A Family Guide Your Inpatient Stay at All Children’s Hospital Main Phone Number: 727-898-7451 Or Toll-Free: 1-800-456-4543 All Children’s is a Smoke-Free Campus Some Safety Tips We ID for Patient Safety Checking a patient’s ID helps us provide the right care to the right patient. We will look at your child’s armband to check name, date of birth and medical record number. It’s OK to ask our staff if they have checked your child’s armband, and be sure to tell us if the armband falls off. Please Bring Your Child's HOME MEDICATIONS With You Please bring all of the medications your child takes at home with you to the hospital. This helps us continue those medications during your child's stay and coordinate what your child will need when he or she is ready go home. It's best to bring all of the medications with you so that we can see the labels, but if that's not possible please make a list that includes: Medication Name: Form it comes in: (example: liquid or tablets) How much do you give? (example: 2 tsp) Strength of the medicine: (example: amoxicillin 400 mg/5mL) How often you give it (example: twice a day) Route: (example: by mouth) If you didn't have a chance to bring these with you, please ask a relative if they can bring the medicine or create a list for you. All Children's now has a free smart phone app called "All Children's Hospital Pocket Doc" that lets you keep track of all of your child's medication. Download it on your phone or web browser and check it out! Scan here to download Pocket Doc Scrub A Dub Dub : Our Helpful H and Hygiene Video Watch Scrub A Dub Dub, our award-winning hip-hop hand hygiene video, to learn about the importance of hand hygiene in preventing the spread of infection. Go to the movie theater icon on GetWell Town and look under “Health and Safety”….you’ll find Scrub A Dub Dub in the Safety category. You can also watch it by looking up All Children’s Hospital on YouTube. Welcome A Message from the Family Advisory Council T here are times when the hospital is the only place you and your child can receive the care you need. We hope this guide will help you during your stay by providing you with information about the facilities, routines and policies at All Children’s and the many resources that are available to you. On some of these pages we’ve included advice from parents who have been there—often many times—-to guide you through your medical journey and ease your path. We wish you healing. Sincerely, The All Children’s Hospital Family Advisory Council The Family Advisory Council was established in 2008. It brings together patients, parents and caregivers to look at ways to continue to improve the All Children’s experience. For more information, please contact: familyadvisorycouncil@allkids.org. Have a Safe Stay W e need your help to keep our environment safe. If you have any safety concerns, you can talk to your child’s nurse or call our SAFETY HOTLINE AT EXT. 78894 (or 727-767-8894). For more safety tips, please see pages 16 and 17. Everyday Safety l Crib rails must be up at all times. Side rails on beds should be up when your child is sleeping or on medication. l Make sure children do not climb on furniture in patient rooms or in other areas. l IV poles are not safe for children to ride on. l Candles and appliances such as curling irons, coffee pots and fans are not permitted. l Frequent handwashing (or using hand sanitizing gels) is the best way to prevent the spread of infection (see page 7). l Don’t leave valuables (purses, laptops, cell phones) unattended. Emergency Procedures If there is an emergency in your room, use the call button to get help. If there is an emergency in the hospital, like a fire alarm, STAY IN YOUR ROOM WITH YOUR CHILD. A hospital staff member will tell you if you need to leave. Emergency Evacuation maps are located on all floors. USE THE STAIRS during an emergency evacuation. Do not use the elevators. Call Security for a R ide or for a Security Concern Please call ext. 73300 or 727-767-3300 to reach our Security officers. Table of Contents The Basics. . . . . . . . . . . . . . . . . 2–5 Family-Centered Care Family Presence Visiting Policy & Hours An Important Word About Our Patient Directory Badges Food & Families Cafeteria, Patient Meals/Snacks & Room Service, Guest Trays, Breastfeeding Moms, Coffee, If Your Patient is NPO Gift Shop Retail Pharmacy Parking After-Hours Entrance to the Hospital Information Desk Ronald McDonald House Phones Computers, WiFi & CarePages Privacy U.S. Mail ATM/Banking Nearby Shopping Smoke-Free Campus No Fragrances, Flowers or Latex Balloons Your Room & Other Special Places . . . . . . . . . . . . 6–8 Your Hospital Room Hand Hygiene About Appliances & Electrical Outlets Playrooms Children’s Auditorium Rooftop Terrace Family Resource Center Family Lounges Chapel & Reflection Garden Your Healthcare Team . . . . 9–12 What is a Teaching Hospital? More About Doctors More About Nurses & The Care Team Where’s The Nursing Station? Health Unit Coordinator Other Members of the Clinical Care Team Acute Care Rehab Team IV Team Pain Team Skin Care Team Asking Questions: Learning About Your Child’s Care Support for Families . . . . . 13–14 Patient & Family Care Coordination Integrated Care Management Child Life Department Music Therapy Patient Academic Services Family Representatives Pastoral Care Interpreter Services Support for Breastfeeding Mothers Financial Questions & Medical Records. . . . . . . . . . 15 Financial Questions Getting Medical Records Safety. . . . . . . . . . . . . . . . . . . 16–17 Hand Hygiene Infection Control Preventing Infections—You Can Help! Help Us Keep Your Child Safe CPR Classes Child Passenger Safety Safety Hotline Patient Bill of Rights & Responsibilities . . . . . . . 18–19 1 The Basics : Family-Centered Care We are committed to family-centered care and we try to do the following: l Place the patient and family at the center of care l Work to keep the family together as a unit during a hospital stay l Encourage the family’s participation in decisions about care l Promote the safety of patients, families, visitors and staff l Create a healing environment through attention to psychosocial, environmental and complementary therapies Family Presence Parents and guardians aren’t visitors. You are a vital part of your child’s care team and you can be with your child any time of the day or night. You will receive a special badge so you can have access 24 hours a day. With parental consent, grandparents can be with the patient 24 hours a day. Visiting Policy & Hours For other family members and friends, visiting hours are usually 9 a.m. to 9 p.m. Some Patient Care Units have special rules about visiting—ask your nurse or Health Unit Coordinator. Please remind all visitors to stay home if they have a cold or fever or if they have been exposed to someone with a cold, the flu, or an illness like chicken pox. This protects your child’s health and the health of all our patients! 2 A n Important Word A bout Our Patient Directory As part of the admitting process, your child’s name is listed in the computerized Patient Directory. Our phone operators may use this Directory to transfer calls to your child’s room (NICU rooms do not have phones). Our Information Desk staff use the Directory to give your child’s room number to visitors who ask for a pass. Please be aware: If you choose not to have your child’s name listed in the Patient Directory, our phone operators and Information Desk staff will not be able to tell relatives or friends that your child is a patient here. They will not be able to transfer phone calls to you or send visitors to your child’s room or care unit (unless you yourself have talked to that person to give them the room number). Please see the Admitting Department (1st floor) if you want to make a change to your decision about being included in the Patient Directory. Badges Parents, guardians and grandparents (with parental permission) are given special badges. Other visitors must get a new visitor pass each day from the Information Desk on the 1st floor or the Information Desk on the 2nd floor of the Outpatient Care Center. Food & Families Cafeteria/Dining Room, ext. 73019 The All Children’s Cafeteria serves food from 7 a.m. to 12:30 a.m. It has indoor seating plus an outdoor dining area (non-smoking). The Dining Room sells pizza, rotisserie chicken and other hot meals to go. There are vending machines near the Dining Room exit that are available 24 hours a day. Meals for Patients: Room Service, ext. 73663 Patients can order from the Room Service menu between 7 a.m. and 11 p.m. There are lots of great snacks and meals to choose from, plus ICEE drinks and milkshakes. Guest Trays “Guest Tray” meals are available for family members and other guests of patients and are delivered to the patient’s room. You can purchase Guest Tray meal tickets in the cafeteria or you can pay using your credit/debit card when you order. The cost is $5 for lunch and $6 for dinner. Call ext. 73663 to order the Guest Tray meal. Guest Trays are available between 7 a.m. and 11 p.m. daily. Coffee Coffee is sold in the cafeteria, which is open 7 a.m. to 12:30 a.m. every day. The Outpatient Care Center Café (OCC 2nd floor) sells coffee from 7:30 a.m. to 4 p.m. Late at night, when the cafeteria is closed, coffee is still available near the back entrance to the cafeteria, near the vending machines. If Your Patient is NPO “NPO” means no food or beverages. NPO patients may be more comfortable when parents/ visitors don’t have food or drink in the room. Aiden’s favorite thing to eat in the Hospital is “Cheerios & Dream.” That means Cheerios and Rice Dream (a non-dairy beverage). A liver transplant recipient with many food allergies, Aiden can’t have dairy or soy products. When he’s hospitalized the Dietary Staff meets his special needs. Advice from Families, for Families If your child doesn’t seem to have an appetite you may not feel comfortable encouraging them to eat. The Room Service menu has kid-friendly choices that can be more appealing than a traditional meal. Patients can order snacks or meals from the Room Service menu throughout the day and evening, so they can eat when they’re hungry instead of on a regular schedule. Things like milkshakes and ICEEs, pizza, tacos, spaghetti and mac-andcheese are available. Encourage your child to try something. If that works, your child may be able to eat a little more the next time. Gift Shop Ronald McDonald House The Gift Shop on the 1st floor sells toys, foil balloons, books, magazines, merchandise with the All Children’s logo and other items. Proceeds benefit All Children’s. Ronald McDonald House is a “home away from home” for out of town families whose children need inpatient or outpatient care. There are three Ronald McDonald Houses at All Children’s Hospital. All three houses are smoke-free and alcohol-free. R etail Pharmacy The Retail Pharmacy on the first floor can fill prescriptions your child will need after leaving the hospital. It also sells non-prescription medicines like Tylenol or Motrin and other items. Call or stop by to see if they are on your insurance plan. Phone: ext. 78933 or 767-8933. Parking The Family & Visitor Parking Garage is connected to the Outpatient Care Center and the Hospital by overhead walkways. The address for the garage is 651 5th Street South. Valet parking is available at the main entrance of the hospital from 5:30 a.m. to 5 p.m. for a small fee. A fter-Hours Entrance to the Hospital The main lobby of the hospital closes at 9 p.m. After 9 p.m., parents can enter the hospital through the Family & Visitor Parking garage. You can enter the Outpatient Care Center from the 2nd floor of the garage and then continue to the hospital. You will need to display your parent badge before the entry door from the garage to the Outpatient Care Center will open. Information Desk There are Information Desks located in the main lobby of the Hospital (1st floor) and on the 2nd floor of the Outpatient Care Center (you’ll see it if you use the walkway). Ronald McDonald House East & Ronald McDonald House West The East and West houses have private bedrooms with bathrooms. One bedroom is available per family, with up to four people in a room. Families share common areas that include a kitchen, dining room, living room, recreation room, patio and playground. All families help with the upkeep of the house by doing a daily chore. Some meals are provided and basic pantry items are available. Families are responsible for their personal laundry and cleaning of their bedroom at checkout. All Children’s Hospital security vans provide service between the houses and the hospital. A room request may be made up to 30 days in advance. Confirmation is required the day of arrival. Check in is daily from 10 a.m. to 9 p.m. (8 p.m. at West House). Ronald McDonald House Central Ronald McDonald House Central is located on the first floor of the Outpatient Care Center, directly across the street from the Hospital. Every day, from 10 a.m. to 4 p.m., any family with a child in All Children’s Hospital can use the computers, television and laundry facilities and enjoy snacks. Rooms for showers and/or naps are available on a first come, first serve basis. They cannot be reserved by phone. There are also 14 bedrooms in McDonald House Central for families with children in the intensive care units. Check in is from 10 a.m. to 8 p.m. To request a room at any of the three houses, call ext. 77694 or 727-767-7694. A contribution of $10 per family per night is suggested. Ronald McDonald House East - 401 7th Ave. South Ronald McDonald House West - 702 8th Ave. South Ronald McDonald House Central - 601 5th Street South 4 Phones If you’ve been a patient here before, you may notice a change in our phone system. Extensions now have five digits. So if you’re calling another area of the Hospital from your room, you’ll dial a 5-digit extension. Main phone number: 727-898-7451 Toll free: 1-800-456-4543 Thanks to a wireless distribution system in the new hospital, most cell phones should work from anywhere in the building. However, a few cell phone carriers do not yet support this service. Computers, WiFi & CarePages Wireless Internet access is available throughout the Hospital. Our service set identifier (SSID) is allkids (use lowercase letters). Encryption is not available. Bedside computers are for staff only. Computers for families to use are available in some of the Family Lounges, the Family Resource Center (2nd floor of the Outpatient Care Center) and in Ronald McDonald House Central (1st floor of the Outpatient Care Center). You can use a free service called CarePages to create a website about your child’s progress and then “accept” visitors to the CarePage. It’s easy to set up. Go to www.allkids.org and click on “CarePages” at the top of the page. Or use the parent section of GetWell Town (and click on the tower). Privacy We work hard to respect your family’s privacy. In turn, we ask you to respect the privacy of other patients and families. Please don’t ask our staff for information about other patients. Families should not take pictures or video of any other patients or any areas where patients may be seen. U.S. M ail There is a mailbox in front of the hospital. If friends and relatives want to send mail to your child it should be addressed: Patient’s Name & Room Number All Children’s Hospital 501 Sixth Avenue South St. Petersburg, FL 33701 ATM/Banking There is an ATM located at the entrance to the Cafeteria/Dining Room. Nearby Shopping There is a Publix Super Market located in the University Village Shopping Center, 250 3rd Street South FL 33701. The phone is 727-822-1125. There is a CVS located at 301 3rd Street South (across from the Publix listed above). The phone is 767-822-7115. Smoke-Free Campus All Children’s is a smoke-free campus. For the safety and health of our patients, families, staff and visitors, smoking is prohibited on our property. This includes buildings, parking lots and garages. No Fragrances, Flowers, or L atex Balloons Some of our patients and our staff have allergies to perfumes, colognes, and scented lotions. Please don’t wear fragrances when you come to the Hospital. Flowers can cause respiratory problems or carry infections. Please don’t bring or send them to the hospital. Latex balloons are a choking hazard and are not allowed. Foil balloons, stuffed animals and toys are good alternatives. 5 Your Room & Other Special Places Your Hospital Room Each room has zones for the Patient, Family and Caregiver. The Patient Zone has: l A bed (or isolette or crib) l The headwall and foot‑wall, with a 42” HDTV TV & GetWell Town The patient’s TV is connected to GetWell Town, a patient entertainment and educational system. It has more than 60 games, cable TV, on-demand movies for kids, and the Internet. Internet access is standard, but parents can set controls. (If you choose parental controls there is a toggle switch to turn them on and off). You can use GetWell Town to make some requests (an extra blanket, for instance), rate your experience at All Children’s, nominate an employee for the Daisy Award (for nurses) or for Employee of the Month (all employees, including nurses). GetWell Town aslo provides you with education about asthma, diabetes and other pediatric health issues. The Family Zone has:* l A comfortable sleep sofa l Room for a sleep chair for a second parent or family member l A cabinet for personal belongings l A small refrigerator l A TV with cable stations l A small safe for valuables, including laptop computers and cell phones *Because our NICU patients have different needs, our NICU rooms have different features. The Care Team Zone has: l A bedside computer that’s just for members of the Care Team l A supply cabinet l A sink And speaking of sinks… 6 H and Hygiene Hand hygiene (washing hands with water or using the alcohol-based hand rub) is the most important way to prevent the spread of infections. Hospital staff must wash their hands before and after patient contact. Family members and visitors should do this too. Always clean your hands: Playrooms There are four playrooms to meet our patients’ different needs: 8th Floor: This playroom is open to all patients (with medical clearance) and siblings. It has a special features for young children, but all ages are welcome. l Before and after visits 7th Floor: l After contact with body fluids, using the bathroom or changing a diaper This playroom is open to all patients (with medical clearance) and siblings. It has a special focus on older children and teens, but all ages are welcome. l After touching equipment or removing gloves, gowns or masks Wash your hands this way to remove germs: l Use warm water and soap l Apply the soap and then scrub well for at least 10-15 seconds to remove germs l Be sure to scrub between fingers, under and around nails l Rinse hands and leave water running l Dry hands with a clean paper towel l Use the paper towel to turn off the water When and how to use alcohol-based handrub: l You can use the handrub if your hands are not visibly dirty (unless the nurse says you always need to use soap and water) Tactile Playroom-5 North The Tactile Playrooms is reserved for CVICU (and PICU patients) with limited mobility. PICU Playroom (55) For our Pediatric Intensive Care Unit Patients Hematology-Oncology Playroom - 7 South This playroom in the Hematology-Oncology Unit is limited to 7 South patients because they are at high risk for infections. Children’s Auditorium l Pump some handrub onto your hands, then rub together The Children’s Auditorium is on the 2nd floor. Video Bingo is broadcast from here every week. The Auditorium also hosts Movie Nights and special events and performances. l Be sure to rub between fingers, under and around nails Rooftop Terrace l Do not rinse the handrub off with water A Note A bout A ppliances & Electrical Outlets Do not use small appliances like coffee makers, curling irons, etc. in your child’s room. Electric holiday decorations and candles also are not permitted. Cell phone chargers, hairdryers and computer equipment are OK. Be sure to use the regular outlets and not the red outlets. There is a Rooftop Terrace on the 2nd floor. It’s a nice place to sit and enjoy the outdoors. There is a small play area for patients and siblings. (Your child’s healthcare team needs to give the OK to visit the Terrace). There is no smoking anywhere on the ACH campus, including the Rooftop Terrace. 7 Family R esource Center Library, ext. 73880 or 727-767-3880 The Family Resource Center Library is on the 2nd floor of the Outpatient Care Center. Patients and their families can use the Center’s collection of books and magazines, videos/ DVDs, computers and online resources to learn about medical topics. The Family Resource Center Library has a professional librarian who can help you find information and can talk to you in a private conference room. There are comfortable areas for reading, using the computer stations, and watching videos and DVDs. Family Lounges Each Patient Care Unit has a Family Lounge. Ask where to find the Family Lounge for your area. It’s a good place to visit with family members or take a break from the bedside. Chapel & R eflection Garden The chapel on the first floor provides a welcoming environment for people of all faiths. The chapel is open 24 hours a day. An outdoor Reflection Garden is located next to the chapel. Smoking is not permitted in the Garden. (See p. 14 for information on Pastoral Care) Advice for Families, from Families Having a child in the hospital can be very stressful. Taking care of yourself will help you cope with stress. Try to get enough rest and have healthy meals. Taking a little time away from your child’s bedside can help you “regroup.” You may find that after a short break you’re able to be more relaxed and reassuring with your child. If you need to have conversations—in person or by phone—that may be stressful for your child, it’s best to find a place away from your child’s room. If you have other children here with you at the hospital, they may appreciate some time with you away from the bedside, too. This can make it easier for you to focus just on them for a few minutes. 8 Your Healthcare Team A s a teaching hospital, All Children’s uses a team approach to provide comprehensive care. Your Healthcare Team may include doctors, nurses, respiratory therapists, OT, PT or speech therapists, phlebotomists (staff members who draw blood samples) and other professionals. Families are an important part of the team! What is a Teaching Hospital? Teaching hospitals link patient care, clinical medical education and clinical research. We train medical school graduates in pediatric care (these are called resident physicians) and provide learning opportunities for medical students. We also help train nurses, pharmacists and other child health specialists. Teaching hospitals create an environment that promotes: l Availability of the newest treatments and technology l Shared expertise of highly trained pediatric subspecialty physicians l A multi-disciplinary team approach to care Because we’re a teaching hospital, quite a few people may come into your room to talk about your child’s diagnosis and care. You may hear them talk about different treatment options. Sometimes this is because there is more than one standard treatment, while other times the discussion is part of the teaching method. Patients and families can be teachers, too. You can help the team get to know your child and how to relate to patients and parents. You can help them understand the life of a family with a child who has serious illness or injury. Advice from experienced patients Hi, my name is Jaclyn. I’ve been an ACH patient since birth. It’s very important to write down any questions or concerns you or your family may have during your visit. When the doctors and Care Team members enter your room, sometimes their time is limited. Writing questions and concerns down ahead of time makes it easier to get answers as soon possible. Even a silly question is important! — Jaclyn D. If you don’t understand something, ask questions. Everyone is here for you. This is All Children’s Hospital and you are All Children. Tell your Care Team what is going on with you. You know your body better than anyone else does, and the more your Care Team knows the more they can do to help you. Don’t worry about grossing out your nurse…whatever is happening, he or she has probably seen worse. —Mary L. 9 More A bout Doctors The Attending Doctor is the physician in charge of your child’s care or who performs your child’s surgery. The attending physician may change according to your child’s condition or special needs. The attending doctor may be a pediatric subspecialist, a pediatrician who has completed years of advanced training in a particular area of child health. If your child is in the NICU, the attending physician will be a neonatologist. If your child is in the PICU or CVICU, the attending physician may be an intensivist—a doctor whose subspecialty is pediatric critical care. A Hospitalist is a pediatrician who specializes in taking care of hospitalized patients. A hospitalist may be your child’s attending physician, or the hospitalist may work with several subspecialists to coordinate your child’s inpatient care and discharge plan. A Resident Physician (or resident) is a medical doctor who has graduated medical school and is completing advanced training in pediatric care. Residents are very involved in patient care at teaching hospitals like All Children’s. An attending physician always supervises their work. A Fellow is a physician who has completed a residency and is now doing advanced training in one particular area of pediatric care. An attending physician always supervises their work. Other people who may assist your child’s doctors: A Medical Student is a future doctor who learns by participating in the healthcare team and is supervised by an attending physician. A Physician Assistant (PA) has advanced clinical training and may work closely with your child’s physician. He or she can perform some of the same tasks that doctors do. More A bout Nurses & the Care Team You and your child will interact the most with nurses during your stay. There are different kinds of nurses who have different 10 roles, and all of them are dedicated to your child’s needs. Please ask them any questions you have about your child’s care. Registered Nurse (RN) : Your child’s daily care will be directed by a registered nurse. The nurse is the key contact person between you, your child and the other members of the healthcare team. Nurses work in “shifts.” Most of the time your child will have two or three nurses during a 24-hour period. Patient Care Assistant (PCA) : Patient care assistants may check vital signs (temperature, blood pressure & more), ask about pain, and help with patient care. Nurse Practitioners (ARNP or NNNP) and Clinical Nurse Specialists : These nurses have graduate level education and certification. They often have an active role in a patient’s care. Nurse practitioners may perform some of the same functions as physicians or physician assistants. Charge Nurse : During each shift, the charge nurse is the acting supervisor and is the “go to” person on the unit for other nurses. Department Director : Each nursing unit has a Department Director who oversees all nursing care. Where’s the Nursing Station ? The design of our new hospital may be different from what you’re used to. Instead of having to go back and forth between patients and a centralized “nursing station,” your nurse will use the computer in your child’s room or one of the computers in the hall close to your child’s room. This means the nurse will be closer to you for more of the time. Health Unit Coordinator As you enter your Patient Care Unit you’ll be greeted by the Health Unit Coordinator, who is the first contact point for visitors. Other Members of the Clinical Care Team Other people who may take part in patient care include: Dietitian : Many children have special nutritional needs. The dietitian will review these needs and develop menu plans or formulas for the patient. Respiratory Therapist (RT) : A health professional who helps with breathing problems and special equipment for breathing or lung disorders. Pharmacist : A pharmacist may help a patient learn how to use certain medications (like asthma inhalers) and answer questions about your child’s medicines. IV Team An IV (intravenous needle) may be part of your child’s care. An IV may be used to give medicines or fluids. Sometimes the IV is started in a treatment room to make the process easier for the child and the nurse. The nurse inserting the IV will choose the best vein. In infants and babies, choices include the hand, arm, foot, scalp and neck. For scalp IVs, some hair may need to be removed. If possible, the IV nurse will avoid using the feet in children who are able to stand and walk. Depending on each patient’s needs, some additional Teams may also provide care: Even though IVs are checked often, problems can still occur. Tell your child’s nurse right away if you see or feel any redness, swelling, pain, wetness or rash near the IV site, or if the alarm sounds on the IV pump. Acute Care R ehab Team Your nurse can tell you about the IV and answer any questions. Our Acute Care Rehabilitation (Rehab) Team works with patients who need help with speech and communication, motor skills, cognitive problems after injuries, and activities of daily living. A physician referral is needed for these services. The Acute Care Rehab team helps families plan for the discharge home and can make referrals to other All Children’s rehab centers close to home. Team members may include: Audiologist : A specialist who can identify possible hearing problems and provide follow-up if hearing devices are needed. Occupational Therapist (OT) : A specialist who helps patients with a range of skills and activities of daily living. Physical Therapist (PT) : A specialist who helps with exercises and other physical treatments designed to improve movement. Speech-Language Therapist : A specialist who helps children with swallowing or feeding problems and language development. Pain Team Helping kids be as comfortable as possible while they heal is one of our most important goals. The Pain Team works with parents and healthcare providers to prevent and manage a child’s pain. Team members have different ways to evaluate your child’s pain based on age and development. Talk to your child’s doctor or nurse if you have concerns about pain. The attending doctor orders pain medicines and therapies, and may choose to consult the Pain Management Team. The nurse specialists on the team may suggest additional medicines and/or techniques like guided imagery, breathing techniques, music and other complementary therapies. Let the nurse, doctor or another Care Team member know if you are interested in complementary therapies like aromatherapy, massage, self-hypnosis, therapeutic touch and other healing therapies. 11 Skin Care Team Our nurses monitor your child’s skin for changes like rashes or wounds. Sometimes illnesses, medicines or changes in activity can cause skin problems that may be difficult to heal. Your child’s doctor or nurse may consult the Skin Care Team. The Team’s nurses will discuss these concerns and make recommendations. Talk to your child’s doctor, nurse, or other healthcare provider if you have questions about skin care. A sking Questions : Learning A bout Your Child’s Care Parents know their child best. We want you to be a partner with us in caring for your child. Please feel free to ask us about any concerns that you may have. You should ask your child’s nurses and doctors any questions you have about your child’s medical condition, treatment and hospital experience. The Family Information Board in your child’s room has a place to write down questions or messages. Advice from Families —for Families As parents or guardians we are important members of the healthcare team because we know our children best. You can take an active role in helping your child get well. For example: l If a care team member you don’t know comes into your child’s room, ask for an introduction. l Be honest. Tell the Care Team everything they need to know about your child—even if it’s something that makes you a little uncomfortable to talk about. l Let kids speak for themselves when possible. We try hard to take care of our child’s needs—but kids should be able to answer questions directly (and ask them, too)! l Don’t be embarrassed or afraid to ask for a simpler explanation of your child’s condition. If you hear medical words or abbreviations you don’t understand, ask for an explanation. l When you are worried or sleep-deprived it can be hard to understand or remember what a caregiver tells you. Write down information you’ll want to remember. l Tell the team if your family has any special religious, cultural, home care and/or financial needs that will affect the treatment plan and your child’s care after you return home. l If something “just doesn’t feel right,” please speak up. You are an expert about your child, and your concerns are important. l The Family Resource Center Library (located on the 2nd floor of the Outpatient Care Center) is a good place to learn more about specific illnesses and child health problems. 12 Support for Families M edical issues are just part of a family’s concerns when a child is hospitalized. We also try to help children and families with the social and emotional concerns that may go along with illness or hospitalization. Many staff members at All Children’s can help, especially when your child has a serious illness or may be in the hospital for an extended stay. Patient & Family Care Coordination: Child Life, Social Work, Case M anagement Our Division of Patient & Family Care Coordination helps in many ways. Not every family will need these services, but many do—and we are happy to be of assistance. Each Patient Care Unit has a Social Worker, Case Manager and Child Life Specialist The administrative office for Patient & Family Care Coordination is located on the first floor of the hospital. Integrated Care M anagement, ext. 74147 or 727-767-4147 The Department includes social workers and nurse case managers who are here to support you through your stay and to help you prepare for discharge from the hospital. Social workers can help you to: l Communicate with your Care Team to help you understand the treatment plan l Cope with worries and fears about your child’s illness, treatment, return to home or school, and possible ongoing needs l Decide how to explain your child’s condition to siblings, relatives, friends and teachers l Receive emotional support and resources during grief, loss and bereavement l Find resources in the community for potential help with financial, psychological and medical aspects of your child’s illness Case Managers can help you to: l Communicate with your Care Team about your child’s needs during the hospital stay and after discharge l Communicate with health insurance providers about your child’s care l Plan for your child’s discharge from the hospital l Arrange for follow-up care that may be needed after your child is discharged from the hospital Child Life Department, ext. 74323 or 727-767-4323 Child Life Specialists understand the special needs and concerns of hospitalized patients. They can help children to: l Understand why they are in the hospital and cope with fears and worries l Use medical play to get ready for procedures l Express feelings and questions l Cope with pain, discomfort and stress l Enjoy activities like Video Bingo, pet therapy, and activities in the playrooms or the Children’s Auditorium l Help celebrate a child’s birthday that occurs during your hospital stay Music Therapy, ext. 78513 or 727-767-8513 A board-certified Music Therapist is a member of the healthcare team who uses music to help with relaxation, pain management and coping. 13 Patient Academic Services, ext. 74130 or 727767-4130 The Patient Academic Services Coordinator can help patients with school support while they are hospitalized. This includes homework, school absence concerns, school plans (if the doctor says your child will need to be out of school for more than 3 to 4 weeks), and special needs when the patient returns to school. Family R epresentatives, ext. 72110 or 727-767-2110 All Children’s Hospital Family Representatives are here to be your advocate. They can help with: l Communicating concerns or requests l Contacting hospital departments and services on your behalf l Discussing any other special concerns or needs you have l Providing extra support during your hospital stay Pastoral Care, ext. 74258 or 727-767-4258 A hospital stay can be a time of emotional and spiritual distress. Our Pastoral Care program can provide spiritual support while honoring your family’s religious traditions. If you would like, we can encourage a religious leader of your choice to visit you at the hospital. Our chaplains are on campus daily from 7 a.m. to 7 p.m. and also are on call for emergencies. Our chapel on the first floor is welcoming to people of all faiths and is open 24 hours a day. It’s a place for prayer and quiet meditation. There is a Reflection Garden next to the chapel. 14 Talking with a chaplain can be especially helpful in emergencies, at a turning point when it may be time to reconsider treatment options, or with bereavement issues. They also help families explore medical ethics issues with All Children’s Advisory Committee on Human Values & Ethics or the Institutional Review Board. Interpreter Services, ext. 74147 or 727-767-4147 We can provide language or sign interpreter services to you if needed, at no charge. Interpreter services may be provided by phone. Each care unit has a double-handset phone that can be used to connect the caregiver and the parent/guardian at the same time with medical interpreters in more than 150 languages. We also can provide TDD phones. To meet your needs, it helps us to be able to plan in advance. Please call ext. 74147, or 727-7674147 from outside the hospital, to let us know if someone in your family needs an interpreter. Support for Breastfeeding Mothers Our BEST Program (Breastfeeding Support & Education Team) is available to assist you. Call ext. 78686, or 767-8686 to learn more about BEST and the Mother’s Milk Depot (72929 or 767-2929). Advice from Families, for Families Don’t hesitate to ask for services if you think they will meet your needs. If you think you may need services that are not listed here, talk to a Family Representative. Financial Questions & Medical R ecords Financial Questions O ur financial counselors are available to answer questions about insurance issues and hospital charges. Please call them at ext. 74163, 78874 or 78016. Advice from Families, for Families You may wind up talking to several people at your health insurance company or other offices. Try to write down their names, titles and phone numbers and the date/time of the call. You can use the pages at the back of this book or get a small notebook to keep with you. If your child will have an extended hospital stay, organizing a three-ring binder that contain medical and insurance information you need can be very helpful. Don’t be afraid to ask questions! Getting M edical R ecords Please talk to the doctor or nurse if you would like to discuss your child’s medical record or protected health information during a hospital stay. You can visit the Health Information (Medical Records Department) on the first floor of the Outpatient Care Center to request medical records. You can also print out a request form on our website, www.allkids.org. The phone number for our Health Information Management department is ext. 74281, or 727-767-4281. You can get a CD with copies of radiology studies (x-ray, CT, MRI) on the day of discharge. Go to the Radiology Department on the Hospital’s 1st floor for this request. 15 Safety H and Hygiene Hand hygiene is the number one way to prevent the spread of infections in the hospital. See page 7 for instructions on cleaning hands with soap and water or with alcohol-based handrubs. Infection Control You may see a sign on the door to your child’s room with instructions for preventing infections. These signs tell Care Team members, family members and visitors when preventive measures (mask, gown and/or gloves) may be needed. Sometimes these items will only be needed by people who will touch the patient or the bed, or come within a certain distance of the patient or the bed. If you have any questions about infection control precautions for your child, ask your nurse for more information. Preventing Infections —You Can Help! Hospital rooms can contain germs that can cause serious infections, especially for: l Patients with weakened immune systems l Patients who have had surgery l Patients with catheters or other tubes inserted in the body Families and patients can play an important role in reducing the risk of infection. Here are some tips: Help us keep your room clean! Just like at home, your hospital room should look and smell clean. Our patient rooms are cleaned daily by our Environmental Services staff, but there are ways that you can help. 16 The places that people touch frequently are most likely to contain germs. These “hightouch surfaces” include: bed rails, bedside tables, IV poles, call bells, door handles, bathroom surfaces and computer keyboards. Our Environmental Services staff members should put on a new pair of gloves when they enter your room and focus on cleaning the high-touch surfaces. You can watch to make sure that the high-touch areas are being cleaned. Don’t be shy—if you believe they have missed something, please let them know! If you have questions, call the Environmental Services office or ask your nurse to call. Sharing your concerns can help ensure a clean, healthy environment. Don’t add clutter Limit personal items, and store them in the cabinet for family items. This makes it easier to clean the room. Use the safe in your room to store valuables like laptops and cell phones. Keep personal items off the floor and away from waste containers. When you have items for the trash, throw them away immediately. Keep the over-the-bed table clean Your over-the-bed table should be disinfected at least once a day. The Environmental Services staff will do this once a day, but you can clean it with soap and water at other times. It’s a good idea to clean the table just before a meal is delivered. Don’t keep trash on the table. Never use a dirty pillow If your pillow falls on the floor or becomes soiled, ask for a new one. You can tell your nurse or request one through GetWell Town. Visitors carry germs Don’t let visitors sit on your bed or touch your equipment—including the keyboard or pillow speaker for GetWell Town. Ask visitors to sanitize their hands when entering and leaving your room. This prevents them from bringing germs in or carrying them out. Friends or family should not visit if they are sick, or if in the last three days they have had: nausea, vomiting, diarrhea, fever (or feeling feverish), cough or a rash. Take slippers & socks off To keep germs from the floor from contaminating the bed, patients should remove slippers, socks or “footies” before putting their feet on or in the bed. (If cold feet are an issue, socks can be worn in bed—but always put on slippers over the socks when getting out of bed). Here are more important ways that you can support a safe hospital environment: l No curling irons, coffee pots, candles, or electric decorations l Do not plug personal equipment (laptops, phone chargers, etc.) into red outlets l Do not prop doors open l Do not coil restroom pull cords around the handrails—they must hang free for use l Do not tape over door latches or closures l Don’t use a room fan without first getting approval from our infection prevention, nursing and safety staff l Don’t use push pins or tacks in your room--use magnetic strips instead l Create a scrapbook or “treasure box” for cards or letters to reduce clutter Help Us Keep You and Your Child Safe In our hospital community, we rely on everyone to keep their eyes and ears alert for anything unusual. We have zero tolerance for any kind of abuse or threats. Some of the things to be aware of are: l People hanging around for no obvious reason l Anyone wandering in and out of rooms l Anyone “checking out” cars in the garage l Any unknown persons asking personal and/or inappropriate questions If you see anything out of the ordinary or witness anyone (visitor or staff) abusing or threatening anyone, please tell your nurse or call Security at ext. 73300. CPR Classes American Heart Association “Family and Friends” CPR classes are offered every week for family members of any of our patients. There is “handson” teaching with an instructor. If you’d like to find out about these free classes, ask your nurse. Our Community Education Department also teaches Infant & Child CPR classes. Call ext. 74188, or 727-767-4188 for a schedule of class times and information about fees. Child Passenger Safety Safety is as important as health. Please be sure you have a child passenger safety seat that’s right for your child’s height and weight. Your child will need to be in the car seat when it’s time to return home. If you have questions about proper car seat use, call our Safe Kids Coalition at 1-800-756-SAFE. SAFETY HOTLINE— ext. 78894 or 767-8894 Please call the Safety Hotline to report a safety concern. 17 Patient Bill of R ights and R esponsibilities l To receive access to medical treatment or facilities no matter your race, sex, creed, sexual orientation, nationality, religion, disability, or source of payment. l To be given, upon request and before treatment, a reasonable estimate of charges for health care. A ll Children’s Health System l To be given a copy of your bill and to have the charges explained, upon request. As a patient of the All Children’s Health System, you and your family have the right: l A patient who is on Medicare has the right to know, upon request and before treatment, whether the health care facility and providers accept Medicare Assignment rates. l To expect privacy and respect while you receive your health care. l To know if medical treatment is for experimental research and to say yes or no to the treatment. l To always receive polite and respectful care. l To expect timely and reasonable answers to your questions. l To know who is in charge of approving and doing your procedures or treatments. l To know the name and professional status of your caregiver. l To be informed of rules that apply to your conduct. l To be educated about patient safety issues and how to communicate concerns to staff related to safe patient care and environment. l To know what services are available to help you, including an interpreter. l To take part in decisions about the plan of your health care. l To have access to professionals to help you with emotional and/or spiritual care. l To practice your cultural values and spiritual beliefs, as long as they do not interfere with the well-being of others and are within the limits of hospital policy and the law. l To be given care that is sensitive to one’s developmental needs. l To take part in the discussion of ethical matters about your care. l To be told by your health care provider of your condition, plan of care, risks, benefits, and outcome. l To talk with another doctor or specialist at your own request and expense, or to ask for a transfer to another health care provider, providing it is medically acceptable and the other provider will accept your transfer. l To be told of medical choices for care or treatment. l To treatment for any emergency medical condition that will get worse if not treated. l To refuse treatment, except that written by law, and to be told of the effects of your choice. l To expect a timely response when you complain of pain. l To be given complete information and advice on the financial resources and payment plans, upon request. 18 l To participate in decision-making and be informed of your options in pain management. l To inspect and obtain a copy of your designated record set, in accordance with policy. A designated record set is basically a group of records ACHS uses to make decisions about individuals, such as the medical records and billing records. l To request amendment to your designated record set in accordance with policy. l To receive an accounting of your medical information disclosures in accordance with policy. l To request restrictions concerning how ACHS uses or disclose your medical information in accordance with policy. l To request that ACHS communicate with you about medical matters in a certain way or at a certain location in accordance with policy. l To receive a copy of the ACHS Notice of Privacy Practices. l To discuss advance directives and/or appoint a surrogate to make health care decisions on your behalf to the extent permitted by law for adult patients. You and your family are responsible for: l Giving true and complete information about your present and past health. l Telling your doctor or other health care provider when you are in pain and if your pain is being relieved. l Asking questions when you do not understand what you have been told about the your care or what you are expected to do. l Responding timely to requests for release information. l Not photographing, videotaping, or audio-taping patients or other individuals while at the Hospital, except for your family members. We ask and expect you to let us know of any concerns by communicating them verbally to a member of our staff for informal resolution. Alternatively, you may contact the Risk Management Department (727-767-8575 or call toll free at 1-800456-4543) to initiate the Hospital’s formal grievance process. If you believe we have not been able to adequately address your concerns, you may contact The Agency For Health Care Administration, Consumer Assistance Unit by calling 1-888-419-3456 or write 2727 Mahan Drive, Bldg. 1, Tallahassee, FL 32317-4000. l Telling your doctor or other healthcare provider of any change in your health. l Telling your doctor or other healthcare provider if you understand your plan of care and what is expected of you. l Following the plan of care to which you and your doctor or other healthcare provider have agreed. l Keeping appointments and, if you cannot, telling the right person. l Being responsible for your actions if you refuse treatment or do not follow the plan of care you and your doctor or other healthcare provider agree to. l Paying your medical bills. l Being considerate of the rights of others and following the rules. 19 Notes : 20 Notes : 21 Notes : 22 Your Guide To Patient Care Units 5 North: Heart Center & CVICU (Cardiovascular Intensive Care Unit) 5 South: PICU (Pediatric Intensive Care Unit) 6 North: All Children’s Hospital Guild NICU (Neonatal Intensive Care Unit)—NICU C 6 South: All Children’s Hospital Guild NICU (Neonatal Intensive Care Unit) —NICU A & B 7 North: Surgery & Neuroscience 7 South: Vincent Lecavalier Pediatric Cancer & Blood Disorders Center 8 North: Pediatric Medicine 8 South: Pediatric Medicine Helpful Phone Numbers From a Hospital phone, dial the 5-digit extension listed here From outside the hospital, dial the 7-digit number (plus the area code if you’re calling from outside Pinellas County) Toll-Free from outside Pinellas County, dial 1-800‑456‑4543 and ask for the extension you need Security & Transport. . ext. 73300 Safety Hotline . . . . . . . ext. 78894 Retail Pharmacy . . . . . ext. 78933 Cafeteria Hours & Daily Menu . . . . . . . . . ext. 73019 Interpreter Requests. . ext. 74147 Main Hospital Operator . . . . . . . . 727-898-7451 4th Ave S 4th St.S. changes to two-way Rehabilitation Center BAT Business & Technology Center EPG Employee Parking Garage RMHW Ronald McDonald House West CRI JDS RMHW RMHE 7th Ave S CDRC 9th Ave S BAT EPG 4th St S 8th Ave S 3rd St S Visitor Parking ECC 6th St S OCC ACH Main Entrance Emergency Center Entrance Bayfront Baby Place Entrance ACH All Children’s Hospital OCC Outpatient Care Center CRI Children’s Research Institute ECC Education & Conference Center JDS J. Dennis Sexton Building RMHE Ronald McDonald House East CDRC Child Development & 5th Ave S All Children’s Hospital 5th St S St. Petersburg Bayfront Medical Center 6th Ave S ACH 4th St S 7th St S 8th St S 9th St S TO 275 I-175 501 6th Avenue South St. Petersburg FL 33701 Directions to A ll Children’s Hospital & Outpatient Care Center* From I-275: Take Exit 22 (for I-175 East). Turn right onto 4th Street South (where highway ends). Go one block to first traffic light. Turn right onto 6th Avenue South. For Family/Visitor Parking Garage: Turn left onto 5th Street South and then enter garage on the right. Phone: 727-898-7451 or 1-800-456-4543 *See www.allkids.org for directions to other buildings Rev. March 2013 www.allkids.org
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