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Palliative Care Research
Network Victoria Forum
"Using social media to enhance your
clinical and research practice."
How do you do it and why bother?
24th March 2015
5:00 – 6:00 pm, followed by networking & refreshments
PCRNV Funding Opportunities
The PCRNV is committed to offering a number of funding opportunities to support members who are at
different stages of their careers.
1. Masters / PhD Scholarship 2015
•
Supported at their full salary for the duration of a PhD or Masters to undertake research in palliative care.
 Students with a Bachelor of Medicine and Bachelor of Surgery (MBBS):$ 37,807 per annum
 Students without a Bachelor of Medicine and Bachelor of Surgery (MBBS): $ 25,393 per annum
 Direct Research Costs: $1,500 per annum
 Conference Travel: $750 per annum
 Thesis Allowance: $500 in the final year
2. Travel Grants
•
•
Up to $1,500
Assist members with conferences attendance to present their research.
Further details: www.pcrnv.com.au
Program
5:00 - 5:10 PM
Why engage in health care social media?
Anna Collins – Palliverse founder and Research Fellow
5:10 - 5:30 PM
Social Media 101: How to engage in health care social media?
Dr Sonia Fullerton - Palliverse founder and Palliative Care Physician
5:30 - 5:40 PM
FOAMed & FOANed: Accessing free online medical and nursing education Dr
James Jap - Palliverse founder and Palliative Care Physician (No slides Available)
5:40 - 5:50 PM
Palliverse and the Researchers Database: A case study of building
networks through health care social media
Dr Chi Li - Palliverse founder and Palliative Care Physician
5:50 - 6:00 PM
Audience Q & A
6:00 - 6:30 PM
Networking and refreshments in the adjacent room
Using social media to enhance your
research and clinical practice
How do you do it and why bother?
Hosted by @Palliverse
Anna Collins, Sonia Fullerton, James Jap & Chi Li
on behalf of
Michael Chapman, Craig Sinclair, Elissa Campbell, & Jason Mills
#PCRNV15
Format for this afternoon
• Live webinar: welcome to our brave virtual attendees
• Live discussion/ Q&A: via Twitter
#PCRNV15
• Series of brief presentations:
1. Benefits of engaging in social media
2. Tips for how to engage
3. Virtual presentation: online education
4. Palliverse: Example of PC & social media
• Audience question time
• ….Real life networking & drinks !
#PCRNV15
Benefits of engaging in health
care social media
Anna Collins
Research Fellow,
Centre for Palliative Care, St Vincent’s Melb
@AnnaLCollins
#PCRNV15
Why engage ?
1. Create professional connections: with others working in
PC who have shared interests
2. Be informed: important papers, events, funding sources,
potential collaborators
3. Virtual professional development: conference highlights,
online education, tweetchats & journal clubs
4. Generate research ideas: online discussion that is
occurring – HCPs & consumers
5. Opportunity for community dialogue: raise/ change
awareness, grassroots advocacy
#PCRNV15
Opportunity to engage with the community to
ensure palliative care gets some “buzz”
@DianeEMeier Speaking on CAPC YouTube Channel: “Get Palliative Care”
m.youtube.com/watch?list=UUk5wqpnt7hqhZ1CFh1tLu3g&v=Fik89Cv0Kek
#PCRNV15
Capacity for knowledge transfer
• Knowledge sharing & dissemination:
 Help to build early career profile
 Improve knowledge of what is already happening
 Learn through exposure to international experts
• Broad reach: but/ ability to target to audience
Audience
Consumers
Examples
@CarersVictoria @frazzled
HCPs
@ij_higginson, @HMChochinov,
@SheilaPayne1
Policy groups
@Pall_Care_Aus, @ANZSPMed,
@CancerCouncilOz
Media groups
@ABCnews, @theage,
@ConversationEDU
#PCRNV15
Flexibility in terms of time & commitment
• Don’t need to
be ‘active’
contributor to
benefit
• Can control
what & with
whom you
engage
#PCRNV15
Guidelines to help:
“Old Principles - New Practices”
• Royal College Nursing Australia
(RCNA): Social Media Guidelines for
Nurses
• Australian Medical Association
(@AMA_Media): Social Media &
Medical Profession – Guide to
Online Professionalism
• Royal College of General
Practitioners – UK (@RCGP):
Social Media Highway Code
#PCRNV15
#pcrnv15
HOW TO PLAY IN HEALTHCARE SOCIAL MEDIA
What IS social media?
…the social interaction among people in which they
create, share or exchange information and ideas in
virtual communities and networks.
WHICH PLATFORM IS WHICH? SOCIAL MEDIA
EXPLAINED (THE DONUT EDITION)
GETTING STARTED ON TWITTER
…this is one talk where you are supposed to pull out your devices!
Twitter is a dynamic, interactive forum with various communities
active in health, palliative care, and research
www.twitter.com
TWITTER 101 - HANDLES
A handle is the name of a person or an organisation
@sonialf @dr_chi_li @AnnaLCollins
@palliverse
@pall_care_aus Palliative Care Australia
@CAPCpalliative Centre to Advance Palliative Care
You can “follow” a handle. This means that the tweets from that person
or organisation will appear in your timeline automatically
Task: Follow @palliverse
WHO TO FOLLOW?
Task - follow someone
WHAT TO FOLLOW?
PALLIATIVE JOURNALS
HASHTAGS
A #hashtag is a label for an idea, a theme, a conversation, an event.
#13apcc is the hashtag for the PCA conference in September
#palliative and #palliativecare
#FOAMed and #FOANed
#hpm (hospice and palliative medicine)
#hpmglobal
You can follow hashtags for an event or a conference
-
today’s meeting is #pcrnv15
HOW DO I FIND HASHTAGS FOR THINGS I LIKE?
Simple. Symplur !
http://www.symplur.com
Healthcare hashtag project – explore available healthcare hashtags
-
800 million healthcare tweets on 13,000 topics
-
6,000 hashtags
-
Tweetchats, conferences, disease specific chats and topics
“Discover Where The Healthcare Conversations Are Taking Place
Discover Who To Follow Within Your Specialty Or Disease
Discover What Healthcare Topics Are Trending In Real-Time”
WHAT IS A TWEETCHAT?
A tweetchat is a live twitter event, usually focused on a
particular topic, moderated by a person
A set time is announced beforehand
Often a blog on the topic for discussion is written and the link
tweeted in the week before, and the questions for
discussion published too (T1, T2, T3, CT)
Distinctive language and grammar – limited to 140 characters
Some good palliative care tweetchats
- #hpm
- #hpmglobal
- #hpmjc
- #hcldr
WHAT HAPPENS IN A TWEETCHAT?
Some examples from a #hpmjc tweetchat…..
#HPMJC TWEETCHAT
#HPMJC TWEETCHAT
BMJ Support Palliat Care 2015;5:120 doi:10.1136/bmjspcare-2014-000838.48
INTERNATIONAL PALLIATIVE CARE JOURNAL CLUB ON TWITTER: EXPERIENCE SO FAR
K.Sleeman
Introduction @hpmJC (hospice and palliative medicine Journal Club, #hpmJC) was
launched in February 2014 on the social networking service Twitter, as a regular
international journal club for palliative care.
The journal club aims to encourage critical analysis of research methods and
findings, and to promote evidence based practice, by providing a forum to discuss
latest research findings.
Aim(s) and method(s) To analyse the use and reach of #hpmJC, from the first journal
club in February 2014, to date.
All data on Twitter posts (tweets) using #hpmJC were extracted from Twitter using
analytic tools Sysomos and Symplur.
Results 7 journal clubs have taken place. 2360 tweets were sent, from 230 individual
Twitter accounts in 17 countries. Most were based in the UK (41%) or USA (26%).
Tweets from resource-poor countries were initially uncommon but increased over the
time period. The mean number of contributors at each journal club was 32. The
reach for the most recent journal club was 290,802 unique users.
Conclusion(s) Social media provides opportunities to share expertise and
disseminate information globally, transcending geographical boundaries.
WANT TO FIND OUT MORE?
… just jump in and try!
You can just watch without tweeting
Tips for beginners - go to www.palliverse.com and look for
Twitter101 blog post
BLOGS
There are some fabulous ones out there…..
http://www.pallimed.org
http://www.geripal.org
kevinMD.com
Palliverse.com
FACEBOOK
ET AL.
File sharing and referencing
- Mendeley.com
- Academia.edu
Others?
Linked in
Google plus
Research Gate
A few palliative care Youtube channels:
- Centre for Palliative Care (hehe!) https://www.youtube.com/channel/UC6hJM9Q-ST7AghEIPht57mw
- Centre to Advance Palliative Care https://www.youtube.com/user/wwwCAPCorg
- Get Palliative Care https://www.youtube.com/user/GetPalliativeCare
Palliverse:
A case study of palliative care in the
social media
Chi Li
Palliative Care Physician,
Alfred Hospital Melbourne Australia
@Dr_Chi_Li
#PCRNV15
Overview
• Who?
• www.palliverse.com
• Where?
• @palliverse
• Why?
• Facebook
• How?
• Researchers database
• What?
• #getjakbak
#PCRNV15
Who? Where?
Primary role
Names(s)
Researcher
Anna Collins
Craig Sinclair
Nurse
Jason Mills
Doctor
Michael Chapman
Sonia Fullerton
James Jap
Elissa Campbell
Chi Li
#PCRNV15
Why?
• Importance of inter-collegial links
in palliative care
• Era of technology offers new
possibilities for connecting and
communicating with others
• Growing interface between
health care & social media
• Australia & New Zealand largely
absent from online networks
#PCRNV15
How?
Light bulb moment: Online network could be useful
Corridor conversation: We should do it!
Forming a core group of interested people from diverse
backgrounds across disciplines and borders
Developing site / platforms & functionality
Trial site inviting participation
Online survey: What do people want?
Launched at ANZSPM 2014
#PCRNV15
What?
‘A multi-disciplinary online community that aims to advance palliative care by
bringing people, ideas and funding together’
• Collaborate: build networks by sharing knowledge and resources
• Support: early career researchers, geographically isolated clinicians
• Engage: foster discourse on common issues facing our community, both
local and global
• Disseminate: broadcasting, translating knowledge into practice
• NOT just replicate what’s already out there (Caresearch, eHospice, etc)
#PCRNV2015
What exactly?
#PCRNV15
Launch
#PCRNV15
www.palliverse.com
#PCRNV15
@palliverse
#PCRNV15
Facebook
#PCRNV15
Researchers database
#PCRNV15
#getjakbak
#PCRNV15
#getjakbak
#PCRNV15
#getjakbak
#PCRNV15
#getjakbak
#PCRNV15
#getjakbak
#PCRNV15
Get involved!
• www.palliverse.com
•
@palliverse
•
www.facebook.com/palliverse
• palliverse@gmail.com
#PCRNV15
Questions?
Live tweet to us: #PCRNV15
….or just ask !
#PCRNV15