Grants Recently Awarded Grantee: Family Voices of California

Grants Recently Awarded
Grantee: Family Voices of California
Primary Investigator: Juno Duenas, Executive Director
Grant Title: Training Families to Advocate for System Change: Phase III
Grant Amount: $88,523
Duration: 18 months
Summary: To provide networking opportunities for families trained to participate as advisors to public
and private health agencies and programs serving children with special health care needs, and to
provide training and technical assistance to communities that want to initiate family advocacy training
programs.
Website: http://familyvoicesofca.org/
Grantee: Family Voices of California
Primary Investigator: Juno Duenas, Executive Director
Grant Title: Family Voices of California 2015 Health Summit and Legislative Day
Grant Amount: $15,000
Duration: 3 months
Summary: To convene key stakeholders to discuss current issues relating to the system of care for
California children with special health care needs, and to enable families to meet with legislators to
share stories about caring for their children with chronic health problems.
Website: http://familyvoicesofca.org/
Grantee: Institute for Transforming Health Care
Primary Investigator: Jeff Lobas, MD, EdD
Grant Title: Defining Standards for Pediatric Complex Care Clinics
Grant Amount: $10,000
Duration: 3 months
Summary: To develop draft certification criteria for primary care clinics serving children with medical
complexity to be designated complex care clinics and special care centers.
Grantee: Research Institute at Nationwide Children’s Hospital
Primary Investigator: Deena Chisolm, PhD
Grant Title: Children with Medical Complexity Collaborative Meeting
Grant Amount: $9,994
Duration: 3 months
Summary: To convene leading innovators in systems of care coordination for children with medical
complexity, and to move toward consensus on standardized data collection and process measurement.
Website: http://www.nationwidechildrens.org/Research
Grantee: American Academy of Pediatrics
Primary Investigator: Becky Dolan
Grant Title: Teaching Pediatric Practices to Bill for the Care of Children with Chronic Medical Conditions
Grant Amount: $4,369
Duration: 3 months
Summary: To support two webinars for pediatric practices on billing for the care of children with chronic
medical conditions.
Website: https://www.aap.org