A QUARTERLY NEWSLETTER - SPRING 2015 WALK4HEARING, Saturday, June 6, 2015 at Long Beach Marina Green Park Kickoff Event, Saturday, April 11, 2015 at Maggiano’s Little Italy in Costa Mesa Ten Years of Walking The HLAA Walk4Hearing began in 2006 with just 6 Walks. This year, the Walk4Hearing celebrates 10 years of Walking for Hearing Loss Awareness with 21 Walks throughout the country. Over those years, we have brought more than 58,000 people together for a day of fun and sharing to make hearing loss an urgent public health issue. We've also contributed to hundreds of local organizations that serve those with hearing loss through our alliances. Join us this year to continue the tradition and make this our best year yet! RAISE MONEY. It’s time to step up for people with hearing loss. Get your friends, family members and co-workers together and start a Walk team. We need as many teams as possible, so instead of walking for your respective chapter, we suggest that people form their own smaller teams. This helps to raise more money as friends and family are more likely to donate to “Team Mary Jane,” than “Team Chapter.” The funds for each team will go to the chapter or association that is designated by that team captain. It’s a good way to raise money for captioning, outreach, scholarships and assistive listening technology. You may register for the Walk4Hearing at: www.walk4hearing.org Here is a basic breakdown of how the money is split up. National HLAA gets 50% of the gross, 10% goes to local Walk expenses, and 40% goes to the HLAA chapters and alliances. It’s our job to raise awareness about the Walk, encourage our friends, family and co-workers to register and to The Walk will take place on Saturday, June 6, 2015 with check-in/ registration at 9 a.m. and the 5K (3.1 miles) Walk beginning at 10 a.m. There will be pre-Walk refreshments, snacks and family friendly entertainment before and after the walk. Ronnie Adler will be the Walk Chair We have a National fundraising goal this year of $1.4 million and we NEED your help to reach it. Our Long Beach goal is $60,000. Kickoff Event This is a fun and FREE event to get everyone motivated and fired up about fundraising and participating. It will be held from 11:00 am to 1:00 pm on Saturday, April 11, 2015 at Maggiano’s Little Italy, 3333 Bristol Street in Costa Mesa. RSVP by April 3, 2015 to Teri Drake at talison4@yahoo.com Walk4Hearing Backpack Any registered walker who raises $500 or more at the time of their walk will receive the Walk4Hearing backpack on the day of the Walk. You must attend the Walk to pick up your backpack. Backpacks will NOT be mailed. Team totals and donors do not qualify. Description of backpack: 600D polyester with honeycomb accent. Large main compartment features front zippered pocket with organizer, side mesh pocket for water bottle (water bottle not included), and front D ring for keys. Adjustable, padded shoulder straps and top grab handle. Front pocket. Kid Friendly. 12" L x 7" W x 17.5" H. Colors: Black/Purple. Captioning your Smartphone Attention Walkers! Remember to bring your SmartPhones with you to the Walk because we will be streaming live CART to web-enabled smart phones. All pre-Walk speeches will be captioned on your iPhone, BlackBerry*, Droid, or iPad. On Walk day all walkers who have their smart phone can go to www.quickcaption.com. There on the website homepage will be a large purple Walk4Hearing icon. Simply click the icon, click the "CC" icon next to your Walk location, real-time captioning will be enabled and displayed on your smart phone. There will be information cards with instructions available at the registration/check-in table on Walk day. This great service is provided by QuickCaption. *To view the captions on the BlackBerry, you will need to be running the BlackBerry OS version 4.6 or higher, enable JavaScript, and set the browser type to BlackBerry. Then open the live event with the BlackBerry browser. Driving Directions to Long Beach Marina Green Park Keep in mind that you are going to “Shoreline Village.” Take the 710 south to the city of Long Beach. Go past the 405 (intersects the 710 from both north and south). Proceed on the 710 going south. When you get near Willow Street or Pacific Coast Highway start bearing to the left lane where soon you will see an overhead sign that says "Aquarium", "Convention Center". Go past the 6th Street Exit, and keep to the right lane. This lane will take you right onto Shoreline Drive. Stay on Shoreline Drive (go past the Queen Mary exit). Turn right on to Shoreline Village Drive. The Walk4Hearing will be on your left at Marina Green Park. Parking. The best place to park is at Shoreline Village, right across the street from the Walk start line. It is $2.00 every 20 minutes, with an $8.00 maximum. Shops and restaurants validate. Metered parking is adjacent to the Marina Green start line. It has a two hour limit. You must repay every two hours. It is $6.00 for 2 hours, 75 cents for 15 minutes. The meters take Master Card and Visa credit cards or exact change (one dollar bills or quarters). Interested in volunteering or becoming more involved with the Long Beach walk or have questions, please contact Ronnie Adler, at radler@hearingloss.org. California has a NEW and second Walk. The San Diego Walk4Hearing will be Sunday, October 25, 2015 at Crown Point in Mission Bay, 700 Corona Oriente Road, San Diego, CA. Their goal is $25,000. The Walk Chairs are Syndi Lyon, slyon22@gmail.com and Emma Cobb, elcobb99@yahoo.com. Now we need a Third Walk in Northern California 2 The Hearing Loss Californian - Spring 2015 PRESIDENT’S MESSAGE Dear HLAA-CA Members, Officer elections took place at the February HLAA-CA annual Board of Trustees meeting. I am humbled and honored to serve as the new HLAA-CA President, and I am delighted to welcome Gail Morrison as new Vice President and Lynne Kinsey as new Secretary. Furthermore, I would like to recognize our Treasurer, Jeffrey Chess, who has been tirelessly serving as treasurer since 2009, and I am ecstatic that Ann Thomas and Debra Rogers have joined the board. Our last president, Jim Montgomery, who has been actively serving HLAA-CA for over 25 years, and Ram Kakkar will both continue as trustees on the board. Northern California Chapter Coordinator Janel Edmiston, Southern California Chapter Coordinator Nanci Linke-Ellis, and HLAA National Board of Trustees member, Margaret Wallhagen, ex officio, will also continue in their positions. With gratitude and admiration, I would like to thank Board Member Emeritus, Don Senger, for his over 30 years of boundless dedication to HLAA-CA. Don co-founded and was first president of HLAA-CA. While Don Senger is semi-retiring, he will still be available to advise the board. We would like to thank Captioner Carilyn Cipolla for transcribing the meeting. We are also very grateful to Bob Zastrow for looping the meeting and for checking the meeting room beforehand. Bob travels as a volunteer across Northern California looping various chapters’ meeting rooms. During the board meeting, a new HLAA-CA four-year strategic plan was approved. In December of 2014, a survey was sent to all California chapter leaders and officers, HLAA-CA board members and officers, and HLAA National and had 40 respondents. The new HLAA-CA plan was developed based on the results of the survey and the HLAA-CA’s mission statement. The plan ranked the importance of each goal, and teams were created to accomplish each goal. The next board meeting will be on Saturday, October 24, 2015, in San Diego, the day before the San Diego Walk4Hearing. We would love for you to be actively involved with our organization and appreciate your support. We welcome members outside of our board to attend our meetings and to participate in the various strategic initiatives. Please contact me at zjawadi@hearinglossca.org if you have any questions. I look forward to serving you. Sincerely, Zina Jawadi, HLAA-CA President February 20, 2015 The Hearing Loss Californian - Spring 2015 3 MANAGING HEARING LOSS: GRADUATE SCHOOL By Chandra Shpak Generally, one potential resource located would lead to a link to another resource, which would lead to another link on another website, and so on and so forth. This distinct lack of resources and tools strongly motivated me to develop and document my own personal toolbox, that not only allowed me to survive my BS and MBA, but to subsequently graduate at the top of my class for both degrees. (Note: I participated in the MBA Program from Pepperdine University ’14; this is my personal account of the MBA program, incorporating characteristics from the JD program as well. These two programs are said to be the most intensely interactive graduate programs; thus, other graduate programs may differ in their levels of required interactivity.) Eight Step Hearing Loss Management Guide GMAT? Check! GRE? Check! LSAT? Check! MCAT? Check! Hearing Loss? No matter how much a hearing impaired individual prepares, strategizes, and organizes for graduate school, hearing loss seems to never have a solid plan of action that it abides by. There is never a resource or guide that can thoroughly and realistically prep you for the everyday nuances and hourly variances your hearing decides to confront you with. Some days, your hearing simply takes on a life of its own entirely, making a marketing class sound like a course on Chinese archaeology. Contributing to the pressure of this dilemma, the format between undergraduate and graduate courses is significantly diverse, with graduate classes placing continuous and intense social interaction, debate, and discussion at the forefront of grading consideration. Competitive graduate programs within the United States emphasize critical thinking skill sets, effective application of said skills, and sharing of experiences wrapped up inside of often colorful debates. The emphasis on participation points, accounting for up to seventy percent (sometimes more) of the entire course grade, intensely tests the average student’s ability to listen, analyze, interpret, and process information, and generate high quality feedback and response. Now…let us add hearing loss into that equation… Besides a graduate student’s grade point average being a pertinent factor in continuously remaining in the graduate program, an individual’s performance in class (i.e. their overall social interaction combined with the student’s perceived charisma) is a strong determining factor in the student’s ability to secure job referrals post-graduation and ultimately defines their immediate financial outlook the first five years after graduation. As this may sound as an exaggeration, it is certainly not. The adage of “it is not what you know, it is who you know” is absolutely accurate, particularly from a MBA and JD standpoint. So how do you develop your personal toolbox to enhance your ability to compete with students who do not wear hearing aids? Where do you search for resources? Does the disability office or your audiologist provide materials? Unfortunately, throughout the entirety of the BS and MBA programs I completed, I was unable to find one single piece of material that assisted in formulating my present strategic outlook towards higher level education hearing loss management. 4 The Hearing Loss Californian - Spring 2015 Step One: Syllabus Assessment Universities tend to be quite proactive in the reveal of course syllabi prior to the beginning of the trimester/semester, as professors generally expect students to require time to secure considerably costly course materials. This provides hearing impaired students with the advantage to assess the allocation of participation points towards the overall grade and decide whether or not it would be wise to enroll in a specific course that may grade intensely on a social interaction basis. If you do not have access to the syllabus prior to the start of the course, locate a student of the specific course and professor from the previous trimester/semester and ask them for their syllabus. Professors very rarely make significant alterations in grading allocations between sessions. Step Two: Professor Assessment The assessment of the individual professor should occur as objectively as possible, using resources such as RateMyProfessor and Yammer as tools that merely assist in providing a well-rounded perspective. For example, on RateMyProfessor you may find a multitude of students complaining about excessive physical assignments that account for a vast majority of the overall course grade—well, this may certainly work in your favor. The goal here to get a feel for the professor: are they an individual who is going to understand your needs, be solution-oriented, have an optimal lecture style, and offer fantastic quality course content? The aforementioned combination is ideal and in my experience, the majority of professors that were available within my program. However, this may certainly not always be the case or even a majority of the case for others. A suggestion on how to get a feel of the professor’s nature is direct correspondence with the individual prior to the course start to test your level of comfort and see if there is a mutual positive student/professor fit present. An important note is to not sacrifice quality professors due to your hearing loss. There are professors that will certainly change your perspective for the rest of your life and without this encounter, you are missing out on a life you should be living. There have been three times that I took the considerably more hearing required intensive course over the lesser because I just knew that I would be missing a large piece of my education if I did not. Do not be afraid to challenge yourself! Step Three: Class Room Layout The four typical class room layouts are displayed in Exhibits A-D. Exhibit A displays a focused one on one discussion that arranges the audience around these individuals in a circular format. In placing yourself in the most optimal positioning to hear all of the vocal content, remember to choose a seat that allows you to see both of the mouths of the individauls in the center, in addition to the rest of the group present. Exhibit B is an incredibly common format in graduate level courses; in the MBA program specifically, a vast majority of coursework is to be completed within an assigned group. To encourage interaction between group members, professors commonly require groups to sit with each other each class. My seating recommendation is that one should be seated at the outer back seat of the group table. This placement is a result of subsequent interaction and classroom discussion that will take place during the course. It is the point of maximum exposure to your fellow classmate’s mouths and is the closest point you can be to everyone at the same time while still hearing them. Another common seating format in undergraduate and graduate level courses is featured in Exhibit C, the straight rows across the class. Generally the professors who utilize the Socractic method, the method that requires the highest interactivity, also require this seating arrangement, which may seam like an opposing concept to the hearing impaired individual. Upon choosing your placement in this scenario, you should choose to sit at one of the outer corners of the front desk row. This seat will allow you to pivot to the rows behind you and look directly at individuals speaking during the subsequent course discussions. The last common classroom seating chart in graduate school is displayed in Exhibit D, the wraparound. In the professor’s mind, this seating chart would be absolutely ideal for the hearing impaired student because you could physically see everyone in the class discussion. However, depending on the size of the class, seeing does not translate to hearing due to distance. The most optimal seating position recommended is the second to front seat on either the left or right desk rows. This allows you to see each individual in the classroom in addition to attempting to decrease the distance between you and your classmates as much as possible in this scenario. In my opinion, accounting for a larger class size, this is certainly the most difficult classroom layout to navigate. Step Four: Personal Alliance: Your personal alliance(s) are arguably the most important aspect of your personal toolbox and overall hearing loss management strategy. These alliances consist of four to five individuals that you are particularly close friends with (if possible) and whom you see and communicate regularly with multiple times during the week. Before each course trimester/ semester, your alliance should strategize and coordinate your course schedules so you are in the same classes and groups. Depending on your or their deviation from the program “track”, you may require multiple alliances to accommodate these differences. Within each class, one should correspond with their alliance as much as possible. Although this may seem an opposing concept, there are multiple non-verbal tools you can utilize to instantly contact your alliance, even if you are not seated next to them. Some of these methods include e-mail, instant messaging, texting, and handwritten note exchange. Arrange this beforehand with the alliance member that continuously pays the most attention in class and is intuitive as to what information you may have missed. In addition to this continuous in-class correspondence, I would suggest having weekly after class casual meetings that allow you to ask questions and catch up on course content you may have missed. In my experience, these meetings generally took place in a social restaurant atmosphere that would allow us to speak loudly; however, you may prefer a much quieter setting for your group communication. Step Five: Reference Points It is critical that every hearing impaired individual have an adaptive strategy that enables them to effectively navigate scenarios of intense social interaction, including classroom debates, Socratic teaching methods, or general classroom discussions. Unfortunately, due to the lack of processing time availability in these scenarios, it can be particularly challenging, if not almost impossible, to hear every word from every individual in the room throughout the duration of each class. Thus, a reference point refers to specific peers that allow you to be re-introduced to the class conversation when you are ultimately lost. These specific individuals are ones whom enunciate, project clearly, and preferably sit very close to you. They participate on a moderate level, provide applicable emotional cues, speak directly to relevant topics, and communicate enriching statements that you can genuinely relate to. During a period of intense social participation, once one of these individuals speak, it is your cue to respond directly to their statement. Your individual reference point strategy is essential to fulfilling participation points and showcasing your knowledge to your peers and professor, which is critical for recruitment into preferable class working groups, peer respect, and job referrals. The Hearing Loss Californian - Spring 2015 5 Step Six: Professor Collaboration Prior to contacting the University’s Disability Office, a student should always make every attempt to communicate, collaborate, and attempt to formulate solutions directly with the professor. As aforementioned, if possible, this should begin prior to the start of the trimester/semester and at the latest the first day of class. When approaching the professor, it is your responsibility to communicate the extent of your disability, specific individual needs that arise due to your hearing loss, and possible solutions to accommodate these needs. Throughout the years of college, I have always offered to submit an additional written assignment of sorts to supplement my participation points in the case of any lack of class contribution. If there is an online portion to the course, I would offer to double my participation in that regard. Some of the professors would start discussions off with me specifically to assist in my ability to participate in course dialogs. The most critical factor in professor collaboration is ongoing dialogue through the trimester/semester. For example, I was fitted for new hearing aids in June of this year and although the quality of this equipment was absolutely fantastic, I spent a month absolutely overwhelmed in the classroom environment from so much sound. As I could not process speech fast enough to respond in the setting, I advised the professor of my conundrum and she stated she would not deduct anything from my participation grade for the duration of the month. However, I have certainly had a couple professors that refused to participate in the aforementioned suggestions and were collectively unpleasant experiences. Leading into Step Seven, effective collaboration and communi-cation with the University Disability Office is critical to navigating the aforementioned challenge. Step Seven: Disability Office: The University Disability Office should be utilized as a last resort or tool that provides you with resources that enhance your learning experience. Unless absolutely critical, heavy reliance on the Disability Office is dangerous territory, as it does not allow you to develop a personal strategy that enables you to navigate heavily social scenarios in other dimensions of your life. In collaborating with this department, attempt to introduce yourself to as many contacts within the office as possible, gathering correspondence information from each of them. This will allow you to choose the individual whom you are the most comfortable with and provides you with the flexibility to communicate with other representatives should you feel that one individual is not effectively addressing your needs. Your next step should be to introduce yourself directly to the Deans and Directors of your program; ensure that these individuals know your face and have provided you with the okay to contact them directly if your needs require. This effectively provides you with a bit of clout and assurance that the Disability Office will respond to your requests. When attempting to reach a favorable agreement with the Disability Office, make sure that you are fully aware of the University’s disability policy and that you have prepared a list 6 The Hearing Loss Californian - Spring 2015 of suggested solutions that minimize the impact of your needs on other student’s learning experiences yet provide you with reasonable accommodations. Step Eight: Confidence & Self-Awareness The last, but certainly not least, step of this management guide requires every individual to be personally accountable for their level of confidence and their overall self-awareness. Every hearing impaired individual should discover and/or have knowledge of their individual limitations as student (i.e. technical or artistic minded?), limitations of their personality (i.e. do not like to read, write, etc.), the best practices for your individual hearing loss (personal customized toolbox), and have provided themselves with the best hearing aids and listening devices that they can realistically afford. If you do not make the effort to assist yourself in enhancing your learning experience, the help of others can only make so much of an impact. A quite important aspect of developing one’s confidence as a student and individual is the knowledge that they are good at what they are do. Thus, appropriate career placement is critical to a successful and impactful learning experience. Are your personal core competencies being exploited in your major choice? Are there aspects of this career path that are going to place an excessive amount of pressure on your ability to hear? Is this career appropriate for your personality and overall mentality? An additional booster of confidence is to appropriately invest in your physical appearance. Ensure your clothing is presenting yourself in a casual professional manner and your hair/makeup is consistently tidy, neat, and never overdone. Individual confidence, self-awareness, and tenacity is critical for successful enforcement of this hearing loss management guide and essential for the effective development of your own personal toolbox. If this article has been successful in assisting one individual with their journey of higher education, then it has been more than worth it to write it. I wish everyone the best of luck in their adventures to come and my hope is that hearing loss will never be a factor in your failures but always a positive influence on your triumphs. If you have a story, account, resource, or suggestions you would like to share, please do not hesitate to contact me via LinkedIn or e-mail: Chandra.Shpak@alumni.pepperdine.edu. SUPREME COURT IS LOOPED The United States Supreme Court has installed a hearing loop system to enable people with hearing loss to follow the proceedings. This decision was a direct result of the efforts of Richard Williams, Esq, a member of the HLAA-Sarasota FL Chapter. He has successfully argued two cases before the U.S. Supreme Court during his career as an attorney and knows first-hand the difficulty of hearing in the courtroom. There is a cost savings to looping a facility as no personnel are required to hand out the ALDs; no batteries or repairs are needed for the ALD devices; there is no embarrassment to the user or any hygiene issues. The Hearing Loss Californian - Spring 2015 7 SPEAK UP! SPEAK UP! HEARING AID TAX CREDIT BILL-S315 $1000 TAX CREDIT for HA Purchase THERE IS AN EXCELLENT CHANCE THIS BILL WILL PASS. TAKE ACTION NOW! A Hearing Aid Tax Credit Bill, giving a $1,000 Tax Credit for the purchase of hearing aids has been reintroduced in Congress. HR 1317 had 42 co-sponsors. It went to the Senate in January 2015 as S 315. Let your congresspersons know you support this bill. A $1000 TAX CREDIT is huge --- and not to be confused with a TAX DEDUCTION. Tax Deduction. If you are in the 25% tax bracket, a $1000 tax deduction means you will pay $250 less tax that year. If you are in the 10% bracket, a $1000 tax deduction means you’ll pay $100 less tax that year. A Tax Credit is a dollar for dollar reduction in your income taxes. If you have a $1000 tax credit, you will pay $1000 less tax that year regardless of your tax bracket. The bill is also retroactive to December 31, 2012. So, if you purchased hearing aids in 2013 you could file an amended return for 2013 and receive up to $1000 ($500 per hearing aid). This is where numbers count – the more people that express their support, the better the chances of it passing. And you can voice your opinion more than once. You can call, email, write letters. The more they hear from us on this issue, the more likely they are to pay attention to all hearing related matters (like Medicare coverage for hearing aids and requiring all health insurance to cover hearing aids). This is what Mitzi Shpak wrote. My hearing aids cost $6400 in 2011. In 2014 the same HA's for my daughter cost $7200. The average cost of $1675 per ear is based on what people settle for when they can't afford better hearing aids -- that difference in quality can make a tremendous difference with how well you are able to hear. How well you are able to hear directly translates into how much you earn, how well you function socially, and, ultimately, your overall mental and physical health status. Increased health costs, one way or another, become a public burden -- higher health insurance premiums--- and much higher costs to Medicare. HOW TO DO IT The Hearing Health Foundation has set up a page to provide assistance. You can support the bill by clicking on "Click here to Write Congress Now": www.hearingaidtaxcredit.org/ action.cfm, then just fill in your address. It's a very simple form to fill out - your zip code determines who your senators and congressman are. Please pass along to all of your chapter members, family and friends. The Hearing Aid Tax Credit would provide assistance to many of the 36 million people who need hearing aids to address their hearing loss. Medicare and most private insurance policies 8 The Hearing Loss Californian - Spring 2015 expressly exclude coverage of hearing aids, and as a result, cost is cited as a prohibitive factor by two-thirds of the people who do not treat their hearing loss. If enacted, S 315 would provide a $500 tax credit per hearing aid for people of all ages, or $1,000 if two hearing aids are needed. This assistance would be critical, since 61% of all hearing aid purchases involve no thirdparty payment. Studies indicate a link exists between untreated hearing loss and dementia, as well as other conditions such as depression and the risk of falling. A lack of financial assistance should not be a barrier to hearing aid adoption. The Hearing Aid Tax Credit is actively supported by many hearing health organizations, including the Alexander Graham Bell Assn for the Deaf and Hard of Hearing (AG Bell), Hearing Loss Assn of America (HLAA), Academy of Doctors of Audiology (ADA), American Academy of Audiology (AAA), American Speech Language Hearing Assn (ASHA), International Hearing Society (IHS) as well as Hearing Industries Association (HIA). ALDLOCATOR.COM LIST your ALD. FIND your ALD. Why The Assistive Listening Device Locator? This site has a huge potential benefit for us. It gives us a single central place to look for ALDs throughout the United States and Canada. We can look by type of venue (Healthcare, House of Worship, Theater, Universities) and by type of ALD (FM, Infrared, Hearing Loop). Searching for a venue is easy. Simply enter in a postal code, address, or city and the assistive listening friendly venue options will appear. For this site to succeed as a valuable tool, we need to help them keep the information current. Look at your area and see that everything is correct and up to date. Make sure your chapter is listed. To help with HLAA Brand Recognition list your chapter as HLAA-Chapter name. Listen Technologies Corporation, a supplier of assistive listening technologies, has sponsored this locator as a public service to the Hard of Hearing community. Give your feedback ALDLOCATOR is interested in feedback to help make this a more useful resource for the Hard of Hearing community. You can help build this locator by making suggestions of venues to be added, or reporting problems you have encountered with assistive listening systems. Please use the “Add a Location” or “Report a Problem” tab to supply this information. If you have any other comments or suggestions, please feel free to contact the webmaster at webmaster@ALDLocator.com. The Hearing Loss Californian - Spring 2015 9 10 The Hearing Loss Californian - Spring 2015 NEW Fast AuD Program in SF University of the Pacific The University of the Pacific is pleased to announce the approval of a new Doctorate of Audiology (AuD) program by its Board of Regents at Pacific’s downtown San Francisco campus. An audiologist shortage statewide makes this new Doctor of Audiology program critically important to both the region and state healthcare systems. University of the Pacific’s Doctor of Audiology program will be one of four accelerated programs in the country and the only one in the state of California. The majority of AuD programs are 4 years (3 years of coursework and 1 year externship). Pacific’s program is 3 years (2 years of coursework and 1 year externship). The only other AuD program in California is at San Diego State University (not an accelerated program) and graduates 8-10 audiologists per year. Pacific’s three-year accelerated program will serve a cohort of 20-22 students per year and will draw students with undergraduate majors in Speech-Language Pathology, Biology, and Pre-Health. The first class of Pacific’s Doctorate of Audiology students will begin the Fall semester of 2015. Pacific’s new Hearing and Balance Center in downtown San Francisco, along with anticipated collaborations with many Northern California medical and audiology centers, will provide student clinical experiences. The San Francisco clinic is officially open and is seeing patients for hearing assessments and hearing aid related services. Balance assessments will be available this summer 2015 and cochlear implant services will be available in the fall of 2015. According to the Bureau of Labor Statistics of the U.S. Department of Labor, “employment of audiologists is expected to grow by 37% from 2010 to 2020, much faster than the average for all occupations. Hearing loss increases as people age, so an aging population is likely to increase demand for audiologists. The early identification and diagnosis of hearing disorders in infants also will spur employment growth. Advances in hearing aid technology and design will make the devices more appealing as a means to minimize the effects of hearing loss, further leading to more demand for the audiologists who provide hearing aid services.” University of the Pacific’s first class of AuD students are not yet on campus, but the program’s new Hearing and Balance Center is open and accepting new patients. Appointments can be scheduled by calling 415-780-2001 or through the website at www.upacifichearing.com. The Hearing Loss Californian - Spring 2015 11 BRAND, BABY, BRAND NOT ME - Just Do as I Say, Not as I Do Why is our most important face to the world, the COVER of our magazine, NOT BRANDED. Seems self-defeating. HLAA has fewer than 10,000 members. We should easily have 1,000,000 members. We cannot afford not to brand our National Magazine cover, our public face to the world. We have a magazine exchange at my gym. The magazine cover says Hearing Loss Magazine. Walking by people wonder if it is an AARP, AG Bell or ASHA magazine. It needs to be seen quickly and obviously as our HLAA magazine. Hearing Loss Magazine BRANDED 12 The Hearing Loss Californian - Spring 2015 RICHARD RAY APPOINTED TO FCC THIS IS BIG!! The Federal Communications Commission (FCC) has created a NEW COMMITTEE, the Disability Advisory Committee (DAC). The DAC will provide advice and recommendations to the Commission on a wide array of disability matters and facilitate the participation of people with disabilities in proceedings before the Commission. The Commission received over 120 applications for membership in the Committee and selected 37. The membership is wellbalanced, with a diverse and balanced mix of viewpoints from organizations representing individuals with disabilities, the communications and video programming industries, the public safety industry, trade associations, academics, researchers, and other stakeholders. Richard Ray, ADA Technology Access Coordinator, City of Los Angeles, has been appointed by FCC Chairman Tom Wheeler to serve as a member of the NEW FCC Disability Advisory Committee. Lise Hamlin, Director of Public Policy, HLAA, has also been appointed to this Committee. “I am tremendously excited for the FCC’s Disability Advisory Committee to begin its important work,” said FCC Chairman Tom Wheeler. “This NEW Committee will provide sorely needed expertise and recommendations from consumer and industry stakeholders on communications and video programming issues. We look forward to using this expertise to improve our ability to meet the needs of consumers with disabilities.” The DAC will hold its first meeting on March 17, 2015, from 9:00 a.m. to 5:00 p.m. ET, in Washington, DC. The meeting will be webcast with open captioning at www.fcc.gov/ live. Meeting minutes will be available on the Committee’s website at www.fcc.gov/disability-advisory-committee. I hope Richard Ray and Lise Hamlin will take a strong stand on Net Neutrality. The Internet, emails and texting, give accessibility to hard of hearing people. CHAPTER NEWS HLAA-Silicon Valley Chapter awards $1,000 scholarships each year to qualifying students. Over the years, they have recognized approximately four dozen high school students. Last year's recipients were: Colin Au, $1000 award, a graduate of Milpitas High School who is enrolled at UC Santa Cruz Julie Brahmapurikar, $1000 award, a graduate of Homestead High School who is enrolled at UC Santa Cruz Zina Jawadi, $1000 award, a graduate of Harker School who is enrolled at Stanford University The HLAA-Ventura County Chapter participated in the first annual Wellness Fest at the Goebel Adult Community Center in Thousand Oaks. They had displays for both HLAA and Let's Loop Ventura County. Ken Cluskey of the HLAA-Los Angeles Chapter has been named as the Hard of Hearing representative to Telecommunications Access for the Deaf and Disabled Administrative Committee (TADDAC). TADDAC advises the California Public Utilities Commission (CPUC) on equipment distribution, relay services, and policies. The Committee also recommends strategic planning and works to develop more effective services for Californians with specialized telephone equipment and relay service needs. PRETENDING TO BE DEAF by Zina Jawadi. I conducted this experiment for an ASL class assignment taught by ASL Stanford professor, Cathy Haas. On a rainy Saturday afternoon, pretending to be deaf (I am hard of hearing) and using only sign language and written communication, I asked the concierge in two hotels in Cupertino – an upscale town in the San Francisco Bay Area – to show me a meeting room. It was a genuine request for a meeting in February of the board of trustees of the Hearing Loss Association of America, California State Association (HLAA-CA), of which I am vice president. Furthermore, I had already inquired at other hotels, so I could compare them. I went to two different hotels to make sure that the outcome was not coincidental. To conceal the identity of the two Cupertino hotels, I will call them Hotel A and Hotel B. At the end of the experiment, I debriefed all participants to see their reactions and explained to them the purpose of this experiment. Experience at Hotel A I first went to Hotel A. There was no one in line, and the reception area was fairly empty. When I entered the hotel, the concierge immediately greeted me. I responded by signing, “Hello. I am deaf. I do not speak.” Instantly, he pulled out a pen for me to write down what I was saying. When he wanted to attract my attention, he waved his hand, so I could face him. He also knew a couple of signs, such as please and thank you. He was polite and courteous. Once I told him my request (to see the conference room), he had a second employee take me to the meeting room. This second employee was also polite but had some slight difficulty communicating without speaking, perhaps because he did not have a computer in front of him to type what he could not say. Although most of my communication was written, I signed a little bit, especially easy words, such as “Yes,” “Oh-I-see,” and “Thank-you,” whose hand motions imply the meaning, making the words easier to guess. Neither employee knew the cost of the room, but I was given the contact information of the sales manager, who would be able to assist me. Experience at Hotel B At Hotel B, there was no one in line, and the reception area was fairly empty. When I entered the hotel, I was immediately greeted by the concierge. Although I responded by signing, it took her slightly longer to pick up that I was “deaf.” She continued to speak to me for a few seconds; once it occurred to her that I “could not speak,” she was slightly surprised, startled, and nervous. Nevertheless, she started writing to communicate with me. Although this interaction was longer than the transaction at Hotel A, I received more information, specifically the cost of the meeting room and the cost of the guest rooms the night before my meeting. When I asked her how much the meeting room was, she started talking to a second employee, first informing the second employee that I was deaf. The second employee in Hotel B did not communicate directly with me. Nevertheless, he knew all the answers to my questions; consequently, I was able to receive the necessary information. The first lady showed me the room and sometimes talked to me, forgetting that I was deaf. She was slightly frustrated. Response: Debriefing the Participants After receiving the necessary information, I disclosed to my participants that I am an oral hard-of-hearing university student conducting an experiment for a class assignment. The second employee at Hotel A, who showed me the room, told me that his stepmother’s brother is deaf, and that his stepmother knew how to sign. He was perceptive, telling me that he suspected that I was not really deaf when I almost said something aloud in the conference room. The first employee at Hotel A was the most helpful and politest of all the members. I do not think anybody pitied me or was impatient, but I could definitely detect the slight annoyance and frustration of the first employee at Hotel B. After I told them that I was not deaf, none of the employees seemed bothered by the fact that I was not really deaf. All four employees were curious about whether I actually needed the conference room. The first employee at Hotel A told me that he used similar techniques with foreign guests who do not speak or understand English. Specifically, he pulls out Microsoft Word and Google Translation. These techniques were useful in my situation, perhaps demonstrating why he was the most prepared: he understood how to communicate when there is a language barrier. However, he mentioned that it would have been more difficult to accommodate me if other guests were waiting for service. Outcome It is reasonable to assume that in an educated, progressive area like Silicon Valley, which also happens to be extremely close to the heart of the disability rights movement (Berkeley), people would be more empathetic to those with disabilities and that hotel employees would be more equipped and prepared to handle disabilities. Although different from my experiences as an oral hard-of-hearing person, this experiment confirmed my daily struggles: that even the kindest and best-intentioned people are often incapable of communicating with and accommodating someone with hearing loss. Interestingly, I found these hotel employees more willing to help and more understanding than people I encounter on a daily basis. In general, one-time interactions are easier than daily inter -actions, and hearing people are generally more willing to help when accommodations do not require significant effort. Throughout this experience, a few noteworthy observations came to mind. First, techniques employed with foreigners, who do not speak or understand English, can be helpful in communicating with deaf people. Second, any exposure, even if minimal, to people with hearing loss can make a difference in empathy and in cooperation. Third, in both hotels, we reverted mostly to written communication, which is significantly slower than spoken communication. Fourth, the interactions at these two hotels were briefer and more succinct than the interactions I had in hotels the previous week in San Francisco, including the same brand hotels as Hotel A and Hotel B, where I communicated orally; perhaps the cumbersomeness and difficulty of the communication resulted in reduced dialogue and fewer follow-up questions. Fifth, without hearing loss issues, small talk is made between speakers; however, in the deaf experiment, because of the communication barrier, only necessary questions and responses were made, causing the interaction to be more formal, colder, and shorter. The most interesting statement was the connection between communicating with non-English speaking guests and deaf people. After I left the hotel, it suddenly dawned on me – people with hearing loss are like foreigners in their own countries. The Hearing Loss Californian - Spring 2015 13 HLAA member and veteran JIM HOGAN honored as HearStrong Champion HLAA CONVENTION, June 25-28, 2015 Meet us in St. Louis, Missouri Meet Us in St. Louis. You’re invited to join us for our 30th annual Convention in St. Louis! It’s a big year for HLAA as we turn 35 this November and kick-off a year of commemorative activities. It will be four days of interesting workshops plus the opportunity to greet old friends and to make new ones. Join us at the Opening night Get Acquainted Party. Convention Hotel. Built in 1894, the St. Louis Union Station, a National Historic Landmark, was once the busiest and largest train station in the country. Even if you are not a history buff, you will marvel at the attention to detail devoted to the renovation and restoration of this architectural masterpiece. Jim Hogan with Patrice Rifkind, Au.D. of Audiology Associates HearStrong Foundation Award On Nov. 8, 2014 the HearStrong Foundation celebrated Jim Hogan, a veteran of the U.S. Navy as a HearStrong Champion during a special ceremony at the 2014 Academy of Doctors of Audiology Convention in Las Vegas. He was nominated by Patrice Rifkind, AuD, ofAudiology Associates of Santa Clarita, CA. “Today, roughly 60 percent of veterans returning from Iraq and Afghanistan have some degree of hearing loss,” said Ed Keller, founder of the HearStrong Foundation. “By recognizing Jim for his incredible accomplishments, we hope to inspire other veterans to seek the hearing solutions they need to help them reconnect to the people and things that matter most.” Why Jim is a HearStrong Champion “I have been able to listen to and understand more thereby living as normal a life as possible despite my vision and hearing loss. I was able to continue working and retire from the city of L.A., I have been able to volunteer with numerous organizations, both veteran and community, making a real difference in many peoples’ lives, and educating the public about people with personal challenges. My wife and I camp, bike, hike, enter parades and attend concerts. With the help of my FM transmitter creating a loop, I am even able to enjoy a family dinner and join in the table conversation at a noisy restaurant or setting the transmitter on the speaker table at a meeting or conference. In order to make the best use of my guide dog, I need to hear traffic pattern flows and surrounding sounds. My hearing devices enable me to be more independent!” Department of Veterans Affairs Award Jim Hogan has just been honored with yet another award. He is a longtime member of the SoCal Regional Group of the Blinded Veterans Association and a volunteer with the Department of Veterans Affairs Greater Los Angeles Healthcare System for the past 12 years, and has been recognized as VA’s National Male Volunteer of the Year. 14 The Hearing Loss Californian - Spring 2015 One of the most popular new features of the hotel is the Grand Hall where every evening on the hour between 5 - 11 pm a 3D light show is projected on the domed ceiling. Watch as flowers sway, fireworks burst and other images dance around the 65-foot ceiling of the Grand Hall lobby in a state-of-the-art show designed specifically for this St. Louis hotel. Created by Technomedia, an award-winning collaborator with entertainment company Cirque du Soleil, the 3D light show is the first of its kind in the US. Hotel guests of all ages will enjoy flying birds, an aquarium scene and other vibrant animations projected across the historic lobby in 30 video vignettes set to music. Opening Session Keynote Speaker, Charles A. Laszlo, PhD, the founding president of the Canadian Hard of Hearing Association, will deliver his speech, Advances, Obstacles and Solutions in a Changing World, at the Opening Session. He is a biomedical engineer with experience both in academe and as an entrepreneur. He is professor emeritus of electrical engineering and past-director of the Institute for Hearing Accessibility Research at the University of British Columbia. He is the co-founder of several companies developing and manufacturing assistive listening devices, heart valves and other cardiovascular devices. BASEBALL fans. Off-site event for only $25. Route 66 Rivalry: St. Louis Cardinals vs. Chicago Cubs at Busch Stadium Saturday evening banquet. Rocky Stone: Operation 35 Celebrate the 35rh anniversary of HLAA and honor Founder Rocky Stone. The Hearing Loss Californian - Spring 2015 15 RESOURCES FOR HEARING LOSS QUESTIONS OR CONCERNS Hearing Loss Resource Specialists Jennifer Stuessy, Greater Los Angeles Agency on Deafness (GLAD), Los Angeles 323-478-8000, jstuessy@gladinc.org Pauline Gaeta, Center on Deafness Inland Empire (CODIE), Riverside 951-275-5000, pgaeta@codie.org Colette Noble, NorCal Services for D/HoH, Sacramento, cnoble@norcalcenter.org Sr. Ann Rooney, LMFT, Burlingame annrooney@sbcglobal.net Bruce Harris, Berkeley bjharris@ieee.org Ann Thomas, Walnut Creek AThomas@hearinglossdv.org Lisa Mira Lawson, LMFT, Psy.D Marriage and Family Therapist linda.lawson21@twc.com, 310-454-5138 Valerie Stern, LCSW, Sunland Psychotherapist - hearing loss and grief, certified equine assisted psychotherapist 310-936-0939, www.valeriesternlcsw.com Alison Freeman, PhD, West LA. Sherman Oaks Psychologist - hearing loss, trauma and crisis counseling, stress management and teletherapy, 310–712-1200, www.dralisonfreeman.net For Parents California Hands & Voices, Parent driven Nonjudgmental support for families with D/HoH children Family camps, Mom’s Night Inn www.cahandsandvoices.org National, www.handsandvoices.org info@cahandsandvoices.org Parent Links, Parent to Parent Support for families with D/HoH children Parent Mentors are Parents of D/HoH children, www.myparentlinks.com Find Mentor myparentlinks.com/Local_Parent.html Audiologists send family to Parent Links myparentlinks.com/Makeareferral.html Oral Deaf Education, Oraldeafed.org Free Parent handbook, DVD, videos For Youth Training & Advocacy Group (TAG), LA Self-Advocacy group for D/HoH children & teens, www.tagkids.us HEAR YA NOW. Young Adults Group Social events, online community www.hearyanow.tumblr.com NO LIMITS. Individual therapy, literacy, parent education thru educational center, National theatrical group, for ages 3-18, All services free, 310.280.0878. www.nolimitsfordeafchildren.org Cochlear Implants Cochlear Americas www.cochlearamericas.com Med El www.medel.com Advanced Bionics www.advancedbionics.com Clinics UC Irvine, Cochlear implant services 714-456-5853, www.ent.uci.ed The HEAR Center, Pasadena Hearing/speech therapy, Community out reach, hearing aid dispensing. All ages, www.hearcenter.org, 626-796-2016 House Ear Clinic, Los Angeles Hearing Aids, Cochlear Implants Ear surgery, 213-483-9930, www.hei.org Stanford Univ, Cochlear implant services cochlearimplant@stanford.edu, 650-736- 4351, www.med.stanford.edu/ohns Hearing and Speech Center, San Francisco 415-921-7658, info@hearingspeech.org www.hearingspeech.org Lucile Packard Children’s Hospital, Stanford 650-498-2738, jwinzelberg@lpch.org John Tracy Clinic Pediatric hearing loss, low cost services world wide, www.jtc.org, 213-748-5481 Oberkotter Foundation Pediatric hearing loss, free materials, oral schools, www.oraldeafed.org Financial Aid Audient Alliance audientalliance.org, 206-838-7194 Let them Hear Foundation, Palo Alto 650-462-3143, http://www.letthemhear.org Career Counseling/Employment Services HLAA Employment Toolkit www.hearingloss.org/ advocacy/Employment.asp#jobtoolkit GLAD/Employment Development Dept www.gladinc.org 213-478-8000, info@gladinc.org Dept of Rehabilitation, (DOR) Deaf/HoH Advisory Comm (DHHAC) Stephanie.stansell@yahoo.com Vocational Rehab provides clients with hearing aids/devices necessary to secure or retain employment. www.dor.ca.gov Deaf/Disabled Telecomm Program (DDTP) Administrative Committee (TADDAC) Ken Cluskey (Hard of Hearing) kcluskey@hotmail.com Nancy Hammons, (Late Deafened) hammonsn@aol.com Vadim Milman (Deaf) Equipment Program (EPAC) Brian Winic (Hard of Hearing), lovetwohear@aol.com Free Telephones (CTAP) www.ddtp.org/ctap Hearing LOOP & ALDs Directory List & Find your Loop and ALD www.aldlocator.com All about Loops www.hearingloop.org Lip Reading Classes www.hearinglossca.org/communication Online Videos HLAA, www.hearingloss.org/content/videoseries-learn-about-hearing-loss www.hearingloss.org/content/video-series -hearing-assistive-technology Listen and Speak, children www.oraldeafed.org/movies/index.html Captions Captioned movies search engine Captionfish.com Captioned Netflix instant library www,phlixie.com Captioned videos of world’s leading thinkers. TED.com Captioned/looped theatre Griot Theatre, griottheatre.org Captioning Advocacy Group www.CCACaptioning.org Auditory Rehabilitation Angel Sound Online download http://angelsound.emilyfufoundation.org Request an installation CD via email angelvoice@emilyfufoundation.org i-phone/ipad application now available in the App Store: i-angelsound http://angelsound.tigerspeech.com/ angelsound_mobile.html Speech Therapy Lisa Roeder, MS, CCC-SLP, Walnut Creek Cochlear Implant or hearing aid users 925.945.1474 roeder@speechpath.com www.speechpathologygroup.com Mellisa Essenburg, M.S., CCC-SLP mellisaslp@yahoo.com, 858-232-5842 www.SanDiegoSpeechPathology.com Aural Rehab Group for CIs, San Diego Assistance Dogs for hard of hearing/deaf Canine Companions for Independence www.cci.org 800-572-2275 Sam Simon Foundation www.samsimonfoundation.com, 310-457-5898 See Resources, Page 17 Lawyers David Grey, david@greyslaw.com Special education law John Waldo, john@wash-cap.com Captioning of movies/theatre Gaylord & Nantais, gaylordnantais.com Hearing Loss Claims 16 The Hearing Loss Californian - Spring 2015 CAPTIONED LIVE THEATER Southern California Segerstrom Center – Costa Mesa Saturday matinee Nice Work If You Can Get It, March 21, 2015 Guys and Dolls, April 18, 2015 Annie, May 23, 2015 Motown, June 27, 2015 Phantom of the Opera, August 15, 2015 Ahmanson – Los Angeles Saturday matinee Dame Edna & Barry Humphries’ Final Farewell Tour, March 14, 2015 Cinderella, April 25, 2015 Matilda, June 27, 2015 Pantages Theater - Hollywood Sunday matinee Newsies, April 12, 2015 Motown the Musical, May 17, 2015 Phantom of the Opera, June 28, 2015 Annie, November 1, 2015 If/Then, December 27, 2015 Bullets Over Broadway, January 24, 2016 Dirty Dancing, February 21, 2016 The Illusionists, March 13, 2016 42nd Steet, June 19, 2016 Beautiful, July 10, 2016 Cabaret, August 7, 2016 Civic Theater- San Diego Sunday matinee Cinderella, May 10, 2015 Motown the Musical, June 14, 2015 Pippin, August 30, 2015 La Jolla Playhouse Sunday Matinee The Darrell Hammond Project, February 22, 2015 Griot Theatre of the West Valley - Encino Sabah El-Amin, Executive Director Sabah@griottheatre.org www.Griottheatre.org Hollywood Bowl Two weeks advance notice requested Lili Herrera, Accessibility Services, 323 850 2125 Northern California Berkeley Repertory Theatre Sunday Matinee Xs and Os (A Gridiron Love Story), March 1, 2015 Tartuffe, April 12, 2015 Head of Passes, May 24, 2015 One Man, Two Guvnors, June 21, 2015 SHNSF (Orpheum, Curran, Golden Gate) – San Francisco Saturday matinee Newsies, March 14, 2015 The Book of Mormon, May 2, 2015 Matilda the Musial, August 8, 2015 Phantom of the Opera, September 26, 2015 Sacramento Community Theatre Friday evening Rain, a Tribute to the Beatles, March 20, 2015 Once, April 17, 2015 Cinderella, May 15, 2015 Sacramento Music Circus Friday evening My Fair Lady, June 12, 2015 Big River, June 26, 2015 Bye Bye Birdie, July 10, 2015 Peter Pan, July 24, 2015 West Side Story, August 7, 2015 HAIR, August 21, 2015 Cal Shakes–Orinda Wednesday evening Twelfth Night, June 3, 2015 Life is a Dream, July 15, 2015 The Mystery of Irma Vep, August 19, 2015 King Lear, September 23, 2015 Please support Captioned Live Theater for the effort they are making to accommodate us, and help spread the word to our hearing loss community. People with hearing loss who have shunned live theatre, need to get back into the theatre-going habit. Resources, from Page 16 Other Resources Hard of Hearing / Late Deafened Program at DCARA www.dcara.org Better Hearing Institute www.betterhearing.org Living and Coping with Hearing Loss by Sam Trychin, samtrychin@adelphia.net www.trychin.com Hearing Loss Information www.HearingMojo.com www.hear-it.org Hearing Loss Help E-zine www.hearinglosshelp.com neil@hearinglosshelp.com Deafness in Disguise History of hearing devices. beckerexhibits.wustl.edu/did The Hearing Loss Californian - Spring 2015 17 HEARING LOSS ASSOCIATION OF AMERICA California State Association/Chapters Find a chapter - www.hearinglossca.org/chapters Facebook: Hearing Loss Association of America – chapter name NORTHERN CALIFORNIA Northern CA Chapter Coordinator Janel Edmiston (CI) 916-208-8937 jedmiston@hearinglossca.org Diablo Valley Chapter-Walnut Creek Ann Thomas HLAADV@hearinglossdv.org 925-264-1199 www.hearinglossdv.org East Bay Chapter - Oakland Janet Lyons 510-932-7978 je.lyons@comcast.net Napa Valley Chapter - Napa Jeannine Scott, 707-257-0509 jneen@napanet.net Peninsula Chapter - Redwood City Sally Edwards, 650-365-4868 info@hearinglosspen.org Bob Hall, 650-867-5256 RHall@hearinglosspen.org Sacramento Chapter Janel Edmiston, 916-208-8937 jedmiston@hearinglossca.org www.hlasac.com San Francisco Chapter Kenny Andrews, 707-291-9709 Kennyandrews6@gmail.com Josephine Schallehn, jschallehn@hotmail.com Shasta County Chapter - Redding Sharon Hunter, 530-242-1574 Sharon36lee@yahoo.com Silicon Valley Chapter - San Jose Earl Mizuguchi, 408-977-6377 earlmiz@sbcglobal.net Maggie Iller marjorie.iller@gmail.com SOUTHERN CALIFORNIA Southern CA Chapter Coordinator Nanci Linke-Ellis (2 CIs) nanci@linkeellis.com 310-922-3884 cell 310-829-3884 phone POTENTIAL NEW CHAPTERS Culver City Chapter Nanci Linke-Ellis (2 CIs) nlinke-ellis@hearinglossca.org 310-922-3884 cell 310-829-3884 phone Central Coast Chapter-Santa Maria Noni Smyth no_knee@charter.net Pass Area Chapter - Beaumont Sandi Streeter, S.Streeter@surfcity.net Nanci Linke Ellis nanci@linkeellis.com 310-92203884 City of Orange Chapter Marla Peoples, marla_peoples@yahoo.com Long Beach/Lakewood Chapter Lakewood Bill Busch, Bill@buschfamily.org 310-540-6322 Gail Morrison, gail7go@gmail.com 562-438-0597 www.hlalongbeachlakewood.org Los Angeles Chapter - Pasadena Lisa Yuan, leesayuan@gmail.com Alicia Fernandez, alicia@blueskycreative.com www.HLAA-LA.org Mission Viejo Chapter Pril Kirkeby, pwkirkeby@cox.net 949-855-6786 George Grosz, 949-455-2740 ghgrosz@earthlink.net San Diego Chapter Larry Sivertson, larrysivertson@gmail.com www.hearinglosssandiego.org Santa Barbara Chapter Cherie Alvarez, cheriea@hlaa-sbc.org Jazmin Kildare, jazmink@hlaa-sbc.org www.hlaa-sbc.org Santa Monica Chapter Ken Cluskey, kencluskey@yahoo.com Maggie Whittemore, maggie_whittemore@yahoo.com Ventura County Chapter – Thousand Oaks Anni Settingsgard, hlaanni@aol.com 18 The Hearing Loss Californian - Spring 2015 Please join us. Meet others who are facing the challenge of everyday life with a hearing loss. Meetings are free and informal. Bring a friend or family member. Everyone is welcome. Hearing loss is a daily challenge you can overcome. You do not have to face hearing loss alone. Is your chapter on Facebook? Social networking has become the way to do outreach, get your projects known and recruit new members. Danny Tubbs metromann@yahoo.com of the HLAA-LA chapter will be glad to help you set it up. No chapter near you? Our Chapter Coordinators will help you to set up a local group. Northern CA Chapter Coordinator Janel Edmiston (CI) 916-208-8937 jedmiston@hearinglossca.org Southern CA Chapter Coordinator Nanci Linke-Ellis (2 CIs) nanci@linkeellis.com 310-922-3884 cell 310-829-3884 phone FOUNDER Howard E. “Rocky” Stone, 1925-2004. In 1979, Rocky Stone founded the organization as Self Help for Hard of Hearing People (SHHH). Renamed Hearing Loss Association of America (HLAA) in 2006. Board of Trustees President, Zina Jawadi HLAA Silicon Valley Chapter zjawadi@hearinglossca.org Vice President, Gail Morrison HLAA Long Beach/Lakewood Chap gmorrison@hearinglossca.org Secretary, Lynne Kinsey HLAA Silicon Valley Chapter lkinsey@hearinglossca.org Treasurer, Jeffrey Chess jchess@hearinglossca.org Ram Kakkar (CI) HLAA Long Beach/Lakewood Chap rkakkar@hearinglossca.org Jim Montgomery, (CI) HLAA Diablo Valley Chapter Jmontgomery@hearinglossca.org Debra Rogers HLAA San Diego Chapter drogers@hearinglossca.org JOIN US! Membership includes national and state memberships, Hearing Loss Magazine and The Hearing Loss Californian newsletter. Rates are $20 Student, $35 Individual, $45 Couple, $60 Professional. For international and corporate rates, please visit www.hearingloss.org. Please make check out to HLAA and send it to Hearing Loss Association of America, 7910 Woodmont Avenue, Suite 1200, Bethesda, MD 20814 (include name/mailing address/zip code/ email/phone) OR you can join on line at www.hearingloss.org/membership/renew.asp. HEAR YA NOW is a network of young adults in California ages 18-40. We aim to unite young adults with hearing loss through social events and an online community where information is exchanged about resources, support, advocacy, and scholarship opportunities. Join our active Facebook discussion group HEAR YA NOW: http://www.facebook.com/groups/hearyanow. In order to join, email us at hearyanow@gmail.com with your name, brief hearing loss story, and why you want to join HEAR YA NOW. Website: www.hearyanow.tumblr.com; Twitter: www.twitter.com/hearya_now; YouTube: www.youtube.com/hearyanow HLAA CREDIT CARD. Support HLAA with every purchase you make! Apply today! www.CardLabConnect.com/hlaa. SUPPORT ANNA GILMORE HALL & HLAA. Please join the Premier Club by giving an ongoing monthly pledge of $20 or more. Premier Club donations help HLAA predict their financial resources more reliably and manage their expenditures more wisely. ITINERANT TEACHERS OF HOH/D support your graduating seniors in their transition from high school by giving them a FREE trial subscription to The Hearing Loss Californian. Please send student name/mailing address/zipcode/email to gtiessen@hearinglossca.org. Ann Thomas HLAA Diablo Valley Chapter athomas@hearinglossca.org FREE newsletter, The Hearing Loss Californian. If you want it sent electronically (send your email address), if hard copy (send your mailing address) to Grace Tiessen, gracetiessen@gmail.com. Don Senger, Emeritus (CI) HLAA Diablo Valley Chapter dsenger@hearinglossca.org FREE. Hearing Health magazine, a quarterly publication of Deafness Research Foundation. Sign up on line at http://www.drf.org. NoCal Chapter Coordinator Janel Edmiston, ex officio (CI) 916-208-8937 jedmiston@hearinglossca.org HLAA-California publishes The Hearing Loss Californian quarterly in mid February, May, August and November. The newsletter is available through mail, and on line at www.hearinglossca.org. Newsletter Article Contribution Deadlines are Spring January 20, Summer April 20, Fall July 20, Winter October 20. SoCal Chapter Coordinator Nanci Linke-Ellis, ex officio (2 CIs) 310-922-3884 cell 310-829-3884 phone nlinke-ellis@hearinglossca.org National Board of Trustees Margaret Wallhagen, ex officio Meg.wallhagen@nursing.ucsf.edu Demographics. Our database consists of 5300 records--1250 California HLAA members; 1345 California audiologists; 1350 California Hearing Aid Dispensers; Dept of Rehabilitation HoH/D counselors; Itinerant Teachers of the HoH/D; Office of Deaf Access outreach centers; members of the Association of Late Deafened Adults; Kaiser Permanente audiologists; members of AG Bell Assn for the D/HoH; Costco Hearing Aid Centers; HEARx Hearing Aid Centers; Sonus Hearing Aid Centers and others interested in hearing loss issues. Editor: Grace Tiessen, gtiessen@hearinglossca.org Layout: Lisa Rettino, leftylisa63@yahoo.com Webmaster: Zina Jawadi, zjawadi@hearinglossca.org Contributions are eligible for income tax deductions as provided in Section 501(c)3 of the Internal Revenue Service Code. Mention of goods and services in articles or advertisements does not imply endorsement, nor does exclusion suggest disapproval. Any portion of this newsletter may be reprinted or disseminated, as long as credit is given to the individual author or to this publication. The Hearing Loss Californian - Spring 2015 19 Non Profit U.S. Postage PAID Pasadena, CA Permit #740 Grace W. Tiessen 714 Prospect Blvd, Pasadena, CA 91103 gtiessen@hearinglossca.org HEARING LOSS ASSOCIATION OF AMERICA CALIFORNIA STATE ASSOCIATION Supporting chapters throughout California Hearing Loss is a Leading Public Health Issue Who We Are Hearing Loss Association of America, California State Association (HLAA-CA) is a state association affiliated with Hearing Loss Association of America. Residents of California who join our national organization automatically become members of HLAA-CA. Hearing Loss Association of America (HLAA) is an international, non-sectarian, educational, consumer organization of hard of hearing people, their relatives and friends. It is devoted to the welfare and interests of those who cannot hear well but are committed to participating in the hearing world. Hearing Loss Association of America 7910 Woodmont Avenue, Suite 1200 Bethesda, MD 20814 (301) 657-2248 Voice (301) 657-2249 TTY (301) 913-9413 Fax info@hearingloss.org Hearing Loss Association of America The Nation’s voice for people with hearing loss. Hearing Loss Association of America opens the world of communication to people with hearing loss through information, education, support and advocacy. The national support network includes the Washington, D.C. area office, 14 state organizations, and 200 local chapters. Our clear, straightforward message has changed the lives of thousands of people. Hearing loss is a daily challenge you can overcome. You do not have to hide your hearing loss. You do not have to face hearing loss alone. HLAA: www.hearingloss.org HLAA-CA: www.hearinglossca.org Facebook: www.facebook.com/hearinglossca
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