BKiD IICO Workshop 28.06.2014 Constanze Bleichrodt How to organize a sperm bank HOW TO ORGANIZE A SPERM BANK Insight into the manifold and daily challenges of a German semen bank • What is our daily work? • What people, issues, questions? • What decision are to be taken? • What quality, degree of transparency and documentations do we guarantee? ⇒ How do we ensure daily that our work is satisfactory? Our work is much more than fulfilling medical needs. It concerns legal issues and a very refined quality management – and a lot of psychology. BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK ABOUT ME Constanze Bleichrodt • • • Psychologist Private practice Managing director of Cryobank-München Dr. Wolf Bleichrodt • Gynaecologist, endocrinologist, practitioner of reproductive medicine • Founder of Cryobank München 1983 BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK CRYOBANK-MÜNCHEN Multi-professional Team Psychologist, medical specialist for infertility, two biologists, pharmacologist, medical-technical assistant, office staff Sperm Bank Approved and supervised by the Government of Upper Bavaria BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK WHAT DOES A SPERM BANK DO? BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK WHAT DOES A SPREM BANK DO? “New life“ Fulfilling the wish to have a child – and to live with a child! Emotions and feelings, hopes and wishes and many very divergent expectations! BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK WHO ARE OUR CLIENTS? • Men donating for semen preservation • Fertility preservation prior to cancer treatment, sex realignment, prior to sterilisation, in case of professional risks • Couples experiencing infertility • • Infertile men and their partners Lesbian and single women • Sperm donors • Personal donors • Men who donate for specific women/couples • Donor offspring BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK CHALLENGES • Openness and understanding • Developing your own attitude (also ethically and morally) • Transparency and information • Things we offer, things we don´t offer • • • No guarantee for a (healthy) child No treatment of lesbian couple at the same time No optimization by donor selection • Develop and set our own standards BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK CHALLENGES Responsibility concerning couple/child/donor Gaining confidence Information and counselling Managing insufficient and out-of-date legislation with gaps • Long-term nature • • • • • • • • Documentation for more than 30 years Informative right Long-term storage of sperm for fertility preservation Long-term consequences of donation BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK APPLICATION OF DONORS • Search via internet Forum, internet pages for DI, German Medical Association for DI • Info on • • • • Procedure of becoming a donor Legal situation Precondition for becoming a donor Financial compensation (in itself insufficient motivation) • Application online -> provides first impression BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK WHO APPLIES? • Mainly men between 25 and 35 • University entrance qualification / academics • Good Types (maintained, reputable, reliable, sympathetic, …) • Mainly Germany, central European, not only Bavarians • Often singles, but approx.1/3 have children of their own • Various motivations BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK FIRST VISIT INCL. TEST DONATION • General procedure, financial compensation • First impression • Contractual details, provision of legal information • Duties of a donor • (regular donation, agreement to infection screening, bacterial screening, genetic testing, anamnestic screening, duty to provide truthful and accurate information about health status, control testing after 6-9 months, information in case of death, information of partner, confidentiality...) • • Duties of Cryobank (payment, …) Legal information • (inheritance law, alimony, right of offspring to access information about the identity of donors, right to withdraw from contract ...) BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK FIRST VISIT INCL. TEST DONATION • Completion of donor sheet Personal data, ethnic origin, hair colour, eye colour, size, weight, blood group, training, profession, hobbies and strengths, interests, specific qualities, motivation, donor of other sperm bank • Medical interview, anamnestic interview General health status, no risk group, diseases, medication, genetic diseases, diseases in family, history of vaccinations, travels abroad, information on parents Willingness to agree to genetic testing • Test donation BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK EXAMINATION OF TEST DONATION • • • • • • Spermiogramme Examination Freezing Thawing quality Anamnestic examination Overall impression (of various medical assistants) • Age, blood group, visual impression, sympathy, professional training and current employment, reliability , commitment, motivation, own children/partner Only every 8th men is suitable as a donor BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK 2ND AND 3RD VISIT • Test sample with results • „Psychological“ consultation • Motivation/reason for donating • • • • • • • • • • Passing on genes confrontation with infertility of friends/family members Altruistic attitude/help Free test of fertility Managing „no knowledge“ of possible offspring Info about intended parents and DI-offspring and families Managing the fact of being donor Agreement of partner Right of offspring to access identifying information and possible contact Answering questions BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK 2ND AND 3RD VISIT • Signing the contract • 1. Serology – Infection screening (blood group, RH-group, CMV, HIV, hepatitis, syphilis, gonokokkal infection, chlamydia) – Urine sample – Bacteriology – Genetic screening (karyogramme, mucoviscidosis) BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK DONOR CYCLE Donors visits sperm bank 10 – 15 times, depending on sperm quality, blood group, impression, sympathy, reliability ... 2. SEROLOGY 180 days after last test sample! Semen can be used for treatment! BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK THE INTENDED PARENTS • • • • • • • • • • • First consultation (medical, psychosocial) Anamnesis, history of infertility „feelings/thoughts/management of DI“, psychosocial „pre-conditions“ for DI Epigenetics Selection of donor (general and specific) Contractual documents Treatment procedure, costs Talking to children, book for children How do other DI-families fare? How do DI-children fare? Answering questions BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK DONOR SELECTIN FOR THE COUPLE • • • • • • • • • Getting to know them personally Data sheet Photo Looks of the husband/Co-mother/ Single woman Hobbies, talents , strengths Educational background Individual comments/wishes Donor for mother and co-mother Sibling BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK „OUR“ PROCEDURE • • • • • • • • • Blood group of the couple CMV-status of the female partner Phenotype of male partner, skin colour Size of the male partner Hair colour of the male partner Eye colour of the male partner Facial features Talents of the male partner Other wishes (wish for more siblings from the same donor, co-mother wants child of the same donor, academic background, „no hair loss“, specific, religious affiliation, specific professional background, …) BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK „OUR“ PROCEDURE • • • • Personal meeting of intended parents/CBM No selection from several profiles Feedback only upon request No donor types according to • Sperm quality, good looks, academic achievement, IQ, look-alikes • • • No sample of hand-written text, statements, … Not contact to donor prior to offspring reaching 18 yrs. No „perfectioning/compensation“ of individual flaws, “optimization of results“ • • Change of donor possible Reservation for siblings possible BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK PROVIDING IDENTIFYING INFORMATION Case law – doctors are forced to provide identifying information on donor Challenges: • • • • • Data used to be destroyed after 10 years Donors were assured anonymity – personal data was not documented Logistical challenge, recording data for 30 years and longer Feedback with gaps Looking for public notary So far, few requests by offspring – personal statement! BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK CONTACT DONOR-OFFSPRING Possible procedure: • • • • Data at CBM and at notary public/website Request of offspring incl. important documents Informing the donor Contact on neutral grounds Donors are curious, too No contact planned prior to offspring being 18 yrs old. (exception: illness) BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK PERSONAL DONOR Special challenges for counselling esp. psychological, legal and health issues • • • Donor is biological father and has all legal rights and duties There may be later role confusion Medical, infection screening may be problematic BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK Thank your for your attention! BKID IICO 2014 - HOW TO ORGANIZE A SPERM BANK
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