Newsleer Scarborough, Whitby and Ryedale Spring 2015 Contents: New Filey Acvity Group - Side by Side Volunteer Appeal - Demena Acon Alliance Twiddle Muffs - Reminiscence Workshops - Scarborough Acvity Group - Volunteer Thank You Spring is finally in the air and it’s lovely to see the snowdrops and crocuses making an appearance. It’s been a really busy 3 months since our last newsletter with lots of exciting changes to announce, new staff working on a range of projects along with some new services launching. We are pleased to announce that we have secured funding to employ a Dementia Action Alliance Co-ordinator, John Henderson, who will be working hard to set up a DAA Steering Group over the next couple of months. His remit is to make North Yorkshire and in particular the East Coast more Dementia Friendly which is wonderful news for us all! We have also been successful in gaining some funding, through Voice Your Choice, to facilitate a series of Reminiscence Workshops which will be taking place at Scarborough Woodend Museum during the summer. In addition we are also busy planning to delivery a Carers Course in the next couple of months so if you are interested, do get in touch to get your name on the list. Finally, we are launching the Scarborough Activity Group and Filey Activity Group in March and April respectively. These services will focus on providing a range of activities for people with dementia and their carers and will be taking place monthly at Scarborough and Filey Libraries. Activities will include Spring and Gardening (including a sunflower growing competition), arts & crafts, singing and lots of laughter and chat over coffee and cake. All welcome so do come along, dates of all services are on the back page of the newsletter. Singing for the Brain - So much fun! Whitby Singing for the Brain is relocating from this month to the Green Lane Centre in Whitby. The group meets on the first Tuesday of every month, 1.30pm-3pm and all are welcome. Our Scarborough group meets weekly, 1.30pm-3pm at Southcliff Methodist Church in Scarborough. Our singing for the Brain Groups are going from strength to strength and are proving to be very popular across Ryedale, Scarborough and Whitby. If you like a good sing along to the Beatles, songs from the musicals and your school days then do come along. Further details of dates and venues on the back page of this newsletter. Ryedale Singing for the Brain meets on the first and third Thursday of every month. The group meets at the Salvation Army Building, Wood Street, Norton, 1.30pm-3pm. Singing for the Brain is based around the principles of music therapy and singing. The structured group sessions use music to encourage communication and participation and include opportunities to talk to other people. ACTIVITY GROUPS SIDE BY SIDE We need volunteers LAUNCHED in Scarborough & Filey We need you! Side by Side is an exciting new FREE service that we are pleased to be piloting across Scarborough, Whitby and Ryedale. As part of a proposed national service offered by Alzheimer’s Society, we will be launching the new service in the next month or so but need a bank of volunteers to ensure this service is successful. Side by Side has been designed to support people with dementia, to encourage and support them to continue to participate in a range of activities, hobbies and interests with a little help from a volunteer to tackle isolation & loneliness. If you have an hour to spare and would like to make a real difference to a person with dementia in your local area, please do get in touch. A full training package and support is available, as is the opportunity to make a real difference to someone’s life! We are really excited to announce that we are opening two new monthly Activity Groups in Scarborough and Filey and will be based at Scarborough and Filey Library. We asked our service users what they enjoy doing and their answer was simple, they wanted to enjoy themselves, have fun, meet new people and try new things. We have lots of activities lined up including Arts and Craft, Stories and Poetry, Chair Exercises / Music, activities and games as well as a plentiful supply of refreshments and company. If you have any memory problems, or support someone with memory problems then do come long. Dates on the back page of this newsletter. Professionals also welcome and all are free to join in activities or just drop in for a chat or support if needed. Pam and Bridget will we waiting to welcome you! Dementia Awareness Week 2015! 18 - 22 May 2015 Activities will be taking place all across our patch. We will be opening up our Singing for the Brain Groups to the friends and family of our service users and of course the general public. We are also busy planning a Singing for the Brain session at the Brunswick Centre in Scarborough to raise the profile of the benefits of Singing for the Brain during DAW so watch this space. Want to get involved? Ring the office on 01723 500958 For more information, ring the team on 01723 500958. Fundraising, Volunteering and Donations—THANK YOU Our fundraising supporters have been busy in recent months and we would like to thank them for the following donations: Filey Golf Club for raising £116 The Coffee Cup Christmas Raffle £130 Mrs Doreen Brooke, sale of cards £200 Scarborough Retired Teachers £200 Mr T Mason, Whitby Fundraising Concert £360 Andy Philips (opposite) for running the Yorkshire Marathon in memory of his grandmother who had dementia raising a wonderful £425! Well done Andy, your grandmother would have been proud of you. For more information, visit alzheimers.org.uk STILL ALICE An Oscar-winning performance captures early-onset Dementia Golden Globe winning and Oscar nominated actress Julianne Moore spoke of the responsibility she felt portraying a person with early-onset Alzheimer's disease. At the event, held at the Curzon Mayfair in London, Moore met people living with dementia, a full-time carer and an Alzheimer's Society Dementia Support Worker who helps people come to terms with their diagnosis. Jeremy Hughes, Alzheimer’s Society Chief Executive, said, 'Still Alice does so much to tackle the stigma and shame all too often associated with dementia. Julianne's performance is incredibly powerful and it is rare to see Alzheimer's portrayed so accurately on screen. The film captures the personal journey of dementia and the effect the disease has not only on the individual, but their family too. 'Wendy Mitchell from York was diagnosed with dementia last year at the age of 58. She attended the premiere and spoke to Julianne Moore about the affect her performance had on her. She said, 'Still Alice was always going to be a difficult film to watch as it would be a reflection of what the future holds for me. I thanked Julianne for her performance, which was refreshingly real and sensitively portrayed, with no stereotypical pretence. I hope it succeeds in raising awareness of a disease that has so far eluded scientists in finding a cure.' Based on a book of the same title, Still Alice tells the story of Alice Howland, a professor at Columbia University who develops a rare form of familial Alzheimer's disease at the age of 50. The film explores the implications of the disease which, in Alice's case, has a genetic cause and carries the risk of being passed down to her children. Moore has received critical acclaim for her performance and is nominated for a BAFTA and an Oscar. • There are more than 40,000 people under 65 with dementia in the UK. • Look out for early warning signs: if someone has trouble remembering simple things, gets easily confused or has sudden mood changes, they should see a doctor. • Your GP may ask you to complete an MMSE (Mini Mental State Examination) to assess your memory. If they are worried they will refer you to a specialist for further testing. A WALK DOWN Twiddlemuffs MEMORY LANE Intrigued? Read on ……... Reminiscence Workshops for People with Dementia and their Carers. We are pleased to announce we were successful in gaining funding, through Voice Your Choice, to run a series of 6 Reminiscence Workshops in Scarborough planned for June/July 2015. As part of Scarborough hospital’s work towards improving care for people with dementia, we would like to provide a supply of Twiddlemuffs. A Twiddlemuff is a knitted band or muff with items attached which people in later stages of dementia can use for stimulation, comfort or conversation. We are looking for people who can knit a Twiddlemuff and are able to provide the pattern if you want to help. If you can’t knit but would still like to support us, we would welcome donations of chunky or double knit knitting wool and embellishments such as buttons, beads, zips, ribbon, braids etc. Please bear in mind that items should be safe, in good condition and ideally washable and wipeable. Any completed Twiddlemuffs or donations can be handed in at any Alzheimer’s Society group or service. We hope to have a collection point in Scarborough Hospital shortly. Alternatively ring the Alzheimer’s Society local office on (01723) 500958 and we can sort out another drop-off/collection. We can also provide more information about our work in the hospital and in the community to support people living with dementia. Reminiscing and life history work can be a powerful way of communicating with a person with dementia. It can be the basis for enjoyable time spent together with their carer/family member and a way for the person with dementia to feel empowered. This can contribute positively to their well-being. What is reminiscence and how does it help a person with dementia? Reminiscence therapy is a method that is used to help encourage people to remember events from their past, using reminders such as songs, objects and photographs. This can help to maintain people's confidence and self-esteem. Carers and family members can use these techniques at home, for example by encouraging the person to talk about their past and share memories. What will the project look like? The group will choose a topic themselves to work on in week 5 and week 6 will pull all the weeks together to start making a life story book that can be carried on as a longer term project with family. If you are interested in attending these workshops, please do ring and put your name on the list. Places will be limited so first come first served. The workshops will consist of 6 sessions for a group of Please contact Alzheimer’s Society on 01723 500958 people with dementia and their carers. Sessions 1-4 will and ask to be put on the waiting list. look at ‘Home Life’, ‘School Life’, ‘Celebrations’ and Bridget Cousins ‘Family Life’. Books on prescription: Dementia books in public libraries A new scheme which supports living well for people affected by dementia by recommending helpful books to read. The recommended books will be widely available in public libraries throughout England as part of a national library strategy to support the development of dementia-friendly communities. The scheme, called Reading Well: Books on Prescription for Dementia, was created in partnership with the Society, the Reading Agency, Royal Colleges and other dementia organisations. Janet Baylis, Dementia Knowledge Centre Manager, was involved from the Society. She said, 'The books are recommended by Alzheimer's Society, health professionals and were selected with the involvement of groups of people with dementia and carers. The scheme promotes libraries as places to go for information about dementia, where they can find the right books to help them understand more about the condition.' The list includes a range of books offering: • • • • • Information about dementia and normal aging Support for living well with dementia after diagnosis Practical information for carers Personal accounts Suggestions for shared therapeutic activities GILL PERKS Thank you from us all! We couldn't do what we do without our wonderful volunteers, many of which have supported us for many years. Gill Perks has supported people with dementia and carers in Ryedale for 15 years and no doubt will continue to do so for many years to come. Her dedication is much appreciated by Alzheimer’s Society staff and the many carers and people with dementia who have benefited from her ongoing support over the last 15 years. Thank you Gill. Louise Morgan, Services Manager and the team. Food for thought ….. As the theme for our groups in April will be Poetry we thought this poem was beautiful and very moving. CINDY By Nina Herrman When you look at me, you will measure me - by my awareness - by my response - by my age - by my development And you will shake your head, and find me lacking But, for me, you are measuring with the wrong cup So, measure me if you must – But measure me too with my cup And you will find me Full CARERS INFORMATION AND SUPPORT PROGRAMME (CrISP) We are running a series of 4 workshops style sessions for carers covering a range of topics including: Session 1: Understanding Dementia Session 2: Legal and Money Matters Session 3: Providing Support and Care Session 4: Coping Day to Day and Next Steps We do operate a waiting list for the sessions and in some instances can organise for respite care if needed. CrISP is delivered by trained Alzheimer’s Society facilitators nationally and provides accurate and up to date information on the support available to carers. All carers are encouraged to maintain contact following the sessions to form ongoing peer support networks and friendships. If you would like a place, ring the office to be put on the waiting list. What is it and how can you help? There are 800,000 people living with dementia in the UK. The Dementia Action Alliance (DAA) is a movement with a simple aim: to bring about a societywide response to dementia. It encourages and supports communities and organisations across England to take practical actions to enable people to live well with dementia and reduce the risk of costly crisis intervention. At a national level the DAA has begun to shape policy and attitudes by conducting joint research into the benefits of timely diagnosis and launching calls to action to improve hospital care and support for carers. We galvanise action locally by coordinating and supporting the growth of Local Dementia Action Alliances. Local Dementia Action Alliances bring together regional and local members. These include large and small retailers, care providers, local authorities, hospital trusts, emergency services, faith groups, financial and professional services, charities, transport operators, basically any organisation that may come into contact with a person with dementia or carers and can make a difference by implementing a change in approach and raising awareness in their own staff. The process is designed to enable communities to be publicly recognised for working towards becoming dementia-friendly and to show that they are following common criteria that are based on what we know is important to people affected by dementia and will truly change their experience. Meet our new DAA Coordinator…. John Henderson, our new Dementia Action Alliance Coordinator, is funded for 12 months to support the set up of a steering group in our area and will be in touch with a range of organisations in the coming weeks and months. If you are interested to know more, do give him a rin on 01723 500958 or 07958578996 or email john.henderson@alzheimers.org.uk Diary Dates 2015: APRIL : Poetry Please Ryedale Singing for the Brain - 2nd and 16th Hunmanby Singing for the Brain - 1st Whitby Singing for the Brain - 7th Scarborough Singing for the Brain - Wed Weekly Pickering Memory Café - 23rd Scarborough Activity Group - 13th Filey Activity Group - 28th Hunmanby Luncheon Club/Café - 15th MAY : Move to Music Ryedale Singing for the Brain - 7th and 21st Hunmanby Singing for the Brain - 6th Whitby Singing for the Brain - 5th Scarborough Singing for the Brain - Wed Weekly Pickering Memory Café - 28th Scarborough Activity Group - 11th Filey Activity Group - 26th Hunmanby Luncheon Club/Café - 20th JUNE: Local Memories Ryedale Singing for the Brain - 4th and 18th Hunmanby Singing for the Brain - 3rd Whitby Singing for the Brain - 2nd Scarborough Singing for the Brain - Wed Weekly Pickering Memory Café - 25th Scarborough Activity Group - 8th Filey Activity Group - 30th Hunmanby Luncheon Club/Café - 17th GROUPS: For times and venues for all the above events contact the office on 01723 500958. Carers Group - Every Tuesday, 10am-12, (Red Lea Hotel, Prince of Wales Terrace, Scarborough) Contact Details Alzheimer’s Society Scarborough, Whitby, Ryedale Unit 16 Manor Court Manor Garth Scarborough North Yorkshire YO11 3TU 01723 500958 / scarborough@alzheimers.org.uk National Dementia Helpline: 0300 222 1122 www.alzheimers.org.uk Reg. charity no. 296645 . Alzheimer’s Society
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