Children’s Medical & Research Foundation Newsletter Current Fundraising Appeals: Plaster Saw St Michael’s Ward Cancer Genetic Research Programme ww rg w.c .o mrf Inside this issue: Dear Friends Letter from CEO David Doran 2 Thanks to You Thank you for the Music/New Entrance/St. Michael’s Ward/MRCG 2 Friends of Crumlin Inspired Fundraising Ideas From Around the Country 4 Corporate News Musgrave Triathlon/Diageo Triathlon 7 2010 Overseas Challenges Our Exciting New Challenges for the New Year 8 Kilometres for Kids Diary of a Dedicated Fundraiser/Kilometres for Kids News 10 Crumlin Heroes Stephen Butler 11 Help Crumlin Kids What’s On /Share your Story /Tax Efficient Giving 12 2010 Overseas Adventures Join us in 2010 for one of our many adventures and have your kilometres translated into vital funds for Crumlin kids Winter 2009 For nearly twenty years now, we have trekked, walked, jogged and pedalled our way through the continents and raised much needed funds for our extraordinary hospital. We have helped generations of sick children, providing state of the art equipment, renovating and expanding our facilities and deepening our knowledge in paediatric medicine through life saving research. We are delighted to be able to announce our challenges for 2010 and we hope that one of our adventurous itineraries excites and inspires you. Read more inside. We want our walkers to enjoy the finest walking trails of Seattle USA or to join us on the most exotic and stunning adventure walks in Rio, Brazil whilst our cyclists can say ‘ciao’ to the charms of the Italian countryside. Those interested in testing their limits with marathons or triathlons can choose from top destinations London, Chicago or New York. Our 2010 challenges have something for everyone. So why wait? Request our overseas brochure, take the first step, call today and help support our Crumlin Kids by having your kilometres translated into vital funds for our hospital. www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org 1 ou Y o t s k n a h T Dear Friends, Christmas is one of the busiest times in our Emergency Department. Serious illness, choking episodes, winter bugs, outdoor accidents, respiratory emergencies – they all happen to our children. But thanks to you and your generosity we have raised the necessary funds to expand our Emergency Department so that your child is dealt with as quickly and effectively as is possible all year around. Thank you. For most families and children, the Emergency Department is their first experience of hospital. And it can be a daunting place for any child. So for doctors and nurses the priority is to reassure the family and deal with the child’s needs as quickly and sensitively as is possible. As a result of all of your hard work by taking part in our adventures overseas, pounding the pavements for fun runs, marathons and the like, hosting gala balls, table quizzes, motorcycle runs, tractor runs, you have raised enough money for us to deliver crucial additional space. I would like to extend a particular thank you to our corporate partners Musgrave and the INTO whose efforts you can read about here and also to those who responded to our Emergency Department Appeal. By setting up a direct debit and giving monthly you allow us to plan for the future. To all those who have played their part, a very big thank you. You have played a very important role in giving us the opportunity to enhance the quality of care that a sick child receives. Your efforts will ensure that the state of the art extension will have five extra assessment/treatment rooms and a dedicated area for more minor injuries and illness as well as better working facilities to assist our dedicated staff. The new facility will be completed by January 2010. If you would like to find out more about our Emergency Department Build please contact one of our team on info@cmrf.org. Thank you again from all the team. I would also like to wish you and all yours a safe and happy Christmas and best wishes for the New Year. Kind regards, David Doran CEO 2 www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org ‘Thank you for the Music’ “Music Therapy changed (her) from being in her own world to now being interested in what is going on around her.” Just two of the many comments received from the parents of children who have availed of our Music Therapy Service here in Crumlin. Music Therapy uses music to address physical, emotional, cognitive, and social needs of our patients. It has been proven to be of great benefit to both our in- and out patients. The Music Therapy Unit has been open since 1993 when it was established with the help of Chris De Burgh. But recently with your help, we have been able to supply it with new and specially designed premises. Our fabulous music therapists, Trudi Carberry and Aine Flynn are thrilled with their new home. “The area is custom designed for us and gives us separate office space, as well as plenty of storage areas; this is important as we need to keep the clinical area as flexible as possible”. “Through the generosity of many fundraisers, the Children’s Medical & Research Foundation has been able to purchase a lovely grand piano for the unit. This gives the staff new opportunities to maximize the efficiency of the service by exploiting the wonderful resonances “I think this staggering progress is in large part down to the confidence he got and the fun he had with music. I really cannot thank you enough ...” the piano offers. It benefits all the unit’s patients but particularly those with hearing loss and sensory difficulties who can more easily touch and feel the musical sounds because of the large flat surface area of the piano and the accessibility of the vibrating strings.” In spite of the fact that the Music Therapy Unit is open for just 2 days each week there has been an increase in the number of patients who are treated. ‘We have concentrated over the last year or so in raising awareness of the unit within the hospital departments and wards and we now receive increased requests for in patient appointments. We try to make this our priority while still maintaining important links to community services, which have referred children to the unit since its inception.’ We want to thank you so much for supporting us. There will be an open day in the Music Therapy Unit during January. All are welcome to come along and view the upgraded facilities. If you want to know more, please contact our fundraising team. New Entrance Every year over 100,000 patients come through our hospital doors here in Crumlin but on recent visits our patients are experiencing something entirely new – a transformation, of sorts. Gone are the dark hues on the wall, the long boxy corridor, instead the main building’s interior, has up received a total facelift and has been opened ming welco and ous spaci to be a brighter more interior. And the verdict? The kids love it. And that is exactly what officials, architects and designers of the entrance intended to approach the building from a distance and see the brightness and colours and feel positive y and welcomed. It’s a place they can emotionall been have we you to ks empathise with. Than able to create that space. Thank you. St Michael’s Ward St Michael’s ward is a 22 bedded ward which caters for children with varying medical conditions that are chronic /long term illness which may require frequent or prolonged hospital stays. Thanks to you and in particular to Tipp FM and our Ladies’ Committee, (read more about their efforts in this newsletter), the Children’s Medical & Research Foundation has been able to commit and help with plans to revise the current parent facilities and to up-grade the sitting and coffee room in St Michael’s Ward to allow parents get valuable time to refresh while not being too far away from their child. Your generous funds will support and help meet the gold standard as set out by HIQA, • T he bathroom and showers will be upgraded with improved wheel chair accessibility to same • There will be new floor covering through out, to remove the old dark lino from yester year and create a clean fresh environment on floors and walls • The new facilities will allow for wall mounting of certain equipment to allow more space for staff and family • We aim to create a dining area for children to meet with other inpatients and maintain normal social patterns among their peers • We hope, if funds allow, to upgrade our old TVs to allow for entertainment, to minimise the negative effects of long boring days of hospitalisation. If you want to help the patients and families of St Michael’s, please call our fundraising team on 01 4096300. Medical Research Charities Group The Children’s Medical & Research Foundation is a member of the Medical Research Charities Group. The MRCG has lodged a pre-Budget Submission with the Department of Finance that outlines the requirements for continued State funding in medical research in the current recessionary environment. The Minister and Department of Health have promoted the importance of patient-focused, charity-led research through the instigation of the MRCG / HRB Joint Funding Scheme. This innovative scheme is available through a €1m allocation to the base of the HRB Budget. In our pre-Budget Submission we called for this funding to be guaranteed for the future. In addition, we called on the attention of the Government to the requirement for continued funding of a research friendly health care environment that will result in better patient outcomes and care, in addition to contributing to the knowledge economy. The State will get greater returns for the funds invested by continuing and developing further the existing MRCG/ HRB joint funding scheme and will be recognised for actively engaging with and acknowledging the role that patient organisations play in the research and development of treatments that are of critical importance to them. www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org 3 n i l m u r C f o s Friend Macroom A.F.C Score for Crumlin Kids Ballyadams Shows Its Measure On Saturday 15th of August, members and friends of Macroom Soccer Club togged out to raise money for Our Lady’s Children’s Hospital in Crumlin. Six teams took part in the adult blitz, with Wilton, Coachford, Ballyvolane and Droumree joining Macroom 1st and 2nd teams. Wilton beat Ballyvolane in the final on penalties after a well contested game ended in a draw. We want to thank all the clubs for giving up their time to take part in the blitz. Our very own Nicola O Sullivan presented the Kenny’s Jewellers trophy to the winning Wilton captain John Daly. Ballyadams may be a small parish in Laois but it is no reflection on its power as a community! It wasn’t just the grown ups however that played their part. The juniors togged out also on the day with four teams taking part in a schoolboy’s blitz, with ‘Team Dynamite’ the eventual winners. There was so much other stuff on the day with a host of food stalls, bouncy castles and mini games to keep the crowd entertained. Everyone had a great day and a grand total of €6,000 was raised for Crumlin’s sick kids. Thanks to all the teams. Martin Dempsey junior is our very own little patient for the past 3 and a half years. He is still undergoing treatment with us here in St John’s Ward. Martin and his family wanted to do something for leukaemia research understanding its fundamental importance in improving and assisting in the treatment of leukaemia. They also wanted to help the ward that Martin visits so regularly. Together with their hardworking community they raised a staggering €29,135! That on top of what they have to go through as a family. I don’t think we can really describe Ballyadams as a small parish now! The size of their heart is as big and as generous as any town in the land. Thank you Ballyadams and thank you to Martin jr and his Mam and Dad, Martin and Sarah Dempsey. BMW 318i Car Raffle Teachers for Kids 30th in the This year’s car raffle took place on October ital, Crumlin. Hosp ren’s Child ’s Lady Our at r Towe Medical The INTO under the stewardship of John Carr has built a strong and lasting relationship between the national school teachers and the hospital over the last two decades. They have raised well in excess €1m in this time. Their generosity can be felt throughout the hospital and this year they donated €127,000 that went in to fund the completion of our expansion of the Emergency Department. Go raibh mile maith agaibh. We welcome your unyielding commitment to sick kids. tive of the The winning ticket was pulled by the Chief Execu Shane man, Chair CMRF our with istle Birth Hospital, Lorcan Our nt. prese Molloy and Chief Executive, David Doran also t Ticke Cork. Co in gan winner of the BMW 318i was F O’Re in part took who one every to number: D132221. Thanks ts around the this year’s raffle and for selling so many ticke . country. You really help make the difference 4 www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org Tractors for Kids Down in Ballyragget back in 2006 a group of keen tractor drivers came together to raise funds for Crumlin. Their first trip in July 2006 took them to Waterford, a modest trip in their eyes but it was so successful that €22,000 later they decided that they could do even better! They have grown along with their collection. Now taking the route to Mullingar, they have in the region of 25 collectors, 6 tractors and drivers and two cyclists. But it’s not just the collection. Over the two days they also organise a really successful night with an auction and raffle in Fitzpatrick’s Bar. Everyone works hard to make sure it costs as little as possible (cutting sticks, making hampers, begging for raffle prizes, even losing their hair . . .) They have raised a total of approx €110,000 on the runs to Mullingar! Everyone in the group is so committed to raising money for Crumlin and the entire trip is self funded (including the overnight stay). Next year the Ballyragget crew are looking forward to doing something bigger and better for their five in a row. So if you should spy them, beep your horns, shout the name of Ballyragget and give it up for their commitment to our sick kids. Sincere thanks and praise to everyone involved in this very successful charity event. They have done us so proud. Ladies Raise Over €13,000 The Ladies Committee organised their annual Harvey Nichols Beauty Evening and Dinner and raised in excess of €13,000. The proceeds will go towards the refurbishment of St Michaels Ward. This is a 22 bedded ward which caters for children with varying medical conditions including Diabetes, Cystic Fibrosis, Haemophilia, Sickle Cell Disease and Juvenile Rheumatology arthritis. If you want or would like to help by becoming part of a committee we would love to hear from you. Please contact Anna Kinsella at admin@cmrf.org Tipp Fm day raises over €50,000 Tipp may not have pulled off this year’s hurling final but boy did they manage to pull it off for Crumlin’s kids. €51,000!!! The hardworking team at Tipp Fm and the huge number of volunteers are a credit to the county! This day of fundraising countywide was the Grande Finale of a whole series of fundraising events that took place throughout Tipperary during September. The number of events organised was astounding. From Golf classics, to a sponsored silence, to coffee mornings to cake sales to sponsored walks to a sponsored tattoo live on air – all of these added greatly to the funds raised. On the day itself in September, the Tipp Fm team and a busload of volunteers set off from the Tipp Fm Studios at first light and did a whistle-stop tour of the county. People came out in large numbers to greet the convoy which eventually landed back at Tipp Fm studios in Clonmel a full 12 hours later! Commenting on the success of Tipp Fm day, Ethel Power CEO of Tipp FM said: “The level of support was unbelievable and once again people from Tipperary proved how amazingly generous they are and in some places they followed us along the road to make their generous donations.” We at CMRF couldn’t put it better. Thank you Tipperary. The funds raised from this year’s Tipp Fm day will go to St Michael’s ward, a 22 bedded ward which caters for children with varying medical conditions that are chronic /long illness which may require frequent or prolonged hospital stays. www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org 5 notice to get ready for our We want to give you and your schools plenty of What used to be ‘Jump for Joy’ . 2010 April in Kellogg’s Fun Raise 4 Kids Week we hope with the help of our very is now called Kellogg’s Fun Raise 4 Kids and newsletter that it will be an even own fundraising hero Stephen featured in our now in its 16th year encourages nge bigger and better event in 2010. The challe ry to get active while raising count the t ghou secondary school students throu nts have participated in this funds for the hospital. To date over 100,000 stude of our most popular events on initiative which has raised over €2m. This is one Everyone in the schools seem fun. most the calendar and seems to generate the seems to enhance every g ipatin partic and nge to thoroughly enjoy the challe register for this nationwide one’s camaraderie in the school. Your school can event by calling us on 01 4096300. Chip in for Kids Chatterbox - Recycle for Crumlin Kids You know that old phone in the drawer, you see that iPod that died a death and those print cartridges that just litter the desk, why not give them to us? We REALLY REALLY want them. You know why? Because every time you donate one to us, you are actually giving support to Crumlin’s Kids. Just on donating your phone alone we could buy a small gift for a sick child. So what do you have to lose? Make their Christmas special, use the enclosed envelope and return your old mobile phone, ipod or print cartridges freepost to the Chatterbox Recycling Appeal. Thank you. The final of our National Corporate Golf Tournament was held in the beautiful Mount Juliet on Monday 28th of September. *15 &) :7 > -.1 8 )7* 38 48 5 7: .9&1K 21.3 OH 12 teams of four competed on a balmy September day. The winners of the day, with a magnificent score of 94 points stableford, were The Griffin Group who qualified for the finals by winning our Dublin event at the Royal Dublin Golf Club. The runners up were “Cocoon” (with 91pts) who won at Cork Golf club (probably the only time Dublin have beaten Cork). In third place with 89 points was the Intel team (winners in Naas). The special individual prize was won by Ian McGuinness of Roganstown with 36 points. The worst team score was 73 points but fair play for turning up! Wooden spoon in the post! As they said in the TV show Dragnet “The names have been saved to protect the innocent.” If you want to chip in for kids or would like to help by becoming part of a committee we would love to hear from you. Please contact Alan Higgins at 087 2766122 or contact golf@cmrf.org 6 www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org g your lin by donatin m ru C l, a it sp Ho rtridges y’s Children’s ds and print ca o iP Help Our Lad s, ra e m ca s, digital mobile phone s ew Corporate N Annual Musgrave Triathlon Diageo Triathlon In September hundreds of people turned out at Farran Woods, Co. Cork to take part in the annual Musgrave Triathlon. Now in its eight year, the event has raised a whopping €2.7 million to date for Our Lady’s Children’s Hospital, Crumlin and the Irish Cancer Society. The Musgrave Triathlon is a huge event in our calendar. It means so much to us in terms of the amount raised and the use we can put to the money, in making a difference to the lives of very sick children. Musgrave HR Director, Shea Fahy and Rugby personality Rocky Elsom presented a cheque for €250,000 to David Doran, CEO, Children’s Medical and Research Foundation, Crumlin and John McCormack, CEO, The Irish Cancer Society. With the endorsement of the company and its enthusiastic staff members and retail partners, we have committed the money raised from this Triathlon to complete the expansion of our emergency department. It is amazing to see what one organisation can do when there is the commitment and focus of all involved to raising funds for very worthy causes. If your company wants to partner with us to help sick kids please contact our corporate manager Johann Fox jfox@cmrf.org. Diageo Ireland employees organised the 12th annual Guinness Triathlon in aid of Our Lady’s Children’s Hospital, Crumlin in the Phoenix Park in October. Despite the wet and windy weather conditions almost 200 participants took part and raised over €50,000 for our tiny patients which was their biggest year to date. Over the past eleven years, over €300,000 has been raised by the Diageo staff and triathlon participants. Organised by an internal committee of volunteers, the huge staff involvement is testament to the enthusiasm generated internally by the Diageo committee and a great deal of thanks is awarded to this hard-working unit. “It has been a privilege working on such a fun event that raises money for Crumlin’s kids, translating our kilometres into vital funds for the hospital”, said Niamh Cashel committee member and triathlon participant. Our sincere thanks to Diageo for their hard work and commitment in making this event possible and their on-going support of our work here in Crumlin. Together we can and will make a difference What’s good for your business can also be good for our Crumlin kids Each and every day sick children from all over Ireland come through the doors of Our Lady’s Children’s Hospital, Crumlin and benefit from the expertise of our world class medical team. Leave a Gift in Your Will and Help Heal the Littlest Hearts Childhood is so precious, and when a child suffers from a childhood illness or disease, it can change their lives forever. Hopes and dreams can be lost and precious potential could be wasted. The Children’s Medical & Research Foundation helps our most vulnerable children by way of providing life saving support for sick children in Our Lady’s Children’s Hospital, and the Children’s Research Centre, Crumlin. A long term gift is a wonderful way to support the things you care about most, now and after you’re gone. Please help make all the difference and contact our legacy executive in the Foundation. They will be happy to help. The Children’s Medical & Research Foundation Our Lady’s Children’s Hospital, Crumlin 14–18 Drimnagh Road, Crumlin, Dublin 12 T: 01 409 6300 | F: 01 455 1045 Yet there are other important members of the team, members just as important as the doctors and nurses in our hospital, and they are Crumlin’s generous partners in business. Their funds have contributed to buying life-saving state of the art equipment and funding vital research. Irish businesses have recognised that customers don’t just prefer to deal with responsible companies, they insist on it. As one of Ireland’s most respected charities, Our Lady’s Children’s Hospital, Crumlin wants to help continue this partnership with Irish business. To find out more about how you and your business can build long lasting partnerships that can both enhance your business and help save sick children’s lives, contact our Corporate Fundraising Manager Johann Fox on 01-4096300 or on jfox@cmrf.org We were overwhelmed by the response that Homestead’s ‘Home from Home’ Campaign had. The response of our members, staff, retailers and customers was second to none- Our message to our retailers and loyal customers was it is simply good to give back….Be a Part of It …Every Purchase counts! Tom Shipsey, CEO Stonehouse www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org 7 0 1 0 2 s a e s r Ove s e r u t n e v Ad s d i K r o f es r t e m o l i K Brazil ure t n e v d A Walks e l c y C y Ital 18 ber 11 – m e t p e Tour S C) 1 -11 »» April r 22 – Nov 1 (TB e b o »» Oct sights es ’s iconic io R e g beach r ca »» Explo ut Rio’s stunnin T o da iju o ic k P c f e o h C it »» mm to the su olis in »» Hike op r Mounta t e l to P ar Loaf e g v u a S r T n » o » s the view »» Enjoy 8 www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org rip ur five t one of o to tough e s o o h »» C leisurely ng grades – ly’s famed cycli a It na re »» Explo f Emilia Romag o n g io in g n e r stun through »» Cycle and vineyards ic views panoram ing g villages in k a t ll breath a and ro »» Enjoy ic Rivier regions t ia r d A of the isit the side & v les and towns country st toric ca many his yourself with a enge alia »» Chall Giro d’It stage of ryone. g for eve in h t e m o s , take ges have erseas brochure umlin n e ll a h c v r Cr Our 2010 ? Request our o pport ou u s lp e it h a to vital So why w p, call today and slated in n a r t s e t e r s t me 7 508 the first your kilo call 1890 50 g in v a h Kids by pital. lor our hos fo s d n fu n o l h t a i r T o g a c i Ch l i a r T e l Seatt y 12 -22 Jul k l a W ber 1 eptem t 26 – S Augus f the se one o Sprint, »» Choo tions – three op elay nal or R io t a n r e Int resident wn »» Tour P hometo ’s Obama’s ago e in Chic and tak ral tu architec s and some nt e monum ums st muse e b e h t of orld. in the w ather in b a re city’s »» Take e of the m o s e h t zz mous ja world fa cafes s’ and blue thtaking e r b a »» Enjoy ic views panoram rom the of city f er ars Tow John Se rails & river t s e k la SA nic s in the U arks tle’s sce ie t p it a s c e e l t S a ia t t lk s n »» Wa autiful nd influe shopping areas re its be ultural a d c n t a s o s t »» Explo m e f the mark o s e u n o o m it a »» Vis ttle’s f nter Sea tlife »» Encou its vibrant nigh le »» Samp n o d n o L n i g r i V n o h t a r Ma April 24 -26 ric and the histo n h g u o r h do ities »» Run t ts of Lon pping opportun e e r t s t us pubs ho vibran ndon’s s ity’s most famo o L t u o »» Check in some of the c d »» Unwin y t i C k r o Y w e N 0 ING ov 4 - 1 N n o Marath s e street rough th h t n u R y »» York Cit ’s of New ity C e h out t k c e h C tunities »» s g oppor gallerie shoppin famous ld r o w »» Visit eums ral Park and mus elights of Cent the d »» Enjoy www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org 9 ds i K r o f s e r t e Kilom Norway Motorcycle challenge Diary of a Dedicated Fundraiser – Pat Cunningham Wow, what a trip. Over 35 friends of the Children’s Medical & Research Foundation, Crumlin embarked on a challenge of travelling the length of Norway as far as its capital Oslo in seven days this autumn. We saw it all! The twistiest, windiest roads of Norway’s most famous road ‘The Trollstigen’ gave way to the beauty of Geiranger, nestled amid the most picture-perfect glaciated valley you ever could see. Our party was a mixture of old faces and new ones that added bursts of energy on a daily basis and kept us going through the tougher stages of the trip when spirits needed to be lifted. I never thought I would eat homemade banana bread in Norway, this given to the group in Bergen having been cooked by our chef Clodagh McKenna. She joined us on the trip along with a number of other familiar faces but they settled in like they had been fundraising for decades! I did the trip, all 2000km, on a BMW 800ST machine and it was wonderful to be so close to the scenery and culture of Norway at every twist and turn. Stavanger and Dalen were my highlights. The trip finished at the Irish embassy in Oslo and there was a lump in my throat later that night as Rosaleen and Jim Boyle, who had lost a child themselves and been fundraisers for many years, spoke to everyone about why Crumlin means so much to them. Great group of people, great bunch of organisers and I am so proud to have done all this for Crumlin children’s hospital. I want to keep fundraising for the kids so I’ve just put together a calendar featuring kids from all over the country and their parents, which I’m hoping will raise a lot more money for the hospital. You can contact me through the CMRF office for more information on how to purchase one! More Kilometres for Kids News Our Dublin City Marathon heroes Led by Dublin’s 98 Presenter, Declan Pierce, 180 runners donned their running gear and ran Dublin City Marathon the October Bank Holiday Weekend. That’s a whopping 4,716 miles in total translated into much needed funds for our hospital. The sense of pride in their achievement will have hopefully replaced the aches and the pains of the day. We are so grateful to them all for pounding the pavements for us. Our New York City Marathon heroes Yet again one of the largest Irish charity teams ran this year’s New York City Marathon for us this year and they loved every kilometre! Well perhaps exaggerating slightly, but they did absolutely rave about the buzz on the streets, the crowds and the overall atmosphere in New York City, the city that never sleeps. By all accounts a lot of them didn’t either once they finished their marathon, celebrating into the wee hours. Well done to all of them. If you or any other sporting heroes want to run, walk or jog marathons, fun runs, 10ks, 10 www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org mini marathons for us, call our team here and we will provide you with your very own fundraising pack and special running vest for the day. Contact info@cmrf.org. We would be so grateful. 2010 Kerry Walk We are looking forward to decamping to Kerry again for our Walk in the Kingdom. We had so much fun this year down there and the team was so supportive we want to do it all over again. If you or your county want to organise a walk, contact us and we will support you all the way. Call today on 01 4096300 Super Hero Fun Run For those of you who may want to stay nearer to Crumlin we have very exciting plans afoot (sorry ed!) to organise a superhero fun run in May 2010. It’s all still very much under wraps but if you want to get you and your family involved in any way you can already contact our team and we might whisper the details. We guarantee you are going to love this one! es o Crumlin Her Stephen Butler: Aged 13. wife Emer and baby Tess and his Mother Valerie, Stephen has managed to come up with generous and imaginative ways to raise funds for the ward. For the last 13 years Stephen has been in and out of Our Lady’s Children’s Hospital and has become intimately familiar with Crumlin and its staff. “I have been to almost every ward here in the hospital” says Stephen “but Our Lady’s ward is my favourite. The staff here have become my friends.” And Stephen is not someone who forgets his friends. Over the last 3 years Stephen has given what he can to ensure that his friends on the ward have what they need. Ever since his beloved Dad passed away in St Vincent’s Hospital, Stephen has been inspired to raise funds for those who are sick and vulnerable. With the love and support of his family, brothers Ciaran, Sean and his He has organised sponsored cycles in his community, convinced his school to host a Non Uniform Day, inspired the Parent’s Association to utilise their baking talents for a Pancake Day and even raffled his own bike challenging his friends to give generously. Everyone who knew Stephen was immediately enthusiastic about his ideas, and his friends rallied to the call many of them having had siblings, relatives or friends who had been cared for at the hospital. They realised that being in the hospital can be difficult when you’re a kid, and they wanted to show solidarity with their friend Stephen and spread a little happiness by giving as much as they could. As a result of all his great initiatives and their generosity he was able to buy universal remote controls for all the TVs on the ward to save kids getting out of their hospital beds to change the channel and a digital camera to take better pictures of wounds for the doctors and nurses. But Stephen hasn’t stopped there. He has channelled some of his experiences as a patient by counselling other patients who might be fearful of an important operation. “It’s very important to talk to others who are going through some of the same issues I did,” he says. “To let them know that they can get through it, they are not alone, and put them at ease by sharing some of my own experiences.” Today, Stephen Butler, aged 13, is a modern day hero and is an inspiration to us here at Crumlin. Although he requires treatment several times a year, his positive outlook is a source of great pride to his loving and very proud mother Valerie, the staff in Crumlin who look forward to his visits and all his school friends, teachers and head master. Thanks to the efforts of one boy, patients’ lives have been transformed for the better and the work practices of staff have been improved. The inspiration continues. Thanks Stephen. Testimonials Mary Traynor, Clinical Nurse Manager Stephen is an inspiration to all the staff on Our Lady’s Ward. He has gone through a very difficult period in his life both emotionally and physically, yet has never waivered in his desire to help others. Stephen has raised a significant amount of money for Our Lady’s ward and all the staff are extremely grateful for all his hard work and that of his brother Ciaran. A big thank you also goes to Valerie who not only looks after her boys but is always supplying the nurses with treats. Stephen and his family have really been so generous to the ward and the hospital not only with the money they have raised, but with the support they have given to others in similar circumstances. All the staff in Our Lady’s would like to take this opportunity to Thank You All for your generosity. Mary CMRF News New Website: We will be launching a totally revamped and exciting new website very soon. Keep an eye to it. It will allow you get closer to us, become our friends, share photos with us of your events even videos. Sad Farewells: We bid farewell to Connie and Carmel this year, both long serving members of staff whose commitment to the Foundation and its mission never wavered over their many years. We wish them all the best for their retirement. www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org 11 n Help Crumli Kids information about the If you would like to receive more se email us: info@cmrf.org, plea nts, events below or other eve website: www.cmrf.org lo-call 1890 507 508 or visit our Overseas Events Upcoming Events New Year’s Eve Ball: Not yet decided for New Year’s? Then why not join our fundraiser Caroline Duffy for a Black Tie Ball in The Portmarnock Hotel & Golf Link’s, in aid of Our Lady’s Children’s Hospital, Crumlin. Starts at 7pm, there is a Pre-Dinner Champagne Reception in the Cocktail Bar which is followed by a 4 Course Meal and Monster Raffle/Auction. There will also be a Pop Art Display by Brendan Higgins with a commission to be auctioned on the night. The Marian Gale Ball will be held in the Four Seasons Hotel on Saturday 20th February 2010. Marian is celebrating 30th years in business. For more information contact Anna Kinsella on 01 4096300 or admin@cmrf.org National Events New Year’s Eve Ball The Marian Gale Ball ng or crawling why not do it event in 2010, walking, running, joggi Remember if you are organising an help. Or if you want to get to y happ be we can give you, we would for our Crumlin Kids. Any support try, like the Great Ireland Run, the coun the d aroun s event nal natio involved in any of the established will provide you with special triathlon call our team today and we Women’s mini marathon or Athlone 507 508 fundraising packs. Call you today 1850 We invite you to share personal memories and reflections about your experience at the hospital. Our Foundation is intertwined with the very personal experiences of the patients and families in the hospital. So we’re inviting you to share personal memories and reflections about your If you are one of our supporters, thank you. Your generosity has enabled us achieve so much over the years for generations of sick children. Now you’ll be delighted to hear that the Children’s Medical & Research Foundation has found a way to make your donation work even harder –and increase hugely in value. We are always looking for people to get involved, so if you feel you might be able to help or, if you just want information, tick the boxes and return this form. December 31 2009 February 20 2010 g Donegal, Eleanor Mooney is organisin One of our champion fundraisers in ’s Year New on k Wal ed 12k Sponsor her 10th Anniversary Atlantic Drive , Downings in lovely Co Donegal. Why Pub ing Sing the from oon Day at 12n il act Eleanor on 086 841 2070 or ema not join her? For more details cont eleanormooney@iol.ie Share Your Story Sign a Form. Pay Nothing. Raise 5500,000 April 1 – 11 2010 April 24 – 26 2010 July 12 – 22 2010 August 26 – September 1 2010 September 11 – 18 2010 ) October 22 – November 1 2010 (TBC 0 201 10 – 4 November experience with Crumlin. We believe that by sharing your stories with us, you deepen our understanding of our mission to serve children and families and help inspire others to give generously so that the spirit of Crumlin can continue. You can email our Communications Executive, Sarah on sbenson@cmrf.org If you are eligible, we will contact you to increase the value of your donation by up to 72%. This will cost you nothing and it won’t affect your tax or finances in any way. All you have to do is fill in a form and send it back to us freepost. Please be part of this simple yet powerful initiative and help support sick children. Remember, your information is confidential and your tax and financial affairs are not affected. It just means we can claim a valuable tax rebate on your behalf and immediately put it to good work. Please help us help sick children. Name Walking Challenges Corporate Golf Address Trekking Challenges Making a Gift Cycling Challenges Payroll Giving Triathlon Challenges Gala Events Motorcycle Challenges Legacy Giving Tel Email 12 www.cmrf.org | lo-call 1890 507 508 | info@cmrf.org Please post to: The Children’s Medical & Research Foundation, 14–18 Drimnagh Road, Crumlin, FREEPOST, Dublin 12, or email info@cmrf.org design_www.reddog.ie Live Band “Loose Change” till 12.15am with a DJ till 2am. The late bar goes on till 1.30am Tickets per person €100 For tickets contact Caroline Duffy 087 7750380 or email caroline.riley1@gmail.com Brazil Adventure Walk Virgin London Marathon Seattle Trail Walk Chicago Triathlon Italy Cycle Tour Brazil Adventure Walk ING New York City Marathon
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