Download Report

think
Active
Designing for Health
Information Booklet (Phase 1a, P, v2)
You are invited to take part in a
Newcastle University research project
called Think Active. We would like to
talk to you about your experiences of
living with memory problems.
If you are interested in taking part, then
please consider the information in this
booklet carefully. You can discuss it with
others to help you decide whether to
take part. Your healthcare will not be
affected whatever you decide to do.
If you have any questions then please
call Lizzie Dutton on 033 33 444 034
(local rate number) or email
e.m.dutton@newcastle.ac.uk.
Need a large print or audio version?
( 033 33 444 034 (local rate number)
www.movelab.org.uk/thinkactive
Think Active Information Sheet (Phase 1a, P, Version 2, 31/03/15)
Page 1 of 8
What is this research about?
Researchers have found that being
physically active is beneficial for people
with memory problems. Physical activity
includes everyday things like gardening,
shopping, walking or swimming.
The aim of the Think Active research
project is to design new services that
help people to be physically active.
Up to 84 participants will take part in
this research.
Can you help us?
If you have a diagnosed memory
problem then we would like to talk with
you.
We are keen to know about the
activities you enjoy doing. We want to
know if memory problems affect your
activities. By sharing your experiences
you will help us to design new services.
If you live with someone they can also
take part, if you both agree to this.
Think Active Information Sheet (Phase 1a, P, Version 2, 31/03/15)
Page 2 of 8
What will I have to do?
If you decide to take part in this
research then a researcher will arrange
the following activities with you:
Introduction. 1 hour
The researcher will come to your house
or meet you at a place where you feel
comfortable. She will ask you some
questions about yourself. She will then
give you a diary to complete over the
following week.
Diary. Around 40 minutes on 6 days.
The diary will ask you to record the
activities you do each day for 6 days. It
will include some more creative
activities, such as drawing a picture or
writing about your ideal day out. These
activities are optional. We have included
them because we want to know what
people like to do and what interests
them. We also want the diary to be
enjoyable for you to complete.
Interview. 1 hour
After 2 weeks, the researcher will
arrange to come to your house again.
Think Active Information Sheet (Phase 1a, P, Version 2, 31/03/15)
Page 3 of 8
She will ask you about the events and
ideas that you recorded in the diary. She
will also ask you about your experiences
of physical activity in general.
All of these activities are voluntary.
Will the research benefit me?
It is unlikely that taking part will help
you directly. However, many people
enjoy talking to researchers about their
experiences. Your ideas will help us to
create new products and services for
people with memory problems.
To thank you for your time we will give
you £50 worth of shopping vouchers
after the second interview.
Are there any risks?
The researcher will ask you about your
experiences of having memory
problems. Some people may find this
upsetting. But, you do not have to talk
about anything you are not comfortable
with. You can also stop taking part at
any time.
Think Active Information Sheet (Phase 1a, P, Version 2, 31/03/15)
Page 4 of 8
How can I take part?
To take part or to find out more, please
call Lizzie Dutton on 033 33 444 034
(local rate number).
You can ask the researcher questions.
She will also ask you some questions.
We may not be able to interview
everybody.
If you want to take part then the
researcher will arrange a time to come
to your home or a place you would like
to meet.
When you meet the researcher she will
discuss a consent form with you. It will
be your decision whether or not to take
part.
You can withdraw from the research at
any point. You do not have to give a
reason. You will not be penalised for
withdrawing. It will not affect any care
you receive.
If we think that the research is not
suitable for you at any point then you
may be withdrawn.
Think Active Information Sheet (Phase 1a, P, Version 2, 31/03/15)
Page 5 of 8
What will happen to my data?
We will ask you for your contact details.
These will only be used to contact you
about the Think Active research project.
We would like to audio record the
interview conversations. We will store
the recordings securely. When we write
up the conversations we will change
your name and personal details so that
you cannot be recognised. We might
use your words in research publications
but your personal details will not be
included.
The researcher will ask you if you are
happy for photos to be taken during the
research. Photos will be kept securely.
We may use the photos in publications,
with your consent. If we use photos we
will change them so that you cannot be
recognised.
The project’s researchers will have
access to your data along with
regulatory authorities and the NHS Trust
who may access your data to check
whether the research is being done
correctly. At all times your data will be
secure and remain confidential.
Think Active Information Sheet (Phase 1a, P, Version 2, 31/03/15)
Page 6 of 8
Who is organising the research?
ThinkActive is a Newcastle University
student research project that will be
written up and submitted for a PhD.
The research is funded by Philips and
the Engineering and Physical Sciences
Research Council.
The research is sponsored by The
Newcastle upon Tyne Hospitals NHS
Foundation Trust.
The research is not directly linked to the
NHS Memory Assessment Service or any
GP services.
The South West – Exeter Research
Ethics Committee has approved this
research.
Researchers will not receive payment for
your recruitment or participation.
Thank you
Thank you for reading this information.
If you would like to take part in this
research then please call us. We are
happy to answer any questions you
have.
Think Active Information Sheet (Phase 1a, P, Version 2, 31/03/15)
Page 7 of 8
Get in touch…
Primary researcher: Lizzie Dutton
( 033 33 444 034
(local rate number)
@ e.m.dutton@ncl.ac.uk
www.movelab.org/thinkactive
MoveLab, 4th Floor William Leech Building, The Medical
School, Newcastle University, Newcastle upon Tyne, NE2 4HH
Need help?
If you experience negative feelings or concerns about your
health then you can call the Alzheimer’s Society on:
0300 222 11 22 (local rate number)
They help people with many different types of memory
problems. They also help people who support those with
memory problems.
Alternative contacts for support and help:
Your GP (doctor)
Age UK: 0800 169 6565 (normally free from landlines)
The Samaritans: 08457 90 90 90
Concerns or complaints
If you have any concerns about this research you should contact
Professor Mike Trenell:
Phone: 0191 208 6935
Email: michael.trenell@ncl.ac.uk
Post: MoveLab, 4th Floor William Leech Building, The Medical
School, Newcastle University, Newcastle upon Tyne, NE2 4HH
If you remain unhappy you can contact the Patient Relations
Department:
Phone: 0191 223 1382 or 0191 223 1454
Email: patient.relations@nuth.nhs.uk
Think Active Information Sheet (Phase 1a, P, Version 2, 31/03/15)
Page 8 of 8