Issue No: 14 the magazine for ISC users select IN THIS ISSUE: Medical Matters - how to manage and avoid Urinary Tract Infection New LoFric® PrimoTM - perfectly packaged to suit your lifestyle Advice on travelling with ISC Welcome to this bumper issue of Select 14... Turn to pages 8 and 9 to see the new LoFric® Primo™ – perfectly packaged to suit every lifestyle! LoFric Primo provides a discreet and convenient catheter that is clinically proven to be safe over long-term use. An integral handling aid helps you to avoid touching the catheter surface, significantly reducing the risk of infection. This issue focuses on travelling and lifestyle with ISC, with Medical Matters, pages 4 and 5, providing advice on managing and avoiding UTI, along with some useful tips when travelling. Introducing our growing Select team To ensure we provide the best service possible and deal with your orders and queries as quickly as possible, we have expanded our Customer Service Team. If you have any feedback regarding this issue or have a subject you would like to read more about, please call the editorial contact number below, or write to us at the freepost address. We hope you enjoy this issue. Editorial Contacts Rachael Chapple Liz Bloxham Debbie Harris The new service team includes (from left to right) Laura, Becky, Anneliese, Cindy and, in the warehouse Phil and Pete. Mary White, our Independent Clinical Nurse Specialist, will be able to offer you support and advice via our helpline. Please call if there is anything you would like to discuss in confidence. A discreet, reliable service Freephone: 0800 652 3350 Freepost: Astra Tech Select Freepost SWC 1804 Stonehouse GL10 3BF E-mail: select@astratech.com Website: www.astratechuk.com PUBLISHERS NOTICE: Whilst every effort is made to publish accurate information in the Select Magazine, Astra Tech Ltd can not be held responsible for misrepresentation by third parties. We recommend that readers check all advice and techniques contained in this magazine with their GP or Continence Advisor before changing any practice. 2 As the manufacturers of LoFric® Astra Tech have produced ISC catheters for over 20 years. As such, we are able to provide a specialist service for ISC users. Whilst we are well-known for providing a service for ISC users, we are happy to supply you with any continence appliances that you require, including indwelling catheters, leg bags, sheaths and stoma equipment. If you would like us to supply any non-LoFric products, please call us, or send an e-mail and we will be pleased to discuss your requirements. Select User Comment I write to express my appreciation of the excellent service provided by staff at Astra Tech during the past two years. From the ladies who answer the phone to the driver who delivers the goods I have found everybody to be friendly and helpful and deliveries always arrive on the day promised. A first class operation – thank you. Accessories - As well as our range of complimentary accessories available through Select, such as bags, wet and dry wipes, travel packs, mirror, etc., we stock a variety of low priced items which you might find useful for your continence needs. Whiz UCD – Is a new clinically proven device that can automatically capture a mid-stream urine sample for women. Using Whiz UCD will enable faster, more effective treatment as the risk of your sample being contaminated is greatly reduced. Available through Astra Tech: 5 for £5.99 (incl. VAT). See page 10 for information on Whiz ATD Penis Holder – This medical device assists with all types of male urethral catheterisation and helps with ISC by holding the penis in position. Available through Astra Tech: £2.00 each (incl. VAT) ... Patients get their supplies promptly and discreetly… PROFESSIONAL LETTER Thanks to Select, our busy Urology department is able to ensure discharged patients get their supplies promptly and discreetly by a reliable, friendly service. We have a storage pack, to keep all our LoFric and Select information together, so teaching the patient and making sure they get all the information they require is simple as well. With many patients being unable to easily get a prescription from their doctor’s surgery, having Select obtain it for them is fantastic and the patient knows they just have to call the freephone number and everything will be done for them. Urology Nurse Specialist, North East Select User Comment Thank you for Issue 13 of the Select Magazine. I enjoy reading the letters and I especially enjoyed little Kathryn’s story. I am at the other end of the age group now, 90 years old, but since I have been receiving the catheters life has been very good. I spent most of 2002 in and out of urology departments and wards but eventually my consultant told me I would be suitable for ISC and I have never looked back. Thank you for your wonderful service, so polite and efficient. The new LoFric® Hydro-Kit™ II will be available on prescripti on from 1 July 2005 - call 0800 652 3350 for more information ... More channels of communication www.astratechuk.com The Astra Tech website brings together all the information you need about intermittent self catheterisation and the wide range of LoFric catheters available. Details about the latest Select services and back issues of the Select Magazine can be downloaded. If you would like to contact us concerning an order, with a query or any suggestions, you can e-mail our team on select@astratech.com. If you would like to send in a letter for a future issue of the magazine, please send to Liz Bloxham. Ordering has never been easier! Quick ordering… Simply place your order by sending a prescription or just call our freephone number and talk to one of the friendly Select advisors. Confidential processing… Your order is entered into your account on the Select computer system which updates your details (all of which are stored confidentially and are only accessed by our Select team). Efficient despatching… Your order is sent to our warehouse where your catheter and accessory requirements are carefully boxed ready for delivery. Rapid delivery… All customer boxes are collected daily from the warehouse at 5pm for next day delivery. These are taken to a local depot, allocated by region and then taken to a depot in your area. Your order will then be delivered to you by our carrier the next day*. Discreet packaging… To ensure that your delivery remains anonymous, we use a non-medical national carrier. All deliveries are made in discreet plain brown boxes so that no one else will know what they contain. First deliveries… To ensure that you have stock when you arrive home, your initial order is often arranged by the hospital on your discharge – remember that we still require a prescription to cover this. *If you order before 3pm, we will try to ensure next day delivery (excluding weekends and Bank holidays). If your delivery is delayed for any reason, we will let you know at the earliest possible time. 3 Medical Matters Urinary Tract Infection in Intermittent Self Catheterisation Author: Alison Bardsley, Continence Advisor & Services Manager, Witney Community Hospital Intermittent self-catheterisation (ISC) is a means of treating people with bladder emptying problems, reducing the risk of infection and greatly improving the lives of many people. In spite of undertaking ISC some people find that they are prone to recurrent Urinary Tract Infections (UTI), with women more prone than men. This article provides some hints and advice to help you. What is Urinary Tract Infection (UTI)? A UTI is an infection anywhere in the urinary tract, which includes the organs that collect and store urine and release it from your body (the kidneys, ureters, bladder and urethra). Bacteria are often present in urine with no symptoms, but there is not always a need to treat unless you develop flu-like symptoms. Most infections arise from bacteria travelling up the urethra (the bladder opening) into the bladder, (however it is worth remembering that we are immune to our own bacteria and that infection through the blood stream is rare). Large volumes of static urine within the bladder can allow bacteria to colonise. Urinary tract infection is usually prevented through the bladder providing a ‘washing out’ mechanism by normal emptying. If bacteria enters the urethra, subsequent efficient voiding expels the bacteria. For people undertaking ISC this ‘washing out’ does not take place, allowing bacteria to enter and remain in the bladder. Female anatomy can make it difficult for some women to undertake self catheterisation and sometimes a UTI can be caused by a woman trying to locate the correct orifice and transferring bacteria from the bowel. The most common cause of UTI is Escherichia coli that originates from the bowel. Sexual intercourse is often linked with UTI and some studies have indicated a link with spermicidal agents and diaphragms. • • • • • 4 Frequency - desire to pass urine more often than usual, although you may find that you pass only small volumes. Urgency - urgent desire to void, you may feel that you will lose control. Pain - a burning sensation in the urethra (the opening from the bladder) when passing urine. • • • When travelling it is advisable to carry catheters that have their own water. source to avoid using local water supplies After using the toilet, always wipe from front to back, especially after a bowel movement. Wear cotton underwear and loose-fitting clothes so that air can keep the area dry. Avoid tight-fitting jeans and nylon underwear, which trap moisture and can help bacteria grow. Tips for preventing UTI • For those carrying out ISC, avoid having excessive volumes of urine within the bladder as this can cause infection. Frequency of catheterisation is very individual and dependent on each persons needs. A useful guide is to try to empty your bladder every 4hrs and keep your residual urine less than 500mls. • • What are the symptoms of a UTI? • Pain in the lower abdomen or the back. Fever and a feeling of being generally unwell. Cloudy urine or blood in the urine. It is not uncommon for patients starting to perform ISC to experience a small amount of bleeding, either in the urine or at the tip of the catheter. However bleeding is not normal if a person has been catheterising for some time. • • It is advisable to drink plenty of fluids every day (around 2000 – 2500mls or 3-4 pints). Hand washing may not always be possible, so carrying alcohol hand rubs or wipes may be useful. There is little evidence that washing the genital area before each catheterisation is necessary and washing this area once a day with mild soap and water is usually all that is required. Excessive washing can damage the bodies natural defence area and can make the skin sore. People who are prone to infections may find it helpful to wash the genital area after a bowel motion. Extra washing may be required for women during menstruation. Women should aim to void (or catheterise) within 10-15 minutes following sexual intercourse to expel any bacteria. Using tampons rather than pads will help to prevent contamination during menstruation. If you think you have an infection • • • • Start to drink more water (drink a glass as often as possible). Take some tablets that you would use for a headache, eg: aspirin or paracetamol. This will help to reduce any fever or temperature. Try to rest and keep warm, a hot water bottle is often useful. Take a specimen of urine to your doctor and arrange to have it tested as soon as possible. Although urinary tract infections are not generally life threatening, they can cause considerable distress. The nature of conditions and illnesses that require people to undertake Intermittent Self Catheterisation means that a UTI can cause hospitalisation. If conservative and preventative measures are unsuccessful a prophylactic (preventative) course of antibiotics may be prescribed by your GP. Your continence advisor, Urology nurse or community nurse can help you with individual advice concerning catheterisation and to enable you to carry out catheterisation wherever you may need to. If you do not have the name of a Urology nurse or continence advisor in your area and would like to get in touch with one, please phone The Continence Foundation for information on: 0845 345 0165 (9.30am to 1.00pm) I find it very comforting to read the personal letters… PERSONAL STORY I have been using LoFric H20 for quite a few months now and have noticed that I do not suffer from as many infections since the change from basic catheters. I have quite a few problems with my back and when it gets too bad I have to have a permanent catheter fitted which can be quite debilitating and limits my choice of clothes. Intermittent self catheterisation makes such a difference to my physical and mental state. I also find it very comforting to read the personal letters in your magazine as at times I do get a bit depressed and it makes such a difference knowing that other people have the same problems. Thank you for your great service. Editor’s Comment: Our sincere thanks to this writer for sending their personal story. Please write to us with your own news and views – just a short letter will do. All names and personal details are held in absolute confidence. Since then I have had only one infection … PERSONAL STORY For reasons unknown, about 5 years ago my bladder ceased to empty itself satisfactorily. I struggled along, very incontinent etc., but because I was otherwise an extremely healthy person and every test I seemed to have came across as ‘normal’, I just got on with taking antibiotics and coping. Eventually a test proved I was retaining urine and I was taught to self catheterise. That was in January 2004. Since then I have had only one infection (which I was able to get through without medication) and I have been dry and comfortable ever since. Whilst I find it hard to accept that such a fundamental bodily function as being able to wee properly has been taken from me (everything else works well!) your product has meant that I can lead a very active, healthy life. I think your product is a lifesaver. Thank you. 5 Good travelling means careful p Be wise and check out your travel insurance If you are travelling abroad, it is recommended that you find out how you would obtain essential medical supplies or treatment while in that country. The level of emergency medical cover available to UK residents varies greatly around the world. A very informative website to visit is the Department of Health site at www.dh.gov.uk Go to Policy and Guidance and look at Health Advice for travellers anywhere in the world and you can view each countries agreement. There are three catagories: 1. European Economic Area countries – to obtain medical treatment either free, reduced or repayable on insurance you will require a completed E111 form. This form will soon be replaced with the European Health Insurance Card which will automatically be issued to those who apply for the new E111 form and request the card. More information on each country and the Card are available on this site. 2. Reciprocal agreement countries – specific information on what each of the forty countries will provide, including Australia, New Zealand and Russia. 3. Countries with no health care agreements with the UK – this includes Canada, the United States, Turkey, most of Asia, India and the Far East as well as Africa and Latin America. A journey that involved six different flights and a stay in a hot climate PERSONAL STORY Thank you all for the amazingly helpful service and information so freely given. I would like to tell you of a journey taken by my wife and I to the French West Indies, to visit a daughter working there. Before planning this journey which involved six different flights and a stay in a hot climate, I was obviously worried as to how your equipment would work, I worried about water, use, disposal of used kit and so on. You reassured me that people travel the world with the same condition without hesitation. I found this correct having catheterised at everything from 37,000 feet to small boats without problem, and rarely needed to make use of your LoFric H20 catheters. The bottle of water is very small, fits well into your excellent travel pack and is usually sufficient, though a problem was encountered at Charles de Gaulle airport (Paris) when I needed to ‘go’ between flights and found the loo locked! A word of advice to users, never run short of the necessary equipment and always have clean water available – a little goes a long way – it’s so easy. 6 For all overseas travel you are strongly advised to take out full medical insurance to cover the cost of treatment, including those countries with which the UK has health care agreements. For disabled travellers, it is essential to check what is actually covered, and that you shop around, as costs can vary dramatically. MEDICA L VALIDAT ION CE RTIF ICATE IMPORT ANT PA TIE NT INFO RMATIO N A Medical Validation Certificate is a useful addition at passport control Travelling abroad can be a nervous experience for anyone, but if you are carrying medical supplies it can turn into a difficult experience. Astra Tech is pleased to provide a Medical Validation Certificate that should help to make things easier at airports and borders. The document is in five languages and gives information on the products you are carrying and the reason for them. This information may help if you are required to explain the products to anyone. We also include a list of contact details for the Astra Tech offices around the world, so if you encounter any difficulties whilst abroad you will have a direct contact number for that country. The certificate is available free of charge and fits inside your passport for easy access and storage. Please call our helpline or e-mail for your copy. lanning try this Around the world with confidence PERSONAL STORY I went along to my doctor’s in response to an invitation to all over 60’s, to have an ultrasound scan to check for aortic aneurism, unaware of any problems. The nurse doing the scan asked, much to my surprise, if I needed to void my bladder, as it was very full. As an attempt to do so did not significantly empty my bladder, I was referred to the local hospital Urology Department. After a brief consultation with the Registrar I was shown a video of some people using ISC. This was followed by using a LoFric catheter for the first time, after emptying my bladder in the normal way. The result, to my amazement, was 1.74 litres drained off (I lost 4lbs in weight – without any effort!). I was then given a packet of LoFric catheters and told to use them daily – preferably twice daily. Obviously not too happy about this, I was also given a card and told that if I had any difficulties I was not to hesitate to get in touch. (My doctor daughter’s comment was “no worse than using contact lenses”!). All this was in September 2002. I am still using the catheters very easily and no longer suffer from an over-filled bladder. A bonus is that I no longer get up in the night as I had for more than ten years. In this time I have travelled for three months around Europe in my motor home and round the world for another three months including stops in Tahiti, New Zealand, Australia, Singapore and Delhi. LoFric catheters have been easily used in all these places and also in airports and at least twice on board flying aircraft. So far, I have never experienced any problems. Supplies have always arrived and they are excellent. Carefully following the instructions I was given at the outset, I have never had any trace of infection. travel check list Here are some tips and hints that you may find useful when you are travelling: • Water Basic rule – if it is not safe to drink, don’t use it for ISC. If you do not trust the quality of water, use bottled water, saline or sterile water. With the availability of catheters with their own water supply this should not be a problem. • Deliveries If you are travelling in the UK, we can send your supplies to your holiday address to save you carrying them with you. • Aeroplanes We always recommend that you take as much equipment as possible in your hand luggage, so that if your suitcase goes elsewhere you will not be left without your products. This also avoids your products being subjected to extreme temperatures within the hold. LoFric® Primo™ has an integral handling aid as well as sterile water, so it is more hygienic than a standard catheter. You could also use LoFric® Hydro-Kit™, which comes with both a water sachet and a urine collection bag. • Drinking You should always drink at least 6 – 8 glasses of liquid a day, but be aware that in a warmer climate you must keep your fluid levels up, which should also reduce the risk of UTIs. • Bowel habits Continue to eat a well balanced diet with plenty of fruit and vegetables to ensure regular bowel functions - this makes it easier to empty your bladder completely. • Catheters Make sure you take a sufficient number of catheters with you when you are away from home. If you are travelling abroad, we can supply you with a medical validation certificate or you can ask your doctor for a letter stating that the catheters are for emptying the bladder; which may make things easier with customs officials. Sometimes an indwelling catheter can be used short-term, eg for long journeys or holidays if ISC may be difficult. Any change in product must be discussed with your healthcare professional. Make sure your catheters are always stored in a cool, dry environment away from direct sunlight. Keep LoFric in the foil pack as much as possible. If you are concerned about the weight or size of your hand luggage, we suggest you call your airline to request extra space for your medical equipment, as they may be able to give you an additional allowance. Pre-book a seat near the toilet if you will need to go regularly. • Infections If you get regular urinary tract infections (UTIs) or are concerned that you may get one whilst away, your doctor may give you antibiotics to take with you so that you can take immediate action if you develop an infection. • Toilets Remember to carry change with you abroad as in many countries you have to pay to use the toilet. Take your Medical Validation Certificate out and about with you as it may help you gain access to restricted toilets if required. If you are travelling in the UK, you may find it useful to obtain a RADAR guide, for the location of public toilets and a key for disabled facilities. For additional information, see Page 14 on how to obtain Incontact’s ‘Travelling with Confidence’ booklet. 7 Perfectly pa The new LoFric Primo™ is innovatively designed to give total confidence for people who practice catheterisation. With an integral water-pocket and handling aid for non-touch, hygienic catheterisation, it’s ready to use when you are. LoFric Primo combines the most documented catheter in the world, together with a discreet and convenient packaging. Simple... LoFric Primo is easy to prepare and requires very little effort to use. The design means that it can be opened in a number of different ways to suit individual needs and circumstances - whatever your level of mobility or dexterity, LoFric Primo offers a complete solution. Small... LoFric Primo is small, flexible and discreet. It is designed to keep the water separate from the catheter. As well as protecting the integrity of the catheter coating, the other advantage of this design is that the catheter packaging remains soft, pliable and foldable. This means that LoFric Primo can be carried easily and discreetly in a pocket or bag. Safe... When using a catheter, hygiene is more important than many people think. Not touching the catheter surface is a great advantage, but it is difficult to insert a catheter without touching it. The packaging of LoFric Primo has a built-in handling aid for a firm grip and greater control, without directly touching the catheter. Despite being more convenient and easier to handle, it significantly decreases the risk of bacterial contamination of the catheter. 8 NEW ckaged to suit your lifestyle Quick and easy to use! So much cleaner than my previous catheter. A much more discreet product...even the box takes up less space! Protecting the surface integrity for your safety To ensure that there is no degradation of the unique catheter surface before use, a separate integral water-pocket is included in the LoFric Primo package. Exceptional comfort with UrotonicTM Surface Technology Once wet, the unique Urotonic surface has extremely high waterretentive properties that make the catheter exceptionally comfortable during insertion and withdrawal. ‘ I would happily recommend this product to everyone as a more convenient way of dealing with ISC Hygienic non-touch catheterisation Reducing the risk of infection to a minimum is the key to healthier long-term self catheterisation – that’s why LoFric Primo includes an integral handling aid. No compromises... LoFric Primo provides a discreet and convenient catheter that is clinically proven to be safe over long-term use. Why choose between safety and convenience when LoFric Primo offers both? For more information or to request a free sample please call freephone 0800 652 3350 or visit www.lofric.co.uk 9 Welcome to the world of the handcyclist ! ... by Dave Abrutat Any cyclist will know what it is like to race over long distances, at maximum speed. The burning lungs, the heavy heart and mind-numbing pain. Imagine doing a race on a bike just using your arms... welcome to the world of the handcyclist! The sport of handcycling has recently evolved into a top sport for disabled and able-bodied athletes alike. It is one of the most exhilarating and toughest sports for athletes confined to wheelchairs. Handcycles are propelled with the arms, shoulders, chest, back and sometimes torso depending on the level and nature of the riders disability. There are two forms of handcycle, one that attaches to a wheelchair and the other, a standalone recumbent bike. The wheelchair clip-ons as they are known are useful as recreational and mobility aids. Handcycling in the UK is overseen by the United Kingdom Handcycling Association (HCAUK), supported by Astra Tech for 2005. The organisation oversees all aspects of handcycling from racing, recreational riding, to access legalities on cycle networks. is for disabled atheletes. It combines speed, high level competition, stamina, endurance and the vagaries and dedication that comes with constant training. For me it’s the next best thing to traditional cycling.’ ‘The sport of handcycling as far as I am concerned is the best sport there www.ukhandcycling.com Cyclefest 2005 – Sunday 7 August Astra Tech is delighted to be supporting the HCAUK for 2005 and are this year sponsoring Cyclefest 2005, a celebration of cycling, set to be one of the biggest cycling festivals in recent times. Cyclefest 2005 is being held at the Castle Combe rack track and will see a multitude of bike designs, from tandems to recumbents and handcycles. The events are open to amateur riders and international racers alike, the races are being held to entertain the broad spectrum of cycling. Races will commence at 8.30 am but around midday there will be a fun duathlon (run-bike-run), which is aimed at the less-than-serious athletes and for corporate teams to compete against each other in a multi-discipline event. There will also be an opportunity to ‘come and try it’ off the track. If you would like to come along and try this sport, HCAUK will have a number of handcycles available throughout the day. For more information on the HCAUK or to obtain an entry form for Cyclefest please contact Dave Abrutat: Tel: 01242 703379 e-mail: abrutat@blueyonder.co.uk Introducing the Whiz ATD … Part of the Whiz family, the Whiz ATD (All Terrain Urine Director) is a hygienic, easy-to-use external device that helps women to pass urine discreetly and confidently without fuss. The Whiz is small, nonintrusive and can be used sitting or standing, indoors or outdoors. It is simply held against 10 the body – nature and gravity do the rest. We can dispense the Whiz ATD, so send in your prescription - Product Code ATD 2002.1. You can also purchase Whiz ATD direct from the manufacturer for £6.80 each. For further information or if you wish to place an order visit www.whizaway.com The Dolphin Club! Summer Events… There are lots of activities being organised for children of all ages, throughout the summer holidays this year ... here are some ideas you may like to try. For every bear that ever there was… The National Trust will be hosting a series of Teddy Bears Picnics at many of their properties across the country. There will be stories and music if you go down to the woods today ... if you are interested in joining the teddy bears, contact The National Trust via their website: www.travelengland.org.uk Get lost! Did you know there are 61 mazes in England? Fun for you and a quiet rest for the grown ups! You can find details of your nearest maze on the National Trust Website www.travelengland.org.uk Down on the farm… There are a number of farms in cities throughout England, which you and your parents can visit usually for free. You can get a list of farms to visit by sending a self-addressed envelope to: Jo Saddler, Administrator, Federation of City Farms & Community Gardens, The Green House, Hereford Street, Bristol, BS3 4NA Telephone: 0117 9231800 Fax: 0117 9231900 email: jo@farmgarden.org.uk You can also get a list of country farms by writing to the: Public Affairs Department, National Famers Union, 164 Shaftesbury Avenue, London, WC2H 8HL Left, right and straight ahead… NB - The information shown here was correct at time of going to press. It is recommended that you call the location in advance. This is a game you can play on foot, in a car or even on your bike! At every crossroad, each member of the family in turn can say whether you go left, right, or straight ahead. The trick is to get thoroughly lost so that you can discover new places. Don’t forget to take a map so you can get home. I spy with my little eye… Why not play a game of ‘I spy’ to see how many of these items you can tick off during your journey? a tree a cow a bus traffic lights a hat shopping bags a bird an aeroplane 11 As the manufacturers of LoFric®, Astra Tech is committed to finding even quicker and simpler solutions… ... without What is Astra Tech? The roots of what is Astra Tech today, go back to the 1940’s, working closely with healthcare professionals and providing a source of information. Our business has been focused on medical devices and implants in the therapy areas of urology, odontology, surgery and radiology. As a company within the AstraZeneca group, we have access to significant resources in research, legal, environmental and patent issues. LoFric is an example of Astra Tech’s goal of integrating medical research and modern material technology. Today, we are the world leaders in our field and view this as an excellent platform for the future. What does our research mean to you? Keeping well and avoiding infection is extremely important. For people who are using a catheter three to five times a day, it can mean the difference between falling ill or staying healthy. The greater the friction between the catheter and the urethra, the greater the risk of trauma. Several studies show that injuries usually become visible only after some years of catheter use. As the need can often be long-term, you must be sure that the catheter is proven for safety over life-long use. Today, intermittent catheterisation with LoFric is a recognised and established form of therapy, but this has not always been the case. The introduction of LoFric, along with active co-operation with healthcare professionals and researchers, led to the breakthrough of intermittent catheterisation, dramatically improving the user’s quality of life. Over twenty years ago, when LoFric was introduced it revolutionised the use of catheters for ISC. It was the first hydrophilic catheter on the market and is today, supported by more scientific research than any other intermittent catheter. Currently we have over twenty five published studies*, many of which demonstrate reduced risk of complications over long-term use. * Documentation available on request. 12 The world’s only catheter with Urotonic™ Surface Technology LoFric is the only catheter with Urotonic Surface Technology – a unique surface layer that makes the catheter more comfortable to use. The secret behind this is a chemical process that makes the surface layer isotonic to urine. This means that the saline level in the catheter’s surface layer is the same as that in urine and therefore in the urethra, resulting in extremely low friction. Development Why LoFric? Bakke et al studied 170 patients (84 men and 86 women). After a mean follow-up of 8.8 years, there were no cases of urethral stricture or epididymitis. Future A complicating factor is that many people performing ISC have little or no sensation and therefore cannot rely on pain as a warning system. For you, our documentation is both a security and a guarantee that you will not be injured by the catheter. The important long-term evidence The long-term safety of LoFric has been evaluated in two major studies (Sullivan et al 1995; Bakke et al 1997). The new LoFric Primo for convenient and safe ISC, ensures no compromise between long-term safety and short-term convenience. Astra Tech have invested over £30million in a new state-of-the-art manufacturing plant that guarantees both quality and production meet the high expectations of our end users. Our commitment Astra Tech will continue to develop and improve their products in response to the changing needs of users. We are committed to finding even better, quicker and simpler solutions, without compromise. compromise Astra Tech supports the only national childhood continence charity. ERIC (Education and Resources for Improving Childhood Continence) is the only national charity providing support to children, families and health professionals in the field of childhood continence. Over the past eighteen years ERIC has achieved significant successes, including the publication of the first minimum standards of practice for treating nocturnal enuresis, and constipation and soiling. For many years we have been delighted to receive the support of Astra Tech, particularly through our relationship with Mary White, Independent Clinical Nurse Specialist. With the generous support and funding by Astra Tech, ERIC has been able to benefit from Mary’s expertise for several years and on many levels throughout the organisation. Mary’s unique experience and knowledge of working for children with neurological problems and those with learning disabilities has been vital in helping ERIC develop its services for children with special needs, including her contribution to the training materials and publications available. More recently, Mary co-authored the booklet ‘We Can Do it! Helping Children who have learning Disabilities with Bowel and Bladder Management: A guide for parents‘ . We were delighted when this booklet won a Highly Commended Award at the British Medical Association, Medical Book Awards in 2003. Mary also provides vital support to the ERIC Helpline team by advising on clinical issues and keeping them abreast of developments in the wider continence field. Mary White, Continence Nurse Specialist, has worked on a consultancy basis for Astra Tech for over ten years. Mary has provided Select users and patient organisations with tremendous support and advice. ERIC continues to work with Mary to improve the lives of all children and families, a partnership that would not be possible without the ongoing support of Astra Tech. We are extremely grateful for their commitment to ERIC and we look forward to Astra Tech and Mary playing an ongoing part in helping ERIC achieve future success. ERIC has a national Helpline: 0117-960 3060 (10am and 4pm, Monday – Friday) and a website www.eric.org.uk 13 ASSOCIATIONS Back-Up Trust volunteers share their wheelchair skills for maximum independence Maximising your independence as a wheelchair user can be an uphill struggle. Proficiency in wheelchair skills is one of the key things that will enable you to lead an active and independent life. The Back-Up Trust, who support people with spinal cord injury, have teamed up with Astra Tech who are funding the scheme to offer peer-to-peer wheelchair skills training in spinal units across the UK. Three hour sessions are led by long term wheelchair users who are able to share tips and advice from first hand experience. Although inpatients do receive skills training as part of their rehab, these new sessions offer a unique chance to learn from other experienced chair users. Back-Up is currently piloting the scheme at three spinal units with a view to nationalising it over the next two years. We were delighted to have the opportunity to run a session in Glasgow on 16th December. Twelve inpatients at the Queen Elizabeth National Spinal Injuries Unit took part in the session which covered techniques for tackling curbs, ramps, thresholds and even stairs as well as more basic skills like back-wheel balancing. Dave Ball, a Back-Up Trust Peer Wheelchair skills trainer says ... New booklet from Incontact The holiday season is fast approaching and many of you will, no doubt, be planning your break. However, if you have a bladder or bowel problem, you might be worrying about how you can deal with your problem whilst you are away from home. Incontact has produced a new booklet called ‘Travelling with Confidence’. 14 ‘ I broke my back ten years ago and as part of my rehab at Stoke Mandeville I learnt wheelchair skills from the able bodied physiotherapists. But some of the key learning I have acquired has been from my peers, partially within the spinal unit but for the main part during Back-Up activities - I learnt how to best descend steep slopes (the same method works well for any slope) on my first Back-Up ski trip in 1996. I now teach that to all those who attend my sessions and use it several times each day! I can honestly say that the vast majority of people I have met on these courses have gone away with at least one lesson learned and for many it will make a huge impact to their lives. ’ Written with input from Incontact members, this booklet gives information and advice about coping with a bladder or bowel problem when going on holiday, for a day out or on a business trip. ‘Travelling with Confidence’ is available free to people with bladder or bowel problems and their carers. To order your copy, please phone Incontact on 0870 770 3246, or email info@incontact.org. Alternatively, the booklet can be downloaded from www.incontact.org. Similar sessions have been held at Stoke Mandeville in November 2004 and the Oswestry unit in February 2005. Feedback from participants to date has been overwhelmingly positive and it appears that we have struck a winning formula. Quoting a few enthusiastic participants, “it was fantastic being shown how to use a wheelchair by wheelchair users”, “the session gave me more confidence and showed what is possible with time”, and “the best thing was that we were taught by our peers”. The next scheduled date is 9 June 2005 at the Stoke Mandeville Unit - to find out more, contact Sean at The Back-Up Trust on 020 88751805 or email sean@backuptrust.org.uk or visit www.backuptrust.org.uk 7UDYHOO LQ ZLWK J &RQILGH QFH Astra Tech is proud to support many associations and organisations NEWS FROM THE CONTINENCE FOUNDATION National Continence Awareness Week 2005 This year’s Awareness Week will run from 12-18 September. The aim of these annual campaigns is to publicise the help that is available for people with bladder and bowel problems. The theme this year is ‘The Overactive Bladder’. To mark the campaign, we will launch a leaflet for the general public which defines the various symptoms of an overactive bladder (urgency, frequency, nocturia and urge incontinence) and provides summaries of the treatment options available. Our Campaign Supporters will receive a free supply of leaflets and other promotional materials, such as posters and stickers, to distribute in their communities (GPs’ surgeries, libraries, sports centres, etc.). Please contact us if you would like to register as a supporter. ‘Well Behaved Bowel’ Leaflet Back in Print Our short leaflet about maintaining healthy bowel habits is available once again. Send an SAE for a single copy. They are also available in bulk at £3.00 for 50 and £4.80 for 100 including p&p. Pelvic Floor Diagram back in stock We have also reissued an A4-sized cross sectional diagram of the male and female pelvic regions. This laminated teaching aid illustrates all the key anatomical details, which are clearly labelled. This is available for £1.00 including p&p. Diagnostic Wheel revised and re-issued Our quick reference tool offering a guide to appropriate treatment and referral for all major forms of incontinence has been updated and reprinted. It is an ideal educational resource for continence course leaders and students. The Wheel is available for £5.00 including p&p. NB - Cheques to be made payable to ‘The Continence Foundation’. The Continence Foundation, 307 Hatton Square, 16 Baldwins Gardens, London, EC1N 7RJ Tel: 0207 404 6875 Helpline: 0845 345 0165 (9.30-1.00) E-mail: continence.foundation@dial.pipex.com Website: www.continence-foundation.org.uk HEALTHY LIVING ROADSHOW The first in the 2005 series of Healthy Living Roadshows was held at the Newport Hilton and was once again a great success. Astra Tech have been working with the Spinal Injuries Association since the launch of the Roadshow in July 2003, bringing specialist information on living a healthy lifestyle to people with a spinal cord injury. Here are what previous attendees had to say: ‘ The main issues of interest to me were the bowel and bladder management sessions. It was good to see others in similar situations and that it is all down to the individual. I also brought a couple of carers with me and its been very interesting for them to talk to other carers and to find out what they offer in other areas. I found the bladder session very informative, there was a lot I didn’t know in that respect, so I learned quite a lot. I’d give the day 11 out of 10! ’ ‘ It’s been a very interesting day, it has made me ask a lot of questions about my condition and how I manage it. It’s also been interesting to find out some information on the products available. ‘ ’ The informal atmosphere of the day has been very positive and helped people to open up and ask a lot of questions. I have learnt a lot from others. ’ The next Roadshow will be at the Hilton Hotel, Newcastle Gateshead on Monday 18 July 2005 - please contact us for more information: freephone 0800 652 3350 15 Would you like to know more? Please tick the subjects below that are of interest. You can cut out the reply slip or, if you prefer, contact one of our Select team who can advise you on registration, ordering and how to obtain your prescriptions. How to contact us for more information… Call freephone 0800 783 7027 Write freepost Astra Tech Select, Freepost SWC 1804, Stonehouse, GL10 3BF E-mail select@astratech.com Reply Simply tick the subjects that you are interested in, cut out the form and send it to the Select freepost address. ISC Catheters & Catheter Kits LoFric® PrimoTM LoFric® I would like a free LoFric Primo sample - please confirm size required: ch __ LoFric® Plus LoFric® Cath-KitTM LoFric® Female 15cm LoFric® Dila-CathTM LoFric® Hydro-KitTM LoFric® Insti-CathTM Select Service Home Delivery Information Pack Healthy Living Roadshow (See Page 15) I am interested in attending a Roadshow in 2005 Previous Features Spina Bifida & ISC Issue 13 Working Bladder Issues 6 & 7 The Prostate Gland Issue 12 Spina Bifida Issue 5/Summer 2000 Incomplete Bladder Emptying Issue 11 ISC & Spinal Injuries Issue 4/Spring 2000 Multiple Sclerosis Issue 10 Multiple Sclerosis Issue 3/Winter 1999 Spinal Injuries Issue 9 Coping with MS & Focus on ISC Issue 2/Autumn 1999 ISC Lifestyle Issue 8 Multiple Sclerosis Issue 1/Spring 1999 Name: Address: Postcode: Telephone No: Astra Tech Select, Freepost SWC 1804, Stonehouse, GL10 3BF www.astratechuk.com
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