Autumn 2015 …keeping in touch A healthy home means healthy children – is your home a healthy home? TH MA COUNC IL ST ® AU AS AL RAL I A Z) • AS T H M (N 5 6 7 8 9 10 Smokefree Aotearoa – what can you do? 11 Latest research 12 Development of a National Respiratory Strategy 13 Dance 4 Asthma - It’s time to dance 14 Epic cycle adventure begins 15 Healthy building for preschool 16 Important dates and news NATION 3 4 Looking outside the health sector for solutions to our poor respiratory health Our people What is the connection between our homes and our health? COPD – Making life easier What’s happening at Asthma Hawke’s Bay Ask a nurse New resources to help educate Wha ¯nau Ora Healthy Housing and Budgeting Cookbook • this issue 2 A F ON O U N D AT I SENS ITIVE CHOICE 02 President’s message Farewell to our Chief Executive March/15 M A C O UNC IL NATION AL TH T H M (N AS Z) • • ® RA L I A ST AU AS A F ON O U N D AT I SENS ITIVE CHOICE Level 3, Greenock House 39 The Terrace PO Box 1459 Wellington 6140 t (04) 499 4592 f (04) 499 4594 e info@asthmafoundation.org.nz www.asthmafoundation.org.nz John Knight President It is with regret and sadness that I advise that Angela Francis our chief executive is leaving to become Chief Executive of Nelson Bays Primary Health Organisation. Angela has been with the Foundation for nearly five years and in that time she has transformed the Asthma Foundation into a high performing organisation with an excellent profile and reputation. This includes overseeing a new strategy based on Sir Mason Durie’s Pou Ora Framework; making significant gains in Ma¯ori Health including a Ministry of Health contract to research health literacy; commencing the Ma¯ori Engagement Strategy and forming a national Expert Advisory Group. Angela’s other achievements include securing significant unbudgeted revenue, notably increased revenue for the Sensitive Choice® Australasian business development venture and redesigning how we procure research resulting in a joint Health Research Council of NZ partnership research programme. Angela oversaw the 50th Anniversary celebration in 2014 that included a dinner hosted by the Governor General at Government House, and the publication of the commemorative book A Breath of Hope by historian Lou Ormsby. Personally I would like to thank you Angela for your dedication, passion, hard work and loyalty to the Asthma Foundation. You are leaving our organisation in a stronger position than when you arrived! It has been a pleasure working with you and we wish you all the best in your new role. John Knight, President the asthma foundation…keeping in touch is produced with the assistance of Pub Charity Chief Executive’s message The Asthma Foundation greatly appreciates their support. Angela Francis Chief Executive As this will be my last contribution to ‘Keeping in Touch’, I wanted to take the opportunity to express my gratitude to you as a key contributor in the Respiratory health sector. Whether it is as a client, care giver, hauroa provider, physician or funder, you have helped us ‘make a difference’ to those whose lives are affected with a respiratory condition. Philip Aldridge and Matthew Allen With your continued support, the Asthma Foundation will continue to advocate for respiratory health to become a health target so that: • Respiratory health is prioritised by government and all health providers • There is standardised care utilising updated guidelines • Respiratory health is appropriately funded A core strand of the Asthma Foundation’s strategy is lobbying for a reduction in social inequalities – in particular decreasing poverty, providing better housing, improving health literacy and providing better access to primary health care for all New Zealanders. It is for this reason that I am pleased to announce that the Foundation was the successful recipient of a Community Programme Internship jointly funded by the Department of Internal Affairs and the Ministry of Health. This will allow us to progress the development of the first ever National Respiratory Strategy with an emphasis on health equity. The Asthma Foundation governance structure has undergone recent change with the addition of two new members: Matthew Allen, director and owner of Wellington based policy consultancy, Allen + Clarke; and Philip Aldridge, director of business services and operations at the Social Policy Evaluation and Research Unit. On a solemn note, one of our life members Professor Tom O’Donnell passed away on Christmas Day. I enjoyed all my meetings with Tom who was a gentleman and a passionate advocate for those with respiratory conditions. You can read more about Tom in this edition. In closing I would like to thank the Asthma Foundation Board for their ongoing commitment and work towards respiratory health. I would also like to thank the team for their dedication and work, without which the achievements over the last four years would not have been possible. Angela Francis, Chief Executive 03 Updates Our people Our Achievers continue to not let their condition stand in their way A year ago Tomairangi Pihema-Brown received her Asthma Foundation Achievers’ Award – just two months later she was learning to walk again after she had a life threatening asthma attack. The story has a happy ending with Tomairangi fighting back and competing at the Waka Ama Nationals in January. Her mum Sharon says Waka Ama has given Tomairangi a focus. “It’s been her goal to get here to Nationals. We’ve had to take it week by week because some days she’ll be in hospital and miss out on training and then the next day back out on the boat.” Swimming legends relay Tomairangi you are still an inspiration to us all. Professor Tom O’Donnell CBE Our superstar swimming legends raised $2,700 to support people with respiratory conditions – a very big thank you once again to Steven Kent, Sam Caradus, John Gatfield and 97-year-old Kath Johnstone. Tom O’Donnell was well known as a courteous gentleman who made a major contribution to medicine, science and the community. He cared greatly for his patients and trainees as dean of the Wellington Medical School and as a consultant physician at the Wellington Hospital Board. Tomairangi (second from left in white shirt) paddling in the Intermediate Women’s W12 500m Best of luck to Nicole Doriguzzi who has headed off to Chile for two months as a volunteer helping abandoned dogs. This is all the more impressive as Nicole, an animal lover, has cystic fibrosis and cannot get travel insurance while she is away. Before Nicole departs she will get two weeks of intravenous antibiotics to clear her lungs. “I’m not afraid,” Nicole says, “as someone has to help and I will be making a difference.” You certainly will, Nicole. Well done! Tom was a specialist in respiratory medicine. He became president of the New Zealand Asthma Society in 1973. Tom’s immediate goals were to encourage research on the management of asthma, and establish a strong network of societies to apply the results through education programmes. He remained president until 1984 and chaired the Medical Advisory Committee from 1973 to 1987. Tom was a member of the Asthma Task Force and edited two reports outlining current statistics and information on asthma in 1984 and 1987. The 1987 review highlighted the economic burden to the community of badly controlled asthma and resulted in government funding of asthma management plans as part of the solution. In 1991 he was elected president of the Asthma Foundation, a position he held until 1994. On behalf of the Foundation, Tom issued the first of many forceful statements condemning tobacco manufacturers who claimed smoking was harmless. We were very honoured that Tom was a champion of the Asthma Foundation for so many years. He was made a life member of the Foundation and awarded a CBE in 1989. Prime Minister’s Science Prize winner Our warmest congratulations to Professor Philippa Howden-Chapman from the University of Otago who won the Prime Minister’s Science Prize for the He Kainga Oranga/Housing and Health Research Programme. “I wanted to provide evidence to support the premise that everyone should have the right to warm, dry, safe housing regardless of whether they own or rent,” says Professor HowdenChapman. 04 Your Health What is the connection between our homes and our health? Quite a lot is the answer. Living in a dry, warm environment is good for everyone. For people with poor respiratory health it is especially important. Being aware and taking a few simple steps – keeping moisture to a minimum, keeping heat in and keeping the air clean – can help ensure your home is a healthy place to live. Tips for a dry, warm, pollution-free home Many houses in New Zealand are damp and cold, leading to more colds and flu and aggravating respiratory health. A dry, warm and pollutionfree home can make you healthier and save you money and energy. Have a dry home by keeping moisture to a minimum Damp homes are more difficult to heat so it is important to try to identify the causes of the dampness and correct them. If a home is insulated, ventilated and adequately heated yet dampness and mould growth continue, it is likely that moisture is coming from damp ground beneath the floor, from rainwater leaking into the home, or from leaks in plumbing. The cheapest and most effective method to ventilate your home is to have windows open a small amount for long periods of time (security concerns can be addressed through fitting security stays or fitting aluminium windows with passive ventilation and condensation channels). Other actions you can take include: Have a warm home by keeping heat in The World Health Organization recommends a minimum internal temperature of 18°C. Below 16°C there is an increased risk of respiratory disease, so keeping your home warm will help keep you healthy. Tips for keeping heat in include: • have well-fitting curtains to reduce heat loss at night and keep in the heat gained from the sun during the day • use a healthy form of heating such as a flued gas heater, heat pump, or pellet or wood burner • insulate your ceiling and under the floor to keep heat in and heating costs down – 40% of heat can be lost through an uninsulated ceiling and 10% of heat lost through the floor • install double glazing to halve the heat loss through single glazed windows. Have a pollution-free home by keeping the air clean • put lids on pots when cooking • dry your clothes outside • vent your clothes dryer to the outside of your house • use extractor fans or open windows in the kitchen and bathroom to remove moisture • remove mould using very diluted household bleach • check for water leaks from guttering, plumbing etc, and have them repaired if they occur The biggest thing you can do to make your home pollution-free is to not smoke inside, especially around children. Approximately three quarters of people with asthma become wheezy in a smoky room. Other actions you can take include: • let your family and friends know that your home is smokefree • use an electric or flued gas heater rather than an unflued gas heater • air your house on fine days • ensure there is adequate drainage around your house • limit the use of strong-smelling cleaners, air fresheners and flysprays • place black plastic on the ground under your house to keep the moisture in the ground and your house drier and easier to heat • keep dust to a minimum – dust with a damp cloth and vacuum regularly (use a vacuum cleaner with a HEPA* filter) to reduce house dust mites (a common asthma allergy trigger) • install an in-roof ventilation system to reduce condensation • consider installing double glazing if you are building or replacing windows. • consider hard floors and rugs, ideally with underfloor insulation, instead of fitted carpets. * HEPA = high energy particulate air 05 Your Health COPD – Making life easier • when you get out of the shower, put on an absorbent robe rather than using your energy to towel-dry yourself • try to do most of your jobs at times when your energy levels are highest • meals on wheels are a convenient alternative to preparing meals • use a grocery trundler or a bag on wheels to avoid carrying heavy items • ask your supermarket if they provide a home delivery service. Ask for help when you need it Be realistic about what you can and can’t do. It’s important to have people around to help you with tasks that become too difficult for you to perform. Don’t be afraid to ask. Plan your day Spend a little time each morning organising your day so there are periods of planned rest between activities that are more strenuous. Make your home as efficient as possible Chronic obstructive pulmonary disease (COPD) affects your breathing and can make it harder to enjoy everyday activities. Taking steps to make your everyday life easier can help control your shortness of breath, tiredness and other common COPD symptoms. Here are some ideas that may help: Sign up to pulmonary rehabilitation Pulmonary rehabilitation can improve your quality of life, your breathlessness and your strength. It consists of exercise, nutritional education and training to help you learn to live with COPD and stay active and functional. Ask your doctor or local hospital for more information. Become attuned to your body and listen to what it needs Even though pulmonary rehabilitation is important, if your COPD symptoms flare up, take a break and just continue with milder exercises and your daily living activities. Practice breathing control Keep things you use in the area where you use them, e.g. keep dishtowels by the sink and your shoes by the back door to save energy by reducing the distance you walk. Manage anxiety Anxiety is common in people with COPD, and it can sometimes spiral out of control. This can lead to shortness of breath, which leads to more anxiety, which leads to more shortness of breath, and so on. Try activities that relax you, such as listening to music, and practice your breathing exercises when you feel anxiety creeping in. Be prepared for an emergency Keep inhalers, cell phones, important phone numbers and a list of your medications close at hand, so you can quickly call for help if needed. Visitors Ask friends to avoid visiting if they have a cold, the flu, or any virus or infection that could weaken your health. If visitors want to smoke, make sure they do it outside your home and away from areas of ventilation. Your physiotherapist or nurse can teach you techniques such as pursedlip breathing and diaphragmatic breathing to help reduce shortness of breath. Develop a bedtime routine that encourages relaxation and restful sleep Find ways to make your everyday activities easier to perform To keep warm choose a duvet or quilt rather than heavy blankets. Have a table and lamp beside your bed, and keep your inhaler, telephone and important numbers close at hand. For instance: • place chairs strategically so you can sit and conserve energy when showering, cooking or washing dishes • keep frequently used objects within easy reach to avoid bending, reaching or climbing Being diagnosed with COPD will inevitably change your life. But by taking some steps to make your day-to-day activities a little easier, you can avoid some of the frustration and discomfort that often comes after a COPD diagnosis and continue to enjoy time with your family and friends. 06 Regional News News from Asthma Hawke’s Bay Asthma Hawke’s Bay has 0800 dial up… Asthma Hawke’s Bay is on a mission to improve the respiratory health and access to services for the community. The idea of making it easier to communicate with the team came from a discussion on how to make it simpler for people to engage with our services. An 0800 toll free number has been introduced, which can be used to book appointments or speak directly to a respiratory nurse. Having the 0800 number means you don’t need a landline or credit on a mobile to get hold of the team. Text messaging is also a popular way of staying connected. Currently text reminders are sent out when mobile nurses visit clients. Monthly clinics are held in Wairoa and Waipukurau, ensuring services are reaching those who need them. For emergencies or difficulties with breathing please call 111 for an ambulance. 2014 Hawke’s Bay Health Awards – Commitment to Quality Award presented to the Respiratory Pilot Programme In July 2013 Health Hawke’s Bay in partnership with HBDHB and Asthma Hawke’s Bay commenced a Respiratory Pilot Programme. The focus on asthma and COPD aimed to improve the respiratory health and wellbeing of our community by delivering quality respiratory services. This involved working together across different health agencies to improve access and provide workforce development and continued support. Working collaboratively has strengthened relations between services and improved service delivery, which contribute towards achieving our goals. Maraea, Angela and Matiaha Tuavera Tuavera family in control of managing their asthma Maraea Tuavera (12) of Flaxmere, Hastings was spotted two years ago during her swim class and invited to join the Heretaunga Sun Devils Swim Club. The Tuavera’s lounge is now adorned with trophies and medals. But perhaps the best reward is the fact that Maraea’s asthma is now well under control, something her mum Angela Tuavera attributes to swimming. One of five children in the busy Tuavera household, Maraea started suffering from asthma when she was two years old. “Rushing into the Emergency Department for the first time, seeing them test her oxygen levels and being told we ‘just made it’ made me think ‘Whoa, this is scary,’” explains Mrs Tuavera. This helped the family understand how serious asthma is and to recognise the symptoms in others. Due to her experience with Maraea, by the time Matiaha (3) came along, Mrs Tuavera recognised the tell-tale signs as her baby suffered from frequent bouts of bronchiolitis resulting in trips to the hospital and rounds of Redipred (steroidal medication). In the case of both Maraea and Matiaha the family have found Asthma Hawke’s Bay’s advice invaluable; especially education about ‘what to do and what not to do’ when it comes to asthma. “They give you reassurance that you’re doing the right thing, which is really important for a parent,” adds Mrs Tuavera. On their last visit, Maraea qualified for an Asthma Hawke’s Bay swim subsidy, an incentive to help asthmatics stay active through swimming by reducing costs to the family. Research has shown that many asthmatics experience an improvement in asthma symptoms from swimming or exercise. For any family living with asthma, staying out of hospital is a priority. “In Hawke’s Bay every year twice as many Ma¯ ori and Pacific children are hospitalised due to asthma or wheezing, as European children,” states Dr Russell Wills, paediatrician and children’s commissioner. Alistair Mackie MD BAND (sponsor), Sue Ward, Trish Freer, Jo Aston, Carole Donnelly, Chris Davidson, Julie Shaw, Chris Trow and Alinka Julian from Asthma Hawke’s Bay Asthma Hawke’s Bay clinical nursing manager Jo Smiley says, “If you are in the Hawke’s Bay region we can help support you to manage and gain better control of your asthma or any other respiratory condition. Anyone can self-refer into the free service and we can now be contacted for free from any landline or cell phone. You don’t have to have credit and our nurses can come to you.” 07 Regional News Ask a nurse – your questions answered This month’s questions and answers are from the team at Asthma Hawke’s Bay My son is on puffers (the blue one and the orange one) and seems ok with using the inhalers without the spacer. He likes to be independent and wants to do his inhalers on his own. He is six. Should he be using the spacer or is he ok using the inhaler without the spacer? Q Q A A A spacer should be used at all times with a puffer. A spacer is a plastic tube with a one-way valve. An inhaler (a metered dose inhaler or ‘puffer’) is attached to one end. The other end has a mouth-piece for the user to breathe through. After the inhaler has been shaken, then press the medication into the spacer and it is breathed into the lungs of the user. Without a spacer the medication is administered directly into the mouth and can land on the tongue, the roof of the mouth or even out the sides of the mouth, allowing only a small amount of medicine to enter the lungs. It has been shown that up to 70% more medicine enters the lungs using a spacer. Some other advantages of using a spacer include: • it’s easier to co-ordinate with the hands and breathing • if the user is particularly breathless, using a spacer means the breath does not need to be deep in order to get the benefit of the medicine • the residue of some inhalers can cause thrush on the tongue, a sore throat and/or a husky voice. Using a spacer means there is less residue from the medicine in the mouth thereby reducing these side effects. When your son uses the orange inhaler he should brush his teeth or rinse his mouth afterwards to help get rid of any residue, even when using the spacer, to make doubly sure he does not develop any of the side effects noted above. It’s great that your child wants to take his inhalers, but he will still need some supervision to ensure that his technique and the number of puffs is correct. Always remember to use the inhalers as prescribed and to follow his asthma management plan. My children are always sick with colds and runny noses and it makes their asthma worse. Our house is really cold in the winter and we are all sleeping in the lounge to keep warm. There’s mould in the children’s bedroom and the windows are always wet. Is there anything I can do to help my kids? When asthma symptoms occur ensure you follow your asthma management plan to avoid deterioration, and always seek medical help if you become concerned. Some houses in New Zealand are now considered unhealthy – they are cold with inside temperatures of less than 18°C. Because of the cool, humid conditions often found in our houses, the cold and damp can lead to respiratory problems – particularly in young and old people and those with severe health conditions. The main reasons for unhealthy homes are a low inside temperature, dampness including condensation, mould and mildew, the use of unflued gas heaters, no curtains and overcrowding. Mould and mildew are directly related to the moisture in the house and can have an effect on eyes, nose, throat and lungs. These side effects may appear as hayfever with sneezing, runny nose, red/itchy eyes and skin rashes. You can read more about how to make your home warm and dry on page 4. Having a warm, dry, smokefree home will mean that your children have less respiratory infections and will be healthier overall. 08 For Health Professionals New resources to help educate the Wairarapa and on Petone Beach, Wellington. It is aimed at children aged 4–6 years and will be available for order online. It will also be distributed to all schools and libraries. The Asthma Foundation would like to thank Carolyn for her hard work and commitment to raising the awareness of asthma. Your lungs YOUR BREATHING SYSTEM Right lung Left lung YOUR LUNGS ARE HERE Diaphragm My brother has asthma Oscar is a bear who has asthma. His sister would like him to play but his asthma won’t let him. After a visit to the doctor Oscar is given an inhaler and shown how to use it. This makes him feel much better and allows him to run and play just like his sister. Children can find it hard to understand what asthma is, why they may have to take medicine and why they are different to other children. Siblings also cannot understand why a brother or sister with asthma is treated differently. Adults can often find it challenging to give an explanation. Oscar is a lovable character who clearly explains many of the issues around asthma, such as triggers, visits to the doctor and inhalers, and encourages discussion about asthma between children and grownups. Carolyn Collis is a well-known children’s author who produces books for her Summer Rose Books series and has produced this book for free for the Asthma Foundation. The book is illustrated beautifully with bright colourful photographs of Oscar and his family taken in Breathing tube breathing tubes end with tiny air sacs called alveoli 1mm in diameter This is a question our respiratory nurses often get asked as many of us are unsure exactly where our lungs are. The newly designed poster helps to visualise where the lungs are and what they look like in the body. Understanding how the lungs work and what is happening to the breathing tubes when they get asthma or COPD helps patients understand and recognise how their different inhalers work and reinforces why they ASTHMA should be taken as prescribed. AND KING SMO The poster comes in two sizes, A3 for hanging on the wall and A4 for education purposes. ciety d mix! asthma don’t Smoking and by many things be triggered Asthma can its 4000 smoke, with and cigarette trigger. cals, is a major harmful chemi e an profit nesses. The posters and a new smoking brochure are available for ordering online from the Asthma Foundation website. Partners of the Asthma Foundation receive a 20% discount on resource prices. etter 015 - ASTH24 09 Ma¯ori Wha¯nau Ora Healthy Housing and Budgeting Cookbook The Tu Kotahi Ma¯ori Asthma Trust in Lower Hutt provides innovative services and develops resources for wha¯nau with COPD, asthma, bronchiectasis and bronchiolitis. Their focus is on reducing inequalities for Ma¯ori and improving their health to where it needs to be. In response to a request by the Hutt Valley District Health Board’s Ma¯ori Health Service Development Group, the team at Tu Kotahi developed a resource targeting respiratory health for tamariki and kaumatua using the wha¯nau ora model. The resource has been distributed via community health workers, parenting programmes, tamariki ora and kaumatua programmes in the Hutt Valley. Hauora – Wha¯nau ora, asthma and respiratory information for wha¯nau Hauora covers very basic information on asthma, bronchiolitis, COPD and much more. It came about after focus groups with tamariki, their parents and kaumatua highlighted the need for a resource they could keep referring to, something they could value and store safely rather than a pamphlet that could easily get lost. They also came up with ideas of what they wanted to include in the resource. Hauora covers a variety of topics: flu injections, kutu, healthy skin, being sunsmart, eczema and scabies as well as being smokefree, the financial and health benefits of quitting, and second-hand smoke. Please contact Cheryl Davies for more information cheryl.tukotahi@ kokiri-hauora.org.nz. The resource is packaged as three books: Kai Reka – A budget friendly cookbook for the Koro Tom’s Re¯wena Bug Recipe whole wha¯nau Ingredients Kai Reka was developed in response to Tu Kotahi seeing wha¯nau who didn’t have the luxury of lots of food in the cupboard, hadn’t learnt the skill of making something from the food that is available, nor learnt how to budget to buy enough kai for meals through the week. Eating well is part of the Wha¯nau Ora model of care. Many older wha¯nau have co-morbidities, such as diabetes, so it is important they are supported with healthy eating options and encouraged not to buy takeaways. Lynda Ryan, Tu Kotahi training coordinator says, “Wha¯nau love the recipes, and tamariki are picking them up because there are foods they like that they can cook for Mum and Dad.” Wa¯ Ka¯inga – A healthy housing book for the whole wha¯nau Tu Kotahi have been heavily involved in housing projects with wha¯nau in the Hutt Valley for many years. Education is a big component of healthy housing as a lot of the skill of keeping your home warm and dry, such as airing out your home, has been lost. Many wha¯nau also face issues around budgeting while living in social housing or private rentals. Wa¯ Ka¯inga educates wha¯nau on the benefits of a warm dry home and includes information on such topics as dampness, insulation and energy efficiency as well as heating, lighting and dustmites. It also covers home safety such as first aid, fire safety, disaster evacuation plans and storing water. 2 cups para¯oa/flour 2 tsp huka/sugar 1 cooked rìwai/potato (mash in cooled cooking water) Method – Step 1: Peel and cut the potato into small pieces. Place in a pot with 1 cup of water and the lid on. Simmer to a mashing consistency. Mash the potato, cool and when luke warm add the sugar and flour. Mix to a firm texture. Cover and place in a warm place for 24–48 hours to ferment. The mixture should smell yeasty and sweet. Step 2: After 24–48 hours, set aside 1 tablespoon of the dough and put into a large jar. Cover and keep in a warm place. Feed one day with ½ cup of warm potato water and the next day with 1 teaspoon of sugar. This is your ‘bug’ or the base for making future loaves of re¯wena. Skip this step if you only want to make one loaf. Koro Tom’s Para¯oa Re¯wena This mixture is enough for a large loaf tin or a very small umu. Ingredients 5 cups of high grade para¯oa/flour ¼ tsp tote/salt 2 tbsp huka/sugar hua re¯wana/re¯wena bug tepid wai/water Method – Mix flour, salt and sugar. Pour in re¯wena from step 1 and mix. Add more water if necessary. Knead for 10 minutes and put in a greased dish and set in a warm place to rise. Place in a cold oven and bake at 150-180°C for 1 hour. This allows the bread to rise a bit more as the oven temperature rises. Medical Director’s Message 10 Smokefree Aotearoa - what can you do? Dr Kyle Perrin Medical Director In March 2011 the New Zealand Government committed to a goal of New Zealand becoming smokefree by 2025. This news was welcomed by the tobacco control sector as a real step forward in the fight to rid our communities of the harms of smoking. A smokefree Aotearoa does not mean a ban on smoking, but it does mean that our children and grandchildren will be free from exposure to tobacco, the smoking prevalence across all populations will be less than 5%, and that tobacco will be much more difficult to sell and supply. However, 2025 is fast approaching. Some in the tobacco control sector are concerned that the drive and impetus to achieve the 2025 target has started to wane, in particular following the departure of Dame Tariana Turia from Parliament. While there are many hard working advocates in the community and grassroots efforts going on in the smoking cessation area, it is generally agreed that more needs to be done. Bold policy steps are necessary, and this will require government to pass important legislation in the face of the wealthy and aggressive tobacco industry with well-funded lobby groups. 5. Registration and monitoring of all tobacco retailers. It seems crazy that you need a licence to sell alcohol in New Zealand but anyone can sell tobacco wherever and whenever they like. A retail registry would allow the ministry to revoke a licence if a retailer breaches the terms of sale such as selling tobacco to minors. It is up to all of us who are passionate about asthma and respiratory disease to advocate and lobby for these changes. Write to the Minister of Health and to your local MP. As a respiratory physician I am looking forward to the day when COPD and lung cancer are considered rare diseases. Examples of important legislative changes include: 1. Plain packaging for cigarettes. Cigarette packets are the last remaining place that tobacco companies can advertise their brand, and this is the reason they are fighting so hard against this proposal. They spend large amounts of money making their branding as attractive as possible. They are well aware they need to appeal to children and young adults to increase the rate of new smokers becoming addicted. 2. Significant year-on-year increases in tobacco tax. Increasing the cost of smoking is by far the most effective way of reducing overall consumption. It is well known that many smokers are price sensitive, and many will cut down or quit as the costs go up. 3. Increasing the funding for, and access to, smoking cessation services. In New Zealand, Quitline is one of the most successful smoking cessation services in the world. But more people need to be able to access it. We cannot make tobacco more expensive and harder to obtain without helping those who are addicted to it. 4. Extending smokefree areas. Many ex-smokers say that a significant factor in their decision to quit was how inconvenient it now is to find a place to smoke. We need more smokefree spaces, including a ban on smoking in cars carrying children, and more smokefree outdoor public areas. The Asthma Foundation is partnering with Asthma Australia for their biennial conference. Partners of the Foundation will receive a reduced rate. Please contact Teresa Demetriou for further information Teresa@ asthmafoundation.org.nz or visit their website. 11 Research Latest research Asthma rife among elite athletes In fact, the figures can seem astonishing. John Dickinson from Kent University, a world expert on asthma in sport, who has tested all 33 UK-based swimmers from the British Swimming squad, found 70% have some form of asthma. The result of athletes getting to grips with asthma is that asthmatic children are increasingly being encouraged to exercise. “We know that children with asthma are often excluded from sport, not by the school but by their parents,” said Deborah Waddell, lead clinical adviser for Asthma UK. “We advise people to take the right type of exercise for them.” http://www.theguardian.com/society/2014/dec/28/asthma-eliteathletes-study-swimmers-cyclist-eid New inhaler makes major improvements in asthma management The theme song to The Simpsons has helped dramatically improve the lives of asthmatic children, a ground-breaking New Zealand study shows. An Auckland University study, published in The Lancet Respiratory Medical Journal, shows that by adding a jingle and visual reminder, researchers were able to make asthmatic children nearly three times more likely to remember to use their inhalers. The study followed 220 Kiwi children aged between 6 and 15 who had all turned up in hospital emergency departments after an asthmatic episode. The children were all given a preventative asthma inhaler, designed by Kiwi health firm Nexus6, which plays one of 14 different ringtones to remind them to take their dose. They could also check a display on the side, showing when they had taken their last dose. Using the inhaler with the ringtone led to less use of emergency medical help, less coughing and wheezing, and overall improved quality of life, the study found. Professor Innes Asher, paediatric asthma specialist and member of the Asthma Foundation’s Expert Advisory Group, said while the results are impressive, it must be made readily available. If we’re going to use this tool to increase reliability we’ve got to make it affordable for families, and that’s an issue for Pharmac. http://www.thelancet.com/journals/lanres/article/PIIS22132600%2815%2900008-9/abstract If you don’t want your child to smoke then stop smoking yourself The more a parent smokes in front of their children, the more likely those children are to become heavy smokers themselves, a new study finds. Dr Darren Mays and his colleagues from Georgetown University interviewed more than 400 children aged 12 to 17 several times over a five-year period. It’s clear that smoking addiction can be inherited, but the new study shows there’s more than just a genetic effect. The more time children spend seeing their parents smoke, the more they’ll smoke themselves. http://www.georgetown.edu/research/news/parents-smokingbehavior-study.html Work-related asthma undiagnosed Only 15% of working adults with asthma discuss with their doctor how their jobs might affect their breathing, even though nearly half have asthma that is possibly work-related, according to a study published in the February issue of the Annals of Allergy, Asthma & Immunology. The researchers also found that doctors often don’t bring up the topic with patients. “Work-related asthma is under-diagnosed and under-recognised,” said lead author Jacek Mazurek. “A thorough occupational history is critical to first establishing a diagnosis of work-related asthma, and then putting measures in place to prevent further exposure, or to treat it. Unfortunately, many people may believe that nothing can be done, or may worry about losing their jobs, so are reluctant to address the topic with their doctor.” Early testing is recommended. Once workplace-related asthma develops, continued exposure to workplace-related asthma triggers can lead to permanent lung problems, and the risk can increase the longer the exposure continues. http://www.doctorslounge.com/index.php/news/pb/52800 Positive link between a healthy diet and a reduced risk of developing COPD Smoking is the primary cause of COPD accounting for 80–90% of all cases. For the remaining 10–20%, it is believed exposure to air pollution, second-hand smoke and genetic factors are involved. But in a new study published in The British Medical Journal, researchers suggest an unhealthy diet could be a contributing factor. The researchers used the Alternate Healthy Eating Index 2010 (AHEI2010) to measure the participants’ diet quality. A higher AHEI-2010 score represents a healthy diet with a high intake of vegetables, whole grains, polyunsaturated fats, nuts and omega-3 fatty acids, a low intake of red and processed meats, refined grains and sugary drinks, and moderate alcohol consumption. The team assessed the effects of diet on the risk of COPD among 73,228 women who took part in the Nurses’ Health Study from 1984 to 2000, and 47,026 men who took part in the Health Professionals Follow-Up Study from 1986 to 1998. During the follow-up of both studies, there were 167 new cases of COPD diagnosed in men and 723 new cases diagnosed in women. The researchers found that participants with the highest AHEI-2010 scores were a third less likely to develop COPD, compared with participants with the lowest scores, suggesting a healthy diet may reduce the risk of developing COPD. http://press.psprings.co.uk/bmj/february/COPD.pdf 12 Advocacy Development of a National Respiratory Strategy Teresa Chalecki, Dr Api Talemaitoga, Dr Kyle Perrin, Angela Francis, Teresa Demetriou, Associate Professor Jim Reid, Betty Poot, Professor Richard Beasley, seated Kathy Lys, Dr Tristram Ingham, Professor Innes Asher The Asthma Foundation’s Expert Advisory Group members are all international and national experts in their fields giving their time freely to progress the development of a National Respiratory Strategy. The Asthma Foundation was the successful recipient of a grant through the Community Internship Programme jointly funded by the Department of Internal Affairs and the Ministry of Health. Kathy Lys has been seconded from the Ministry of Health to lead the project over the next ten months. The purpose of the National Respiratory Strategy is to: • drive and inform best practice to improve respiratory health • secure respiratory health as a national health priority • provide support and information to health providers, families, carers, and people living with respiratory conditions • raise visibility of the need for effective prevention strategies • present a set of recommendations over a defined timeframe for action by policy makers, planners, funders, and service providers. A 10-year celebration of clean air Who can remember when going out to a bar meant walking into a cloud of smoke and having to put your clothes outside when you arrived home because the smell of smoke was so overpowering? It was 10 years ago that the smokefree bars legislation came into effect, and going out didn’t mean that our clothes, our hair and our lungs returned home worse for wear. In association with the Cancer Society and the Smokefree Coalition we were proud to celebrate the bravery of many in pushing this unpopular legislation, the Smoke-free Environments Amendment Act 2003, through 10 years ago. Minister Sam Lotu-Iiga said, “This anniversary is a good time to reflect on how far we have come. Research shows support for the legislation increased from 38% in 2001 to 95% in 2006.” Introduction of the legislation was associated with reductions in: second-hand smoke exposure, smoking prevalence, tobacco consumption and youth smoking rates; and an increase in the number of smokefree homes in New Zealand. Ultimately, the Smokefree Environments Amendment Act 2003 saw New Zealand become a world leader in tobacco control, provided a plan for further policy development in this area, and, above all improved the health and wellbeing of New Zealanders. The Minister said, “Our goal now is to achieve a Smokefree New Zealand by 2025. This goal is a challenge, but one that can be realistically achieved with continued and additional efforts on a range of tobacco control fronts.” Angela Francis with Associate Health Minister Peseta Sam Lotu-Iiga 13 Events Dance 4 Asthma – It’s time to dance Our free dance video competition for schools – primary, intermediate and secondary – is back. Video entries are due on 18 June and results will be announced one week later. What is Dance 4 Asthma? It is an awareness raising competition – there is no money involved – it is all about the kids having fun and moving around. Check out the entries from 2014 on our website under News and Events/ Dance 4 Asthma 2014. We all want our kids to be confident, healthy and participating fully at school. Dance 4 Asthma raises the profile of asthma to all children in a fun and positive way – because we all know that talking about it can make it OK. The feedback from 2014 says it all World Asthma Day Tuesday 5 May 2015 Jane Bassett from Havelock North Intermediate said, “It was a fun opportunity for students to create, dance, film and edit a dance video as a team.” Keep an eye out World Asthma Day activities - especially those with our friend Sailor the Puffer Fish. Tash Osborne from Hamilton East School said, “I wanted the kids in my class to be aware of how it feels to have asthma, especially since we have a few kids with asthma in the class.” What’s new this year? New Song Choreograph your dance video to New Zealand’s own Cameron Rota singing ‘One of a Kind’. New Judges We’ve recruited some professional choreographers and dancers – including Kyra Aoake from world hip-hop champions the Royal Family – to join our judging panel. New Criteria We’ll provide criteria to help you work out how much effort to put into the various parts of your video. We’ll be posting videos from all registered schools on our dedicated Dance 4 Asthma Facebook page! Let us know that you want to take part. Send an email to cindy@asthmafoundation.org.nz and put 18 June in your diary. You can control your asthma World Asthma Day, on Tuesday 5 May, is an annual event organised by the Global Initiative for Asthma (GINA) to improve asthma awareness and treatment around the world. Asthma affects approximately 235 million people and causes an estimated 250,000 deaths annually worldwide. Dr Kyle Perrin, medical director for the Asthma Foundation says, “In New Zealand one in nine adults and one in seven children aged under 16 years takes asthma medication (over 460,000 Kiwis in 2006). For good asthma control it is important to keep using your medication as prescribed, to visit your health professional regularly, and to get an asthma management plan.” Asthma management plans should be filled out with your health professional. They are designed to help manage your asthma and recognise when it is deteriorating before it gets to an emergency situation. 14 Fundraising and other events Epic cycle adventure begins Two years ago Adam Glover completed a 32,000 km journey cycling from London to New Zealand. Even before he finished that adventure, he knew what his next challenge was going to be – cycling 40,000 km from Alaska to Argentina over two years to raise money for the Asthma Foundation. He will leave from Alaska and cycle through Canada, America, Mexico, Guatemala, Honduras, Nicaragua, Costa Rica, Panama, Colombia, Ecuador, Bolivia, Peru, Chile and finally Argentina. Adam started his epic fundraising journey on 14 March this year sailing on a container ship from Auckland to Philadelphia. He will then cycle across the USA and Canada to Alaska. Adam says, “Asthma is not a high profile charity – a charity that not too many people think twice about. But it is a charity that is important to me because I have had to live with asthma all my life.” You can follow Adam’s adventure on his Facebook page www.facebook. com/pages/Adam-Glover-Cycling-2015-Alaska-to-Argentina-2011London-to-New-Zealand. You can support Adam online at www. fundraiseonline.co.nz/AdamGloverCycling/ Teresa Demetriou and Phil Burt at Government House Waitangi Day Bledisloe Reception at Government House, Wellington On a beautiful hot summer’s day, in a beautiful garden setting, Phil Burt (national fundraising manager) and Teresa Demetriou (national education services manager) represented the Asthma Foundation at the Waitangi Day Bledisloe Reception in the grounds of Government House, Wellington. The event was hosted by the Asthma Foundation’s Patron, the Governor-General, Lt Gen The Rt Hon Sir Jerry Mateparae. Over 3,000 guests enjoyed oysters, strawberries, gelato, nibbles and wine. Sol3 Mio sang the national anthem and the New Zealand Army Band provided background music. What a wonderful way to observe this truly important day in New Zealand’s history. Sir Jerry Mateparae’s speech reflected on the progress in Treaty settlements and the gains that have been made, and our positive future. Adam Glover with bike all packed ready to commence his epic ride from his Wellington home Te Matatini –National Kapa Haka Festival 2015 The Asthma Foundation and Canbreathe shared a stand at Te Matatini in Christchurch to raise awareness of respiratory health. Henare Te Karu, who took part in the Wairarapa Ma¯ori Asthma project in 1991, conducted the draw for the Earthwise prize pack. Here he is with Jocelyn Smith, event coordinator for the Asthma Foundation and Rosemary Thompson, Canbreathe respiratory nurse educator. And the winner is...Evelyn Dickson from Tauranga - Congratulations. Sir Jerry Mateparae said, “By the time of the bicentenary in 2040, I like to think that my mokopuna will live in a New Zealand where we can see the success of post-settlement enterprises reflected in equally impressive social and economic indicators.” TH MA COUNC IL • T H M (N Z) • AS Healthy building for pre-school 15 RAL I A NATION ® ST AL AS AU Sensitive Choice® A F ON O U N D AT I SENSITIVE CHOICE New partner – Beam New Zealand Ltd Sensitive Choice is proud to announce that the Beam Alliance Central Vacuum system is now Sensitive Choice approved. Bishopdale Community Preschool in Christchurch is a not-for-profit preschool run by volunteers and governed by parents. The preschool existed in a council-owned building for 40 years. After the February 2011 earthquakes the building was shut down and for the last two and a half years the preschool has been run out of a building at a local intermediate school. The community have been working hard to raise funds for a new building. Sarah Straver, manager at the preschool says, “We have a high number of children using preventers and emergency inhaler medication – in winter it is around 30% of the children and in summer about 25%. Because of this it is really important for us to consider the wellness of children within the context of our build.” In New Zealand generally one in seven children (about 14%) take asthma medication. During the course of getting quotes for the build the team at Bishopdale Community Preschool met with a number of builders, including Fusion Homes. The Fusion Homes buildings are Sensitive Choice approved. “When Fusion Homes started to talk about healthy buildings it became a natural partnership for us,” said Sarah. “We’re excited to be building a preschool as we believe all children deserve to have a warm, healthy environment with reduced asthma triggers in which to learn and grow,” said Chris Haughey, director from Fusion Homes Ltd. “Health, wellbeing and sustainability should be the minimum standard for all buildings in New Zealand.” Taniya Scott, the Sensitive Choice programme coordinator, says, “It is so exciting to see this preschool build becoming a reality for these children. It is heartening to see other Sensitive Choice® partners such as Valspar New Zealand getting involved in this initiative.” Beam Industries was the pioneer of domestic central vacuum systems commencing in 1957 in the USA and are now being sold in over 52 countries around the world. The Beam Airflow™ ducting carries dirt, dust and allergens away from living areas while the Gore-Tex™ HEPA standard filtration removes 98.3% of contaminates at 0.3 microns creating a cleaner, quieter, healthier home environment. What a great addition to the approved product list. www.beam.co.nz Current partner – Warm Up Radiant Floor Heating From full design through to installation, or working as part of the electrical services team, Warmup has the technical expertise, installation manpower and experience to deliver practical heating solutions on time and within budget. Warm Up Radiant Floor Heating is Sensitive Choice approved and a great way to minimise draught, dampness and condensation in your home. www.warmup.co.nz Have a product or service that is asthma and allergy friendly? Apply for Sensitive Choice approval. Contact Taniya Scott, business development coordinator on 04-495 0099 or taniya@asthmafoundation. org.nz and get involved. Have you seen the blue butterfly? Sensitive Choice is a community service focused programme for all of us who want to breathe purer, cleaner, fresher air and reduce allergic reactions. You’ll find the reassuring blue butterfly on hundreds of products – from bedding to building products, from cleaning agents to carpets, from air purifiers and vacuum cleaners to the very paint you put on your walls. Check out www.sensitivechoice.com or www.asthmafoundation.org.nz/sensitive-choice/ for more information and approved products and services. 16 News Important dates for 2015 Event Date Dance 4 Asthma April – Videos in by Thursday 18 June Tuesday 5 May Sunday 31 May Thursday 25 June Monday–Sunday, 31 Aug–6 Sep Friday 4 September Thursday and Friday, 5–6 November Wednesday 18 November Entries in by Friday 18 December World Asthma Day World Smokefree Day Key Partners’ Forum Asthma Awareness Week Balloon Day NZ Respiratory Conference / AGM World COPD Day Respiratory Health Media Awards successful treatment and management. Such stories play a key role in increasing awareness and support of respiratory management, treatment and education. There will be a $1,000 prize for each of the winners in five categories: health sector media, print and online media, radio, television and social media (all formats e.g. blogging). Winners will be announced and presented with the prestigious awards at a gala dinner in Wellington in February 2016. Journalists, videographers, bloggers and health professionals are invited to submit respiratory-related stories published or broadcast during 2015. Entries close on Friday 18 December, 2015 at 5:00pm. Criteria, a list of events and further information about the awards can be found on our website www.asthmafoundation.org.nz/ or contact Cindy Borrie, communications consultant on 0274 433 905. World Smokefree Day – May 31 The theme for 2015 is It’s about wha¯nau Wha¯nau is a driving force for many people wishing to protect others from the harms of second-hand smoke. This is a common cause for all people, cultures, communities and wha¯nau. The call to action is for smokers and non-smokers to take control and stop exposing others to second-hand smoke, especially children. Smoke is a major trigger for many people with asthma and poor respiratory health. Wainuiomata CORD Group celebrate It has been 21 years since the Wainuiomata CORD group first started providing support for those in the area. Congratulations on this fantastic milestone. World Smokefree Day also provides an opportunity to encourage and help those who want to quit smoking and support friends and wha¯nau on their journey to quit. Respiratory Health Media Awards The Respiratory Health Media Awards recognise the important role the media play in respiratory education. Quality reporting helps to keep respiratory issues top of mind in the community and reinforces the fact that we need to continue to take respiratory health seriously. Judges will be looking for winning stories that provide a balanced and accurate report of respiratory issues, portray a realistic account of what it is like to live with a respiratory condition and highlight Ken Blay, Jennifer Roulston, Genevieve Young and Bede Mexted with the cake Yes, I want to support better respiratory health for New Zealanders. Please accept my donation of: $40 $55 $75 $100 $250 $ Surprise us! (Donations of $5.00 and over are tax deductible.) Name Please find enclosed my cheque (please make cheques payable to the Asthma Foundation. The Asthma Foundation is a registered charity no. CC22906) EXP Please charge my credit card number CARD # VISA MASTERCARD AMEX DINERS SIGNATURE NAME ON CARD Postcode Monthly Pledge Partner Programme. Please accept my regular monthly donation of: $10 Address $25 $50 Please send me information about leaving a bequest in my Will for the Asthma Foundation $100 $ Other amount I have already left a bequest to the Asthma Foundation Tel Number Please charge my credit card monthly (details above) Please send me information on making a monthly contribution through my bank Phone 0900 4 ASTHMA (0900 4 278462) to make an automatic $20 donation (Please return this slip with your donation to: Freepost 140226, The Asthma Foundation, PO Box 1459, Wellington 6140.)
© Copyright 2024