How to use Patient and Public Involvement Inviting Criticism or Encouraging Praise? Cathal Breen BSc Hons, PgCHEP, MSCST, fHEA, CCDS, CEPS. Lecturer of Clinical Physiology Lecturer of Health Physiology Lecturer of Healthcare Science (Cardiovascular, Respiratory & Sleep Sciences) School of Health Sciences University of Ulster 02890366860 cj.breen@ulster.ac.uk Welcome………. What is Patient Public Involvement (PPI)? Why engage with PPI? How to use PPI? Examples of good practice of PPI What is PPI? PPI is the active participation of patients, users, carers, community representatives and the pubic in the development of health services and as partners in their own health care. PPI is broader and deeper than traditional consultation. It is giving local people a say in how services are planned, delivered and evaluated, by developing good communication with them, providing the information to make informed choices about their care and working in partnership to make decisions about service improvement. Patient and public involvement is often defined as delivering care ‘with’ or ‘by’ people who use services rather than ‘to’, ‘about’ or ‘for’ them. PPI is not……….. The “consumerist” model draws on consumers’ rights and emphasises active and empowered consumers to ensure free and well-informed choice in personalised health care. “expert patient” Drivers for PPI ‘democratic’ The model of emphasises patients’ experiential knowledge (of their own body, illness, life and trajectory through the health care system) can contribute to improvements in the quality of health care. The model draws on the social rights of citizens and taxpayers, insisting public engagement is essential to make health care policy democratic, accountable and in line with public values and interests Who are the “Patients” and the “Public”? You Me Evidence Base for PPI Engaging in PPI: What to do? OUTCOMES The first stage before recruiting a patient or member of the public or carer to a guideline group is to ensure that the organisation knows what it expects of patient and public members. Consultation collection of information from patients and the public. This can include methods such as surveys, focus groups, individual interviews, online consultation. Participation involves the exchange of information between health professionals and the public. Communication involve the communication of information to patients and the public to support their individual health care decisions and choices. FEEDBACK How to Recruit Patients and Public representatives Open recruitment or ask for patient nomination Provide a job and person specification. This will help applicants decide whether the role is right for them. Make it easier for people to provide you with the right information to decide who to appoint in a format where applicants’ responses can be directly compared. Ideal Patient and Public Recruitment The skills and experience they need ; Relevant experience of the condition, and the issues that matter to people with that condition, The willingness to reflect the experiences of a wide group of people with a condition, for example, contact with people through patient organisations, forums or self-help groups The time and commitment to attend the meetings, do background reading and comment on draft documents Good communication and teamwork skills & The ability to maintain confidentiality The roles that you will be recruiting for ; In many cases, groups tend to recruit a patient or service user . More than one member should be recruited to help provide different perspectives and social support for other patient and public members. The difference between ‘representing’ and ‘being a representative’.; Patients and members of the public cannot be expected to speak for everyone with a condition. There will be a range of different experiences. Examples of PPI in Healthcare