Web: www.autismsupport-somd.org Mail: P.O. Box 2162 ◊ California, MD 20619 Facebook: www.facebook.com/AutismSupportSoMD Email: info@autismsupport-somd.org Twitter: @autismsomd Families helping families! May 2015 Newsletter Volume 4, Issue 8 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ About Us… What comes next? The Autism Spectrum Support Group of Southern Maryland began holding meetings in 2002. Over the past decade, support for families impacted by autism has expanded and now includes: April was Autism Awareness Month — a month filled with events to raise autism awareness and money to support autism education, research, programs, etc. Though April has ended, we here at the Autism Spectrum Support Group of Southern Maryland have more work to do. A lot more work. Meetings: Autism Spectrum Support Group of Southern Maryland meetings are the 3rd Wednesday of the month, 6:30 - 8:00 p.m., currently at the Coffee Quarter in the San Souci Shopping Center in California, MD. See the calendar on the website for meeting information for our "sister" groups in Charles County and Calvert County. Forum ListServ: The Listserv is for parents/ caregivers of people with ASDs. It’s a closed group; parents/caregivers may request to join by following the directions on the “Forum” tab on the website. Listserv members are encouraged to post questions, comments, or concerns to the group. The Listserv is a great opportunity for parents to help each other! Website: The site features newsletters, the calendar, resources, and contact information. Newsletters: Monthly newsletters feature an array of topics, events, and resources that can be read online, downloaded, and shared. Click the "Newsletters" tab on the website to see the latest posts. Facebook: Get news, events and resources right in your Facebook feed. Twitter: Follow us on Twitter for quick updates and links. Conferences and Workshops: The Autism Spectrum Support Group of Southern Maryland collaborates with other organizations in the three counties to bring expert speakers to the area while keeping the cost to families low. Camp Scholarships: With successful fundraising, the Support Group has been able to offer camp scholarships for children with autism in Southern Maryland to attend summer camps. Please join us at meetings and conferences or online on the website, Facebook, or Twitter. ! Autism Spectrum Support Group of SoMD! The first item on the To Do List is an easy one: thanking everyone who donated their time, effort, goods, and money to the many Autism Awareness events last month. On April 2nd, the students and staff at Little Flower School in Great Mills, St. Mary’s County, participated in "Light It Up Blue," a celebration by Autism Speaks along with the international autism community in commemoration of the United Nations-sanctioned World Autism Awareness Day. Little Flower School held a "tag day" — students could choose to pay a minimum of $1.00 each to wear street clothes instead of their school uniforms, with all proceeds going to the Autism Support Group. They had 100% participation and donated $191.45! Thank you so much, Little Flower School! Personalized Therapy, LLC, a Southern Maryland Occupational, Physical, Speech/Language, and ABA Therapy provider specializing in treating children with autism spectrum disorders, held "RoundUp for Autism" on April 18th at the Elks Lodge #2092 in California, St. Mary’s County. The dedication and hard work of Melanie Lohwater (Personalized Therapy owner), Kristi Getson (clinical director), Kelli Walker (marketing coordinator), all the staff at Personalized Therapy, as well as all the members of the Elks organization made this year’s Autism Awareness Day a huge success! Elks House Committee Chairperson and Member George Delaney organized the event on site. In addition to donating their time, the use of the lodge, and 100% of all food sale profits — Elks Member and owner/operator of Personalized Touch Catering, LLC, prepared the food and organized the kitchen staff — members of the Elks Lodge also held other events, including "Bowling for Autism," a no tap bowling event organized by Elks Member Karen MacRae that raised $2,500, and the ladies of the Elks donated $1000 from their own fundraising account! p. 1! May 2015 Families had fun inside and out with children’s activities, including complimentary therapeutic horse rides provided by Vandermere Farms and face painting, a photo booth, raffles, a silent auction with tremendous items to bid on generously donated by local businesses and community members, line dancing, and delicious food to enjoy. Information from various local organizations (Autism Support Group, CASCE, Learning Disabilities of St. Mary’s County, Special Olympics, EFMP, and Greenwell Foundation) was shared, funds were raised, and now local organizations, including the Autism Support Group, will be able to better serve people and families impacted by autism spectrum disorders in the months to come. Thank you! sound system for the event was organized and run by River and assisted by DJ Tommy. Check out the photos below and on Personalized Therapy’s Facebook page! Thank you to all who participated! On April 25th, Personalized Therapy, LLC, held a second Autism Awareness event at the Olde Town Pub in Leonardtown: "Rock Out for Autism." John McDonald, pub owner, organized the event and donated a generous percentage of food, drink, and carryout sales. "Rock Out for Autism" featured five live bands: The Piranhas, Blue Iris, Tonight’s Alibi, Groove Span, and Fortune Favors the Brave, all of whom donated their time. The There is so much to do now, and we have more that we want to do to expand how we support our families this coming year. The Autism Support Group Board of Directors gratefully says, "Thank you," to everyone who organized and participated in all these events. The money raised will stay local and will benefit individuals and families impacted by autism in Southern Maryland. The Autism Support Group has also received generous donations from individuals. We are truly grateful for their thoughtful and generous giving. All donations will be used to support local people and families impacted by autism. Efforts to raise awareness and funds don’t end on April 30th! Mark your calendars for Sunday, June 28th and swing by the Studio Collaborative in Waldorf. Yoga director Sean Fraser has organized two Autism fundraiser classes — a family circus yoga class and an adult yoga and meditation class. (See the event flyer below for details.) All money raised from both classes will support the Autism Support Group! Autism Awareness 2015 Elks Members ! Donations Autism Spectrum Support Group of SoMD! ! Pony Rides! Photo Booth! p. 2! Line Dancing! May 2015 ! Autism Spectrum Support Group of SoMD! p. 3! May 2015 Upcoming Events (For updated events information, visit the calendar at www.autismsupport-somd.org/calendar.) May 13, 2015 — Autism Support Group of Calvert County, 6:30 p.m. at Hunting Creek Annex, 4105 Old Town Rd., Huntingtown, MD 20639. Contact Sue Rafalowski: parentconnections@calvertnet.k 12.md.us /410-535-7387. Next meeting: June 10, 2014. May 15, 2015 — The Southern Maryland Community Resources is holding an Inclusive Bowling Extravaganza, 6:00-8:00 p.m. at Experanza Bowling Lanes, 22645 Three Notch Rd., Lexington Park, MD 20653. Cost is $12 for two hours of bowling and includes bowling shoes. Food and drinks are available for sale at the snacks counter. See the event flyer below for further details. May 20, 2015 — Autism Spectrum Support Group of Southern Maryland Meeting, 6:30-8:30 p.m. at the Coffee Quarter, California, MD. The Autism Spectrum Support Group of Southern Maryland is made up of families helping families. Its purpose is to support families i m p a c t e d b y A S D, e d u c a t e families and members of the community on issues related to ASD, raise public and professional awareness of ASD, work in partnership with other organizations to inform and educate families and community members about issues related to ASD, and advocate on behalf of people with ASD. Contact info@autismsupport-somd.org. We b s i t e : a u t i s m s u p p o r tsomd.org. Next meeting: June 17, 2015. May 20, 2015 — Autism/ADHD Support Group of Charles County, 6:30-8:30 p.m. at Panera Bread in La Plata, MD. The mission of the Charles County Autism/ADHD Support Group is to increase community awareness of autism and ADHD and provide support to families living with autism and ADHD. ! Autism Spectrum Support Group of SoMD! The group does not endorse or dismiss any specific treatment, profession, or services. Contact: A l l y s a Wa r e 2 4 0 - 4 2 3 - 5 7 5 7 (cell)/ lysaware@aol.com. Next meeting: June 17, 2015. May 19, 2015 — Charles County Special Education Citizens’ Advisory Committee (SECAC), 6:30 p.m. in the Board Room at the Jesse Starkey Administration Building, 5980 Radio Station Rd., La Plata, MD 20646. (Final meeting of the 2014-15 school year.) This group enables the Director of Special Education to seek meaningful input from parents, community partners, service providers, and school administrators on local issues relative to the provision of a free appropriate public education and the achievement of students with disabilities. SECAC is in need of parent and community participation; join SECAC now and make your voice heard. May 27, 2015 — Calvert County’s Partners for Success Center is hosting "Social + Emotional Intelligence: What Is It? Why Is It Important?" 6:30-8:30 p.m. at the Calvert County Board of Education MultiPurpose Room, 1305 Dares Beach Rd., Prince Frederick, Md 20678. See the event flyer below for workshop and registration information. June 28, 2015 — The Studio Cooperative will host two Autism fundraiser classes at our studio, 10400 O’Donnell Place, Suite 201, Waldorf, MD 20603. Join us 3:00-5:00 p.m. for FAMILY CIRCUS YOGA: Family Circus yoga is a fun and positive way to interact with your family while learning circus tricks, solo and partner yoga, ‘acro’ yoga and family yoga poses. Also join us for our Adult Yoga & Meditation Class from 7:00-8:15 p.m. All money raised from both classes p. 4! will support the Autism Spectrum Support Group of SoMD and their work for the community! Have fun with your family and raise awareness for Autism! Visit us online for more information and to register! Phone 301-861-4345. August 1, 2015 — Pathfinders for Autism will host A Night at the Blue Crabs Game, 6:35 p.m., at the Regency Furniture Stadium, 11765 St. Linus Dr., Waldorf, MD 20602. Register here to see the Southern Maryland Blue Crabs vs Sugar Land Skeeters. September 26, 2015 — Weinfeld Education Group will host its annual conference, Diamonds in the Rough 2015 — Finding Clarity: Successful Strategies for Special Learners, at the Crowne Plaza Hotel in Rockville, MD. One of the "4 C's" of diamonds is clarity. Clarity is also important for "diamonds in the rough"; our children and students with special learning needs. When faced with limited time, money and resources, how do we choose the strategies that are more likely to be successful? This year's Diamonds in the Rough day-long conference will provide guidance and training to give you the tools to sort through your options. November 13, 2015 — The Southern Maryland Collaborative for Families of Children with Disabilities will host its 4th Annual Conference, "The Out-ofSync Child: Sensory Challenges and Sensory Solutions," featuring Carol Stock Kranowitz, expert on sensory processing and sensory integration. The conference will be held at the Holiday Inn, Solomons, MD. Registration opens soon for this all-day conference. May 2015 ! ASD Information Medical Assistance New Rules on Schools Billing Medicaid for IEP Services HEALTH What's Happened? New regulations from the U.S. Department of Education now make it easier for schools to bill Medicaid (Medical Assistance in Maryland) for related services provided at school as part of a child's Individualized Educational Plan (IEP). These regulations now only require parental consent the first time that the school plans to bill Medicaid, and at any time that there are changes in the amount or type of related services that could impact Medicaid billing. They also require that the school provide notice at least annually to the parent that they have provided this consent. Why be concerned? This raises serious concerns for families whose children not only need related services at school, but also need therapies at home. For example, Medicaid provides a ceiling on the number of hours of skilled nursing services that it will cover, and if a parent consents to having the district receive Medicaid reimbursement for nursing services, that will reduce or eliminate the home nursing services covered by Medicaid. Schools must pay for nursing services if they are needed, so families who need nursing services at home should not consent to having Medicaid pay for those services in school. In addition, the services needed at school are those needed for a free, appropriate public education, while additional services are often needed for a child to succeed in the home and community environment. Be Aware and Take Action! Parents, remember, the school MUST provide and pay for all related services needed for a free, appropriate public education, and CANNOT deny those services if you refuse consent for them to bill Medicaid for the services. So if you need those Medicaid therapies at home, the prudent choice will be to refuse consent for the school to bill Medicaid for related services at school. If you have questions, contact Parents’ Place for our assistance at 410-768-9100 Adapted from the Statewide Parent Advocacy Network, New Jersey The Parents’ Place of Maryland • 801 Cromwell Park Drive • Suite 103 • Glen Burnie MD 21061 Phone 410-768-9100 • Fax 410-768-0830 • E-mail info@ppmd.org • www.ppmd.org ! Autism Spectrum Support Group of SoMD! p. 5! 2015 May 2015 Event Flyers Mattie J. T. Stepanek Poet Philosopher Reflections of a Peacemaker Come and meet Mattie’s Mother Jennifer Smith Stepanek, PhD Executive Director, Mattie J.T. Stepanek Foundation Wednesday, May 13th 4:30–6:00 PM -JUUMF'MPXFS4DIPPMt1PJOU-PPLPVU3E(SFBU.JMMT.% 3FDFQUJPOt#PPLTJHOJOH www.somdcr.org P.O. Box 560, 50 Alexander Lane, Solomons, MD 20699 | 301-997-8143 Bonnie Elward, Executive Director (belward@somdcr.org) ! Autism Spectrum Support Group of SoMD! p. 6! May 2015 ! Autism Spectrum Support Group of SoMD! p. 7! May 2015 Join us for a Highly Interactive Parenting Workshop What is Social + Emotional Intelligence? Why is Social + Emotional Intelligence so important? What do Executive Function Skills and S+EI have in common? What resources are available to help teach S+EI outside of the classroom? When: Wednesday, May 27, 2015 Where: Calvert County Board of Education Multi-Purpose Room 1305 Dares Beach Road, Prince Frederick, MD 20678 Time: 6:30pm-8:30pm Presenter: Debi Filippi, Certified S+EI Coach and Parent Educator For REGISTRATION, please contact: Sue Rafalowski, Parent Coordinator, Partners for Success, CCPS Email: parentconnections@calvertnet.k12.md.us or call Sue at 410.535.7387 Sponsored by Partners for Success, Calvert County Public Schools Cost: FREE Registration Required ! Autism Spectrum Support Group of SoMD! p. 8! May 2015 ! Autism Spectrum Support Group of SoMD! p. 9! May 2015 2015 Schedule Saturday, April 18, 2015 National Zoo 9:00 am—11:00 am Saturday, June 27, 2015 Folklife Festival 10:00 am—12:00 pm Saturday, July 25, 2015 11:00 am—1:00 pm 25th Anniversary Celebration of the American’s with Disabilities Act/ National Museum of American History Saturday, September 19, 2015 National Air and Space Museum 9:00 am—11:00 am Saturday, November 21, 2015 National Portrait Gallery 10:00 am—12:00 pm For pre-visit materials or addi onal informa on on Morning at the Museum go to h p:// www.si.edu/Accessibility/MATM . To RSVP email access@si.edu or 202-633-2921 Please note: Future dates are subject to change and addi onal museums may be added Be sure to register for the mailing list at Access@SI.edu and check the website for updates ! Autism Spectrum Support Group of SoMD! p. 10! May 2015
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