Department of Communities, Child Safety and Disability Services My child has autism: information for Queensland families of young children © The State of Queensland (Department of Communities, Child Safety and Disability Services) 2012 Copyright protects this publication. Excerpts may be reproduced with acknowledgement to the State of Queensland (Department of Communities, Child Safety and Disability Services). Department of Communities, Child Safety and Disability Services GPO Box 806 Brisbane Q 4001 All images in this document are for illustrative purposes only. Photo credits: iStockphoto (pp. 6, 8, 9, 10, 12, 15, 18, 21, 25, 26, front cover); Vicki Yen (p. 13, 19); Tony Phillips (p. 14, 28); Michael Marston (p. 20); Fotosearch (p. 24); Ray Cash (p. 29). Message from the Minister Learning your child has autism raises many questions, especially about what supports and services are available. Access to services during the early years is critical to supporting families and their children with autism to achieve developmental milestones. My child has autism is a guide for families of young children with autism about their child’s development and the services available to them. It also provides practical tips for parents to best support their child’s inclusion in family and community life. There is growing demand for specialist services for children with autism and their families. The Newman government is committed to revitalising all front-line services and giving children with autism the best possible start in life. As part of this commitment to improving direct services to families, this government will be delivering more assistance to families of very young children through our Parent Connect initiative. We are also increasing the number of speech and language pathologists for all children with a disability in Queensland schools. I would like to thank Autism Queensland, AEIOU Foundation, Umbrella Network and Cairns Autism Spectrum Group for their contribution to this guide. I look forward to enabling a better future for Queensland families of children with autism. The Honourable Tracy Davis MP Minister for Communities, Child Safety and Disability Services My child has autism: information for Queensland families of young children 3 Message from Autism Queensland Message from AEIOU Foundation Autism Queensland is pleased to endorse this vital collaborative booklet for parents of young children with autism. The booklet represents the combined knowledge and expertise in early development of the key autism agencies in Queensland, both government and non-government. The AEIOU Foundation is committed to supporting children with autism and their families. With many different services available, parents and carers often have to research how to access care, therapy and education for their children. This booklet is an essential resource for families of children aged birth to eight years who receive a diagnosis of autism. The booklet will guide and support families as they navigate their way through the important early years of their child’s development. Penny Beeston Chief Executive Officer Autism Queensland 4 We hope that My child has autism: information for Queensland families of young children proves to be a useful guide for parents and carers. It is important to provide accessible information for families about the different services that will best fit their needs. We commend the department for creating this publication and for their continued investment into early intervention for children with autism, improving access to care and education all over Queensland. Alan Smith Chief Executive Officer AEIOU Foundation Contents 1. About Autism Spectrum Disorder 2. Diagnosis . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9 3. Early intervention services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4. Early childhood education and care 5. Starting school ............................................................... . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6. Service and resource directory . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . My child has autism: information for Queensland families of young children 14 19 25 31 5 6 1. About Autism Spectrum Disorder This booklet is intended to answer some of the questions that you as parents may have if you have concerns your child has autism or your child has recently been diagnosed with autism. Importantly, it shows that there is help at hand for you, your child and your family. Autism Spectrum Disorder describes a cluster of disorders including: Autistic Disorder, Asperger’s Disorder (also known as Asperger’s Syndrome), Pervasive Developmental Disorder not-otherwisespecified, Retts Disorder and Childhood Disintegrative Disorder. In this booklet, the term autism is used to refer to Autism Spectrum Disorder, except in circumstances where it is technically required. Autism Spectrum Disorder is caused by an abnormality of brain development, and is usually detected in early childhood (such as Autistic Disorder) and lasts throughout a person’s life. However, for some children, it may not be apparent until as late as adolescence – as is sometimes the case with Asperger’s Disorder. There is no known cause for autism and currently no cure, however, our understanding of autism is continuing to evolve with new research. Autism will affect each child differently. Some children with autism will need lifelong supports and services and others will be able to achieve academically and socially. Children with autism have problems with: • social interactions — relating to other people, understanding non-verbal cues and body language • communication — delays in spoken language, repetitive use of language and lack of make-believe play • restricted and repetitive behaviours — narrow areas of interest and adherence to routines. As a parent, you should have the same aspirations for your child with autism as you would for your other children. Your child will benefit greatly from their family encouraging them to develop their strengths, skills and interests, which will help them to learn, communicate and socialise with other people. Accessing early intervention services and supports can help both your child with autism and your family have quality of life. My child has autism: information for Queensland families of young children 7 How common is autism? It is estimated that between 1 in 1001 and 1 in 1602 children has autism, making it more common than many other childhood conditions. There are gender differences in the occurrence of autism. Boys are four times more likely than girls to have Autistic Disorder, and boys are nine times more likely than girls to have Asperger’s Disorder. The number of children diagnosed with autism has increased significantly over the past 15 years. However, it is unknown if this is a result of an actual increase in the number of children with autism (prevalence rate) or whether it is a result of improved practices in diagnosis and increased public awareness about autism. Tips for parents – about autism For more information about autism visit: • Disability Online: www.qld.gov.au/disability • Autism Queensland: www.autismqld.com.au • AEIOU: www.aeiou.org.au • Raising Children Network: www.raisingchildren.net.au 1.Prevalence of Autism Spectrum Disorders – Autism and Developmental Disabilities Monitoring Network, United States, 2006, http://www.cdc.gov/mmwr/preview/mmwrhtml/ss5810a1.htm 2.McDermott, S, et al., 2006, The Prevalence of Autism in Australia, a report prepared for the Autism Advisory Board on Autism Spectrum Disorders. 8 2. Diagnosis The early years are the most critical for your child’s development. It is the time when the brain is still developing and is more responsive to therapies and interventions. Having your child assessed and diagnosed as having autism will enable access to necessary early intervention services, which aim to improve your child’s social and emotional abilities and provide information and support for you, as parents, about caring for your child. The diagnosis of conditions on the autism spectrum is based on observations of social and communication difficulties, narrow interest areas and rigid and repetitive behaviours. Autism can be diagnosed in children as young as 18 months of age. If you notice delays in your child’s development, or your child is developing unusual behaviours, you should discuss your concerns with a doctor (GP) or child health nurse. This may result in a referral to a medical specialist, such as a paediatrician, for further advice or a diagnosis. Tips for parents – diagnosis • To learn about how your child should be developing for their age, read about developmental milestones on the Queensland Health website at www.health.qld.gov.au/cchs/ • For information on diagnosis and services for children with autism, visit www.raisingchildren.net.au My child has autism: information for Queensland families of young children 9 Who provides a diagnosis of autism in Queensland? There is no medical test, such as a blood test or brain scan, for diagnosing autism. A diagnosis is based on information provided about a child’s development, observing their behaviour, and the use of educational and psychological tests. In Queensland, paediatricians assess and diagnose children with autism. Input to diagnosis may be sought from speech language pathologists, occupational therapists and psychologists. A doctor (GP) or a Child Health Nurse, based at a community health centre, can provide a referral to a paediatrician. Paediatricians can be seen privately or through the public health system. There will usually be costs for private paediatricians, however, waiting times for an appointment may be shorter. The consultation will be at no cost if it is with a paediatrician in the public health system. Child psychiatrists also diagnose autism however, this is usually for older children. Families living in rural and remote areas can access a visiting Queensland Health paediatrician. For information on how to access visiting paediatricians and other key services to obtain a diagnosis (particularly in rural and remote areas of the state), please see page 33 for contact details of Local Area Coordinators or Child Connect Officers. Tips for parents – diagnosis • Keep a diary or video situations where you notice your child behaves differently from other children, e.g. at playgroup, to discuss with your GP, Child Health Nurse or paediatrician. • Even though you may not have a diagnosis yet, you can encourage your child’s development through play and helping your child communicate and develop social skills. 10 After diagnosis It is not unusual for parents to feel overwhelmed when they first learn about their child’s diagnosis of autism. Even if you have suspected for some time that your child may have autism, it is important to recognise that you are likely to need extra support. You may get this support from your family and friends, but it is also good to talk to your GP and find out about local parent support groups. When your child receives a diagnosis of autism, a number of things will happen. Options for treatment will be explored and a treatment plan will be developed. You will receive information on the services and supports available in your local community. Helping Children with Autism Package Children who receive a diagnosis of autism before their sixth birthday are eligible for supports and services through the Australian Government Helping Children with Autism Package. After diagnosis, you will need to contact an Autism Advisor who will provide information about eligibility, funding available for early intervention and other support services. Tips for parents – diagnosis • For information about the Helping Children with Autism Package, visit www.fahcsia.gov.au/autism • To contact an Autism Advisor contact Autism Queensland on 1800 428 847 or visit www.autismqld.com.au • If you are concerned about your child’s diagnosis or would just like another opinion, there is nothing wrong with getting a second opinion. This may confirm the original diagnosis or it may identify other issues with your child’s development. My child has autism: information for Queensland families of young children 11 Families of children under seven years of age will also be eligible to access the Early Days workshops (see Tips for parents), which are available as faceto-face and online workshops and are provided through the Helping Children with Autism Package. Early Days online workshops help families by equipping them with the skills to promote their child’s early development. They also provide information on various topics such as managing stress, supporting siblings and sleep. Early Days face-to-face workshops provide information about choosing therapies, interventions and available services as well as assisting families through the early days of diagnosis. As part of the Helping Children with Autism Package, the Australian Government has made new Medicare items (which attract a Medicare rebate), such as occupational therapy, speech language pathology and psychology services, available for children aged up to 13 years for diagnosis and treatment planning. Tips for parents – diagnosis • To find out about the Early Days workshops, contact Autism Queensland on 1800 428 847 • Early Days online workshops can be accessed at www.prc.moodle.com.au/course • Supports are also available prior to diagnosis through the Early Days workshops and PlayConnect Playgroup. They provide information about autism, things you can do before a diagnosis and opportunities to meet other parents. • For information on PlayConnect Playgroups, visit www.playgroupaustralia.com.au 12 Children with autism are more likely to have other problems such as sleep difficulties, restricted diet, epilepsy and tantrums. Discuss these issues with your GP or paediatrician as these associated problems may be able to be successfully treated. A range of information resources about the supports and services available for families of young children with a disability, including children with autism, is being made progressively available on the department’s Disability Online website. Should your child receive a diagnosis of autism, you may be eligible for additional assistance such as a Carer’s Payment, Carer’s Allowance or Child Disability Assistance Payment. These information resources will also be provided to doctors, specialists and hospital staff to assist with linking families to the right supports and services in their local area. Tips for parents – diagnosis • For more information on additional assistance, payments or allowances available from the Australian Government, visit www.centrelink.gov.au • Autism Queensland Information and Helpline offers expert autism-specific advice five days a week. They can be contacted on (07) 3273 0000 or email outreachservices@autismqld.com.au My child has autism: information for Queensland families of young children 13 3. Early intervention services Early intervention services are important for children with autism to help them develop skills in play, communication, social relationships and functional behaviours. Services can also assist in increasing children’s independence and ability to adapt to their environment. Early intervention helps children with autism develop the skills needed to participate in child care and kindergarten and improves their readiness for school. These services include: Early intervention services provide a range of supports for families of children with a disability or developmental delay, including children with autism, from birth to school entry. • coordination of services for children with complex needs • information and planning • advice on the child’s developmental needs • multidisciplinary therapy to support the child’s development and help reach developmental milestones • referrals to other specialist services and mainstream services • support with transitioning to a kindergarten program and school • counselling and linking families with other families and support groups. Tips for parents – early intervention • Discuss with your child’s therapists and teachers the things you would like your child to learn, e.g. improving attention, following instructions, changing routines, learning communication and social skills. • Talk to your child’s therapist about your child’s interests and strengths and ideas for incorporating these into home activities, e.g. suitable computer games for a child who likes computers. 14 How will my child benefit from early intervention? Early intervention for children with autism is most effective and provides the best possible outcomes for children when provided as early as possible after diagnosis. the importance of working in partnership with families. Ideally, services are provided in a flexible way that meets the needs of as many families as possible. Early intervention services should be tailored to the individual needs of the child and their family. It is important for you as a parent to have a good rapport with the therapists and feel able to ask lots of questions about your child’s therapy and their progress. Successful early intervention services may involve professionals working directly with your child as well as teaching you strategies to support your child to develop their potential. Professionals should spend time with you working on goals that can be incorporated into your family routines and play activities. This is particularly important for families whose children are unable to attend centre-based programs, for example families living in rural and remote areas. Early intervention services provide you and your family with the knowledge, skills and support to meet the needs of your child, optimise your child’s development and increase their ability to participate in family and community life. All services recognise Tips for parents – early intervention • You will learn from your child’s therapists and teachers how to meet your child’s needs, however, remember that your child is a child first and life should not revolve around therapy. My child has autism: information for Queensland families of young children 15 Where can I access early intervention supports? Autism Early Intervention Initiative AEIOU Foundation Children with autism up to age six can access early intervention services through the Autism Early Intervention Initiative, funded by the Department of Communities, Child Safety and Disability Services. This service is provided through Autism Queensland and the AEIOU Foundation. The AEIOU Foundation (AEIOU) is an approved child care provider, delivering an intensive multidisciplinary early intervention program for children with autism. Autism Queensland Autism Queensland (AQ) provides a range of early intervention services to children with autism and their families, including multidisciplinary centrebased education and therapy programs, homeand community-based programs and family support programs, which provide links with other families. These services are based in Cairns, Mackay, Rockhampton, Gladstone and Brisbane (Sunnybank and Brighton). Early intervention services are provided in AQ centres, the child’s home or other early childhood setting such as child care or kindergarten. Parent coaching and support are a significant component of AQ services. Children can access this program part-time (2.5 days a week) or full-time (5 days a week). AEIOU centres are located at Gold Coast, Brisbane (Nathan, Camira, Bray Park), Sunshine Coast (Sippy Downs), Toowoomba, Hervey Bay, Bundaberg, Emerald and Townsville. For more information about AEIOU services, see page 24. Both AQ and AEIOU provide outreach services to children and their families in regional areas. Tips for parents – early intervention • You can continue your child’s therapy at home through play using the same words and instructions as the therapist, and helping your child practise social skills. This will help your child learn more quickly. • For more information on Autism Queensland visit www.autismqld.com.au or AEIOU Foundation, visit www.aeiou.org.au 16 Family and Early Childhood Service Children aged up to six years who have a developmental delay or who are at risk of having a developmental delay, including children with autism, can receive early intervention services from the department’s Family and Early Childhood Service. This service assists families with information and planning, multidisciplinary therapy, referrals to other specialist and mainstream services, counselling, linking with other families and support groups and transition to child care, kindergarten and Prep. Information for parents – early intervention • Tablet computers are being trialled as an assistive communication device for people with complex communication needs, including children with autism. • The computer touchscreen is used to access 31 applications and tools, which accommodate a range of needs and interests. The trial is being conducted by the Department of Communities, Child Safety and Disability Services and the outcomes will inform future service delivery. Early Childhood Development Programs and Services The Department of Education, Training and Employment provides multidisciplinary therapy and early intervention services to children from birth to prior-to-Prep age who have a suspected or diagnosed disability with significant educational needs, including children with autism. Child Development Services Queensland Health provides early intervention services to children with a moderate to severe developmental delay or disability, including children with autism. Services include information and advice on developmental needs of children and multidisciplinary therapy services that encourage children’s development. Priority is given to children not eligible to receive services from other agencies. Tips for parents – early intervention • For more information about Early Childhood Development Programs and Services, visit www.education.qld.gov.au/schools • For information about Queensland Health services, visit www.health.qld.gov.au My child has autism: information for Queensland families of young children 17 Helping Children with Autism Package The Australian Government’s Helping Children with Autism (HCWA) Package provides access to funding of up to $12,000 up until a child’s seventh birthday (with $6,000 the maximum that can be spent per financial year). This funding is used to support access to multidisciplinary early intervention programs and therapy services (speech language pathology, occupational therapy and psychology services) and resources considered essential for the child’s therapy. To access these services a child must have received a diagnosis and be registered with the Autism Advisor Program before their sixth birthday. Families living in outer regional or remote areas may be able to access a one-off payment of $2,000 to help access early intervention services. Tips for parents – early intervention • Information about the Australian Government HCWA initiative is available at www.fahcsia.gov.au/autism • To contact an Autism Advisor, call Autism Queensland on 1800 428 847. • The Autism Advisors can also provide information on approved private therapy providers in your local area. 18 4. Early childhood education and care What are early childhood education and care services? Early Childhood Education and Care Services include child care and kindergarten services. Children can attend approved child care services from birth and all children are eligible to attend a kindergarten program in the year before they commence school (Prep). The Queensland Government provides funding support to approved kindergarten programs delivered in long-day care or kindergarten services. The early years of any child’s life have a significant impact on their future health, development, learning and wellbeing. It is generally accepted that children who participate in early childhood education are likely to have better academic performance, better behaviour, and stay in education for longer. By age three, children with autism are most likely to show difficulties in communicating, problem-solving and with social interaction. Participating in a quality early childhood education and care program can provide children with autism opportunities to develop their social, communication and play skills from an early age. My child has autism: information for Queensland families of young children 19 How will my child benefit from child care? What supports are available for my child to attend child care? Child care can provide you as a parent with opportunities to return to work, study or to have time with other members of your family. The Australian Government supports children with disabilities who attend child care through the Inclusion and Professional Support Program. This support may be available to: Child care provides all children an early opportunity to relate to peers and other adults. This is no different for children with autism. It can also be an opportunity for you to receive input from qualified early childhood professionals and try new approaches to supporting the development of children with autism. • subsidise the cost of additional educators or carers • provide access to specialist equipment to assist inclusion • provide professional development and resources for educators. Tips for parents – early childhood education and care • Consider enrolling your child in child care, even if only for a few hours a week. This may help to develop your child’s play and social skills and their ability to adapt to new environments. • You can get information about early childhood education and care services at www.deta.qld.gov.au/earlychildhood • For information about the Australian Government’s Inclusion and Professional Support Program and supports for parents visit www.mychild.gov.au 20 How will my child benefit from a kindergarten program? All children benefit from participating in an approved quality early education program, including children with autism. Participation in a kindergarten program can help your child to develop skills in communication, social interaction and behaviour. It can also assist your child to follow routines, as well as provide exposure to early literacy and numeracy concepts. Participation in a kindergarten program will give your child a greater chance of successfully transitioning into Prep and then into mainstream schooling. Kindergarten programs offer play-based learning in a fun and nurturing environment. All children benefit from these early learning experiences and develop abilities including: • being involved and learning to interact with other children • developing a desire to learn as well as ways of getting involved in learning • understanding and managing their feelings • learning about themselves, developing their identity, confidence and independence • building communication skills. Tips for parents – early childhood education and care • Find out where the kindergarten programs are in your area. • Talk to the kindergarten teachers and other parents to find out how they support the inclusion of children with autism in kindergarten programs. • For more information about kindergarten programs in your area, visit www.qld.gov.au/ education. My child has autism: information for Queensland families of young children 21 How will my child be supported in a kindergarten program? Kindergarten teachers in kindergarten services and long-day care services can access support to assist children with autism to participate in their programs. Children with a disability, including children with autism, can receive additional supports to participate in a kindergarten program. Commencing in the 2012 school year, kindergarten services can apply under the Disability Support Funding Program, Department of Education, Training and Employment, to receive additional funding to support your child’s participation in their kindergarten program. Kindergarten programs in long-day care services may be eligible for the Australian Government’s Inclusion and Professional Support Program, which provides professional development and other assistance to child care services supporting children with additional needs. Kindergarten teachers can modify the kindergarten program to support the inclusion of your child. The wider kindergarten community can also be provided with information about autism to encourage inclusion of your child and your family in the service. These additional supports may include: • equipment and play resources • training and professional development for kindergarten teachers • extra teacher aide time to support the child’s inclusion in the kindergarten program. Tips for parents – early childhood education and care • For information about the Disability Support Funding Program, visit www.deta.qld.gov.au/earlychildhood • Link your therapist or early intervention provider with your child’s kindergarten teacher to help plan your child’s program and identify the supports they will need. 22 How do I plan my child’s transition into a kindergarten program? Starting in a kindergarten program involves a significant transition for children with autism and their families. Your child will need a period of preparation before they start in a kindergarten program, support to settle in and ongoing support to ensure your child’s needs are being met and they are achieving educational goals. Transition planning also involves activities with your child including visits to the kindergarten program to become more familiar with the environment and routines, and gradually adjusting routines at home to be similar to those they will experience in the kindergarten program. Successful transition planning requires a team approach with your family and the kindergarten teacher, which should begin 6 to 12 months before your child starts in the service. Transition planning for your child to start their kindergarten program involves a range of activities including enrolment, working with the kindergarten teacher to plan a suitable program for your child and help to identify the additional supports needed, including educational and play equipment and training. Tips for parents – early childhood education and care To help with your child’s transition to a kindergarten program you can: • learn about the activities and routine in the kindergarten program and introduce a similar routine at home for your child, so they become familiar with these activities and the routine • take photos or a video of your child’s kindergarten program and new kindergarten teacher. Show your child and talk about starting in their kindergarten program in the lead-up to their first day. My child has autism: information for Queensland families of young children 23 AEIOU Foundation services The AEIOU Foundation (AEIOU) is an approved child care provider, offering part-time and full-time early education programs for children with autism aged two-and-a-half to five years. Programs provided to children with autism through the AEIOU centres are tailored to the children’s individual interests, abilities and support requirements. They focus on fostering independence and self-confidence in children with autism. Children with autism have the opportunity to participate in structured large and small group activities, circle time and exploratory play options. AEIOU provides services from 15 centres located across Queensland, with most centres providing long-day care. These centres are staffed with multidisciplinary teams, including early childhood teachers, speech language pathologists, occupational therapists and music therapists. 24 Transition to Prep or school can be a difficult time for children with autism. AEIOU works with the child, the family and the school to plan and implement a successful transition into either mainstream schooling or other educational settings. AEIOU also offers an education support program for children with autism who require support beyond the early years of learning. Individualised support is provided within the learning environment for children with autism in the early and primary years of education. Outreach services are provided by AEIOU to children and their families in regional areas. 5. Starting school Starting school is an important time for children and families. The transition to school may present challenges for your child, as well as for the rest of your family, and so good planning for the transition is critical. Where can I enrol my child? As a parent, you play a vital role in your child’s education. By getting involved in the school, you can help your child make a smooth and happy start to their education. Choosing a school for your child is an important decision, so it may be important to talk to other parents who have children at the school you are considering. All children are able to enrol at a local state school. You will need to complete enrolment forms and may be asked to have an interview with a staff member. Tips for parents – starting school • Parents should consider all available school options for their child with autism. • It is helpful to visit all schools you are interested in and talk to the principal and other parents before making a decision. • Contact details for schools in your local area are available at www.education.qld.gov.au/ directory My child has autism: information for Queensland families of young children 25 Is my child ready for Prep? Prep is offered in all state schools as a full five day per week program. To be eligible for Prep a child must turn five by 30 June in the year they start Prep. With the introduction of the Australian Curriculum, full-time attendance in Prep gives students, including students with autism, the foundation they need for successful learning in Year 1. If you are concerned that your child with autism is not ready to start Prep at that time, you can choose to start your child a year later when they become of compulsory school age (6 years and 6 months). You should discuss the specific needs of your child with the principal of the school you plan to enrol your child in. The principal will help you determine the impact of delaying your child’s entry into Prep. Parents of compulsory school age children have a legal obligation to ensure that their children are enrolled in school and attend every day of the educational program in which they are enrolled. Enrolment and full-time attendance at Prep fulfils this obligation. Tips for parents – starting school • For more information regarding delayed entry to Prep visit www.deta.qld.gov.au/initiatives 26 How can I prepare my child for school? Beginning school is a big step for all children and their families. Children develop at different rates and in different ways. It is important to show your child with autism that you believe they are ready for school and not show that you are worried. We recommend that you contact your local school in the year before you enrol your child to discuss your child’s individual needs. This will give the school time for planning to ensure your child has a successful and positive start to schooling. If you are concerned about your child’s readiness for school, discuss this with the school of your choice and your early intervention service provider. If your child has been receiving services from an early childhood intervention service or a kindergarten program, staff from these services can provide information to the school about your child’s strengths and needs, which will assist with the transition process. There are a number of things you can do to help prepare your child for transitioning to school. This should include visiting the new school many times before starting school, initially during quiet times of the day possibly before or after school hours and later at busier times so your child becomes familiar with the school environment at different times of the day. Tips for parents – starting school • Visual supports are useful to prepare your child for school, such as photos of your child’s new teacher and their new classroom. Also graphic organisers, calendars and checklists can be used. • Visual timetables are good to help your child adjust to a new activity or routine such as helping your child get ready for school in the mornings. • For more information on preparing for school, visit www.education.qld.gov.au/strategic My child has autism: information for Queensland families of young children 27 How will my child be supported to learn at school? The Australian Curriculum Foundation Year has been developed to give students in Prep the important foundational learning they will need for successful progression to Year 1. No Queensland child can afford to miss out on this important year. The Australian Curriculum commenced in Queensland in the 2012 school year. It aims to provide a high-quality curriculum for all, while understanding the diverse and complex nature of students with disabilities. It is shaped by the proposition that each student can learn and the needs of every student are important. The principal is responsible for ensuring that all students with a disability are provided with appropriate adjustments to enable them to access the curriculum. When required, students with autism can be supported through appropriate adjustments made by teachers and schools in relation to: • what a student learns • how the student learns and • instructional processes • how the student demonstrates what they have learned. Tips for parents – starting school • Parents are encouraged to read up on the new Australian Curriculum at www.qsa.qld.edu.au or www.australiancurriculum.edu.au • Further information is available regarding educational adjustments for children with a disability at www.education.qld.gov.au • Education for children with a disability — a guide for parents provides information on supports available for children with a disability in state schools. • Access the guide online at www.education.qld.gov.au/studentservices or www.education.qld.gov.au/strategic/advice 28 It is recognised that some students with autism will require additional educational support so they are able to access and participate at school alongside their same age peers. These students can be supported through the full array of student support services allocated to regions and schools. This may include assistive technology, alternative format material, special provisions for assessment, and access to specialist teachers, speech language pathologists, physiotherapists, occupational therapists and guidance officers. Collaboration with parents is an important part of the process of identifying and responding to the individual needs of students with autism. For specific information regarding what your child will be learning at your chosen school, you should contact the principal. Tips for parents – starting school • Having good communication with your child’s teacher will help your child to have a successful education experience. • Good communication will also help you and the teacher to quickly sort out any problems your child may be experiencing at school. • Work out with your child’s teacher how you are going to communicate, such as through regular face-to-face meetings, emails or using a communication book. My child has autism: information for Queensland families of young children 29 Autism Queensland – support for school age children Independent autism specific schools Outreach services Autism Queensland has two accredited independent schools located in Brighton and Sunnybank, which offer tailored education and therapy programs to children with autism from Prep up to Year 12. Autism Queensland provides outreach services to students with autism in schools throughout Queensland, including state, independent and Catholic sector schools. This service provides information and support to parents and education staff to support the child’s educational and developmental outcomes. Students with autism are supported in a group of up to six students according to their age, ability and needs. Attendance is part-time, for either one, two or three days a week, for up to two years. This program enables students to also attend school for the remainder of the week, ensuring that connections with peers are maintained. Students are supported throughout their placement by a multidisciplinary team including teachers, teacher aides, social workers, psychologists, speech language pathologists and occupational therapists. To be able to be referred to these outreach services, your child will need to have an Individualised Education Plan in place at school. You can contact Autism Queensland or visit their website to obtain a School Advisory Visit Request Form. The school program aims to develop students’ social, communication, adaptive behaviour, daily living and play and recreation skills through a modified academic curriculum, which is linked to the Australian Curriculum. Tips for parents – Autism Queensland • For more information about services provided by Autism Queensland, visit www.autismqld.com.au 30 6. Service and resource directory Information resources Disability Online - Family Friendly Resources Printed and online family-friendly information resources www.qld.gov.au/disability about support services available for children with a disability (including autism) and their families. Disability Information Service Provides information on disability-specific topics, including types of disability, government and community-based services, government programs and entitlements, publications and resources. 1800 177 120 www.disability.qld.gov.au Queensland Health — guide to developmental milestones A general guide for age appropriate development, which covers areas such as gross motor, fine motor, talking and understanding, and social and intellectual skills. The guide also highlights signs of possible problems. www.health.qld.gov.au/cchs Education for children with a disability: a guide for parents Provides information on schooling for children with a disability in Queensland and the specialised support available for students with a disability. www.education.qld.gov.au You Are Not Alone: A Carer’s Journey A parent’s guide on caring for children with disabilities from birth to six years. It provides advice on services and shares stories of other parents’ experiences of caring for a child with a disability. www.info4carers.com Raising Children Network: the Australian parenting website An online resource that provides information to assist parents make day-to-day decisions relating to raising children. The website provides a dedicated section on children with autism. www.raisingchildren.net.au Parent support groups key contacts Key contacts for parent support groups throughout Queensland are available on the Autism Queensland website. Contact your local Council and talk with your GP and paediatrician to find out about local parent support groups. www.autismqld.com.au My child has autism: information for Queensland families of young children 31 Early Intervention Services Helping Children with Autism An Australian Government initiative to support children with Autism Spectrum Disorders. Families of children who receive a diagnosis of autism before their sixth birthday can contact an Autism Advisor who will provide information about available funding, eligibility, early intervention services and other supports. Autism Early Intervention Initiative 1800 177 120 Provides early intervention services for children with www.disability.qld.gov.au autism up to six years and their families. The initiative aims to maximise the development of children with autism and assist families to develop the strategies necessary to overcome the long-term challenges of caring for their child. Services under this initiative are provided by Autism Queensland and the AEIOU Foundation. Autism Queensland (07) 3273 0000 Autism Queensland (AQ) provides a range of supports www.autismqld.com.au to families of children with autism including independent accredited schools; education; information and training outreach support; therapy; family support; and linking with other families and support groups. AQ provides intensive early intervention supports to children with autism aged up to six years through centre-based and home-based programs and outreach services. AEIOU Foundation The AEIOU Foundation (AEIOU) is an approved child care provider, delivering an intensive multidisciplinary early intervention program for children with autism aged two-and-a-half to five years. Children can access this program on a part-time (two-and-a-half days a week) or full-time (five days a week) basis. AEIOU also provides outreach services in some areas of the state. AEIOU services are available at Gold Coast, Brisbane (Nathan, Camira, Bray Park), Sunshine Coast (Sippy Downs),Toowoomba, Hervey Bay, Bundaberg, Emerald and Townsville. 32 1800 428 847 www.fahcsia.gov.au (07) 3320 7500 www.aeiou.org.au Cootharinga Provides services to children with autism in North Queensland through multidisciplinary teams including speech language pathologists, occupational therapists and therapy assistants. Programs focus on maximising the child’s development, focusing on areas such as play, social and problem-solving skills. www.cootharinga.org.au Family and Early Childhood Service Supports families with a child aged up to six years who has, or is at risk of developing, a significant developmental delay, by providing therapy, family support and information promoting child development, learning and inclusion, and increasing family capacity. 1800 177 120 www.disability.qld.gov.au Local Area Coordinators Link children with a disability and their families in regional, rural and remote areas with supports and services relating to their individual needs and interests. 1800 177 120 www.disability.qld.gov.au Child Connect Officers Child Connect Officers link families of children with a disability aged birth to eight years with mainstream and specialist disability services to enhance their access to early intervention services. Child Connect Officers are located in Ipswich and Townsville. Ipswich: 3381 7437 Townsville: 4799 5250 www.disability.qld.gov.au Child Development Services Provide services to children with autism across the state through multidisciplinary teams including paediatricians, child health nurses, psychologists, physiotherapists, occupational therapists, and speech language pathologists. 13 HEALTH (13 43 25 84) www.health.qld.gov.au Child Health Clinics A statewide Queensland Health initiative providing assessment, education and support for parents and caregivers of children up to 12 years of age. Services include home visits, parenting programs and advice on child development and behaviour management. 13 HEALTH (13 43 25 84) www.health.qld.gov.au My child has autism: information for Queensland families of young children 33 Early Intervention Services Early Childhood Development Programs and Services Provides support for children birth to four-and-a-half years who have a suspected or diagnosed disability and who have significant education support needs. The programs engage children in learning experiences that maximise their individual potential and improve their transition into the early years of schooling. Contact your local education district office or visit www.education.qld.gov.au Kindergarten Services Kindergarten programs provide play-based early education programs for children, including opportunities to participate in art, music and movement, and develop their physical abilities and social and language skills as well as interacting with others. Children with a disability can receive assistance through the Disability Support Funding Program to participate in a kindergarten program. www.deta.qld.gov.au Early Years Centres Early Years Centres are ‘one-stop shops’ where early childhood education and care, family support and health services are available for families expecting a child or with children aged up to eight years. Early Years Centres are operating in Bentley Park (Far North Queensland), Browns Plains (Brisbane), Caboolture and Nerang. Bentley Park: 4045 0003 ceyce@bensoc.org.au Browns Plains: 3088 4177 bpeyc@bensoc.org.au Caboolture: 5428 1477 www.gowrie-brisbane. com.au Nerang: 5578 1346 Bound for Success 34 Supports Aboriginal and Torres Strait Islander children and young people in the remote areas of Cape York and the Torres Strait Islands in accessing education and achieving academic success. It includes strategies aimed at facilitating community engagement, improving the quality of education services and supporting complementary programs to improve education outcomes. www.education.qld.gov.au For further information contact the Department of Communities, Child Safety and Disability Services: Telephone: freecall 1800 177 120* Telephone Typewriter (TTY): freecall 1800 010 222* Email: disabilityinfo@disability.qld.gov.au Web: www.communities.qld.gov.au You can find this document online at www.qld.gov.au/disability If you are deaf, or have a hearing impairment or speech impairment, contact us through the National Relay Service: • TTY users phone 1800 555 677 then ask for 1800 177 120 • Speak and Listen users phone 1800 555 727 then ask for 1800 177 120 • Internet relay users connect to the NRS (www.relayservice.com.au) and then ask for 1800 177 120 Other languages and formats: If you need the assistance of an interpreter, please contact the Translating and Interpreting Service, TIS National, on 13 14 50 and ask to be connected to the Disability Information Service. This document is available in alternative formats (including large print) on request. If you would like a copy in another format, please contact Disability Information Service on 1800 177 120* or email disabilityinfo@disability.qld.gov.au * Calls from mobile phones are charged at applicable rates. Queenslanders now have access to disability related information at one easy online location. Visit www.qld.gov.au/disability to find out about government supports and services for people with a disability, their families and carers. The new site includes links to information about support groups and counselling, education and where to go to, to get help. 3149-11 APR12
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