Health S U P P L E M E N T P R E S E N T E D B Y N AT I O N A L C A N C E R A C T I O N T E A M Let’s Talk Cancer As Director of the Chinese National Healthy Living Centre, it is my aim to ensure that Chinese people living in Britain keep themselves well informed about their health. This means being brave enough to talk about cancer; motivated enough to take preventative action and, if needed, to get diagnosed early. We are pleased to be working closely with the National Cancer Action Team to raise awareness of cancer amongst the Chinese community in England. Cancer and the Chinese community Screening is another key element in helping to find cancer early and, in some cases, prevent it. So if you have received an invitation to breast or cervical screening, you need to make the important decision to go. Finding cancer early can increase the chances of having successful treatment. It is just as important to decide to use the bowel screening kits that you may receive in the post. Don’t ignore it; screening really does save lives, as Naomi’s story illustrates on page 4. We need to arm ourselves with the facts about cancer. IN THIS EDITION: CANCER SCREENING CANCER OF THE NASOPHARYNX BREAST CANCER LUNG CANCER PROSTATE CANCER STOPPING SMOKING USEFUL ORGANISATIONS 2/7 2/7 2/7 3/6 3/6 3/6 4/5 Welcome This health supplement is aimed at providing information to the Chinese community in England on the issues associated with cancer. It has been developed by the National Cancer Action Team in partnership with the Chinese National Healthy Living Centre to support the ‘Cancer does not discriminate’ campaign. In this issue we cover: • NHS Cancer Screening Programmes • Awareness information on a number of cancers I know from personal experience that even talking about cancer in our community can be hard. When my 5 year old son was diagnosed with a cancerous brain tumour, my parents wouldn’t even discuss it with our relatives. And I know that’s a situation that a large part of our community will be able to relate to. Many people still see cancer as a curse, an act of karma for sins of our ancestors and that a cancer diagnosis means a death sentence. But this is not the case. Over the years, advancements in treatments mean that if cancer is caught early, there are better survival rates. There are millions of people in the world who are living with and beyond cancer. In our case, we recently celebrated my son’s 21st birthday. We also need to make sure that we go to our GP if we have any concerns. Ignoring our symptoms won’t make them go away. We may feel worried or anxious about discussing things with the doctor, especially about embarrassing or intimate issues such as sexually transmitted diseases, bowel habit, urinary problems or menstrual cycle. But these problems will only be resolved by discussing them. The doctors are there to help, and have probably spoken to many people before about very similar issues, so there is no need to be shy or embarrassed. ISSUE 6 • Information on stopping smoking We would like to hear what you thought of this issue, please email us at: info@cnhlc.org.uk Thank you, Paula Lloyd Knight, Associate Director Patient Experience, National Cancer Action Team 反面是中文版 There are certain cancers which are more likely to affect our community, such as cancer of the nasopharynx, and this supplement has brought information on these cancers together for you. It also contains information on the three national cancer screening programmes, so you can find out for yourself if you are eligible. If you are reading this, you are already taking the first steps to being cancer aware. Please share this information with those you love, so that we can all work towards being more open and informed about cancer in our community. By Eddie Chan, Director of the Chinese National Healthy Living Centre What is Cancer? Cancer is not a single disease with a single type of treatment. There are more than 200 different kinds of cancer, each with its own name and treatment. The organs and tissues of the body are made up of tiny building blocks called cells. Cancer is a disease of these cells. Cells are constantly becoming old and dying, and new cells are produced to replace them. Normally, cells divide in an orderly and controlled manner. If for some reason the process gets out of control, the cells carry on dividing, developing into a lump which is called a tumour. Tumours can be either benign or malignant. Cancer is the name given to a malignant tumour. Doctors can tell if a tumour is benign or malignant by examining a small sample of cells under a microscope. This is called a biopsy. In a benign tumour the cells do not spread to other parts of the body and so are not cancerous. However, if they continue to grow at the original site, they may cause a problem by pressing on the surrounding organs. A malignant tumour consists of cancer cells that have the ability to spread beyond the original area. If the tumour is left untreated, it may spread into and destroy surrounding tissue. Sometimes cells break away from the original (primary) cancer. They may spread to other organs in the body through the bloodstream or lymphatic system. The lymphatic system is part of the immune system - the body’s natural defence against infection and disease. It is a complex system made up of organs, such as bone marrow, the thymus, the spleen, and lymph nodes. The lymph nodes (or glands) throughout the body are connected by a network of tiny lymphatic ducts. When the cancer cells reach a new area they may go on dividing and form a new tumour. This is known as a secondary cancer or metastasis. Information provided by Macmillan Cancer Support Cancer Screening Breast screening looks for cancer in the breast when it is too small to see or feel. The earlier breast cancer is found, the easier it is to treat. Screening is carried out by taking x-rays of the breasts (called mammograms). Bowel cancer screening looks for blood in faeces, which can be a sign of bowel cancer. You complete a kit at home, using tiny faeces samples, which is then sent to a laboratory to be tested. Anyone with an abnormal result is asked to discuss having a colonoscopy, a procedure to examine the inside of the bowel. Screening invitations are sent every 3 years to women aged 50-70. This age range is currently being extended, to women aged 47-73. Women over the invitation age range can request screening every three years by contacting their local screening unit. Cancer of the Nasopharynx CAUSES The exact cause of cancer of the nasopharynx is unknown. In some areas of the world, such as China and North Africa, dietary factors (such as the cooking of salt-cured fish and meat, which releases chemicals known as nitrosamines) are thought to increase a person’s risk of developing the disease. Kits are sent every 2 years to men and women aged 60-69. This is being extended to people aged up to 74. Anyone over the invitation age can request a free screening kit by ringing 0800 707 60 60. It is estimated that breast screening saves around 1,300 lives each year. The Epstein-Barr virus (which causes glandular fever) has also been linked to an increased risk of developing nasopharyngeal cancer. As with other cancers, nasopharyngeal cancer is not infectious and cannot be passed on to other people. Regular screening reduces the risk of dying from bowel cancer. If caught early, 9 out of 10 people survive bowel cancer. Information provided by NHS Cancer Screening Programmes THE Information provided by NHS Cancer Screening Programmes Information provided by Macmillan Cancer Support KEY FACTS Cervical screening looks for abnormal cell changes on the cervix (the neck of the womb) which can develop into cancer. Finding them and treating them can stop cancer from developing. THE NASOPHARYNX The nasopharynx is an airspace lying at the back of the nose and above the soft part of the palate (roof of the mouth). It connects the nose to the back of the mouth (oropharynx), allowing you to breathe through your nose and to swallow mucus produced by the lining membranes of the nose. During screening, an instrument called a speculum is gently inserted into the vagina to hold it open. A tiny soft brush is used to collect cells from the cervix, which are sent to a laboratory to be examined. Screening invitations are sent every 3 years for women aged 25 - 49 and every five years for women aged 50-64. Women aged over 64 who have never been screened or whose last three tests were not clear can also have cervical screening. Screening is usually carried out by the practice nurse at your GP surgery. CANCER OF THE NASOPHARYNX This type of cancer is rare in the West, but much more common in countries of the Far East. Approximately 230 new cases of nasopharyngeal cancer are diagnosed in the UK each year. It can occur at any age, but is more likely to be seen in people aged between 50 and 60. It affects more men than women. Information provided by NHS Cancer Screening Programmes SIGNS AND SYMPTOMS One of the first symptoms is often a painless swelling or lump in the upper neck. Other symptoms may include any of the following: • a blocked nose • nosebleeds • changes in hearing • ringing in the ears (tinnitus) These symptoms are common in conditions other than cancer, and most people with these symptoms will not have cancer of the nasopharynx. However, like most cancers, nasopharyngeal cancer is best treated when diagnosed at an early stage, and you should therefore report any of the above symptoms to your GP if they do not improve after a few days. Breast Cancer Health Message TAKING CARE OF YOUR BREASTS Whatever your age, size or shape, it’s important to take care of your breasts. Every year around 50,000 people in the UK find out they have breast cancer. It’s the most common cancer diagnosed in UK women and can affect women of all ethnicities. But, worryingly, 43% of minority ethnic and black women say they never check their breasts. There is no right or wrong way of checking your breasts and you can make it part of your normal routine. It’s important to decide what you are comfortable with and what suits you best and then look at and feel your breasts regularly. You could do this in the bath or shower, when you use body lotion, or when you get dressed. What’s important is getting to know what is normal for you. You can then feel confident about noticing any unusual changes. Breast cancer can affect women of all ages, so women should check their breasts and report any unusual changes throughout their life. NHS National Cancer Action Team accepts no liability for the views and opinions of organisations or individuals in this supplement. Most changes in your breasts won’t turn out to be breast cancer, but if it is breast cancer, then the sooner this is diagnosed, the more effective the treatment may be. Around 70% of women with breast cancer found out they had it by noticing a change in their breasts and talking to someone about it, so it can make a real difference. know that you can make it part of your daily routine, it needn’t be anything to be scared of. If you get to know what’s normal for you, it’s much easier to notice if something isn’t right and then it’s important to talk to your doctor. Don’t be scared of talking to your GP or delay going, as the earlier diagnosis may lead to simpler treatments options.” Many people say they find it difficult to go to their GP, but if you do notice any changes it’s important you visit your doctor and get yourself checked out as soon as possible. You can always ask to see a female GP if you’d feel more comfortable. If you’re invited to screening, all screening staff are women too. There’s an easy way to remember how to stay breast aware… If you have any questions about breast health or screening, Breast Cancer Care’s free, confidential helpline is there to help. The helpline has access to an interpreter if you’d rather speak in a language other than English – call 0808 800 6000. Or if you’d prefer, the Breast Cancer Care website has loads of information, visit www.breastcancercare.org.uk. 1. You should know what is normal for you. Davinia Green, Breast Health Promotion Manager at Breast Cancer Care says: “If you feel a bit embarrassed or apprehensive about checking your breasts, it may be reassuring to Guidance issued by the Department of Health, 2009. Information provided by Breast Cancer Care THE BREAST AWARENESS 5-POINT CODE 2. Know what changes to look for. 3. Look and feel. 4. Tell your GP about any changes straight away. 5. Go for breast screening when invited. Information provided by Breast Cancer Care Prostate Cancer Lung Cancer Lung cancer is the most common cancer in the world. In the UK, around 41,500 new cases are diagnosed each year. It is the most common cause of cancer death in the UK, for both men and women. Everyone is at risk of developing lung cancer. It is known that smokers and ex-smokers have an increased risk of getting lung cancer. However, please remember that people who have never smoked are also at risk of getting this disease. There are other things that increase the risk of developing lung cancer. For example, contact with chemicals found in the workplace or environment, such as asbestos, radon and diesel exhaust fumes. Passive smoking (breathing in other people’s cigarette smoke) increases the risk of lung cancer, but it is still much less than if you smoke yourself. A healthy lifestyle is the most important way for you to prevent lung cancer. • Keep physically fit. • Have a healthy diet – eat more fruit and vegetables and less salt, sugar and drink less alcohol. • It is never too late to stop smoking – no matter what age you are, it can make a real difference to your health. WHAT TO LOOK FOR? There are lots of reasons why you might have some of the symptoms below. It may be nothing serious but it’s worth getting yourself checked out. If you have any of the following symptoms for more than three weeks, make an appointment with your GP today. Unexplained tiredness or lack of energy It’s never too late! Stopping at any age will increase your life expectancy, provided that you stop before you develop cancer or another serious disease. • Within the first 24 hours your blood pressure and lungs will be showing improvement. • After three months your circulation and breathing should have improved noticeably. • After five years, your risk of having a heart attack falls to about half that of a smoker. • After ten years, your risk of lung cancer falls to about half that of a smoker. I’VE TRIED TO GIVE UP MANY TIMES, BUT ALWAYS FAIL WHAT ELSE CAN I DO? If you’ve tried before and it didn’t work out don’t worry. You haven’t failed, you have just given yourself more practice for the next time you quit. Research has shown that the more attempts you have made in the past, the more likely you are to succeed in the future. This is because every time you are getting more experienced in how to quit. Next time you quit spend a little longer planning. The preparation you do up front can make all the difference. KEY FACTS ABOUT PROSTATE CANCER • 1 in 8 men will get prostate cancer in the UK • Over 250,000 men are living with prostate cancer A cough that doesn’t go away Hoarse voice Unexplained breathlessness A long standing cough gets worse Chest and / or shoulder pains WHAT CHANGES SHOULD I LOOK OUT FOR? Some men with prostate cancer may have no symptoms at all, but if you have any problems with you waterworks, it might be a sign of a prostate problem. Some symptoms caused by prostate problems include: • Needing to pee more often, especially at night • Difficulty starting to pee • Straining or taking a long time to finish peeing Coughing up blood Chest infections Unexplained weight loss WHAT IS THE PROSTATE GLAND? • A weak flow of pee Only men have a prostate gland. It lies underneath the bladder and surrounds the tube that men pass urine and semen through (urethra). The prostate gland’s main job is to make some of the fluid that carries sperm, called semen. • Needing to rush to the toilet – you may occasionally leak pee before you get there WHAT CAN GO WRONG? • A feeling that your bladder has not emptied properly • Dribbling pee Problems with passing urine are common in older men but this does not mean men should have to put up with them. There are treatments available for urinary symptoms as well as prostate problems and prostate cancer. The three main types of prostate problems are: Information provided by Roy Castle Lung Cancer Foundation Stopping Smoking IS IT TOO LATE TO STOP? With help from Prostate Cancer UK we highlight some of the facts that you need to know. WAYS TO QUIT There are lots of ways to quit and the NHS provides free support to help. Quitting can be hard, but with the help of your free, local NHS Stop Smoking Services you are up to four times more likely to quit successfully than by going it alone. WHAT SUPPORT IS AVAILABLE TO ME? You can speak to an adviser over the phone, go to face-to-face meetings, get one-to-one local advice or join the Smokefree Together programme for information and advice via post, text and email. You can try nicotine replacement products or medication to help you cope with withdrawal symptoms. Call the NHS Smoking Helpline on 0800 022 4 332. They can help you decide on the best way to quit and provide information about your nearest services. Lines are open Monday to Friday 9am to 8pm and Saturday and Sunday 11am to 5pm. Information on how to get this support, along with advice on smoking and other forms of tobacco, can be found at www.nhs.uk/ smokefree. There are also lots of useful tools on this website that can help you get started on your journey towards becoming smokefree. Information provided by NHS Smokefree • An enlarged prostate. This is the most common prostate problem and can be referred to as benign prostatic hyperplasia (BPH) or enlargement (BPE) • Prostatitis - An inflammation or infection in the prostate • Prostate cancer AM I AT RISK? • Age: Generally prostate cancer is diagnosed in men over the age of 50 and your risk increases as you get older. • Family: You are 2.5 times more likely to develop prostate cancer if your father or brother has been diagnosed with it, compared to a man who has no relatives with prostate cancer. • Diet: No one knows how to prevent prostate cancer yet but diet and a healthy lifestyle may be important in protecting against the disease and other health problems. TESTING FOR PROSTATE CANCER There is no screening programme for prostate cancer but there is a simple blood test, called the PSA test that can help your doctor work out if you may have a prostate problem. A raised PSA level can show that there might be a problem with your prostate. But a PSA test alone cannot diagnose prostate cancer. So if you are concerned about prostate cancer you should talk to your doctor. WHERE CAN I FIND OUT MORE? You can talk to a Specialist Nurse by calling Prostate Cancer UK’s confidential helpline on 0800 074 8383 or you can visit the website: www.prostatecanceruk.org Information provided by Prostate Cancer UK NHS National Cancer Action Team accepts no liability for the views and opinions of organisations or individuals in this supplement. Naomi’s Story After receiving a mammogram letter in January 2010, I went for it. Two weeks later, I was annoyed to receive a second letter for a recheck because no lump or discharge was found on my breasts. My friend shared her experience of biopsy during the second mammogram but found nothing abnormal. I totally neglected the letter and convinced myself that I was healthy. However, the Breast Screening Service kept on calling. Finally I went with my husband to the Breast Unit in North London. The doctor showed us the deformity of my left breast milk ducts on the second mammogram X-ray, and asked me to undress for a physical examination: my left nipple was inverted. Knowing the seriousness of my health condition, I followed each instruction without any hesitation. After three injections of local anaesthetic, a biopsy was taken promptly. Holding my husband’s hands, looking at the ultra-sound screen and following the movement of the needle moving inside my body, I heard the ‘staple click noise’ without any pain. Nevertheless, I laughed loudly five times to relieve the pain caused by the pressure of the nurse’s hand after each biopsy was taken. We were overwhelmed by the effectiveness of all these procedures and I felt naïve in ignoring my inverted nipple. would be clarified effectively on the spot. The cancer nurse showed deep concern in her explanation and let me choose, for the first appointment, the hospital closest to my home. To my surprise, the very first outpatient appointment at the Breast Unit was in the evening, so good for my work without taking a sick leave and I met my consultant and the named cancer nurse. They listened and answered all my questions respectfully, and eased all my worries. My operation date 20 March with my consultant was jotted down onto the list during my second outpatient appointment. I was able to prepare for the operation in advance, sorting out issues with my job and family. The Breast Unit team did what they promised: the operation was done within one month of confirmed diagnosis and all investigations were sped up effectively. Before I entered the theatre; my consultant came and marked a cross with a pen on my left chest that gave me assurance; I should come round with my operation done on the correct site. I was in the right hands and in control of my illness, and was treated respectfully as a human being. I thank the Breast Unit for saving my life by sending me a mammogram letter before my 50th birthday. Cancer Champions As part of its ‘Cancer does not discriminate’ campaign, the National Cancer Action Team has trained local cancer patient champions in cancer awareness. The first champions attended a two day training course in London. The champions will now deliver awareness sessions in their own local communities to promote cancer awareness, encourage screening take up and generally get people in their local community to talk about cancer. Paula Lloyd Knight, Associate Director NCAT, said 'It has been a pleasure and Useful Organisations Production Credits Macmillan Cancer Support Carers UK Chinese National Healthy Living Centre 89 Albert Embankment, London, SE1 7UQ Macmillan Cancer Line: 0808 808 0000 (An interpreter can be requested) 20 Great Dover Street, London, SE1 4LX Carers Line: 0808 808 7777 (10am-12pm and 2pm-4pm, Wed & Thu) 29 – 30 Soho Square, London, W1D 3QS Tel: 020 7534 6546 Website: www.macmillan.org.uk Email: advice@carersuk.org Website: www.carersuk.org Email: info@cnhlc.org.uk www.cnhlc.org.uk Provides specialist advice and support through Macmillan nurses and doctors, and financial advice and grants for people with cancer and their families. Carers UK provides high quality advice and information to carers and the professionals who support carers. For more information please contact RAFFA via admin@raffa.org.uk or telephone 07958 744660 Chinese National Healthy Living Centre (CNHLC) was founded in 1987 to promote healthy living and facilitate access to health services for the Chinese community in the UK. The Centre aims to reduce the health inequalities experienced by the Chinese community. Language difficulties and cultural differences present major obstacles to many Chinese people accessing mainstream health and social care services. CNHLC works closely with both statutory and community organisations to deliver its mission. Naomi has since become one of our Local Cancer Patient Champions, see the article to the right for more information. Two weeks later at the same hospital, I met a Chinese couple waiting anxiously. I comforted them from my experience that everything an honour training the local cancer patient champions, they were all so enthusiastic and passionate about making a difference in their communities, many of them already have events planned. Having local champions who are part of faith communities is a great way to deliver the 'cancer does not discriminate' message, I'm sure they will all go on to make an impact in their respective communities' Editors Paula Lloyd Knight Associate Director, Patient Experience, National Cancer Action Team Claire Elshaw Communications Coordinator, National Cancer Action Team Production Partner Eddie Chan Director, Chinese National Healthy Living Centre Translation provided by Yan Hua Ou Sharon Loh Naomi Cheung Contributors Cancer Screening Programmes NCAT Production Coordinator Claire Elshaw Design D237.com NHS Smokefree Special thanks to Naomi Cheung, Suzi Chung NHS National Cancer Action Team accepts no liability for the views and opinions of organisations or individuals in this supplement.
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