A Publication of Schneider Children’s Hospital | Spring 2008 | www.SchneiderChildrensHospital.org INSIDE: Stay Safe This Summer | New Neonatal Transport System | Ambulatory Chemo Unit Expanded Ambulatory Chemotherapy Unit Focuses on Comfort Besides 16 infusion bays, the Ambulatory Chemotherapy Unit will have a family dining area, nurses’ station and offices. T his fall, an expanded Ambulatory Chemotherapy Unit will make children and their families at Schneider Children’s Hospital (SCH) more comfortable during their frequent chemotherapy treatments and transfusions. Designed to offer privacy, flexible room space and pleasant distractions during treatment, the new unit is part of the hospital’s overall expansion plan. With ambulatory chemotherapy, patients can receive medication through portable pumps that allow them to walk around during treatment. The unit will treat children with cancer and serious blood diseases, including sickle cell anemia, bone marrow failure syndromes, bleeding and clotting disorders, leukemia, lymphoma and solid tumors. With Kids’ Comfort in Mind “We have one of the largest oncology and hematology programs in the New York metropolitan area,” said Jeffrey Lipton, MD, PhD, chief of pediatric hematology/oncology and stem cell transplantation. “Since 1999, we’ve almost tripled our patient population and consequently outgrown our space, so we need to build an appropriate infusion area with a pleasant atmosphere.” The Ambulatory Chemotherapy Unit will have 16 infusion bays (areas curtained off for privacy), a family dining area, nurses’ station and offices. On the Cover: The Rainbow Jam collage in Schneider Children’s Hospital’s lobby features hundreds of toy cars on their way to fun places. Created by Discover the Smile’s Lisa Martin Epstein and her eldest son, Jesse, and daughter, Emily, the piece took weeks to assemble. “We want to encourage children not just to look at a picture, but to look at the elements that make it up,” said Ms. Epstein. This sparks conversation and creativity alike, she added. 2 Schneider Children’s Hospital • New Hyde Park, New York The unit overlooks the atrium, providing an open, bright and serene environment. Each bay will have its own bed or crib and entertainment center. The rooms will be adaptable so kids can open their curtains and sit together to play video games or watch movies during treatment. There will be a small playroom with a table, so teens can play cards and board games or access the Internet. Two of the 16 bays will have walls designed for treatment that requires privacy. Coordinated Care Is Better Care The new Ambulatory Chemotherapy Unit will be housed on the hospital’s fourth floor. This floor will offer children with cancer and blood diseases “one-stop shopping” for services including ambulatory chemotherapy, bone-marrow transplant and hematology inpatient care. This means that children who begin ambulatory chemotherapy or transfusion services as outpatients can move seamlessly to inpatient care, if necessary. “The new unit is a modern facility that reflects the scope of services we provide for children with cancer and serious blood diseases,” said Dr. Lipton. “We attract patients from all over the world. This new space reflects what we have in intellectual and physical capital. It’s what our patients deserve.” r Stay Safe This Summer Take a Hike from Lyme Disease S ummer is the height of tick season, and with it comes the risk of Lyme disease. But you can protect your kids from this bacterial infection and still enjoy the great outdoors. Recognizing Lyme Disease Lyme disease occurs when an infected deer tick — a tiny tick the size of a sesame seed — connects itself to the human body and injects harmful bacteria. A red bump develops at the site, which is surrounded by a ring of redness that can look like a bull’s eye (see example, right). The rash grows Preventing Infection over several days — reaching Although antibiotics can successfully the size of a silver dollar or treat Lyme disease, reduce your larger. Then, after a number child’s risk by doing the following: of days it often goes away. ◾ Carefully check your child’s A tick bite “Just because the ring looks like a skin every night. “A tick must be goes away, don’t ignore it,” bull’s-eye. on the body for at least 12 to 24 advised Lorry Rubin, MD, hours in order to cause Lyme dischief of pediatric infectious ease,” explained Dr. Rubin. “By diseases at Schneider Children’s detecting and removing ticks each Hospital. “The Lyme disease bacteria night, you essentially remove the risk are still in the body and can cause of disease.” significant illness in children — like ◾ Use tweezers to pull ticks from meningitis — if not treated. Call your the skin. Never crush or use bare pediatrician right away.” fingers to remove them. You may spread the harmful bacteria. ◾ Reduce your child’s exposure, especially when playing around high grasses or bushes where ticks live. Whenever possible, dress your kids in long pants tucked into their socks. And make sure they are wearing bug spray. r For more information about Lyme disease, contact Dr. Rubin at (718) 470-3415. Protect Your Kids from Sizzling Summer Rays A s parents, we want our kids to live long, healthy lives. Besides efforts like feeding our children nutritious foods and buckling them up on the road, it’s just as important to protect their skin from the sun. “Most of a person’s sun exposure occurs during the first 18 years of life,” explained Leonard Kristal, MD, pediatric dermatologist for Schneider Children’s Hospital. “This exposure has a cumulative effect. The more the skin is damaged by the sun, the greater the risk of developing skin cancers later in life. Even one blistering sunburn can increase the risk.” That makes protecting our children’s skin at a young age even more important. So, how can you safely enjoy outdoor activities this summer? ◾ Each morning, apply a broad spectrum sunscreen with at least a 15 SPF on your child’s exposed skin. “Even if you don’t have outdoor activities planned, it’s still important,” said Dr. Kristal. “Lots of little exposures — like walking from the car to the grocery store — add up.” ◾ During outdoor activities, reapply sunscreen every two hours or after swimming or sweating. ◾ Try to avoid sun exposure when rays are the strongest — from 10 a.m. to 4 p.m. each day. Remember, ultraviolet rays are still dangerous when it’s cloudy. ◾ Dress your children in protective clothing whenever possible. Longsleeve shirts and long pants, hats and sunglasses all shield the sun’s rays. UV protective swim gear can also help. If your child does get sunburned, ease discomfort by applying cool compresses. If the burn blisters, call your pediatrician. r 3 Schneider Children’s Hospital • New Hyde Park, New York 3 3 To order our FREE brochure on tips for staying healthy and happy during the summer season, e-mail your name and address to KidsFirst@nshs.edu with “Summer Safety” in the subject line. Taking the Sting out of Summer S ummer is full of outdoor fun. But it can be cut short when insects invade. Here’s how to avoid the pain, itching and swelling of bites and stings this season. kids’ wellness Relating to Teenage u p t eTips m o Daughters: C sociatre for Dads s As Babying a Bee Sting Generally, bees, wasps, yellow jackets and hornets don’t bother humans unless we bother them. Teaching your children not to swat at stinging insects and to cover food and drink outside can help them avoid getting stung. But if it happens: ◾ Check to see whether the stinger is still in the skin. If so, scrape it off with a credit card. Never use tweezers, which can squeeze more venom into the wound. ◾ Apply ice or a cold compress. ◾ Consider giving your child over-the-counter antihistamine formulated for kids. ◾ Watch for allergic reaction. “It’s normal to experience swelling, pain or itching at the sting site,” explained Marie Cavuoto, MD, pediatric allergist for Schneider Children’s Hospital. “But if your child begins to react in other areas of the body, call 911 immediately since such reactions can be fatal.” Reactions can include hives, swelling of the face or throat, wheezing or difficulty breathing, dizziness or vomiting. Taming Mosquito Bites Wearing kid-friendly bug spray and avoiding the outdoors in early morning and at dusk can help prevent mosquito bites. But if your child CA Inc. What’s a dad to do when his “little girl” is suddenly a teenager? Following are some ideas on how dads can keep the lines of communication open and relate with their daughters during the teen years. gets bit, it’s usually not harmful. The real problem is infection. “Mosquito bites can become infected — not from the bite itself, but from scratching,” said Dr. Cavuoto. “This allows bacteria on little hands to enter the body.” An infected mosquito bite may cause fever and ooze yellow or form a crust around the site. It may also be surrounded by redness. If your child has an infected bite, call the pediatrician for treatment. r Looking for a pediatrician? Please call (866) 690-2006 or check out www.Schneider ChildrensHospital.org. To learn more about allergic reactions, contact the Division of Allergy/Immunology at (516) 622-5044. We’re Here for You! Need immediate help for your child? Go to Schneider Children’s Hospital’s walk-in UrgiCenter Monday through Friday from 4 p.m. to midnight, and weekends 10 a.m. to 10 p.m. Please call (516/718) 470-3800. 4 Schneider Children’s Hospital • New Hyde Park, New York ◾ Communicate on an emotional level. When it comes to teenage daughters, feelings are usually more important than “just the facts.” Try to put yourself in your daughter’s shoes to determine how she feels. ◾ Be a sensitive listener. Although your first instinct may be to give a lecture, sit back and let your daughter speak long enough so that you understand the situation and can offer fatherly advice. ◾ Show approval and affection. Compliment her on her accomplishments. It’s OK to give her a kiss on the cheek, a hug or gently touch her shoulder to demonstrate your affection. ◾ Verbalize to your daughter what she means to you. Tell her that she is special and how much you appreciate and love her. ◾ Help your daughter build self-esteem. Encourage her to develop her talents, which helps give her confidence. ◾ Learn about your daughter’s world and partake! Ask your daughter what she likes to do and join her — whether it’s heading to the mall or going to an amusement park. New Neonatal Transport System Expands Capabilities S hortly after Jake Sangiorgi was born at Huntington Hospital in October 2006, his lungs collapsed. Doctors tried to help him, but he needed lung rescue at an advanced neonatal intensive care unit (NICU). Time was running out. Jake was transported 30 miles to Schneider Children’s Hospital (SCH) using a high-frequency ventilator with nitric-oxide gas. “I knew Jake had a very small chance of surviving and they had to do something big,” said his mother, Tricia. “They had to transport him and get him breathing and functioning from one hospital to the NICU at SCH. He would not have survived without that special ventilator.” Today, Jake is a happy, healthy little boy. Neonatal transport to advanced lung rescue centers like Schneider Children’s Hospital has become more important than ever as doctors across the region treat sicker babies, said Howard Heiman, MD, SCH’s associate chief of the Neonatal Division. “Our hospital can place critically ill infants on an artificial heart-lung machine to allow their lungs to heal,” he said. The highfrequency ventilator builds a transport bridge for babies with severe breathing problems from hospitals across the region to the lifesaving resources at Schneider Children’s Hospital. A Trial Basis Two years ago, Schneider Children’s Hospital at North Shore purchased the Bronchotron-I transport ventilator and began to offer very sick babies high-frequency ventilation in transport on a trial basis. Compared with conventional ventilation, high-frequency ventilation with nitric-oxide gas brings more air into a baby’s lungs in a gentle, balanced manner. High-frequency ventilation also helps babies avoid the need for an artificial heart-lung machine. There are no similar transport systems available within 250 miles of SCH. Schneider Children’s Hospital at North Shore soon began to use the Bronchotron-I to transport babies within the hospital to the operating room or for diagnostic imaging. “We began to appreciate the value of high-frequency ventilation transport as a regular part of our system,” said Dr. Heiman. “We had been using it only on the sickest patients when nothing else was available. But it saved so many babies that we decided to incorporate it as a A special ventilator in SCH’s neonatal transport system saved standard treatment in our lung the day for Jake Sangiorgi and his parents. rescue service.” Need Info on Childhood Diseases? Schneider Children’s Hospital’s Web site includes a children’s health library as well as information on patient services, programs, physicians and other resources. Check out www.SchneiderChildrensHospital.org. 5 Schneider Children’s Hospital • New Hyde Park, New York The Bronchotron-I ventilator is part of Voyager Neonatal Transport by Airborne Life Support Systems. The system includes intensive care equipment, an incubator to keep the baby warm, monitors for heart and lung function and an oxygen and medical gas supply. Newest Version of the Transporter Schneider Children’s Hospital in New Hyde Park has upgraded its neonatal transport system and hopes to have it in operation by midsummer. The transport system now has an upgraded nitric-oxide delivery system and a battery-powered stretcher for carrying supplies. Every physician, nurse, paramedic and respiratory therapist will be trained to use the high-frequency ventilator. “The new transport system allows Schneider Children’s Hospital to move these babies in the most stable manner,” said Dr. Heiman. “The transport team can take the most advanced forms of ventilation and care to the sickest patients anywhere in the community and bring them back to our state-of-the-art lung rescue program. We can bring the rescue to the bedside at the original hospital, saving many more young lives. The ventilator also helps preserve lung health, since there’s less scarring and damage to the lungs with high-frequency ventilation. SCH is proud to continue our traditions of being first to bring the best care to the bedside of our patients.” r Schneider Children’s Hospital thanks the Billie and George H. Ross Charitable Foundation, which will supplement funds received from two other dedicated NICU donor foundations, The Tender Loving Care Foundation and The Alice T. Haviland Foundation. Need to find a d o c to r ? 1 - 8 8 8 - 3 2 1 - D O C S Better Than X-Ray Specs! Why Schneider Children’s Hospital? ONE-STOP SHOPPING Chase Turano sits on his mother, Joanne’s, lap while Jeffrey Lipton, MD, PhD, and Donna Beck, RN, assess his veins for needles and intravenous placement. Dr. Lipton and Ms. Beck are using the VeinViewer by Luminetx, which helps them “see” veins beneath Chase’s skin. This allows physicians and nurses to assess whether vasculature is accessible or not — which means fewer needle-sticks for kids. It’s a convenient, central location for your child’s medical, surgical, dental, psychiatric and educational needs. International Recognition All staff is specially trained in pediatrics. The hospital’s specialists and patients come here from all over the world. educational center The Medicine of Music Since 1996, the Songs of Love Foundation has provided the medicine of music for hundreds of sick kids. Through the foundation, more than 350 musical artists craft personalized songs for children — and their efforts never fail to lift spirits. Many Schneider Children’s Hospital caregivers have seen patients benefit from their own song of love. For more information, visit www.SongsofLove.org. Access our Web page for a wealth of information about childhood diseases. Positive learning experience www.Schneider Childrens Hospital.org Our playrooms, school, Clown Program, Pet Therapy Program, Art Program and Music Program SCH Atrium on the Rise make the hospital experience a positive one. Schneider Children’s Hospital is building a 20,000-square-foot, four-story glassenclosed atrium at the heart of the hospital. The new atrium will feature a playground for hospitalized children, including a performance stage, winter garden and areas dedicated to pet, music and art therapy. The construction is scheduled for completion later this year. On the cutting edge Leading-edge equipment is designed specifically for children. In your backyard Satellite treatment centers provide specialists close to home in Commack, Hewlett, Flushing, Brooklyn and Manhattan. we trained your doctors Doctors come here from all over the country for valuable training. NORTH SHORE-LIJ HEALTH SYSTEM HOSPITALS NORTH SHORE UNIVERSITY HOSPITAL • LIJ MEDICAL CENTER • SCHNEIDER CHILDREN’S • ZUCKER HILLSIDE • FRANKLIN • GLEN COVE • SYOSSET • PLAINVIEW • SOUTHSIDE • HUNTINGTON • FOREST HILLS • STATEN ISLAND UNIVERSITY HOSPITAL • AFFILIATIONS: PENINSULA • NASSAU UNIVERSITY MEDICAL CENTER innovative research Ongoing, up-to-the-minute research on children ensures leading-edge care. North Shore-LIJ Health System Schneider Children’s Hospital 269-01 76th Avenue New Hyde Park, NY 11040 Postmaster: Please deliver within May 19 and 23. Non-Profit Org U.S. Postage PAID NSLIJHS Michael Dowling President and CEO North Shore-LIJ Health System Philip Lanzkowsky, MD, SCD, FRCP Executive Director Terry Lynam VP, Public Relations Maria Conforti Publications Editor Kids First is published by Schneider Children’s Hospital. The information is intended to inform and educate about subjects pertinent to health, not as a substitute for consultation with a personal physician. © 2008. Printed in the U.S.A. Printed on Recyclable Paper 899M
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