASL (Lakeshore area) ASNEW Northeast (Green Bay area) ASL meets monthly on the third Thursday of each month, at St. James Episcopal Church basement, 434 N. 8th St. in Manitowoc (except during the summer). To find out more information contact Kelly at shariff30@comcast.net or subscribe to their yahoo group at http://groups.yahoo.com/group/autismsocietyofthelakeshore/. ASL 2009 Holiday Party! Thursday, December 3, 2009 6:00-8:00 pm Two Rivers Senior Center FREE!!! Dinner begins at 6:00 pm. A visit from Santa and his elves with a gift for every child, including siblings and family door prizes! Please RSVP by November 20 so Santa can make his plans! Call (920) 652-0964 (leave a message) or email autismlakeshore@att.net. We need to know the names of adults attending, and the name, age and gender of children attending. Connecting Wisconsin: Autism Society of Wisconsin Newsletter ASNEW will hold their holiday party on Friday, December 11 from 6:00 - 7:30 at Paragon Community Services on Hanson and Ridge Roads in Green Bay. For more information visit their website at http://www.asnew.org/index.html. CWAS (Central WI area) CWAS meets the first Thursday of each month. Meetings coincide with the school calendar year. Meetings are held at St. Mark's Lutheran Church, 600 Stevens Drive, Wausau, at 6:30 pm. Meetings vary between family support, speakers, and business meetings. CWAS can be reached at (715) 845-5524 or email dlprahl@netzero.net or PO Box 1832, Wausau, WI 54402. Connect on the web! www.asw4autism.org Pg 13 Fall 2009 Board of Directors President Nissan Bar-Lev Vice President Dale Prahl Secretary Michele Matz Treasurer Jan Serak Past President Nancy Alar Members At Large Judy Endow Peggy Helm-Quest Sharon Hammer Michelle Sturz Susan Stokes Amy Masek Milana Millan Jo Cauley ASFV Michele Matz ASL Kelly Shariff Address Update Please cut out or photocopy the mailing label and send/fax with corrections to ASW. ___ Please remove my name from your mailing list. ___ Please change my address as indicated. ___ I am receiving duplicate newsletters. ___ The expiration date is incorrect, please check. ASNEW Victoria Yunke ASSEW Lynn Brusnahan CVAS Mary McFarlane CWAS Dale Prahl Madison Molly Immendorf Newsletter Submissions Contributions to help support the ASW Newsletter are welcome! Articles of interest, stories/ poetry of persons with autism, book reviews, chapter reports and upcoming conferences are accepted via email or mail for submission to the newsletter. Submissions can be sent to: Kelly Brodhagen, ASW Editor, 1477 Kenwood Drive, Menasha, WI 54952; email asw@asw4autism.org. Telephone: (888) 4-AUTISM Fax: (920) 558-4611 Submissions deadlines are January 7, April 7, July 7 & October 7. Articles from this newsletter may be reprinted, giving credit to the author and ASW. Please send a copy of the publication using the article to ASW office. ASW STAFF Events Coordinator Jane Pribek Administrative Coordinator Kelly Brodhagen The ASW attempts to provide information on a variety of subjects. We do not endorse any individuals, groups or programs. References regarding programs, meetings, resources, research, opinions, treatment, etc., should not be interpreted as an indication of endorsement, but for informational purposes only. Responsibility for accuracy of information remains that of the author of the article. The ASW Editorial Review Board reserves the right to edit or refuse submissions. ASW Quarterly Board Meeting will be held on Saturday, January 16, 2010 in Stevens Point. NONPROFIT US Postage PAID Appleton, WI Permit No. 188 Autism Society of Wisconsin 1-888-4-AUTISM (WI only) 1477 Kenwood Drive Menasha, WI 54952 Return Service Requested ASW Newsletter “Connecting Wisconsin”, is now being sent electronically! To save on expenses and to be kinder to our Wisconsin environment, ASW is moving toward an electronic version of the newsletter. To receive the newsletter in your email inbox, please email asw@asw4autism.org. We will continue to send a hard copy if you notify our office that you want a printed copy. Phone 1-888-428-8476 or email asw@asw4autism.org. Connecting Wisconsin: Autism Society of Wisconsin Newsletter Connect on the web! www.asw4autism.org Pg 14 Fall 2009
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