about Children’s Hospital of Michigan children’s WINTER 2009 Family Thankful for Children’s Hospital Festival of Trees Celebrates 25 Years Teen Finds Success in Healthy Eating Jacques is a Cool Kid Dear Friends, This has been an extraordinary year at the Children’s Hospital of Michigan. I am thankful that you have chosen to be a part of it. We are so fortunate to have such a caring donor community as gifts from donors like you are more important now than ever before. Philanthropy has played a significant role in our hospital since its inception. In 1886, Dr. Charles Devendorf and a group of prominent Detroit women founded the Children’s Free Hospital Association which later became the Children’s Hospital of Michigan. As a result of their vision and philanthropy, we have been able to help the children in our region and around the world for more than 123 years. We are pleased to count you among those who played an important role in our history. Philanthropic support is key to helping us achieve the greatest of victories – making a child who is sick well again. Without your dedication, our physicians might not be able to conduct pioneering research which impacts children’s health worldwide, our nurses might not have the tools necessary to care for their patients, and our patients might not have pleasant surroundings in which to heal. Please consider making a year-end contribution to the Children’s Hospital of Michigan as your gift will help us prepare for the challenging work we will face in the new year and enable us to provide the very best health care to the children of our community. You may use the enclosed reply envelope, visit us at www.childrensdmc.org, or call our Development Office at (313) 745-5373. On behalf of the patients and families we serve, I thank you for your continued generosity. I am very grateful for your dedication to the Children’s Hospital of Michigan, where all we know and everything we do is just for them. Please accept our best wishes for a healthy and happy holiday season. Sincerely, Herman B. Gray, M.D., M.B.A. President Children’s Hospital of Michigan WINTER 2009 About Children’s is a Children’s Hospital of Michigan Development Office publication. President Herman B. Gray, M.D., M.B.A. Vice President, Development Patrick R. Kelly Managing Editor Rosemary Tokatlian Editorial Staff Ellen D. Burnett Sarah E. McCallum Cynthia K. Rowell Sarah L. Spradlin Saudia L. Twine Jodi L. Wong Feature Writers Marti Benedetti Sheila M. Edwards Marcy Hayes Todd Schulz Design and Printing Grigg Graphic Services Photography Donna Terek Medical Photography Department Detroit Medical Center 15 Jacques is a cool kid Table of Contents 2 Teen finds success in eating healthy 10 Family thankful for Children’s Hospital 20 Outstanding orthopedic staff sets sights high 29 Festival of Trees celebrates 25 years For more information or to make a donation, please contact: Children’s Hospital of Michigan Development Office 3901 Beaubien • Detroit, MI 48201-2196 Office: (313) 745-5373 Fax: (313) 993-0119 Web: www.childrensdmc.org General Hospital Information: (313) 745-KIDS (5437) Teen finds success in eating healthy I Cierra’s 2007 school photo 2 About Children’s Winter 2009 f it was up to Children’s Hospital of Michigan’s Outpatient Dietitian Anne Van Wagoner, R.D. school lunch programs would be revamped to provide healthier food choices and mandatory physical education would be reinstated in Michigan. Van Wagoner sees too many obese children who are prone to a variety of health issues including asthma, insulin resistance, type 2 diabetes, obstructive sleep apnea, hypertension, hypercholesterolemia and depression. “School lunch programs offer few healthy foods for our kids. When you look closely at their menus, many of their lunches resemble typical fast foods: corn dogs, cheeseburgers, hot dogs, chicken patty sandwiches, tacos, pizza, chicken tenders,” says Van Wagoner who provides outpatient nutrition counseling for parents and children. “Since physical education isn’t mandatory in Michigan, many schools only offer gym classes once or twice a week, and some do not offer it at all.” But among the over 420 obese patients Van Wagoner has counseled at Children’s Hospital, one of her favorite success stories is 15-year-old Cierra Boyd of Detroit. With unwavering willpower and healthy eating, Cierra lost 64 pounds and her body mass index (BMI) decreased from 40.9 to 29.0. The 4-foot, 11-inch teen weighed 215 pounds in June 2008. She had acanthosis nigricans, a skin marker of insulin resistance – which is common in 85 to 90 percent of obese children. Diagnosed with asthma By Marti Benedetti as an infant, she was hospitalized for it many times. Her mother, Diann Jackson Boyd, says Cierra was born prematurely because she was jarred in a car accident. So the baby started life smaller than normal but healthy. They have been part of the Children’s Hospital maternal lifestyle program, which meant regular visits to the hospital. Between 6 and 7 years of age, Cierra began gaining weight. “As she got older, kids were making fun of her, telling her she was fat and calling her names,” Boyd says. “At that point I was getting chubby too and was diagnosed with type 2 diabetes. I did not want her to need insulin like me.” Cierra was referred to Van Wagoner by the maternal lifestyles program at Children’s Hospital. Under her guidance, Boyd began modifying her daughter’s diet. The motherdaughter team worked diligently to learn to read labels and pay attention to calories, Boyd says. Foods such as fries, hot dogs, ramen noodles and pizza were eliminated from Cierra’s diet. She stopped drinking fruit juices and soft drinks. She began eating salad with low-fat cheese and light ranch dressing for dinner. She eats high fiber foods and prefers to eat water-packed tuna in place of fried foods. Boyd says a tip for successful weight loss is to prepare food that is healthy but also well liked by the child. Knowing Cierra loves chicken, tuna, tilapia, fruit, broccoli, spinach and carrots, Boyd buys and serves those foods. At a rate of losing nine to ten pounds a month during eight months, the ninth grader melted to 151 pounds by early October. She’s gone from a size 22 or 24 to a junior 11 or 13 and she has not been hospitalized for asthma since she started losing weight. “She is doing so well because she is very self-motivated and has great support from her mother,” Van Wagoner says. “People have many misconceptions about foods and beverages. Many fruit juices have more calories than soft drinks. Kids should drink more water and low-fat milk, and eat high fiber breads and cereals along with more fruits and vegetables. Condiments such as ranch dressing and BBQ sauce add many calories.” “Just changing your diet is not enough; exercise is essential,” says Van Wagoner. “Parents should limit sedentary activities such as watching TV and playing video games to two hours or less daily as recommended by the American Academy of Pediatrics.” Since Cierra has dramatically changed her eating habits and lost weight, her asthma and allergies have disappeared, and she feels better overall. “Before I was out of breath all the time and didn’t feel like doing anything. I was tired,” Cierra says. “Now I feel good, energetic and not sleepy. I can do everything I want to do.” She adds that the most challenging part of her new eating regimen is going to a store or restaurant, seeing the foods she loves and eating something healthy instead. “I still crave pizza and Snickers,” she says. But she says she won’t be deterred from reaching her weight goal. “I didn’t think she had the willpower to do this. I thought she’d sneak food,” Boyd says. “But she is motivated by how good she looks. Everybody is in shock at her weight loss.” Cierra looks and feels great today because she changed her diet to include healthier foods. To learn more about how to support Outpatient Pediatric Nutrition Counseling at the Children’s Hospital of Michigan, please call (313) 745-5373 or visit www.childrensdmc.org. Children’s Hospital of Michigan childrensdmc.org 3 Sinai Guild gift will help reduce risk associated with heart surgeries W Henry Walters, III, M.D. 4 About Children’s Winter 2009 hen surgeons are repairing young patients’ hearts, they also want to protect their minds. Thanks to a generous gift, the Children’s Hospital of Michigan has the cutting-edge technology to help its cardiovascular team do the job. The Sinai Guild, a fundraising arm of the Detroit Medical Center, recently donated nearly $35,000 to purchase a Cerebral/Somatic Oximeter system that’s used during pediatric heart surgeries. Children born with congenital heart defects often need open-heart surgery, which requires them to be placed on cardiopulmonary bypass. If an insufficient amount of blood or oxygen flows to the brain during bypass, the patient could suffer neurological damage. Unfortunately, complications can occur undetected. “Bypass is an unnatural state,” said Henry Walters, III, M.D., chief of cardiovascular surgery. “The bypass machine serves as a heart substitute, pumping oxygenated By Todd Schulz blood to the body. But the body’s response is unpredictable and follows different physiological principles than we normally see.” The Cerebral/Somatic Oximeter system is designed to detect low oxygen or blood-flow levels in the patient’s brain and immediately alert surgeons, who can take corrective steps to avoid brain damage. “We have no other way of doing that effectively,” Walters said. “Before, we had no way of even knowing there might be a problem.” The non-invasive system is a critical upgrade for the 200 or so infants and children who undergo open-heart surgery each year at Children’s Hospital, including six to 10 who receive heart transplants. “The Sinai Guild is so pleased we can make this state-of-the-art technology available to all the children of metro Detroit,” said Rusty Rosman, president of the Sinai Guild. “Open-heart surgery is so frightening for the parents. We’re glad we can help their children at these precarious times.” Children’s Hospital now has two Cerebral/ Somatic Oximeter systems for its operating rooms, the first which was donated by Georges Harik, Ph.D. Plans also include using the machines for post-surgical care in intensive care units. “Anything we can do to optimize oxygen levels in the brain and the body overall during surgical repair will minimize damage to the brain during cardiopulmonary bypass,” Walters said. “That’s a worthy goal.” Dolls are more than child’s play at Children’s Hospital D olls can be more than just playthings at the Children’s Hospital of Michigan. With help from Eloquest Healthcare Inc., special dolls are being used as teaching tools by the child life specialists in nearly every department. The dolls, outfitted with overlays, allow specialists to impart lessons about illnesses and treatments to young patients who absorb more information with less anxiety than they would with a more formal presentation. The wide variety of medical overlays attach like Velcro to slightly fuzzy dolls and provide realistic examples of medical procedures. “Having the dolls and overlays lets us familiarize our patients with their illness and diagnosis in a non-threatening way,” explains Tiffany Wing, C.C.L.S., who works in the hospital’s Burn, Surgery and Rehabilitation departments. “It’s especially helpful if it is the child’s first hospital visit. By showing and modeling what they will be going through, the specialist can help them with any apprehensions and offer coping techniques so they’re less scared.” The overlays, at about $100 apiece, were a perfect fit when the Chief Operating Officer of Ferndale-based Eloquest asked how his firm might help Children’s Hospital. “Eloquest Healthcare’s mission is to support compassion and caring in the practice of medicine,” said Tim O’Halla, “and anything we can do to increase a child’s comfort level during treatment is right up our alley.” By Marcy Hayes Eloquest is a new dermatological specialty company serving hospitals. The overlays were its first philanthropic gift to the hospital – but not its last. A month after making the $1,500 contribution, O’Halla asked the company’s operations program assistant, Michelle Dobies, to coordinate a team-building exercise for a national sales meeting. Dobies suggested that corporate teams build two dollhouses. After a few hours of building – figuratively and literally – a team of seven Eloquest Healthcare staffers delivered the houses to an elated group of Children’s Hospital of Michigan patients, employees and volunteers. Eloquest Healthcare staff also donated furniture and a family for each of the houses. The fully furnished dollhouses now provide lots of fun for children in the hospital’s playrooms. “We toured the hospital and saw first-hand the impact the overlay donation made,” O’Halla said. “I was so pleased to be able to do it. When Michelle made the recommendation to build the houses, it was natural for us to donate them to Children’s Hospital.” The Eloquest team delivered two dollhouses to the patients at Children’s Hospital Children’s Hospital of Michigan childrensdmc.org 5 Adopt-a-Family donors help families in need celebrate C Members of the Ladies Philoptochos Society at Assumption Greek Orthodox Church are annual Adopt-a-Family donors. hildren’s Hospital of Michigan Clinical Social Worker Janet C. Nunn, M.S.W., L.M.S.W., has watched custodial grandparents of sick children spend the last penny of their social security check buying holiday gifts for the kids and then not be able to pay the rent. “They just wanted to make sure that the kids had a traditional celebration, just like every other kid,” she said as she explained why she founded the Adopt-aFamily program in 1992. Assisting families in need has been a rewarding experience for donors. In addition, several families who were once recipients have given back by either adopting a family or giving donations. By Sheila M. Edwards Last year, more than 300 families were assisted by Adopt-a-Family donors, which included corporations, church groups, small businesses, families, Girl and Boy Scout troops as well as individuals. Every family has different needs, so donors can decide which family fits their giving profile. “In October, I already had donors calling me to see what we need and how they can help. Lots of our contributors do this every year,” reported Nunn. “This program would not be possible without the generosity of our donors and volunteers.” To learn more about how to support the Adopta-Family program, please call (313) 745-5281. Snowpile brings holiday spirit to Children’s Hospital patients B eing in the hospital is never “fun” especially if you’re a kid and you’re away from your family and loved ones during the holidays. It can be a difficult and unhappy time. “But if you’re ‘lucky’ enough to be a kid at the Children’s Hospital of Michigan during the holidays, you get to share in Snowpile,” grins Deanna Scanlon, C.T.R.S., child life projects specialist at the hospital. Snowpile is made possible by generous donations from many individuals and groups who provide new, unwrapped gifts for children from tykes to teens. “Toys, gift 6 About Children’s Winter 2009 By Sheila M. Edwards cards, games, books and stuffed animals are all needed,” says Scanlon. Using these items, Children’s Hospital staff and volunteers create a shop – one that literally contains a Snowpile of toys – in which family members of hospitalized children are invited to select gifts for the child and their siblings. Shhh…Snowpile’s existence is kept secret from the kids, but spread the word to help put some joy into a holiday stay at the Children’s Hospital of Michigan. To learn more about how to donate to Snowpile, call (313) 745-5364 or visit www.childrensdmc.org. Auxiliary holiday cards give joy twice “L et it snow!” You can almost hear the joyful shriek of the child catching snowflakes on his tongue as you open this year’s Children’s Hospital of Michigan Auxiliary holiday card showing a happy child with his arms outstretched in the falling snow. The Auxiliary has supported the hospital for nearly 60 years and has offered holiday cards for sale for more than 40 of those years. “We take great pride in the fact that we have a longstanding history of helping the young patients and their families,” said Fran Eldis, Ph.D., Auxiliary president. The Auxiliary provides funding for special projects, “Those needs that aren’t covered in typical operating and capital budgets,” explained Eldis. Over the years, the Auxiliary has provided funding for equipment and services that improved the comfort and safety of Children’s Hospital patients and their families. Items funded include: nebulizers for asthmatic children and blood pressure cuffs for renal patients who could not afford them; SNUG suits for children with neuromuscular disorders; amplification equipment for newly identified hearingimpaired infants; clinical genetics services; therapeutic summer day camp; equipment for the pediatric intensive care unit; and even waiting room furniture. Now the organization has pledged $1 million over ten years toward the hospital’s multi-million dollar capital campaign to renovate existing facilities and build a new Pediatric Specialty Center across the street from the current hospital. By Sheila M. Edwards “Now, more than ever, we need the support we get through holiday card sales as well as sales in our Something Special Gift Shop,” said Eldis. Purchasing holiday cards from the Children’s Hospital of Michigan Auxiliary gives joy twice by supporting programs at the hospital and to those who receive them. Cards are $20 for a pack of 20 cards. The inside of the card reads: “Capture the Joy this holiday season.” Cards may be purchased online at www.childrensdmc.org/giftshop or at the Something Special Gift Shop located in the main lobby at the Children’s Hospital of Michigan. Cards are also available at Festivities in Birmingham. For more information, contact the Children’s Hospital of Michigan Auxiliary office at (313) 745-0962. Sales from the Children’s Hospital of Michigan Auxiliary 2009 holiday card will raise money to support patient programs at the hospital. Children’s Hospital of Michigan childrensdmc.org 7 Vellmure family’s love for helping children results in many gifts E leanore and Harry Vellmure always felt it was their responsibility to help others in need, especially children. They instilled the importance of giving to their three children, who have passed it on to their children and grandchildren. The result of the couple’s generosity is the Harry F. and Eleanore Vellmure Family Foundation, which has given generously to the Children’s Hospital of Michigan. The money has helped pay for an ECMO machine used in cardiac surgery for infants, to support the Child Life program that provides a clean room for children with immune deficiencies, and cooling blankets for premature infants, which has proven to reduce many of the conditions associated with premature birth such as cerebral palsy. “My mother set up the foundation about nine years ago, and Children’s Hospital was at Harry and Eleanore Vellmure 8 About Children’s Winter 2009 By Marti Benedetti the top of the list. She felt it was a solid organization,” says Elizabeth Garey, the couple’s daughter who lives in St. Joseph, Mich. “Both my parents were philanthropic but very humble. They never looked for recognition.” Harry was an attorney and Eleanore a homemaker. Eleanore started and ran the foundation after Harry died in 1985. Eleanore died at age 92 in June 2009. The family now is in discussion about how the foundation will be handled in the future. “At dad’s funeral, we found out about some of the things he did to help people in need, whether it was giving them money or free legal services. Friends and strangers alike thanked us for his generosity,” Garey says. “This giving spirit had inspired me and my brothers.” Tim Vellmure of Grosse Ile, one of Garey’s brothers, says his parents believed in giving first to local organizations such as Children’s Hospital. “She and my father were advocates for children.” While Tim has no children, his brother Fred of Riverview has six and Elizabeth has three. Now there are 16 great-grandchildren. “All the family members are the same way: they work hard and believe in giving generously,” Tim says. To learn more about how to support the Children’s Hospital of Michigan, please call (313) 745-5373 or visit www.childrensdmc.org. Lectureship for Excellence in Pediatric Anesthesia honors Dr. Abboy Mohan D r. Abboy Mohan has been gone for more than two years now, but not only does his influence linger in the anesthesiology department at the Children’s Hospital of Michigan, his name has become part of his former team’s routine. Daily, physicians and staff refer to a procedure developed by Mohan whose former colleagues liked, admired and clearly will never forget him: “Did you remember to Mohan-tape the ET tube?” The same staffers are helping carry on Mohan’s name and work through the creation of The Abboy Mohan, M.D. Endowed Lectureship for Excellence in Pediatric Anesthesia. Mohan was the hospital’s Medical Director of the Operating Room before he died of lung cancer in September 2007. Colleagues say his mere presence was enough to put a surgeon at ease, and his dedication to the people and patients of Children’s Hospital was absolute. He would stay at work for hours on end if it appeared he might be needed. Children’s Hospital Chief of Anesthesiology Maria Zestos, M.D. remembers Mohan as a mentor, a colleague and a friend. “Dr. Mohan taught me the value of leading by example. He gave his all to everything he did,” she says. Today, Zestos inspires colleagues in his stead, with her energetic personality and the skills she learned at his side. By Marcy Hayes Zestos and her team of more than 40 doctors, nurses and clinicians have combined to honor Mohan through the annual lectureship, which will allow the hospital to host national speakers who are experts in the field of anesthesiology. In a telling and impressive display of devotion, 2009 marks the third year in a row that 100 percent of the physicians have made a personal contribution to the fund. While Zestos shares the credit for the idea of creating the endowment with her entire team, Ellen Burnett, director of major gifts for the hospital, knows Zestos is its driving force. “Dr. Zestos leads by example, inspiring people to donate,” Burnett says. “She gives her time, energy and passion to her staff, patients and, in this case, to Dr. Mohan’s memory.” Burnett says Zestos’ team members have come together like a family – which is perfectly appropriate, since that’s the way Mohan always thought of them. To learn more about how to support the Abboy Mohan, M.D. Endowed Lectureship for Excellence in Pediatric Anesthesia, please call (313) 745-5373 or visit Abboy Mohan, M.D. Back row: Drs. Ahmed, Rajan, Durgham, Kaminski, D’Augustine, Wu Front row: Drs. Jwaida, Kemper, Stricker, Zestos, Talpesh, Gall, Pascual Not pictured: Drs. Amin, Bhattacharya, Buch, Skrzypek, Thomas Children’s Hospital of Michigan childrensdmc.org 9 After all this time, Testa family still thankful for Children’s Hospital O ne could hardly blame members of the Testa family for not recognizing much of their surroundings on recent visits to the Children’s Hospital of Michigan. The facility, after all, has changed dramatically in the more than 30 years since Marilyn Testa brought her two young boys there for treatment that forever shaped their lives. But time hasn’t altered the memories of a mother who watched her sons, Michael and David, get the help they desperately needed. In fact, Marilyn Testa’s gratitude has only grown over the decades. “I owe their lives to Children’s Hospital,” she said. “We’re so grateful.” Today, Michael Testa, 33, and his brother, David, 31, are both doing well. Michael is an engineer with a wife and two children. David is a purchasing agent. Both brothers work in the auto industry. But the picture might be different if not for the care they received at Children’s Hospital. Born five weeks premature, Michael was treated for congenital heart defects. At 13 months old, he underwent surgery to patch a hole and place a shunt in his heart. “At the time, I remember my husband (Salvatore) calling Johns Brothers David and Michael Testa at Michael’s wedding October 2005. 10 About Children’s Winter 2009 By Todd Schulz Hopkins and other hospitals all over the country,” Marilyn said. “But we didn’t have to go anywhere. There was a world-famous cardiovascular surgeon right in our backyard.” That surgeon, Eduardo Arciniegas, M.D., pioneered the surgical procedure used to patch Michael’s heart. Arciniegas, a cutting-edge thinker, later designed a pediatric operating table customized for smaller patients. Marilyn Testa and her husband teamed with about 30 other parents to establish the Ticker Club, a fundraising group that supports the hospital’s cardiology care. The Ticker Club helped pay to build two of Arciniegas’ tables, which are tailored to patients under 48 inches tall and allow surgeons to stand closer, providing a better view and a more ergonomic reach. Both pediatric operating tables have been refurbished and are still in use today at Children’s Hospital. “Think of how many lives they have saved,” Marilyn Testa said. “A lot of hard-working people pitched in to make that happen.” The Testas stayed in contact with the now-retired Arciniegas, who even attended Michael’s wedding. But that wasn’t the family’s only experience with Children’s Hospital. David Testa was also born premature, in his case by 10 weeks. As a result, his lungs weren’t fully developed and he required three surgeries to correct serious intestinal problems, including one to connect the large and small intestines. In June, David Testa had the chance to return to Children’s Hospital for the first time since he received care as a young boy. “If not for Children’s Hospital and the doctors at the time, my life could have turned out much differently,” he said. “Knowing the hospital is still there and growing and expanding so other people can department; it’s so high-tech now. It’s have the same opportunity I did is just very impressive.” wonderful.” The Testas are one of countless families During his visit, David Testa met Seetha touched by the high-quality care at Children’s Shankaran, M.D., one of the doctors who Hospital. Thirty years ago, they were simply cared for him during his stay. Shankaran is scared parents with sick kids. But they’ve the hospital’s director of Neonatal-Perinatal been able to watch their children – including Medicine and a professor of pediatrics at daughters Romamaria and Mariann – grow Wayne State University. and have families of their own. “It was inspiring,” he said. “I was absolutely It’s a blessing Marilyn Testa refuses to impressed with the facility and I met quite a take for granted. few doctors who were there during the time “We’re so grateful,” she said. “Now and that I received care. It was a blessed opportuthen, we still look at the old photos. We nity. I’m extremely grateful for the care and cherish them because the boys have been the time they provided to me.” healthy and they’ve both been able to lead Marilyn and Salvatore Testa also recently full lives.” returned to the hospital where their sons spent so much time in their earliest days. To learn more about how to support NeonatalMarilyn, who had not been to Children’s Perinatal Medicine at the Children’s Hospital of since the late 1970s, was overwhelmed by Michigan, please call (313) 745-5373 or visit the way technology has transformed one of www.childrensdmc.org. the country’s top pediatric care facilities. “Obviously, it’s vastly changed,” she said. “The new advances in the cardiology David pictured with Seetha Shankaran, M.D., one of the doctors who cared for him when he was a patient in the Neonatal Intensive Care Unit at Children’s Hospital. Children’s Hospital of Michigan childrensdmc.org 11 Feature – NICU His parents’ love and Children’s Hospital are the greatest of Spencer’s gifts S pencer Gray loves what he used to hate and embraces what he used to fear. It’s been a remarkable 18-year journey, and without the Children’s Hospital of Michigan, he might never have embarked on the first steps. But Marguerite Gray of Imlay City, now 43, was late into her second pregnancy when bladder spasms sent her to the hospital. To her surprise – and alarm – a complication necessitated an emergency C-section. It was only the first of many perilous moments in Spencer’s life. She had barely glimpsed at him before he was whisked to Children’s Hospital, life-saving tubes and wires seemingly everywhere. Her husband, Rev. Robert L. Gray, Sr., was warned that Spencer’s lungs had collapsed and his chances of living through the night were poor. By that point, however, Children’s Hospital nurses had given Marguerite reason for hope. Transport team members had snapped Polaroids for her to keep, Spencer as a baby. Spencer and his dad, Rev. Robert L. Gray, Sr. 12 About Children’s Winter 2009 By Marcy Hayes assuring her as they left that Spencer was in loving and competent hands. Over the next five days, her husband and Spencer’s nurses dialed her hospital room with regular updates. All Marguerite knew was that she was being treated like family. “They would say, ‘Hi mom, this is Spencer’s nurse,’ and tell me how he was doing,” she says. “Calling me mom, not Mrs. Gray, reassured me somehow that he was getting the best possible care – that they cared as much as I did.” While no one had said anything specific to her about Spencer’s condition, Marguerite felt trepidation as she entered the Neonatal Intensive Care Unit for the first time. To her great relief, the ventilator she had been told was keeping Spencer alive had been removed. Spencer seemed to be making progress. Optimism was short-lived as seven days after his release, Spencer returned to the hospital, starting a pattern that would continue throughout his first year. “As a baby, Spencer hated movement. Rocking back and forth or riding in the car seat made him hysterical. And he couldn’t stand most textures,” Marguerite says. “He was bottle-fed until he was 10 months. We said to ourselves, okay, something is just wrong.” Spencer babbled a bit but didn’t speak until he was 2 ½, and even then his long, drawn-out consonants were reminiscent of someone with hearing loss. For his first few years the Grays took Spencer to numerous community physicians where the appointments were brief and diagnoses vague. It wasn’t until Spencer was three or four, enrolled in the Macomb Intermediate School District program that he began to see a speech therapist. When she suggested that Spencer’s poor language skills were a symptom of bigger problems, the Grays sought answers at Children’s Hospital. Today, Spencer attends Specs Howard School of Broadcast Arts. Children’s Hospital of Michigan childrensdmc.org 13 Spencer is a big Red Wings fan! They took Spencer to see Patricia M. Moylan, Ph.D., a pediatric neuropsychologist. “Dr. Moylan was awesome,” Marguerite says. She and the other doctors at Children’s Hospital “spent quality time with us. There weren’t any 5- or 10-minute appointments. In fact, some were three hours.” At various points, Spencer had been diagnosed with mental impairments, autism and finally Asperger’s syndrome. The Grays had been told that he would face many developmental challenges. Dr. Moylan suggested cognitive therapies and the Grays immersed him in every sort. “I hated to have things touch my feet,” remembers Spencer, “so they put me in those ball pits at the mall. I screamed my head off.” Eventually Spencer learned to deal with the sensations, controlling the regular outbursts they brought about. Growing up, Spencer inherited his father’s love for computers and technology, as well as his robust sense of humor. After graduating on time with the Imlay City High School Class of 2009, it seemed natural that he enroll in Southfield’s Specs Howard School of Broadcast Arts. “My father had this collection of old radio shows, 1940’s murder mysteries, Jack Benny, thousands of them,” says Spencer, 18. “We listened to them every Sunday. I couldn’t stand it. “After my father died, I took a digital media arts class and had an amazing teacher. I fell in love with video, and then audio.” It is, he concedes, ironic. Sight and sound, two of the very senses that once made him wild, are the basis of his intended profession. The truth is, Spencer says, he was too young to remember most of the time he spent at Children’s Hospital of Michigan. But its influence will clearly never leave him. To learn more about how to support the Neonatal Intensive Care Unit at the Children’s Hospital of Michigan, please call (313) 745-5373 or visit www.childrensdmc.org. Spencer’s graduation picture. Photo courtesy of Lifetime Photography 14 About Children’s Winter 2009 Jacques and hundreds of others benefit from being cooled as newborns By Marti Benedetti Children’s Hospital of Michigan childrensdmc.org 15 Jacques is a healthy boy today thanks to a research project led by the Children’s Hospital of Michigan. Feature – NICU A lmost eight years ago, Jacques Poussier was in distress, and the Children’s Hospital of Michigan was in the midst of a research study to determine if cooling the core body temperature of unresponsive newborns cut their risk of disability or death. As a result of his involvement in that crucial study, Jacques is a healthy, energetic young boy who turned 8 years old in December. The five-year study he participated in proved that cooling newborns in trouble prevents death or disability by nearly 50 percent. “Jacques is a very outgoing, talkative Jacques and sister Elisabeth 16 About Children’s Winter 2009 fun seeker,” says his mother Alexa. “He likes to explore new things -- from karate to ice skating. He can play outdoors for hours at a time, amusing himself with various activities.” By Marti Benedetti Most importantly, he has no health issues that keep him from pursuing all of these activities. The Rochester Hills secondgrader who “excels in school” has been going to Children’s Hospital once a year so his medical records could be updated for the research study, Alexa says. He meets with Seetha Shankaran, M.D., the hospital’s director of Neonatal-Perinatal Medicine and lead researcher of the groundbreaking national study. The study was conducted through Wayne State University, site of the National Institutes of Child Health and Development Neonatal Research Network at Children’s Hospital of Michigan and Hutzel Women’s Hospital. Research took place from 2000 to 2005 in cooperation with 15 other hospitals nationwide. The treatment relied on the same physical reactions to cold observed in hypothermia and drowning victims who have survived long periods without oxygen while immersed in cold water. Cooling was administered to the babies with a temperature-controlled blanket. Of the 208 babies in the study, all suffering from a lack of oxygen within the first six hours of birth, 102 received cooling; 106 did not. “There was a significant difference in disability between the cooled infants and those not cooled,” says Shankaran who is also a professor of pediatrics at Wayne State University. “We saw 15 children, or 19 percent, with cerebral palsy in the cooled group compared with 19 children, or 30 percent, in the group that was not cooled. We have been following all the children that participated in our study through age 7.” The results of the study have been published in the New England Journal of Medicine. Shankaran adds that studies in this area continue. Recently, a whole body cooling study in the United Kingdom was published that showed cooled infants have a higher chance of surviving without disabilities. A new study will begin next year to see if cooling the newborns further and longer produces even more positive outcomes. The cooling process has become common practice for newborns with certain difficulties in major hospitals and academic centers. Cooling decreases the metabolic rate of the brain and decreases the production of a number of toxic substances that cause injuries. Cooling also prevents brain cells from swelling, which produces cell damage. Jacques was born in December 2001 with his umbilical cord wrapped twice around his neck, cutting off blood flow and oxygen to his brain. Within a couple of hours he was transported to the Neonatal Intensive Care Unit at Children’s Hospital, where the cooling study was under way. For three days after birth, Jacques’ body temperature was kept at 92.3 degrees Fahrenheit – about six degrees cooler than normal – due to a condition called hypoxic ischemic encephalopathy (HIE), or deprivation of oxygen and blood flow to the brain. Newborns with HIE may not survive or they may develop cerebral palsy, mental retardation, blindness or hearing loss. About two weeks later, he came home. “From age 18 months until 6 years old, the hospital did extensive (physical and mental) exams on Jacques,” Alexa says. “During all of it, the Children’s Hospital staff was wonderful to him and to us. The doctors never scared him; they always made him feel comfortable. He still feels that way there.” Today, Jacques is a happy boy who enjoys hanging out with and talking to all kinds of people – from his 5-year-old sister Elisabeth to older kids and adults in his neighborhood. And his parents, Alexa and Antoine, will never forget and will always be thankful to Children’s Hospital for the outstanding care their son got at the most vulnerable stage of his life. To learn more about how to support NeonatalPerinatal Medicine research conducted at the Children’s Hospital of Michigan, please call (313) 745-5373 or visit www.childrensdmc.org. Jacques and Elisabeth like being silly sometimes. Children’s Hospital of Michigan childrensdmc.org 17 Feature – NICU Newborns can be transported, treated via specially equipped helicopter T Panda One Intensive Care Transport Team 18 About Children’s Winter 2009 he staff at the Children’s Hospital of Michigan has improved their transport medicine service and can now more quickly treat and transport even the tiniest patients to its hospital from locations throughout Michigan and beyond by air. The hospital’s Panda One Intensive Care Transport Team in conjunction with a Midwest Med Flight-owned helicopter, has recently added specialty equipment and team members to handle critically ill newborn patients. The helicopter has been serving pediatric and adult patients for several years but lacked the equipment and specialty team members to care for newborns. Children’s Hospital has the only dedicated pediatric transport system in the state. Before the helicopter was equipped and included support of the dedicated Panda One team, it was not able to meet all the medical needs of newborns. The smallest and sickest children were transported to Children’s Hospital via the Panda One ground ambulance team supported by Detroit Medical Center Care Express. About 80 percent of the $20,000 cost of the special equipment for the helicopter came from Children’s Hospital By Sheila M. Edwards donors, says Brande Mazzeo, clinical lead nurse with Panda One at Children’s Hospital. “The donations allowed us to purchase helmets and flight suits for the transport team and patient equipment such as high-frequency ventilators, stretchers and incubators that provide a sterile, secure, warm environment for transporting newborns,” she says. Children’s Hospital transports about 1,000 patients a year; half of those are newborn patients, Mazzeo says. Ground transport typically does not exceed 100 miles. Air travel can transport patients from a distance of 200 miles or more. Lauranne Gosses, Children’s Hospital manager of the Neonatal Intensive Care Unit and Panda One, says many of the state’s community hospitals have maternity departments but may not have the trained team to handle newborns that are in distress. “Newborns need intervention fast. Because they are so fragile, they need immediate specialized attention to improve outcomes,” she adds. Gosses has been pursuing this service since she arrived at Children’s Hospital more than two years ago. “This is an exciting service that the Panda One team has envisioned offering. We will be able to have a couple of teams go out – by air and ground – and better provide lifesaving care in our community and our state.” To learn more about how to support the Panda One Intensive Care Transport Team at the Children’s Hospital of Michigan, please call (313) 745-5373 or visit www.childrensdmc.org. Nedelcoff appointed to Foundation Board L ewis J. Nedelcoff is the Managing Director and Branch Manager of Morgan Stanley Smith Barney in Bloomfield Hills and was recently appointed to the Children’s Hospital of Michigan Foundation Board of Trustees. “The appointment to the Foundation’s Board of Trustees and being honored in 2006 by the Association of Fundraising Professionals Greater Detroit Chapter for Children’s are the two greatest honors of my life. I am looking forward to supporting the objectives of the Board,” says Nedelcoff. Nedelcoff’s philanthropic support of the hospital dates back to 1999, when he By Sheila M. Edwards created two endowments: one in honor of his mother and one in his name. The endowments support the activities of the Child Life Department. He personally funded the endowments to ensure that the important work of the Child Life Staff, who is charged with providing emotional and social support to thousands of children battling life-threatening or chronic illness, continues beyond our lifetimes. “Another reason Children’s is so special is the staff. They are absolutely dedicated to the mission. I can’t say enough about them,” Lewis J. Nedelcoff says Nedelcoff. Children’s Hospital sponsors nursing conference O ver 100 nursing professionals recently came together for a conference aimed at improving the quality of nursing care. At the fourth annual conference, attendees heard presentations describing best practices on topics ranging from how to reduce the risk for infection in central line IVs to nutrition strategies for childhood obesity. The conference was sponsored by the Children’s Hospital of Michigan and The Center for Excellence in Pediatric Nursing established by the Children’s Hospital of Michigan Auxiliary. “Evidence based practice has contributed to excellent empirical outcomes in our professional nursing practice,” said Rhonda Foster, Ed.D., R.N., vice president of By Sheila M. Edwards Patient Care Services at the Children’s Hospital. “It is key to maintaining our Magnet designation, a highlyregarded recognition of excellence in nursing care.” The Magnet Recognition Program was developed by the American Nurses Credentialing Center to recognize quality patient care, nursing excellence and innovations in nursing, and provides consumers with the ultimate benchmark of the quality of care they can expect to receive. Being designated a Magnet hospital puts Children’s Hospital among 356 of the world’s top hospitals for nursing excellence. It is the highest honor that a hospital can earn for nursing. Children’s Hospital of Michigan childrensdmc.org 19 Outstanding pediatric orthopedic staff sets sights on joining nation’s best F Orthopedic Trauma Surgeon Alfred Faulkner, D.O. and happy patient Angela Grillo 20 About Children’s Winter 2009 or more than two decades, Kathleen Grillo has helped the Children’s Hospital of Michigan deliver top-notch care to young patients. But Grillo, a medical technologist in the blood bank at Detroit Medical Center University Labs, recently saw her workplace from a new perspective. Grillo’s 6-year-old daughter, Angela, broke her left tibia in an all-terrain vehicle accident on July 4, 2009. “It looked like her shin was caved in,” By Todd Schulz Grillo said. “She just looked like a little rag doll. She was scared to death.” Angela was rushed to Children’s Hospital, where orthopedic trauma surgeon Alfred Faulkner, D.O. treated the injury. She spent two nights recovering at the hospital before returning for regular follow-up care, including physical therapy. By mid-September, Angela’s leg was completely healed and she hoped to return to the soccer field. After experiencing the patient’s point of view, Grillo is even more proud of her co-workers at Children’s Hospital, which boasts a nationally recognized pediatric orthopedic department. “When you work somewhere so long… you know how good the staff and the service is there,” said Grillo of Macomb Township. “But it’s really reinforced when you actually have to utilize it. And it’s not like we received special treatment. The orthopedic department is just amazing.” Though he appreciates the praise, Surgeon-in-Chief and Chief of Orthopedics Richard A.K. Reynolds, M.D. has even bigger aspirations for the department. “Our goal is to become one of the top 10 programs in the country,” said Reynolds. Traumatic injuries such as the one Angela Grillo suffered are the most common way the majority of people are exposed to the pediatric orthopedic department, Reynolds said. But the program boasts expertise for a range of specialties, including spinal deformities, sports injuries, bone tumors and clubfeet. You name it, Reynolds and his fellow fulltime orthopedic surgeons – Walid K.Yassir, M.D. and Eric T. Jones, M.D., Ph.D. – have probably seen it. “It’s never boring,” Reynolds said with a chuckle. “The great thing about pediatric orthopedics is that there’s such a wide variety of cases and you’re working with kids who often do extremely well. The families and the kids are usually very appreciative of how we can help them. It’s a relatively happy specialty.” The pediatric orthopedic team also includes Faulkner; hand surgeon Joseph Failla, M.D.; sports medicine specialists Shelley V. Street, M.D. and Louise Aloe, M.D.; and researcher Julie Legakis, Ph.D. Together, they tackle a broad spectrum of conditions, including: • Trauma and fractures From playground falls to sports injuries, they treat all sorts of fractures. The goals are to control pain, promote healing, prevent complications and restore normal use of a fractured area. • Clubfeet Yassir, in particular, is a highly regarded practitioner of the Ponseti Method for treating clubfeet. He uses noninvasive manipulative techniques including stretching and casting to correct clubfeet gradually, reducing pain and often helping patients avoid surgery. • Complex spine deformities With a combined 50 years of experience, the staff specializes in treating congenital, infantile, juvenile and adolescent scoliosis and kyphosis. The physicians also are experts at treating spinal trauma and deformities associated with congenital dwarfism. • Musculoskeletal tumors Several doctors are among the nation’s best at treating both benign and malignant tumors, whether they’re in the bones or soft tissue of young patients. • Sports medicine Children’s Hospital provides surgical and non-surgical treatment for young athletes who have suffered sports injuries. Street and Aloe work with coaches, trainers and athletes to help prevent injuries and diagnose problems when they occur. If necessary, they refer athletes to Reynolds and the other surgeons for care. • Limb length discrepancy and bone deformities The orthopedic team creates cutting-edge, customized treatment plans that protect limb growth, enabling children’s limbs to develop normally. The staff understands pediatric growth potential and has experience treating various causes of limb length discrepancy, including previous injuries, infection, bone disease, inflammation and neurological conditions. Eventually, Reynolds would like to expand the pediatric orthopedic department to include six full-time surgeons. For now, he’s focused on playing to the program’s many strengths – including the support of other specialists at one of the country’s top children’s hospitals. “Being part of the whole institution is a big advantage,” Reynolds said. “We have all the other pediatric specialties to back us up. It’s all here. Patients don’t have to go anywhere else. It’s really one-stop shopping.” To learn more about how to support the Orthopedic Department at the Children’s Hospital of Michigan, please call (313) 745-5373 or visit www.childrensdmc.org. Children’s Hospital of Michigan childrensdmc.org 21 News Flinn Foundation receives prestigious philanthropy honor The Ethel and James Flinn Foundation staff: Executive Assistant Arnita M. Thorpe, Executive Director and CEO Andrea M. Cole, and Chief Investment Officer Leonard W. Smith. 22 About Children’s Winter 2009 T he Ethel and James Flinn Foundation, a key partner of the Children’s Hospital of Michigan, recently garnered well-deserved recognition. The Greater Detroit Chapter of the Association of Fundraising Professionals (AFP) honored the Flinn Foundation with its Outstanding Foundation Award for 2009. The award was presented in November in conjunction with National Philanthropy Day. Founded in 1976 by siblings Ethel and James Flinn, the Detroitbased organization is committed to improving and expanding care for By Todd Schulz mental illness. The Flinn Foundation recently awarded Children’s Hospital $375,000 as part of its Integrated Care Initiative, a $3.4-million effort to identify and treat the symptoms of mental illness before they develop into disabling disorders. “Community mental health funding is being cut at a time when the need for services is growing in Michigan,” said Andrea Cole, the foundation’s executive director and CEO. “Partnering with organizations like Children’s allows us to provide access to much needed mental health services for children, adolescents and adults in our community.” Project Challenge a “safe haven” for children and their families News S By Marti Benedetti ome individuals can be judgmental and sometimes cruel when it comes to discovering a person is HIV positive or has AIDS. This is where the Children’s Hospital of Michigan’s Project Challenge can help. Founded in 1998 by Children’s Hospital clinical social worker Janet Nunn, M.S.W., L.M.S.W. and psychologists Sylvie Naar-King, Ph.D. and Jill Meade, Ph.D., Project Challenge provides specialized medical, social and psychological services for children birth to 18 years old and their families who are affected by HIV and AIDS. It includes a monthly teen support group, a mentoring program and therapeutic recreational programs. For Cindy Tobias’ son Josh, 16, Project Challenge is a place that helps him deal emotionally with HIV. “It provides a lot of knowledge about HIV. It’s a friendly place where I am not scared to talk about how I feel,” he says. Josh, a 4.0 student who swims and plays tennis and soccer, says everyone who works there is friendly, and he has some good friends there. Even his twin sister, Nikki, who is HIV negative, sometimes attends the monthly meetings to support her brother and the others. “We can talk freely and not be judged,” Nikki adds. Tobias, a Children’s Hospital pediatric imaging nurse, and her partner Janet Ray adopted Josh, Nikki and their three siblings three years ago after the children’s mother died. Josh was born with HIV but it was not diagnosed until he turned four. He takes a medication daily and has his blood checked every two months, but overall is healthy, Tobias says. Project Challenge is fully funded by donations and grants. Some of the funding comes from events such as a comedy night, a bake sale or pledges from relay teams in the Detroit Free Press/Flagstar Marathon. Other sources of support for Project Challenge include: Children’s Hospital of Michigan Auxiliary, Srere Women’s Care Fund, Broadway Cares – Equity Fights AIDS, Youth Development Commission, Michael Volante Pediatric AIDS Endowment Fund, Michigan Department of Community Health HIV/ AIDS Prevention and Intervention Section, and the Ryan White HIV/AIDS Program, Part D among others. “We developed the program to not only provide a safe haven,” Nunn says. “Our mission is to help improve the quality of life for children and families affected by HIV and AIDS.” Twins Nikki and Josh are Project Challenge participants. To learn more about how to support Project Challenge at the Children’s Hospital of Michigan, please call (313) 745-5373 or visit www.childrensdmc.org. Children’s Hospital of Michigan childrensdmc.org 23 Children’s Hospital considers patient who rocks CF a superstar S Emily Schaller throughout the years and more recently running her first half marathon from Dexter to Ann Arbor, Mich., June 2008. 24 About Children’s Winter 2009 ometimes there are perks to fighting cystic fibrosis, like having Ellen DeGeneres hand you the pick that Aerosmith’s Joe Perry just used to play his guitar. Mostly, there’s just more fighting. But that’s okay with Emily Schaller, because she’s in this battle for the long haul. Her diagnosis at 18 months came with a realistic assessment: she would most likely die young. The Schallers weren’t willing to settle for that, and neither was their team of caregivers at the Children’s Hospital of Michigan. Today, at 27, Schaller oversees the Rock CF Foundation, an organization she founded to raise money for the Cystic Fibrosis Foundation and ultimately Schaller’s plan is to provide music-oriented college scholarships for students with CF. The Trenton resident is a runner, a musician, and an imaginative promoter for the cause who recently traveled from Detroit to Los Angeles on a Vespa motor scooter in hopes of adding DeGeneres to her team. It was a long way geographically, but not far removed philosophically from how she was raised. Schaller remembers a lot of coughing while running on the playground, along with a lot of medicines and therapy, but she can’t recall being treated as though she was sick. For many CF patients, the condi- By Marcy Hayes tion all but eliminates physical activity, but Schaller – who ran her first half-marathon last year – believes her athleticism has helped her maintain her health. She also credits the Cystic Fibrosis Foundation and the care she received at Children’s Hospital, where “I was treated like family,” she says. “The docs and nurses would stop in my room to just chill and talk. I was there sometimes for three to five weeks. The staff was amazing at keeping me sane.” Even as an outpatient, her routine is grueling: upwards of 40 pills each day, and multiple hours of therapy that includes wearing a special vest to help loosen some of the mucus relentlessly clogging her lungs. Twice a year, she checks into a hospital for what she calls her “tune-up.” Among the treatments are antibiotics designed to treat lung infections and other potential dangers. With an IV bag hanging at her bedside, she spends the time working the phones for her foundation and counseling other patients. The tune-ups are no longer done at Children’s Hospital. Schaller graduated to an adult clinic two years ago and remembers her last day of her final stay as one of her saddest. “It was like divorcing 200 people,” she says, “but without being mad.” By that point, she was a long-time raiser of funds and awareness on behalf of the national organization. She began by participating in the Great Strides Walk and continued to help spread the word, chairing some youthfocused events and talking to anyone and everyone about CF issues. Her own Rock CF Foundation grew out of another passion, rock ,n roll. She played drums in a five-piece, all-girl band, Hellen, and helped her older brother Jason promote his own group, South Normal. As much as she loved both parts of the music business, neither felt like her future. After producing a number of successful rock concert fundraisers called Just Let Me Breathe for CF, she formalized her efforts and the Rock CF Foundation was born. “I want to rock CF so hard,” she likes to say, “that one day it will stand for ‘Cure Found.’” Her personal tally so far is nearly $200,000, raised through walks, marathons, speaking engagements and, most recently, the highly publicized road trip called Emily 2 Ellen 4 CF. Schaller’s plan was to ride her bicycle from Chicago to DeGeneres’ studio in Burbank, Calif. Unfortunately, she injured an Achilles tendon on a Detroit-to-Chicago ride a month earlier. Plan B was the sporty Vespa. Accompanied by a support team and a publicity campaign that included daily spinearth.tv videos and a CF Foundation Web page, Schaller set out to appear with the woman she calls her favorite celebrity. Ultimately, DeGeneres singled her out in the audience during a commercial break, gave her the rock legend’s guitar pick and sent her family to dinner at a tony LA restaurant. Schaller didn’t get on the air, but she’s not giving up. She never does. Above: Emily traveled cross country on a Vespa to meet Ellen DeGeneres on her highly publicized road trip called Emily 2 Ellen 4 CF. Below: Emily plays drums in a fivepiece, all-girl band called Hellen. Photo courtesy of Michael Spleet, 2Snaps Up Photography. Left Center: Justina Crawford from the Lululemon Athletica store in Chicago was on hand to welcome Emily and three other riders in Grant Park at the conclusion the 335-mile City to City Ride from Detroit to Chicago, August 2009. Children’s Hospital of Michigan childrensdmc.org 25 Giving back to Children’s Hospital of Michigan is a labor of love T hrough her work with her church, Gwendolyn Seay, R.N. knows firsthand the impact every dollar makes in the life of a child who is sick. Through the Labor of Love Employee Giving Campaign at the Children’s Hospital of Michigan, she’s able to put some of those dollars where they can do the most good. Seay works as a specialist in the Clinical Improvement Department, collaborating with selected external local and state agencies. She identifies, monitors, tracks and reports quality improvement measures related to healthcare services that the staff at Children’s Hospital provides for patients and their families. The Detroiter has been with the hospital for more than 40 years. The majority of her time was spent in the Inpatient Nursing Department – and she’s been donating to the hospital for more than half that time. Her hospital background makes her a Gwendolyn Seay, R.N. Toni, 4 26 About Children’s Winter 2009 By Marcy Hayes natural fit for the health task force at her church, Sacred Heart. Two Sundays a month, she volunteers her time to take parishioners’ blood pressure. For the past two years, the Children’s Hospital Pediatric Mobile Team has come to Sacred Heart to administer immunizations and make sure no one was in need of further medical attention. Seay’s contributions, both to her church and the hospital, resonate on multiple levels. Not only is she helping people stay healthy, she’s helping some of Detroit’s less fortunate to stay out of the emergency room, which in turn helps keep costs down for everyone. While she has no children of her own, Seay feels strongly about society’s youngest members. “No child should go without medical help if they need it,” she says. “I give to the hospital because I believe in what they do.” The campaign she generously supports runs from late August through September and is coordinated by hospital Development Representative Michallene Hooper. No matter the state of the economy, Hooper says, employee giving has consistently increased. She tries to make her reminders enjoyable; the weekly e-mail she called the Riddler, for instance, offered prizes. But “the people at Children’s Hospital are so great,” she declares, “they don’t need to be convinced to give.” Gwendolyn Seay can attest to that – and does, enthusiastically, every year. Disney on Ice and Ringling Bros. Circus support Children’s Hospital T By Rosemary Tokatlian his fall Disney on Ice and Ringling Bros. Barnum & Bailey Circus not only entertained families, but supported the Children’s Hospital of Michigan as well. Each donated $1 from tickets to a designated show. Disney on Ice even donated an extra $1 per ticket because they sold more than 2,500 tickets. Additionally, Disney on Ice hosted a 100 Years of Magic party for Children’s Hospital patients complete with a visit from Mickey and Minnie Mouse, a photo session, and arts and crafts. A great time was had by all! Lisa Vlaeminck crowns her son, Harry, King for a Day! Tigers players Guillen and Inge know how to Keep Kids in the Game D By Rosemary Tokatlian etroit Tigers players Carlos Guillen and Brandon Inge hosted Keeping Kids in the Game July 9 at Comerica Park. The evening featured a behind the scenes tour of the clubhouse and dug out, access to Tigers players, a silent auction, a fireworks show and more. Presented by Hoot McInerney, the event raised $44,000 for children’s health initiatives at the Children’s Hospital of Michigan. The Detroit Tigers Foundation, C.S. Mott Children’s Hospital and Fundacion Chamos Venezolanos, a charity established by Carlos and Amelia Guillen, also benefited. Sponsor Hoot McInerney with Tigers third baseman Brandon Inge in the locker room. Twilight Benefit Foundation cares for kids T By Rosemary Tokatlian he Twilight Benefit Foundation held the Twilight Charity Golf Invitational July 7 which benefitted cancer research at the Children’s Hospital of Michigan. Held at Indianwood Golf and Country Club, the event raised $5,100. In addition to the Golf Invitational, the Twilight Benefit Foundation hosts the Twilight Ball and the Twilight Wine Tasting with the goal of supporting social, philanthropic and humanitarian efforts. For more information, visit www.twilightbenefit.com. Amy Riethmeier and Jon May at the Twilight Charity Golf Invitational. Children’s Hospital of Michigan childrensdmc.org 27 Kohl’s really cares for kids; supports child safety at Children’s Hospital K ohl’s Safety Night held at the Children’s Hospital of Michigan’s Stilson Specialty Center in Clinton Township was a big hit, but not just because of the food, music and fun activities. The first 200 kids to attend this community event in September received free bike helmets autographed by Detroit Red Wings center Pavel Datsyuk. “This is the first time we paired up with an Kohl’s leadership presented a check for $469,206 athlete,” says Holly By Marti Benedetti Smolinski, Kohl’s vice president and district manager in Troy. “It is probably the best event we’ve done. We could see doing it again because it went so well.” Kohl’s Cares for Kids, a subsidiary of Kohl’s Department Stores, also presented $469,206 to Children’s Hospital president Herman B. Gray, M.D. to support Kohl’s Trauma Related Injury Prevention program at the hospital. Since 2000, Kohl’s has donated more than $3.6 million to the Children’s Hospital of Michigan. “We want to give back to the communities we serve,” Smolinski says “We support 160 children’s hospitals nationwide.” to Children’s Hospital at Kohl’s Safety Night. Red Wings partnership yields nearly $20,000 for Child Life Services The Detroit Red Wings donated $5 from each ticket purchased by Detroit Medical Center employees to Children’s Hospital resulting in a donation of $19,525. 28 About Children’s Winter 2009 T he Detroit Red Wings organization gave $5 of every ticket bought by Detroit Medical Center employees during its 20082009 season to Child Life Services at the Children’s Hospital of Michigan. The $19,525 check was presented in late summer to Children’s Hospital by Steve Violetta, senior vice president of business affairs for the Detroit Red Wings. DMC employees bought 3,905 discounted tickets. “We think doing this is important because we need to help take care By Marti Benedetti of kids, their education and their health,” Violetta says. “This particular cause took our relationship with the DMC to a new level. It’s more than a sponsorship, it’s really a partnership.” Child Life provides intervention and activities to alleviate the stress and anxiety of a hospital stay for children and their families. This was the first full year the Red Wings participated in the donation program. “This is a credit to the DMC employees. They make a program like this happen,” he says. Festival of Trees still making a difference for children after 25 years T he holiday season is about celebrating traditions. And one of the most popular holiday traditions in metro Detroit is celebrating a quarter century of helping children. The Festival of Trees, one of the largest annual special event fundraisers for the Children’s Hospital of Michigan, turns 25 years old this year. “It’s a big milestone for us,” festival board president Gregory Koukoudian said. “We’re definitely bringing it to the forefront of everything.” Festival of Trees was held in late November at the Allen Park Municipal Auditorium. The event featured about 50 full-size, professionally designed holiday trees that are sponsored and purchased by corporations and individuals. It also offered smaller locally designed trees as well as centerpieces, a gift shop and more. The festival has raised more than $8 million for the Evergreen Endowment, which has funded more than $5 million in research projects at the hospital. This year’s goal is to raise more than $100,000, a mark the event has eclipsed several times in the past, Koukoudian said. As part of its anniversary celebration, the festival honored many of the event’s past chairpersons at a special ceremony. The event requires more than 150 volunteers to pitch in each year. After many years in downtown Detroit, the festival moved to Dearborn and Novi before settling in Allen Park last year. Since its inception, the event has attracted By Todd Schulz visitors from around the state as well as Ohio, Wisconsin, Pennsylvania, Kentucky, New York and Canada. “It’s a very worthwhile event and cause,” Koukoudian said. “We’re a significant contributor to the community.” Several other events were planned in conjunction with the traditional tree display. The first was the American Girl Tea & Fashion Show on Oct. 10-11. Also included were a Nov. 21 Preview Party and a Nov. 28 Dance Party for adults. Additionally, a new Festival of Trees Gift Shop will be open through Dec. 18 in the Compuware headquarters located at One Campus Martius in Detroit. The Gift Shop offers holiday-themed merchandise and is presented in partnership with ACO Hardware. For more information about Festival of Trees events and the Gift Shop, please visit www.fot.org. One of the beautiful trees on display. Children’s Hospital of Michigan childrensdmc.org 29 Rockin’ for a great cause M Silent auction items included a guitar signed by singer/songwriter Paul Simon. Photo courtesy of Andrew Potter. By Rosemary Tokatlian ore than 500 guests had a rockin’ good time and raised $426,000 for the Children’s Hospital of Michigan at Rockin’ on the Roof. Held at the Columbia Center in Troy September 10, the event featured performances by the Mosaic Youth Theatre and the Mega 80’s, a strolling dinner and a silent auction with one-of-a-kind items such as a guitar signed by Paul Simon. Due to overwhelming demand, guests rocked out in the parking lot instead of the roof top of Columbia Center’s parking deck. Proceeds from the event will benefit the new Children’s Hospital of Michigan Pediatric Specialty Center – Detroit. This 75,000 square foot state-of-the-art facility will be located across the street from the existing hospital. Construction is expected to begin in 2010 and the facility is scheduled to open in 2011. Rockin’ on the Roof was sponsored in part by Giarmarco, Mullins and Horton, P.C., Columbia Center, Pegasus Entertainment, S & R Event Rental, WDIV Local 4, WJR-AM 760, 96.3 WDVD-FM, 93.1 DOUG FM and the Detroit Media Partnership. To become a sponsor of the 2010 Rockin’ on the Roof event, please call (313) 745-0145 or e-mail smccallu2@dmc.org. Peter and Jacob Dankelson; Brendon, Antonio and Braylon Ball. Photo courtesy of Andrew Potter. Jan Cottrell, Shirley Gray, Gloria Robinson, Herman Gray, M.D., Luanne Ewald, Rhonda Foster. Photo courtesy of Andrew Potter. Steve Lefkofsky and Joe Scallen. 30 About Children’s Winter 2009 The Mega 80’s rocked out all night long. Cindy Rowell, Susie Baker, Judy Kramer, Jane Iacobelli, Rita Margherio. Photo courtesy of Andrew Potter. Event Co-Chairs Lisa Luttmann, Kathy and Will Heritage, Jeff Page, Herman Gray, M.D., Pat Kelly, Luanne Ewald, Co-Chair Roy Luttmann, Rosie Gilchrist. Joe Thomas, Rosie Gilchrist and Jack Krasula. Henry Rance, M.D., Pauline Norman, Anne-Maré Ice, M.D., Terees Western. Children’s Hospital of Michigan childrensdmc.org 31 Dear Friends, As we approach the end of this year, I am grateful for the many gifts that you and other donors have given to the Children’s Hospital of Michigan. It is with your support that we have been able to achieve so much. We strive for excellence in all we do and as you may know, we have received numerous awards as a result. In the last year alone, Children’s Hospital was ranked as one of America’s best hospitals for children in cancer, heart and heart surgery, neurology and neurosurgery, and urology by U.S.News & World Report and was ranked among America’s top 25 children’s hospitals by Parent magazine. Additionally, Children’s Hospital is a nationally recognized Magnet hospital for nursing excellence, a top hospital for patient safety and quality practices by the Leapfrog Group, and a top hospital in pediatrics by Hour Detroit magazine. Through the help of caring donors like you, we have been able to provide the highest quality of care to the children of our community for 123 years. Thank you again for your commitment to this essential cause and please accept my best wishes for a safe and healthy holiday season. Sincerely, John D. Baker, M.D. Chairman of the Board Children’s Hospital of Michigan Recognized for cancer, heart and heart surgery, neurology and neurosurgery, and urology C Top Hospital for Safety and Quality Practices Top 25 Children’s Hospitals hildren’s Hospital of Michigan meets the highest national standards set for medical and nursing staff, hospital personnel and patient care. Our young patients and their families are assured the finest medical care and the highest quality of hospital services. The Children’s Hospital of Michigan is a member of the Detroit Medical Center, the academic health system for Wayne State University, and is affiliated with Wayne State University’s School of Medicine, College of Nursing, and College of Pharmacy and Allied Health. The Children’s Hospital of Michigan is accredited by the Joint Commission on Accreditation of Healthcare Organizations and by the Commission on Accreditation of Rehabilitation Facilities. Children’s is accredited by the American College of Surgeons as a Level 1 trauma center and as a regional poison control center by the American Association of Poison Control Centers. The hospital is certified by the Health Care Finance Administration (Clinical Laboratory Improvement Act) and licensed by the Michigan Department of Community Health. Gabriel, 9 32 About Children’s Top 5% Nationally in Nursing Excellence Winter 2009 Kylia, 6 Executive Staff Herman B. Gray, M.D., M.B.A. President Shawn Levitt, R.N., M.S.A. Vice President/Chief Operating Officer Joseph T. Scallen Vice President, Finance Charles J. Barone II, M.D. Vice President, Medical Affairs Jan Cottrell, R.N., M.S.N. Associate Vice President Patient Care Services Luanne M. Ewald, F.A.C.H.E. Vice President, Business Development and Strategic Planning Rhonda Foster, Ed.D., M.P.H., M.S. R.N., Vice President Patient Care Services Linda M. Jordan, B.S., R.N., M.H.C.M. Vice President Ambulatory Services Patrick R. Kelly Vice President, Development Lori R. Mouton Vice President, Marketing, Communications and Community Relations Tarry L. Paylor Vice President Human Resources Medical Staff Chiefs Herman B. Gray, M.D., M.B.A. President Bonita Stanton, M.D. Pediatrician-In-Chief Richard A.K. Reynolds, M.D. Surgeon-In-Chief Chief of Orthopaedics Mary Lu Angelilli, M.D. Chief of Staff Ibrahim F. Abdulhamid, M.D. Chief of Pulmonary Medicine Gyula Acsadi, M.D. Vice-Chief of Neurology Basim I. Asmar, M.D. Chief of Infectious Diseases Allison Ball, M.D. Interim Chief of Hospitalist Division Diane Chugani, Ph.D. Chief of Pharmacology and Toxicology Harry T. Chugani, M.D. Chief of Neurology Edward R. Dabrowski, M.D. Chief of Physical Medicine and Rehabilitation Chandra Edwin, M.D. Interim Chief of Endocrinology Mohammad F. El-Baba, M.D. Chief of Gastroenterology Howard S. Fischer, M.D. Co-Chief of Ambulatory Pediatrics and Adolescent Medicine Yvonne Friday, M.D. Co-Chief of Ambulatory Pediatrics and Adolescent Medicine Steven D. Ham, D.O. Chief of Neurosurgery Michael S. Haupert, D.O. Chief of Pediatric Otolaryngology Joseph M. Hildebrand, D.D.S. Chief of Oral and Maxillofacial Surgery Richard A. Humes, M.D. Chief of Cardiology Stephen R. Knazik, D.O., M.B.A. Chief of Emergency Medicine Yegappan Lakshmanan, M.D. Chief of Urology Joseph L. Lelli, Jr., M.D. Chief of Pediatric Surgery Mary Lieh-Lai, M.D. Co-Chief of Critical Care Medicine Jeanne M. Lusher, M.D. Co-Chief of Hematology and Oncology Tej K. Mattoo, M.D. Chief of Nephrology Ellen C. Moore, M.D. Chief of Immunology, Allergy and Rheumatology Yaddanapudi Ravindranath, M.D. Co-Chief of Hematology and Oncology John D. Roarty, M.D. Chief of Ophthalmology David R. Rosenberg, M.D. Chief of Psychiatry and Behavioral Neurosciences Arlene A. Rozzelle, M.D. Chief of Plastic and Reconstructive Surgery Ashok P. Sarnaik, M.D. Co-Chief of Critical Care Medicine Seetha Shankaran, M.D. Chief of Neonatal and Perinatal Medicine James P. Stenger, D.D.S. Chief of Dentistry David Stockton, M.D. Chief of Genetic and Metabolic Disorders Henry L. Walters III, M.D. Chief of Cardiovascular Surgery J. Michael Zerin, M.D. Chief of Pediatric Imaging Maria M. Zestos, M.D. Chief of Anesthesiology Board of Trustees *John D. Baker, M.D., Chairperson *Joanne B. Faycurry Vice Chairperson *Gloria W. Robinson Vice Chairperson Children’s Hospital of Michigan Foundation Board of Trustees *Alan Woodliff, Ph.D. Vice Chairperson *Frank Couzens, Jr., Treasurer *Joseph T. Scallen, Assistant Treasurer *Sara E. Wallace, Secretary *Mary Lu Angelilli, M.D. Tony Antone *Elaine Baker *Douglas M. Etkin Cynthia N. Ford *Matthew Friedman The Honorable Hilda Gage *Erica Ward Gerson John Ginopolis *Herman B. Gray, M.D., M.B.A. Patricia Heftler Reverend Nicholas Hood, III *Joseph G. Horonzy Arthur B. Hudson Gilbert Hudson Jane Iacobelli Anne-Maré Ice, M.D. Josephine Kessler *Nick A. Khouri Linda Kowalski Jacob Edward C. Levy, Jr. John G. Levy Carol Marantette Florine Mark Alyssa Martina Linda O’Brien *David K. Page Jessica S. Pellegrino *Richard A. K. Reynolds, M.D. Bruce H. Rosen Derek J. Sarafa Ashok P. Sarnaik, M.D. Aaron H. Sherbin *Thomas L. Slovis, M.D. *Bonita Stanton, M.D. Lyle Wolberg George A. Wrigley * Executive Committee Ambassadors Council Eduardo Arciniegas, M.D. *Maurice J. Beznos Robert H. Bluestein Alexa I. Canady, M.D. *Margot Coville Julie Fisher Cummings Nancy N. Delaney *Margaret Fisher Alan W. Frank Rosanne Gjostein James Grosfeld *William R. Halling Cynthia N. Ford Chairperson Jonathon Aaron Maurice J. Beznos James F. Carr, Jr. Larry Fleischmann, M.D. Maxine Frankel Leslie Helppie Dorthie Hertzler Jack H. Hertzler, M.D. *Robert C. Larson *William P. MacKinnon *Jane Buell Mills Joseph C. Murphy Joseph G. Nuyen, Jr. Michael C. Porter Thomas M. Rozek Thomas L. Schoenith *Ruth Townsend Katie Valenti Joan B. Warren * Honorary Board of Trustee Member John Ginopolis Brian Hermelin Jack Krasula Steven R. Lefkofsky Edward C. Levy, Jr. Jeanne M. Lusher, M.D. Rita Margherio Macomb County Advisory Board John D. Baker, M.D. Dana Camphous-Peterson Mark Deldin Luanne M. Ewald, F.A.C.H.E. Herman B. Gray, M.D., M.B.A. Sheriff Mark Hackel Earl Stilson The Honorable David F. Viviano The Honorable Tracey A. Yokich Anita Masters Penta Lewis J. Nedelcoff Dick Purtan Patricia Rodzik Jatinder-Bir Sandhu William M. Wetsman Contact Information: Children’s Hospital of Michigan Foundation 3911 Beaubien St. Detroit, MI 48201-9932 (313) 964-6994 Patrick R. Kelly, Executive Director Children’s Hospital of Michigan childrensdmc.org 33 Nonprofit Org. U.S. POSTAGE PAID Detroit MI Permit No. 4772 3901 Beaubien St. Detroit, Michigan 48201-2196 Purchase a wish from the Red Wings Wish Club and surprise a loved one with a birthday, anniversary, marriage proposal or special message on the Joe Louis Arena scoreboard during a Red Wings or college hockey game. Wishes range from $50 to $250 and all proceeds benefit patient care at the Children’s Hospital of Michigan. Wishes must be received by noon at least three days prior to game time. Wishes are limited to 25 per game including one live marriage proposal. To reserve your wish, please contact the Red Wings Wish Club at (313) 745-5024. Detroit Red Wings 2009-2010 Home Games December 3 9 11 14 17 23 26 31 Oilers Blues Ducks Coyotes Lightning Blackhawks Blue Jackets Avalanche All times are Eastern Standard Time. http://redwings.nhl.com 14 17 23 26 29 January Hurricanes Blackhawks Kings Coyotes Predators 7:00 p.m. 7:30 p.m. 7:30 p.m. 7:30 p.m. 7:30 p.m. 7:30 p.m. 7:00 p.m. 7:00 p.m. 7:30 p.m. 3:00 p.m. 7:00 p.m. 7:00 p.m. 7:30 p.m. FEBRUARY March April 11 Sharks 13 Senators 3 5 9 11 13 22 24 26 30 1 3 7 Canucks Predators Flames Wild Sabres Penguins Blues Wild Oilers Blue Jackets Predators Blue Jackets 7:30 p.m. 7:00 p.m. 7:30 p.m. 7:30 p.m. 7:00 p.m. 7:30 p.m. 7:00 p.m. 7:00 p.m. 7:30 p.m. 7:30 p.m. 7:30 p.m. 7:30 p.m. 2:00 p.m. 7:30 p.m. Below is a partial list of upcoming fundraising events benefiting the Children’s Hospital of Michigan. For additional details please contact the person listed. Children’s Hospital of Michigan calendar of events January 2-3 Shen Yun Shows Detroit Opera House february 13 Heart of a Child Dinner/Dance Rock Financial Showplace, Novi January 15 NAIAS Charity Preview Cobo Center, Detroit February 20 Verve Charity Ball Dinner Dance University of Michigan Ballroom, Ann Arbor Contact: Stephanie Gregory (313) 745-5291 or sgregory@dmc.org Contact: DADA Office (888) 838-7500 or www.naias.com Contact: Kelly Landis (313) 745-0137 or klandis@dmc.org University of Michigan Ballroom, Ann Arbor Contact: Kelly Landis (313) 745-0137 or klandis@dmc.org If you would like information on hosting an event in support of Children’s Hospital, please call the Children’s Development Office at (313) 745-5373 or visit www.childrensdmc.org. Aushaé, 9
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