Download Report

2014
INSTITUTE ON
DISABILITY AND
HUMAN
DEVELOPMENT
Annual Report
Students Aly Patsavas, Lieke van Heumen, & Kate Caldwell
!!
IDHD by the
Numbers
23
27
53
63
370
4,000
8,100
28,000
$9,104,422
Faculty members
Publications by student trainees
Research and/or training projects
Students in the MS and PhD programs
Community education training events in Illinois
Items in the DHD Braddock Library
Service hours provided in the Family Clinics
People who benefitted from training events
Leveraged funds
Students Kate Caldwell and Natasha Spassiani
2
UCEDD
UNIVERSITY CENTER FOR EXCELLENCE IN
DEVELOPMENTAL DISABILITIES IN ILLINOIS
The entities now known as University Centers for Excellence in Developmental Disabilities (UCEDDs)
were initially created over four decades ago with the enactment of Public Law 88-164 (1963) to serve
people with developmental disabilities. Currently authorized under the Developmental Disabilities
Assistance and Bill of Rights Act of 2000 (the DD Act), UCEDDs are a resource for Americans with a
wide range of disabilities. UCEDDs are leaders in academic training and education, direct services,
technical assistance (information sharing), and research and dissemination all related to people with
disabilities. UCEDDs receive their core funding from the Administration on Intellectual and
Developmental Disabilities (AIDD) within the US Department of Health and Human Services.
!
The Institute on Disability and Human Development (IDHD), the UCEDD for the State of Illinois, was
established on July 1, 1988 at the University of Illinois at Chicago. IDHD is dedicated to promoting the
independence, productivity and inclusion of people with disabilities into all aspects of society.
!
The mission is addressed by conducting research and disseminating information about disability to
educators, policymakers, businesses, government agencies, service providers and the general public.
IDHD's mission includes providing an extensive array of clinical and community service activities and,
through the Department of Disability and Human Development and other academic departments,
offering interdisciplinary pre-service training. The values of cultural diversity, consumer choice and
self-determination are emphasized across the life span in all training, public service, and research
activities of the Institute.
= 1 UCEDD
= 2 UCEDDs
= 3 UCEDDs
Puerto Rico
Guam
American Samoa
C.N. Mariana Islands
Virgin Islands
3
Academic Training
& Education
IDHD is unique in that it is one of the only UCEDDs that is also an academic department. The Department
of Disability and Human Development (DHD) in the College of Applied Health Sciences is home to
internationally and nationally acclaimed leaders in the field of disabilities and is dedicated to the
interdisciplinary study of disability with the goal of removing barriers to the advancement of disabled
persons in society. DHD conducts scholarship and community-based service across the spectrum of
disability, including advocacy, culture, education, health promotion, history, policy, and technology.
!
Through DHD we offer a Master of Science (MS) in Disability and Human Development designed to
prepare students for leadership in human services, as well as research and scholarship in the disability
field. Specializations include Disability Studies Social Policy, and Rehabilitation Technology.
!
Doctoral studies are available through an interdisciplinary PhD program in Disability Studies at DHD. The
PhD Program prepares scholars and researchers for leadership roles in the study of disability as a complex
phenomenon. It is the first PhD program dedicated to Disability Studies in the United States and one of
only a few in the world.
!
DHD is extremely proud to announce that in FY 2014, we launched an undergraduate minor in Disability
and Human Development. Taking an interdisciplinary approach, the minor examines various aspects of
society— healthcare, culture, politics, economics, history, legislation, education and social attitudes—that
uniquely impact the experience and development of people living with disabilities. In 2014 we offered the
following new undergraduate courses: Disability in Society, Disability in American Film, Disability Rights
and Culture, and Disability, Health and Society.
!
Finally, DHD offers a certificate program in Assistive Technology which is designed to enable
professionals to pursue coursework that provides a sound base of knowledge which can be put into
practice in a variety of service delivery settings. Course requirements can be met entirely through online
courses or through a combination of both online and lab-based courses at UIC.
!
Department of Disability and Human
Development Braddock Library
One of the notable resources available to students in the
Department of Disability and Human Development is the DHD
Braddock Library. Named after David Braddock, Professor
Emeritus, the DHD Braddock Library is an extensive collection of
over 4,000 items. Many of our holdings are quite rare and come
from the collections of Stanley Herr, David Braddock and Wolf
Wolfensberger.
4
Students
Students.
Students Laura VanPuymbrouck
& Meghann O'Leary
Student Heather Feldner
Student Brian Heyburn
!
The students in the Master of Disability and Human Development program and the Doctoral
Disability Studies program bring diverse perspectives with backgrounds from disciplines
spanning the social sciences, humanities, and health fields and hail from 12 countries.
!
IDHD students are provided with opportunities to connect with local disability organizations for
volunteer and internship opportunities and participated in over 20 committees, boards, and
consortiums in fiscal year 2014. Students have also seized opportunities to share the knowledge
they have gained by training others as well as presenting at conferences across the world.
Alumni
IDHD alumni are finding valuable careers after completing their education. Amie Lulinski Norris
just accepted a position as Director of Disability Rights Policy at The Arc of the United States;
Vijay Vasudevan accepted a postdoctoral fellowship at the Institute on Disability and Human
Development. Randall Owen works as a Research Assistant Professor in the Department of
Disability and Human Development here at UIC; and Carolyn Lullo McCarty has accepted a
position as an officer in the Epidemic Intelligence Service (EIS) program at the Centers for
Disease Control (CDC). Vladimir Cuk has just been named Executive Director of the
International Disability Alliance (IDA). Vladimir will be responsible for coordinating the Alliance
Secretariat in New York and Geneva and the Secretariat’s advocacy within the framework of the
United Nations (UN) system and relationships with UN agencies, the World Bank and other
international human rights organizations. These are just a few of the exciting positions our
alumni accept after graduation.
5
Academic
Highlights
In the undergraduate Minor in Disability and Human Development coursework, disability is
explored and understood through a social model that is based on history and culture. Part of
this transformative approach to studying disability involves the education of academics,
researchers, policy experts, and clinicians who will join with disabled people as active
challengers of oppressive institutions and environments. Students from any discipline can
engage in disability studies. Because the program has faculty, researchers, and students with
backgrounds in health, education, assistive technology, the social sciences, and the humanities,
the Minor in Disability and Human Development offers a unique opportunity to study the full
complexity of disability in a rich interdisciplinary manner.
!
IDHD/DHD is also home to the Leadership Education in Neurodevelopmental and Related
Disabilities (LEND) program for the State of Illinois. The Illinois LEND is a partnership between
UIC, The University of Chicago, Rush University and Southern Illinois University. The Illinois
LEND provides continuing education and technical assistance regarding autism and other
developmental disabilities. It is geared to meet the diverse needs of maternal and child health
students, professionals, policymakers, families, and self-advocates. In FY 2014 the Illinois LEND
trained 26 long term trainees (including one post doctoral fellow). IL LEND is proud to have
trainees from 14 different disciplines. All trainees received over 300 hours of interdisciplinary
leadership and discipline-specific clinical training. In addition to the long term trainees, LEND
faculty and staff also provided training to 1,872 students from a variety of disciplines, including
behavioral/developmental pediatrics, medicine, applied behavior analysis, and child psychiatry.
These students also received instruction on Autism Spectrum Disorders, Maternal and Child
Health competencies, and family-centered, interdisciplinary care.
Students, faculty, & staff at the Ann & Edward Page-El Scholarship Award Ceremony
6
Technical Assistance
& Trainings
Emergency preparedness
training
Glenn Fujiura and Tamara
Thompson-Guterz
At IDHD, technical assistance is
not seen as a discrete activity,
but rather as a logical and
natural extension of all our work.
Therefore, virtually all staff and
faculty in the IDHD research
centers and programs are
involved in some form of
technical assistance at the local,
state, regional and national
levels. Technical assistance
highlights from FY 2014 are
presented below.
!
The Sexuality and Disability
Consortium (SDC) at IDHD is a
group of people working
together to support individuals
with disabilities through training
and education. The goal is for
people with disabilities to have
healthy sexuality and
relationships that they choose.
!
Glenn Fujiura, PhD, is the editor
in chief of the journal Intellectual
and Developmental Disabilities
and Matthew Janicki is the editor
of the Journal of Policy and
Practice in Intellectual
Disabilities.
!
IDHD was also honored to
receive the Association of
University Centers on Disability
2013 Multicultural Award for
Leadership in Diversity.
Trainings
!HealthMatters, a curriculum
designed to promote health for
adults with I/DD, has had a
broad reach, performing 15
webcasts and training 194
The Great Lakes ADA Center
people with I/DD and 200 staff/
(http://www.adagreatlakes.org)
caregivers. 800 peer participants
promotes voluntary compliance with I/DD have received or are
with the Americans with
receiving HealthMessages
Disabilities Act through the
Programs on train-the-trainer,
provision of technical assistance, getting the memo, and
training, consultation and
developing community
dissemination of materials. The
academic partnerships. Heath
Center is actively involved in
Matters is training provided
addressing issues impacting
through the Rehabilitation
employment, community
Research and Training Center on
participation, architectural
Developmental Disabilities and
Health (http://www.rrtcadd.org)
!
A self-advocate attending the
community forum on sexuality
accessibility and accessible
technology.
7
Supporting
Advocacy
Efforts
IDHD received three Civic Engagement grants from the Institute on Public and Civic Engagement
(IPCE). One grant explored the perspectives of adults with intellectual/developmental disabilities
about sexual self-advocacy. 35 self-advocates attended a Community Research Forum where
they had an opportunity to learn more about sexual self-advocacy as well as reflect on their ideas
and experiences about the topic. One participant, reflected “What I learned about today is about
speaking up for those who could need help and more about safe sex.” Another participant stated
that “One thing I have learned today is I have to take the information with me so I can learn and
depending on the relationship and my choice and speaking up.”
!
A second grant from UIC’s IPCE engaged people with disabilities and their siblings in a policy
discourse about long term services and supports. Trainings were held in Chicago and Springfield
to educate siblings about the policy process and to encourage siblings to get involved in
advocacy efforts with their brothers and sisters with disabilities. Outcomes of the project
included increased knowledge of participants, an Advocacy Toolkit for Siblings, sibling policy
videos, and a white paper with policy recommendations.
!
Finally, IDHD received an IPCE grant to promote special education advocacy training for families
of children with disabilities. For this grant, the Family Clinics partnered with The Autism Project
(TAP), Easter Seals of Dupage County, Grupo SALTO, and the Family Resource Center on
Disabilities. A series of trainings were held that specifically focused on families advocating for
their special education priorities regarding the upcoming reauthorization of the Individuals with
Disabilities Education Act (IDEA).
Emergency preparedness training
A self-advocate at the sexual self-advocacy forum
8
Promoting
Systems
Change
IDHD has been conducting research that directly impacts Illinois residents with intellectual
and developmental disabilities (IDD) and their families. The State of Illinois has been
undergoing a rebalancing initiative that will increase community care options for people
with IDD and reduce the number of state-operated developmental centers (SODCs) in
Illinois. IDHD has evaluated the closure of the Jacksonville Developmental Center and
subsequent resident transitions. The evaluation of the closure shows that 92% of family
members/guardians who responded to a mailed survey reported satisfaction with their
family member/ward’s new residential setting approximately one year after transition.
These same respondents indicated overwhelming dissatisfaction (83%) with the decision
to close when it was initially announced. Eighty-eight percent (n = 57) of the survey
respondents were family members (parents, siblings, aunts/uncles, nieces/nephews, or
cousins), while the remaining 12% (n = 8) were state guardians.
!
IDHD is also a part of the evaluation of the Ligas Consent Decree. Preliminary findings
show that families who are still on the waiting list for services report more unmet needs
than those who came off the waiting list. This was especially true for families of individuals
with greater behavioral support needs. Results also showed that minority families who
came off the wait lists showed greater unmet needs in regards to “Networking with other
families who transitioned off the waiting list” and “Training/Information about the Ligas
Consent Decree.”
!
IDHD has been collecting data on process and outcomes for people with disabilities who
are a part of the Integrated Care program. People with disabilities who are Medicaid
beneficiaries are being transferred to a managed care insurance model. The preliminary
findings from this evaluation show that people with disabilities have a higher appraisal of
their healthcare services if they are enrolled in managed care versus receiving fee-forservice Medicaid, that people with disabilities who are enrolled in managed care have
fewer unmet needs than people enrolled in fee-for-service Medicaid and that people with
IDD have a greater number of unmet medical needs than did people who did not have
IDD. This is true both in managed care and fee-for-service Medicaid. Director Heller and
her team will continue to evaluate the shift from fee-for-service Medicaid to a managed
care approach for the next several years.
9
Research
IDHD places great emphasis on researchoriented activities and training opportunities.
Many research-related activities are
integrated across community services
projects thereby creating a direct link
between research and practice. Some
examples of research are highlighted below:
Using the National Survey of Children with
Special Health Care Needs, Professor Sandy
Magana and colleagues (Parish et al., 2013)
studied the racial and ethnic healthcare
disparities among children with IDD. The
authors found that significant racial disparities
in health outcomes exist between Black and
White children and Latino and non-Latino
White children.
!
Heller, Mitchell, Owen, Keys and Viola (2013)
produced a substantial report on the impact
of managed care in Illinois for seniors and
people with disabilities. Analyses of
encounter data indicated that people with
IDD in managed care had a greater reduction
in emergency room use over a two year
period than those in fee for service.
!
Parker Harris, Renko, and Caldwell (2013)
studied the perspectives of people with
disabilities and other stakeholders on
accessing social entrepreneurship. Social
entrepreneurship has been gaining
increasing attention as a possible
employment strategy for people with
disabilities.
!
Hsieh, Rimmer, and Heller (2013) examined
the prevalence of obesity in adults with
intellectual disabilities (ID) compared with
the general population, and the factors
associated with obesity and weight
management status, comparing individuals
with ID who were overweight or obese to
those who were not. Results showed that
compared with the general population, adults
with ID had a higher prevalence of obesity
and morbid obesity.
!
Friedman, Rizzolo, and Schindler (2014)
examined the dental services in Medicaid
Home and Community Based Services
(HCBS) waiver applications targeting
individuals with IDD. The results indicated
only a fraction of states are utilizing the HCBS
waiver to address gaps in dental coverage for
adults with I/DD.
!
!
LEND director Kruti Acharya presenting at AUCD
10
Information
Dissemination
In the preceding academic year,
faculty produced over 260
publications, including 52 journal
articles, 1 book, 19 book chapters,
78 fact sheets and brochures, and
32 monographs or technical
reports. Our student trainees
produced over 27 publications
including 6 refereed journal
articles.
!
In addition to dissemination of
printed materials, IDHD employs
the use of social media tools, such
as social networking, microblogs
and YouTube videos, as
mechanisms through which to
share information and publications
across a broad audience. IDHD also
maintains an active Facebook
group page:
www.facebook.com/uic.idhd !
Faculty and staff were also very
visible through other media outlets
including UIC Alumni magazine,
UIC News, the Chronicle of Higher
Education, Windy City Times,
Community Services Reporter,
Disability Beat Radio, ABC Channel
7 News, the Huffington Post Blog,
and the Chicago Tribune.
Presentations
audiences. Additionally,
students in IDHD/DHD’s
Disability Studies Doctoral and
Masters programs as well as the
LEND program participated in
over 130 presentations this
year.
!
Some of the presentation and
seminar topics included:
❖ The ADA
❖ Autism
❖ Sibling Leadership
❖ Accessibility
❖ Physical Activity
❖ Aggression / Anger
Management
❖ Aging Services
❖ Assistive Technology
❖ Disability Culture and Art
❖ Clinical Services for Hispanic
Families of Children with DD
❖ Vocational Rehabilitation
❖ Health Promotion
❖ Crisis Intervention
❖ Cross-Cultural Issues
❖ Dating Skills
❖ Disability Rights
❖ Policy Values and
Employment
❖ Dual Diagnosis
❖ Early Intervention
❖ Empowering Community
Change
❖ Family Support
❖ Nutrition
❖ Participatory Action Research
❖ Sexual Self-Advocacy
Faculty and staff participated in
over 530 presentations to local,
state, regional, and international
LEND trainee presenting
at the LEND open house
Dale Mitchell, Irma Hernandez,
Sara Shields-Cole
& Amie Lulinski
Carli Friedman presenting at
AUCD
11
Direct Services
Established more than 20 years ago, the Developmental Disabilities Family Clinics
provide quality clinical and family support services with a life-span approach, as well
as community education and training. Their services include comprehensive
interdisciplinary diagnostic assessments, specialized individual and group
therapies, and family support in Spanish and English with a strong commitment to
minority populations. The clinics emphasize the value of family, resources within the
community and a multidisciplinary approach in providing services.
www.ahs.uic.edu/cl/familyclinics/
!
Grupo SALTO, a monthly support group of approximately 435 Spanish-speaking
families of children with an autism spectrum disorder (ASD) facilitated by the
Hispanic Team, offers educational sessions for parents, a sibling support group, as
well as an arts, dance, and music program for children with ASD. http://
gruposalto.org/
!
Another support group gaining popularity is the Autism Spectrum People in
Education, or ASPiE. This peer support group for college students on the autism
spectrum from all over the Chicago-land area continues to meet on a biweekly
basis during the academic year. Thirty-nine members strong, and facilitated by a
clinical psychologist, Dr. Jennifer Gorski, the group focuses on peer interactions,
support and relationship building in a fun environment.
!
The Autism Clinic and The Autism Program (TAP) training center at UIC is a
specialty clinic serving children, adolescents, and adults with known or suspected
Autism Spectrum Disorders and their families in the city of Chicago and
surrounding areas. Its services, which are provided in both English and Spanish,
include diagnostic assessments, interventions, community education, parent
training, and support. http://theautismprogram.org/
!
Our interdisciplinary Assistive Technology Unit (ATU) has been providing services
to underserved individuals with developmental disabilities in northern Illinois for
the past 20 years. Assistive Technology (AT) evaluations are provided each year to
approximately 350 individuals of all ages with a range of disabilities. Over 95% of
ATU services were provided in the community through 7 Mobile Units. These
custom vans bring evaluation and implementation services to the consumer in
individuals' homes, schools, workplaces, or recreation settings. The ATU also
participates in research activities in the field of assistive technology, and is
committed to academic excellence and leadership development for professionals
and consumers. The ATU offers a variety of seminars and workshops with
continuing education credits available for working professionals. www.ahs.uic.edu/
cl/atu/
12
!
Programs
& Centers
Assistive Technology Unit (ATU) designs special technology to help people with
disabilities be more independent. The ATU can work with a person at their home or
worksite to make the space better for that person to live and work in. Technologies
include augmentative communication devices, computers, and wheelchairs.
!
The Center for Capacity Building on Minorities with Disabilities Research (CCBMDR)
works to generate state of the art research and interventions designed to promote
empowerment of minority individuals with disabilities and capacity building among
A child working at the Family Clinics
agencies delivering services to minority populations.
!
The Center on Health Promotion for People with Disabilities (CHP), is a leader in
research, education, and training on health promotion strategies for people with
disabilities.
!
Chicago Center for Disability Research (CCDR) is a research unit established for the
study of social, psychological, and educational issues relevant to the life experience
of people with disabilities.
!
The Child & Family Development Center (CFDC) is an interdisciplinary public service
and research center which promotes positive outcomes for young children and their
families. The CFDC delivers high quality, state-of-the-art early intervention, early
education, and coordinated therapeutic services to Chicago’s urban families. http://
www.uic-cfdc.org/
!
The Great Lakes ADA Center is one of 10 federally funded technical assistance
centers on the Americans with Disabilities Act of 1990 (ADA). The Center promotes
voluntary compliance with the law through technical assistance, training, consultation
and dissemination of materials on employment, community participation,
architectural accessibility and accessible technology www.adagreatlakes.org.
!
13
Programs
& Centers
!
!The Evaluation and Public Policy Unit conducts applied research and evaluation of policies
and programs that impact individuals with disabilities and their families both in the State
and across the nation. Current activities include: the State of the States in Developmental
Disabilities (with the University of Colorado); rebalancing initiatives (including evaluation of
institutional closures, the Ligas consent decree, and the Integrated Care program initiative);
and participation on various state, local, national and international committees, boards and
task forces that focus on improving the lives of people with disabilities.
!
The Family Clinics provide interdisciplinary diagnostic and treatment services to children and
adults with autism and developmental disabilities and their families. Its specialty programs include
early childhood, school age, and adult services, bi-cultural Hispanic services, and autism programs,
including the Autism Clinic and the TAP Training Center . The clinics also offer parent training,
social skills groups and individual and group therapy.
!
The Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Program. This
one year interdisciplinary training program incorporates both didactic and hands on learning in
clinical and community-based settings. The Illinois LEND program is part of a national network of
interdisciplinary university-based programs. The LEND aims to prepare future leaders who will
serve children with neurodevelopmental disabilities (including related disabilities and autism) and
their families through coordinated, culturally competent, and family-centered care, as well as
public health services and policy systems change. www.illinoislend.org
!
The Program on Disability Art, Culture, and Humanities (PDACH) furthers research and supports
the creation of disability art and culture. Research includes arts criticism, theory, history, and studies
of careers of disabled artists, arts policy, and arts education. www.ahd.uic.edu/dhd/pdach
!
Rehabilitation Research and Training Center on Developmental Disabilities and Health
(RRTCDD). The RRTCDD conducts research and serves as a national and international resource on
the health and function of adults with intellectual and developmental disabilities (IDD) and their
families as they age. Its research focuses on increasing understanding of health status, health
access, and health behaviors; improving health through health promotion interventions; and
improving health care through integrated care practices. It has developed nationally recognized
training on health promotion and future planning for adults with IDD and their families.
www.rrtcadd.org
!
14
New Grants in
Fiscal Year 2014
❖ Prevalence
Risk Factors and Health Consequences Of Obesity (Yamaki; University of Alabama Birmingham)
on Developmental Disabilities Services in Illinois (Yamaki; Shimizu Foundation)
❖ Locked in State: Medicaid and Intrastate Confinement for People with Disabilities in the US (Grossman; UIC
office of the Vice Chancellor)
❖ Parents Taking Action: A Training Program for Latino Parents of Children With ASD (Magana; Autism Program)
❖ PROJECT ATX2: Assistive Technology for Social Networking and Safety in the Community (Hedman; Coleman
Foundation)
❖ Vocational Rehabilitation Quality Assurance Project (Balcazar; Division of Rehabilitation Services)
❖ Transition Model Implementation (Balcazar; Illinois Department of Human Services)
❖ UIC Collaboration To Improve The Health Of People With Disabilities through State Based Public Health
Programs (Yamaki; Illinois Department of Public Health)
❖ Trends in Healthcare Disparities among Children with Autism and Other Developmental Disabilities (Magana;
Brandeis University)
❖ Medicaid Managed Care and Aging with Physical Disabilities (Heller; University of Washington)
❖ UIC Assistive Technology Unit Services to Members of the Colbert Consent Decree (Hedman; Illinois
Department of Healthcare and Family Services)
❖ Comparing Care Coordination Models in Illinois (Heller; University of California San Francisco)
❖ Arc HealthMatters Workshop (Marks; The Arc of the United States)
❖ HealthMeet Project (Vasudevan; The Arc of the United States)
❖ White Paper on Inclusion of Students with Disabilities in Nursing Educational Programs for the California
Committee on Employment of People with Disabilities (Marks; US Department of Labor)
❖ Training Parents of Students with Disabilities: Using Technology to Enhance Civic Engagement (Burke; Institute
for Policy and Civic Engagement, UIC)
❖ People with Intellectual and Developmental Disabilities Advancing Sexual Self-Advocacy: A Community Forum
(Sandman; Institute for Policy and Civic Engagement, UIC)
❖ Engaging People with Disabilities and their Siblings in Policy Discourse (Arnold; Institute for Policy and Civic
Engagement, UIC)
❖ Rehabilitation Research and Training Center on Developmental Disabilities and Health (Heller; National
Institute on Disability and Rehabilitation Research)
❖ Research and Training Center on Family Support (Magana; National Institute on Disability and Rehabilitation
Research)
❖ Workshop
6%
7%
34%
53%
Federal
State
Other
AIDD
Source
Funds Leveraged
Federal
$5,013,715
State
$3,188,143
Other (universities,
foundations, local)
$637,324
For every $1 IDHD receives from AIDD, IDHD leverages an additional $17.01
15
Institute on
Disability & Human
Development
!
www.ahs.uic.edu/dhd/aboutidhddhd/
The Institute on Disability and Human Development is a University Center for Excellence
in Developmental Disabilities, with support from the Administration on Intellectual and
Developmental Disabilities, U.S. Department of Health and Human Services.
Director: Tamar Heller, PhD
Phone: 312.413.1647
TTY: 312.413.0453
theller@uic.edu
Associate Director:
Mary Kay Rizzolo, PhD
mrizzo3@uic.edu
Director of Graduate Studies:
Sarah Parker Harris, PhD
skparker@uic.edu
Artistic Director:
Carli Friedman, MS
!
!
!
IDHD Consumer advisory committee
Advocates and Family
Members
Stephanie Campbell
Lisa Cesal
Marty Fox
Lydia Galan
Michael Grice
Nora Handler
Stevie Hopkins
Elbert Lott
Shirley Perez/Cynthia
Justice
Dorelia Rivera
Monica Thorns
!
Organizational Representatives
Kevin Casey Division of Developmental Disabilities
Donald Dew Habilitative Systems, Inc.
Art Dykstra Trinity Services
Zena Naditch/Melissa Picciola/Karen Ward Equip for
Equality
Tony Paulauski The Arc of Illinois
Kris Risley/Karen VanLandeghem Community Health
Sciences/MCH UIC School of Public Health
Sheila Romano/Sandy Ryan/Margie Harkness Illinois
Council on Developmental Disabilities
Francisco Alvarado Division of Rehabilitation Services
Russell Bonanno The Autism Program of Illinois (TAP)
University of Illinois at Chicago
1640 West Roosevelt Road (M/C 626)
Chicago, IL 60608-6904