CHILDTIMES P r o d uced for F r iends o f Childr en’s M edica l Cent er • 20 07, IIss ssue 2007, ue 32 To our readers Dear Friends, As Thanksgiving approaches, we are reminded of many blessings — among them the people who make life better for children every day. It is because of the dedication of our team, including employees, medical staff, volunteers, philanthropists and community supporters that in August, U.S.News & World Report ranked Children’s as one of the top pediatric hospitals in the nation. Your passion for the hospital enables us to care for children like Gerardo Chavarria III, who you will read about in this issue of ChildTimes. Last year during Thanksgiving week, the cardiac care team performed a life-saving stent procedure on Gerardo, the smallest baby to ever undergo this procedure at Children’s. Gerardo’s family looks forward to another blessed holiday with their thriving baby boy. This issue also features a story about the Hightower family, who brought their son, Jackson, to Children’s seeking an answer to his feeding problems. While in the Neonatal ICU, specialists discovered Jackson’s problems extended far beyond his feeding issues. A multidisciplinary team treated Jackson and now the Hightower family is back at home in Midland, Texas. Thank you for helping us to make an indelible mark on these young lives, as we strive to provide the highest quality care in a compassionate, family-centered environment. We are grateful for our many supporters, and we wish you and your family a memorable Thanksgiving. Sincerely, Christopher J. Durovich President and Chief Executive Officer Contents Features Emergency Department Pharmacists 12 No other children’s healthcare facility has clinical pharmacists in the Emergency Department. Their workday is a stark contrast from that of your neighborhood pharmacist. On the cover Natalie’s Journey 16 Cancer treatment for Natalie Grubb has led her to a host of patient care settings. Because Children’s offers a comprehensive array of specialists, all of her needs are met under one roof. Mending the Tiniest of Hearts 18 Weighing less than two pounds and only 12 days old, Gerardo Chavarria III underwent a life saving procedure to correct a congenital cardiac defect. The Heart Center at Children’s had the expertise to repair the baby’s heart. Saving Jackson 20 Jackson Hightower was referred to Children’s for a feeding tube. When he arrived, neonatologists discovered and treated far more than the baby’s feeding problems. Giving Back Inspires Award Honorees 22 This year, Children’s gave the Distinguished Service to Children Award to Debbie and Ric Scripps and Pam and Ken Sumrow. Both couples were inspired to give to the hospital based on personal experiences at Children’s. Departments Children’s News 2 Children’s is the nation’s first pediatric hospital to offer information via Web-enabled cell phones, U.S.News & World Report ranks Children’s among the nation’s top 30 pediatric hospitals and the Department of Health & Human Services awards a three-year grant to Children’s. Philanthropic News 6 The Sowdens establish an endowment in honor of a family member, The Children’s Trust hosts the fourth annual Dine Around and the Chip Moody Classic raises more than $250,000. Eight-year-old Lillie Rogillio was suffering from an irregular heartbeat, or arrhythmia (Supraventricular Tachycardia), when her heart nearly failed altogether. After an unsuccessful attempt to treat her condition with intravenous medications, Lillie’s cardiologists at Children’s recommended she undergo a state-of-the-art procedure called cryoablation – using cold energy instead of heat to destroy the area of the heart where the arrhythmia was located. The cardiac care team at Children’s is one of the few groups that performs this innovative technique. Upon receiving cryoablation, Lillie’s condition improved immediately, allowing the spirited third-grader to return to school and get back to living life to the fullest. Established in 1939, the Heart Center at Children’s is one of the oldest and most respected pediatric cardiac care centers in the United States and is rated among the top 10 cardiac programs in the nation. Medical News 24 Children’s launches a Palliative Care Program, the Solid Organ Transplant space opens with a new clinical director and Translation Services deploys new technology to help non-English-speaking families. Volunteer News 26 Having cancer opened grandfather David Current’s eyes to patients’ struggles, Kirk Pouttu introduces a patient to roasted marshmallows and s’mores, Bradey Bennett racks up 200 volunteer hours in less than a year and Terry Baxter goes above and beyond to bring crafts to playrooms. The physicians who treat patients at Children’s Medical Center Dallas are not employees or agents of Children’s. They are either (i) independent physicians engaged in the private practice of medicine who have staff privileges at Children’s; (ii) independent physicians who are independent contractors and have staff privileges at Children’s; (iii) physicians who are employed by The University of Texas Southwestern Medical Center at Dallas or another institution who have staff privileges at Children’s; or (iv) physicians participating in the care of patients as part of a post-graduate medical education program. ChildTimes is published quarterly by the Marketing & Public Relations department of Children’s Medical Center Dallas, 1935 Motor Street, Dallas, Texas, 75235. If you have comments or questions, please call us at 214-456-5314 or email us at jamie.yeatts@ childrens.com. For more information about Children’s, visit www.childrens.com. Coaches use injury prevention tools from Children’s to keep athletes safe Children’s News E ach year more than 47,000 children participate in sports ranging from arena football to yoga through the Plano Sports Authority (PSA) in Collin County. Keeping participants safe during practices and competitions is a top priority to the coaches who guide these young athletes. Children’s is helping PSA coaches do just that. Thanks to gifts from Kohl’s Cares for Kids, a community outreach program from Kohl’s Department Stores, the hospital has been producing and distributing injury prevention booklets and clipboards to PSA since 2002. These tools are packed with tips on treating sports-related injuries and have become valuable resources to the PSA’s 3,600 volunteer coaches. The 32-page booklet features instructions on how to evaluate minor and serious injuries, and the dry-erase clipboards have diagrams of nearly 20 stretches. Physicians on the medical staff at Children’s who frequently treat patients with sports-related injuries worked with marketing staff to create the books and clipboards, which are distributed during coaches’ meetings and sports safety fairs held at the PSA StarCenter. “We never want to see our kids get hurt, but when a child gets injured, the booklets and clipboards are a fantastic resource,” said Ness Wadley, who coaches softball, football and basketball through PSA. Kohl’s Department Stores has contributed more than $1 million to Children’s with a portion supporting the booklets and clipboards, which are created by Children’s and updated regularly. The Injury prevention booklet from Children’s is packed with helpful tips on evaluating sports-related injuries. The booklet’s color-coded sections provide details on emergency injuries, evaluation and treatment, facial injuries, heat-related issues and musculoskeletal injuries. Children’s Mobile debut is first for a healthcare institution our child is sick. You want to take your little one to the best children’s hospital in the area, but you have no idea how to get there. Your GPS (if you have one) can’t tell you what the hours are. You’ve tried dialing 4-1-1, but it rings and rings. When you finally get through, the operator can’t help you. What do you do? With Children’s Mobile (www.childrens.com/mobile), just a few clicks on your Web-enabled cell phone, Blackberry or PDA and you’re on your way. All the information necessary to locate or contact Children’s can be found on the mobile system. Children’s is the first hospital in the country to offer contact information on the mobile Web, which is free to those who subscribe to their wireless carrier’s Web services. Douglas DoNascimento, Web marketing manager at Children’s and the developer of Children’s Mobile, said as a parent himself, he realized adults with a sick child — in a hurry and under stress — need access to the most essential healthcare information without sitting at a computer or flipping through the phone book. “Children’s Mobile is like having the essentials of Children’s contacts and information in the palm of your hand,” he said. In addition to main phone numbers, maps and directions with photos of every building, the service provides driving directions from Love Field and DFW airports; and links to nearby lodging, with rates, addresses, telephone numbers, shuttle van information and Medicaid acceptance information. Users can even contact the Gift Shop, Guest Relations or the hospital’s media relations team. The information is specifically formatted for readability on a mobile communications device. Children’s is now The mobile Web system is designed for use on new or older cell phones with either large or small just a few clicks screens and is optimized for speed, loading and easy navigation. The service also is offered in Spanish, away on your Web-enabled broadening usability. mobile phone. Eventually, the service will help you find a doctor, make appointments and email patients. Y 2 2007 Issue 3 Nurses recognized at 2007 Nursing Excellence Award Ceremony hree Children’s nurses were honored at the 21st annual Nursing Excellence Awards ceremony, which recognizes nursing professionals who have made a significant difference to the profession of nursing and to the lives of patients, peers and the community. Mary Stowe, vice president and chief nursing officer at Children’s, said the Nursing Excellence Award is a particularly high honor since recipients are nominated by their colleagues. “The award honors those who have excelled in the art and science of nursing, a profession with endless possibilities to create and invent new roles,” she said. T The 2007 Nursing Excellence Award winners are: Liz Brantley, an electrophysiology nurse in Cardiology, was honored with the Registered Nurse award. Brantley has spent more than a decade at Children’s while also being an activist in the community. She has volunteered in the Neiman Marcus Adolphus Children’s Parade for the past 12 years, serves as co-chair for the annual Heart to Heart fun run and is a member of the Medical Reserve Corps for greater Dallas. “During my time at Children’s, I have learned that excellence is not achieved alone, but it is attained through a series of experiences in which others impact lives and refine character,” Brantley ond family to me.” Richard Clearfield, LVN in Gastroenterology, checks on Jessica Woolfolk, 12. Electrophysiology nurse Liz Brantley performs a pacemaker evaluation on Logan Johnson, 5. said. “Children’s is like a sec- Richard Clearfield, LVN in Gastroenterology, earned the Licensed Vocational Nurse award. He excels in caring for the highest acuity patients and often is sought by his fellow nurses for clinical advice and guidance. Clearfield has worked in the GI unit since 2000 where he played a key role in the post-op care of the only two bowel transplants in the hospital’s history. “Receiving this award is overwhelming,” Clearfield said. “I feel honored because I am able to work with some of my best friends every day. It’s a blessing to be at Children’s.” Debra Eshelman, advanced nurse practitioner for the After the Cancer Experience program in the Center for Cancer and Blood Disorders, was honored with the Advanced Practice Nurse award. Eshelman joined Children’s in 1993, and she excels in the area of clinical practice, having received the Children’s Oncology Group Clinical Practice Innovation Award for 2005-2006. She also was recognized as one of Dallas-Fort Worth’s Great 100 Nurses in 2002. Advanced nurse practitioner “I am so appreciative for this award,” Eshelman Debra Eshelman discusses college plans with Albert Young, 18, in the said. “Children’s provides numerous opportunities, CCBD outpatient area. both professionally and personally. I enjoy the chance to interact with families, impact change and mentor others.” U.S.News & World Report ranks Children’s among the top 30 pediatric hospitals in the nation Children’s has been named one of the top 30 pediatric hospitals in the country by U.S.News & World Report in the magazine’s first stand-alone “America’s Best Children’s Hospitals” issue, which hit newsstands in August. Children’s was the only hospital in Dallas — and one of only two pediatric hospitals in Texas — that placed in the top 30 of more than 250 children’s hospitals in the U.S. This is the third time that Children’s has been included in the 18-year history of the prestigious list. “This is a fitting recognition for the physicians and staff and the care they provide for our patients and their families each day,” said Christopher J. Durovich, president and chief executive officer of Children’s. “It is a privilege for us to be included among the nation’s best pediatric hospitals.” To be eligible for the list, a medical facility had to be classified by the National Association of Children’s Hospitals and Related Institutions as a freestanding children’s hospital or as a children’s “hospital within a hospital” — a large, multidisciplinary pediatric service within a medical center. “Since launching our annual rankings of hospitals in 1990, the demand for facilities dedicated to the unique needs of children has changed dramatically,” said Avery Comarow, a senior writer with U.S.News & World Report who has been editor of the “America’s Best Hospitals” annual rankings since their inception. “Improving the usefulness and relevance of the rankings in this important specialty has been a longstanding goal of the magazine.” The magazine’s previous pediatric hospital rankings were based on reputation alone. This year’s expanded version is based on a new and improved methodology, which weighed a three-part mix of reputation, death rate and such care-related factors as volume, nursing care, advanced technology and recognition by outside organizations. A detailed description of the methodology can be found online at the U.S.News & World Report web site (www.usnews.com). ChildTimes 3 Children’s News 4 2007 Issue 3 Hospital drives efforts to spread word about low-cost health insurance for children U.S. Department of Health and Human Services awards grant to Children’s ith school back in full swing, children are passing around the usual schoolyard germs that cause sore throats, colds and the flu. For the estimated 99,000 North Texas children who do not have health insurance, these bugs pose a big problem. With no healthcare coverage, their parents may not be able to afford to take them to the doctor. Yet affordable coverage is available to many of these families, although they may not know about it. The Children’s Health Insurance Program (CHIP), a jointly funded federal and state partnership, provides health insurance to children of low- to moderate-income families, and Children’s is working to ensure families are aware of the program. Through the Children’s Health Insurance Outreach Program, the advocacy group at Children’s, with the help of volunteers from the community, conducts a school-based outreach campaign, encouraging parents to apply for healthcare coverage for their children through Medicaid or CHIP offered by the state of Texas. The campaign targets six school districts — Dallas, Carrollton-Farmers Branch, Plano, Irving, Richardson and Grand Prairie — which have a combined enrollment of more than 325,000 students. Fifty-seven percent of the students are economically disadvantaged and will most likely qualify for Medicaid or CHIP. “We engage district leadership to integrate health insurance outreach into daily operations by working with superintendents, school board members, principals and student health services administrators,” said Guwan Jones, Advocacy manager at Children’s. “We also will work with individual schools within each district to train staff, including nurses, counselors, community liaisons and PTA members about CHIP and Medicaid.” Families learn about the programs through promotional fliers, special events at schools, newsletter articles and posters promoting CHIP and Medicaid. During the 2006-07 school year the outreach program distributed nearly 400,000 fliers and more than 19,500 CHIP/Medicaid applications as well as assisted 1,556 families with completing the application. Children’s also is active in the Dallas Area CHIP Coalition, which provides CHIP and Medicaid information to low- to moderateincome families. In February 2007, the group coordinated an enrollment drive at 16 local Minyard, Carnival and Sack ’n Save grocery stores. Through the event, 717 families were assisted with completing applications for 2,008 Lydia Ruiz, community outreach representative, presents information about the Children’s Health children. Insurance Program to Martina Murray, her daughter Funding for these efforts Samantha Murray, 15, and nephew Jaime Lozano, 7, at comes from generous commuBryan Adams High School in Dallas. nity support, including a multi-year grant from United Way of Metropolitan Dallas and a pledge to Children’s from the Carnival Foundation, the charitable wing of Minyard Food Stores, Inc. The money is used to provide personnel and educational materials to better inform parents about CHIP. Clinical workers at Children’s who want to earn an associate’s or bachelor’s degree in nursing have a new opportunity to do so, thanks to a grant the hospital received from the Health Resources and Services Administration, an agency of the U.S. Department of Health and Human Services. The three-year grant, funded annually at $346,892, will support the Nursing Workforce Diversity Pediatric Expertise, Education and Retention with Support Project — a proposal authored by Sally Carmen, research manager and principal investigator for the Nurse Retention, Patient Care Improvement Project, and Steve Teal, analyst for the Nursing division. The PEERS Project aims to increase the RN workforce through nursing education opportunities for clinical workers at the Sally Carmen hospital, such as medical assistants, clinical technicians and licensed vocational nurses from racial and ethnic minorities or disadvantaged backgrounds. The grant money will allow Children’s to: • Prepare qualified employees for higher education before entry into an RN or BSN program. • Advance their learning through onthe-job training and encouragement to help retain them as employees and as RN students. • Support their career advancement through financial assistance. The project will enroll 25 non-RNs and 25 ADNs each year, and it is anticipated that 90 of these participants will graduate with an RN or BSN degree by the end of the third project year. This will improve the health status of the medically underserved pediatric population at Children’s by providing and retaining a diverse, culturally competent ADN or BSN workforce. W Children’s awarded three disease-specific certifications Children’s has been awarded three disease-specific certifications from The Joint Commission — an honor that is unprecedented among pediatric hospitals in the United States. The three programs at Children’s — The Diabetes Program, the Dean Foods LEAN Families Program and the Asthma Management Program — were awarded the certifications based on a set of nationally approved clinical guidelines and performance standards. As an independent, not-for-profit organization, The Joint Commission is the nation’s predominant standards-setting, accrediting and certifying regulatory body in healthcare. A Joint Commission program certification is recognized nationwide as a symbol of quality — reflecting an organization’s commitment to meeting stringent performance standards. The Joint Commission’s disease-specific care certification programs recognize outstanding disease management and chronic care services provided by health plans, service companies and hospitals. Disease management programs help to improve the quality of life for patients with chronic conditions through education and self-management, thereby reducing the number of costly medical complications, such as emergency department visits and hospitalizations. As a leader in pediatric healthcare, the innovative disease management programs at Children’s serve as a model for hospitals across the nation. Children’s currently is the only pediatric hospital in the United States to have a disease-specific certified diabetes program awarded from The Joint Commission. The Diabetes Education Program has also received the prestigious American Diabetes Association Education Recognition Certificate. The Dean Foods LEAN Families program is the first certified pediatric morbid obesity education program in the nation. The program teaches children and their families how to manage their weight through a healthy lifestyle. The Asthma Management Program is the first certified program of its kind in Texas and one of only three such programs in the nation that helps children and their families deal with the complexities of living with asthma. This innovative program has been awarded its third consecutive year of certification. The mission of Children’s is to make life better for children by implementing innovative care programs that go beyond, rather than duplicate, what other successful pediatric hospitals provide. Construction continues at Dallas, Legacy campuses Tower III — Dallas campus Looking down from the Children’s Pavilion Skybridge, Children’s visitors and staff are enjoying a bird’s eye view of the construction on Tower III on the Children’s Dallas campus. Every week brings progress — the 10th floor infrastructure is nearing completion and construction crews expect to top out the building in early November. Crews are installing the building’s exterior glass, and the basic structure for the tower pedestrian/vehicle bridge was erected in September. Construction on the entire Tower III project remains on schedule with completion targeted toward the end of December 2008. When completed, the new tower will house expanded Construction on Tower IIIB remains on schedule with cardiac, surgical, cancer, intensive care completion targeted for the and neonatal units. Legacy campus nearing completion end of December 2008. When completed, the new tower will house expanded cardiac, surgical, cancer, intensive care and neonatal units. As the construction of Children’s Medical Center Legacy nears completion, workers are meeting the challenge of the summers’ unusual rain and the late seasonal heat. The new hospital will open in phases starting in March 2008 and will grow into a full inpatient facility offering comprehensive care for North Texas children within 12 months. One frequent visitor to the construction site at Children’s Legacy is vice president and administrator of Children’s Legacy operations, David G. Biggerstaff. “Barring weather-related delays, we are just months away from completing our work on the building that will house Ambulatory Care services,” Biggerstaff said. “When Children’s Legacy opens, the campus will offer patients and their families’ access to the largest grouping of pediatric specialists in a five-county area.” In 2006, Children’s treated more than 30,000 patients from the five-county area north of Dallas that includes Collin, Cooke, Denton, Fannin and Grayson counties. Of these children, more than 6,000 patients were admitted to the hospital. It is estimated that by 2010, the growth rate of the The new ambulatory care pediatric population of this five-county area will be building at the Children’s Legacy nine times the national average. As this population campus is just months away from completion. When grows, parents and caregivers will need access to Children’s Legacy opens, the specialized healthcare that is focused exclusively on campus will offer patients and the unique medical needs of children. Children’s families access to the largest grouping of pediatric specialists Legacy is designed to serve these families. in a five-county area. ChildTimes 5 Philanthropic News Hundreds ‘chip in for Children’s’ to raise more than $250,000 hildren’s celebrated two decades of putting, driving and chipping at the 20th annual Children’s Medical Center Chip Moody Classic. The event raised more than $250,000 to directly benefit the patients cared for at Children’s. The golf tournament, presented by Northwestern Mutual Financial Network, The Texas Financial Group — Dallas, was attended by more than 300 players. Founded by the legendary North Texas news anchor Chip Moody, the event takes on a special meaning. Moody died in 2001, and it was his own battle with Hodgkin’s disease that first opened his eyes to the intense struggle of so many young patients fighting for their lives. The golf tournament began as the former WFAA news anchor’s vision for improving the lives of children suffering from cancer and C Jordan Case, Gary Venner, Jim Carter (event co-chair) and Neill Grossman of Park Place Dealerships. Tait and Joy Cruse, Holly and Steve Clemons 6 2007 Issue 3 Carol Zellers, Jr. and Children’s chief medical officer Dr. Thomas Zellers get ready to tee off. grew to encompass all of the children and families served by Children’s. “I have stayed involved due to the effect that Chip Moody had on me,” said tournament co-chair Bill Dowling. “He never lost focus for the event’s purpose — to help children get through hard times.” Dick Terrell, chair emeritus for the tournament, said Moody was driven to make the event the best it could be and he would be proud of it today. “Continuing to build upon and fulfill Chip’s legacy makes me very satisfied,” said Terrell, also a member of the Children’s Medical Center Foundation Board of Trustees. “I know that even after we are all gone, the tournament and the values that he put in place will remain, and that makes me incredibly proud.” Flying high The Children’s Auction Party, held at the Frontiers of Flight Museum, kicked off the weekend of events. In its fifth year as the presenting sponsor, Park Place Dealerships helped to celebrate the evening filled with a live jazz band, interactive activities and a live and silent auction. Throughout the evening, hands raised high as anxious bidders attempted to win a range of items including exotic resort and golf excursions with airfare provided by American Airlines, free high-end car rentals from Park Place and golf packages at prime courses. More than 250 items of all values lined the silent auction tables. “People look forward to doing something special for one of the premium hospitals in the U.S.,” said tournament co-chair Jim Carter. “This provides them with an excellent opportunity to do so.” Steadfast commitment Because of dedicated sponsors, the tournament weekend continues to be a success for everyone involved. Northwestern Mutual Financial Network, The Texas Financial Group — Dallas and Park Place Dealerships remain devoted to the event. “The Classic is an event our firm looks forward to every year because we consider it one of the top five golf tournaments in the city of Dallas,” said Tait Cruse, managing partner of Northwestern Mutual. “We believe the tournaBeverly and George Fox celebrate winning ment has an impact way beyond their new guitar, autographed by Toby Keith. golf because it benefits one of the finest institutions in the U.S. My son, Connor, is a testament to the topnotch care Children’s provides as he was diagnosed with neuroblastoma twoand-a-half years ago. After experiencing Children’s firsthand, it is an honor to be a part of such a rewarding event.” “Children’s is important to our community and has a high standard of excellence for treating children with the best doctors and in state-of-the-art facilities,” said Jordan Case, president of Park Place Lexus. “The hospital has a passion for serving children and Park Place Dealerships supports the mission of Children’s to provide exceptional healthcare for kids. We hope our support will benefit families for many generations.” The difference Families at Children’s feel the impact from the more than $2 million raised in the past 20 years from the Children’s Medical Center Chip Moody Classic. Proceeds are designated to help provide support to families enduring the physical, emotional and financial hardships of having a seriously ill child. This year, a portion of the proceeds will benefit pediatric camps, Special Services, Palliative Care, the Neonatal Intensive Care Unit and construction at Children’s Medical Center Legacy. “Chip Moody was a dynamic person with a great vision to help support Children’s,” Jim Carter said. “Much of the reason I have personally invested my time into the event is to extend the love I have for my own children to others.” Bill Dowling (center), Children’s Medical Center Chip Moody Classic event co-chair, congratulates (from left) Vic Schmerbeck, Lance Etcheverry, Aaron Kozmetsky and Sam Dalton on winning the afternoon round on the King’s Course at Gleneagles Country Club in Plano. 2007 Children’s Medical Center Chip Moody Classic Sponsors PRESENTING GOLF CLASSIC SPONSOR Northwestern Mutual Financial Network, The Texas Financial Group — Dallas PRESENTING AUCTION PARTY SPONSOR Park Place Dealerships PLATINUM LEVEL SPONSORS American Airlines WFAA-TV, Channel 8 GOLD LEVEL SPONSORS Alliance Data GEICO Maverick Capital Charities On the Border OxyChem PGA Tour Superstore PlainsCapital Bank RBC Dain Rauscher Rodman Companies SILVER LEVEL SPONSORS ARAMARK Healthcare AT&T Austin Commercial Balfour Beatty Construction Borden Dairy Cerner Corporation Cirro Energy CompuCom Egon Zehnder International FKP Architects, Inc. Heelys, Inc. Keith W. Kennedy & Associates, LLC Attorneys and Counselors PageSoutherlandPage Sprint Nextel St. Andrews Products Whole Foods Market/Plano BRONZE LEVEL SPONSORS Affiliated Communications, Inc. Allied Plastic Supply, Inc. Hammes Company Harley-Davidson Financial Services Sayles | Werbner Terrace House Trinity Industries, Inc. TOURNAMENT FRIENDS American Food Service BBJ Linen Ben E. Keith Beverage Distributors Bertrands Inc. Carol and Tommy Canterbury Chipotle Mexican Grill, Inc. ClubCorp International Coca-Cola Enterprises Curry Printing Data Business Forms Department 56 Sales, Inc. Frito-Lay Gene and Jerry Jones Family Foundation Jack Boles Parking Judy and Jerry Diamond Evergreen Alliance Golf Limited (EAGL) E-Z-GO Marriott Casa Magna Resort Plaza Car Wash Ralph Lauren Richard Rogers Six Flags Over Texas Sodexho Health Care Services Southwest Securities, Inc. Troon Golf Whataburger Wyeth Pharmaceuticals Special thanks to a caring sponsor that wishes to remain anonymous. ChildTimes 7 Philanthropic News Sowden family establishes foundation honoring daughter, sister 8 2007 Issue 3 hink big. These words served as the driving force behind the establishment of the Kimberly Anne Sowden Memorial Endowment Fund. Spurred by a love for his sister and a desire to make children’s lives better, Kip Sowden, and his wife, Marinelle, pledged $250,000 to create the fund. The Sowden family, including parents Terry and Webb and sisters Kerry and Crozier, have high aspirations for the future and hope to see the fund’s members and funding multiply throughout the years. Kip said that Kimberly’s unwavering faith in Christ continues to inspire the family today. “Our sister was an encouragement to all of us,” said Kip, principal of Realty America Group. “It is because of her sheer will and the way in which she tackled obstacles with the utmost gusto and success that Kimberly Anne Sowden led me to emulate that same drive.” Kip has more than 22 years of experience in commercial real estate. He founded Dallas-based Realty America Group, a full-service boutique firm excelling in the execution of complex real estate transactions and specializing in real estate brokerage, finance and investment as well as commercial real estate development. “Kimberly was extremely bright and independent and she pushed me to be a better person,” Kip said. “In the process, that motivation resulted in business success, allowing Marinelle and me to pass some of that good fortune on to others.” Born with hydrocephalus, Kimberly received a grim prognosis. Despite lingering complications, she defied the odds and lived a full life. Kimberly passed away 18 years ago at the age of 28 and donated her heart, liver and kidney to three recipients who were given new life. The family treasures letters of gratitude from them. “My family received the gift of time with Kimberly thanks to research and ingenious doctors,” Kerry said. “It is my prayer that the fund will enable doctors to have the necessary medicine and supplies to give these patients more time with their families.” Initially, the fund will provide support to The Fogelson Plastic Surgery and Craniofacial Center at Children’s. Kip and Marinelle experienced the center firsthand through the Community Externship program, a Children’s trustee initiative modeled after an American Medical Association pro- T gram. It is designed to provide business, legislative and civic leaders with a glimpse into the daily operations of pediatric healthcare and the patient care services provided by Children’s. “In 2006, The Fogelson Center at Children’s treated more than 6,000 children and more than 2,000 procedures were performed,” said Hudson Akin, executive vice president of Development at Children’s. Kip said the time spent observing the surgeons correct facial deformities and give these children a new chance in life was amazing. “It was at that moment I realized we had found the place to honor my sister,” Kip said. “She had a profound love for children and after watching as a child’s life was dramatically enhanced, we knew Children’s was the place to honor Kimberly. I have no doubt that she is smiling upon all of us right now.” Crozier agreed, adding that as the siblings grew up, “Kimberly was the driving force behind the special bond our family enjoys today.” Webb and Terry said they hope Kimberly’s fund will eventually provide support to various areas at Children’s. “We’re thinking big,” Kip said. “We want to create awareness and organize fund-raisers so that the fund thrives and our children’s great grandchildren are serving as trustees for the Kimberly Anne Sowden Memorial Endowment Fund, Crozier, Kip, Kerry, Terry and Webb Sowden ultimately making a difference in the lives of hundreds of children each year.” To make a gift and to support the Kimberly Anne Sowden Memorial Endowment Fund at Children’s Medical Center Dallas, visit www.childrens.com. Kip and Marinelle Sowden Tom Thumb presents 39th annual Women’s Auxiliary Family Night at Six Flags Make the season magical with cards featuring patient artwork Thrilling roller coaster rides mixed with a variety of entertainment resulted in an evening of fun and fundraising at the 39th annual Family Night at Six Flags. The Women’s Auxiliary to Children’s Medical Center hosted the evening which raised nearly $500,000 for patients at the hospital. Since its inception, the event’s proceeds have reached nearly $10 million. njoy the gift of giving and celebrate healthy lives for children this year when you send holiday and all-occasion cards to family, friends and business associates from the Women’s Auxiliary to Children’s Medical Center card collection. These expressions of love were crafted by patients at Children’s. The new Auxiliary card program provides textured paper stock, red envelopes, a chance to proof cards online before purchase, as well as the ability to upload a photo or company logo and include a personalized message. You can choose from six holiday cards, three all-occasion cards or honor your loved one with a contribution card. Each package contains 20 cards and envelopes for $25 and is now available for purchase online. All proceeds directly support quality care for the patients at Children’s. To date, the Women’s Auxiliary has gifted more than $12 million to Children’s. To view the entire collection of cards and place your customized order, visit www.childrens.com and click on the snowman icon. “We are very grateful for the generosity of the community in its support of Children’s and Family Night at Six Flags,” said Cynthia Looney, who co-chaired From left, Kathryn Biggers, 2006-07 the event with Women's Auxiliary president; Anne Becky Everett Fisher, Becky Everett and Cynthia and Anne Fisher. Looney, co-chairs of the 2007 Family Night at Six Flags; and the Tom Thumb “Their contribucharacter participate in the ribbon cutting tions, along with ceremony at the front gates of the park. the involvement of our wonderful and valued presenting sponsor Tom Thumb, have allowed the Women’s Auxiliary to spread the word throughout Dallas/Fort Worth about this exciting, fun-filled event that is tied to a deserving cause.” Members of the Women’s Auxiliary, along with Children’s President and Chief Executive Officer Christopher J. Durovich, the Tom Thumb character and representatives from Balfour Beatty, Six Flags and Tom Thumb participated in this year’s ribbon cutting ceremony to kick off the evening’s festivities. During the event, costumed characters strolled through the park. The co-chairs said the characters play an important role before the event. “The most special time to us is the Wednesday night before Family Night at Six Flags,” co-chairs Becky Everett, Anne Fisher and Cynthia Looney said. “Every year Six Flags sends characters to roam the halls at Children’s, delivering hugs and miniature characters to the patients. This year Bugs Bunny and Tweety Bird visited and they were a hit with the families.” Thanks to Tom Thumb Food and Pharmacy, Balfour Beatty and 94.9 FM KLTY, generous long-time sponsors of the event, everyone counted Family Night at Six Flags a success. Proceeds help to fulfill the Auxiliary’s $3.1 million wePromise Campaign pledge to fund the Women’s Auxiliary 12th floor critical care unit at Children’s. E Pricing Guide Holiday cards (20 count) $25/box All-Occasion cards (20 count) $25/box Contribution card $10/each Upload of image for photo $35/order Customization of cards (up to 3 lines of text) $35/order Customization of envelope $35/order Upload of logo $50/order ChildTimes 9 Philanthropic News ‘Topping Out’ celebrates Children’s Legacy milestone riends and supporters of Children’s gathered on the new first floor at the Children’s Medical Center Legacy campus during the recent Topping Out celebration to commemorate raising nearly $11 million toward the final goal of $15 million for the hospital. Christopher J. Durovich, president and chief executive officer of Children’s, announced a recent addition of more than $1.4 million from four generous community supporters including a $500,000 pledge from the Children’s Medical Center Chip Moody Auction Party and Golf Classic and an anonymous supporter’s gift of $250,000. Alliance Data donated $400,000 to the Children’s Legacy project. Tony Good, vice president of Corporate Communications at Alliance Data, said last year the company significantly enhanced its partnership with the hospital. “We think the track record at Children’s is fantastic,” Good said. “To see the same capabilities, sensitivity and quality replicated at the Children’s Legacy campus will be phenomenal.” Marking its 20th year of business in Collin County, Darling Homes, operated by brothers Bill, Bob and Steve Darling, pledged $250,000 to the project. Bill Darling, president of Darling Homes, said he is impressed the hospital realizes the value in building in the Plano area. “The first class reputation and brand always has preceded Children’s, and that means a lot to our company,” Darling said. “Collin County deserves Children’s and it is a perfect fit for this area. My wife, Joy, and I are excited to be part of the kickoff event and to be on the ground floor of the project is a real thrill.” The Children’s Legacy Steering Committee was recognized among other community leaders for its efforts in making the new hospital a reality. The new facility will help in many different ways, including the shorter commute for area families. At the event, the community was challenged to help raise the remaining $4 million to complete the financial campaign before the hospital opens in early 2008. Michael Dardick, president of Granite Properties and chair of the Children’s Legacy Steering Committee, said he gains a lot from being a part of the project. “Through being a part of the groundwork of Children’s Legacy, I have realized the miracles that take place because of this institution,” Dardick said. “I am passionate about Children’s and the work they do, and we are lucky and F excited that the community has rallied around the project and fully embraced the idea.” Susie and Lee Waddell, who travel from their home in Celina to Children’s Dallas for their daughter’s care, expressed appreciation for the convenience of the new hospital. Mackinlee, 11, recounted her experiences at Children’s for attendees at the Topping Out ceremony. “When I was 2 months old, doctors at Children’s diagnosed my heart condition and I had open-heart surgery at age 5,” she said. “I am so happy Plano is getting Children’s. I already had two checkups at the Ambulatory Care Pavilion in Legacy and I get to keep the same cardiologist, Dr. Fixler.” “Mackinlee is a representation of the thousands of children whose lives will be improved by Children’s Legacy,” said Hudson Akin, executive vice president of Development at Children’s. “It is because of the community’s generosity that we are able to continue our mission to make life better for children each day.” Above, Lee, Mackinlee and Susie Waddell attend the Topping Out celebration. Mackinlee has been a cardiology patient at Children’s since she was 2 months old. At left, John and Marlo Pulliam stand under the stars, as the roof had not yet been placed on the atrium at Children’s Legacy. Radiothon needs your stories he 2007 Children’s Miracle Network Radiothon will broadcast live from Children’s Dec. 13-15. All funds raised through the Radiothon will benefit the patients cared for at Children’s. The CMN Radiothon is a fund-raiser that reaches out into the community to help educate the listening audience about the high quality and compassionate care that patients receive at their local pediatric hospital. If you or a loved one received care at Children’s and would like to share your heartwarming experience or thank a special caregiver who touched your life, or if you are an employee with a special story, please call the Office of Development at 214-456-8360 or send an email to officeofdevelopment@childrens.com. T 10 2007 Issue 3 A lifetime of giving — Paul P. and Dorothy H. Middleton leave behind estate gift to Children’s The Children’s Trust ‘lets the good times roll’ at 4th annual Dine Around aul P. and Dorothy H. Middleton’s legacies will continue to endure because of their giving hearts. For more than three decades, the Paul P. and Dorothy H. Middleton Fund has impacted lives at Children’s. Mr. Middleton died in 1975, giving $18,000 to establish the fund as an endowment to support the general charitaAddyson Owen, 3, represents ble and educational purposes of Children’s. Over the patients at Children's the years, the earnings from the fund have been whose lives have been used for vital areas at Children’s such as the Child changed by the Middleton's generous hearts. Life, Pastoral Care and Social Work departments. Beginning in 1986, Mrs. Middleton made generous gifts to the hospital every year, and when she died in February 2007, Children’s was named as a beneficiary of her estate. Because of her generosity, $3 million will be added to the fund. A lifelong commitment such as an estate gift ensures a healthier future for thousands of children each year. The Bradford Society at Children’s recognizes those who embrace the mission and work of Children’s by naming the hospital as a beneficiary in their personal financial and estate plans. Children’s was created from love for children and a vision for the future. It began with a handful of people who shared a deep concern for the healthcare available to children. That vision became reality in 1929, when Tom L. Bradford Sr. donated $100,000 to build a baby hospital in Dallas. Mr. Bradford never could have imagined the countless lives his gift would touch, nor could the others who have given so generously of their resources throughout the years. Four generations of Bradfords have contributed to the hospital’s development, and today Children’s is one of the most respected pediatric healthcare facilities in the country, providing care for thousands of children each year. The Middleton’s left a legacy of giving, ultimately making a difference in the lives of children for years to come. For more information about estate gifts, contact the Office of Development at 214-456-5339 or visit www.childrens.com. Members of The Children’s Trust gathered for the annual Dine Around, a chance to mingle and get to know one another in a relaxed setting. This year’s Mardi Gras-themed event kicked off with a cocktail reception at the home of Capa and Capa and Jerry Mooty, The Jerry Mooty before Children’s Trust Dine Around approximately 250 reception hosts people attended exclusive dinner parties hosted at various members’ homes throughout Dallas. P Wills and Bequests Elise and Dwayne Danner and Rebecca and Victor Schmerbeck, 2007 social co-chairs for The Children’s Trust, helped to plan the event. “We personally enjoy the opportunity to visit with friends, new and old, in a smaller group setting,” Mr. Schmerbeck said. “As The Children’s Trust has grown, we have been very fortunate that members desire to continue the tradition and are eager to open their homes for the event.” The Children’s Trust is an organization of young professionals and families that represent the next generation of philanthropic leaders, providing support to Children’s while learning more about pediatric healthcare. For more information about The Children’s Trust, call the Office of Development at 214-456-8360. Almost a century has passed since the Dallas Baby Camp came to life. That small, canvas community now is a 411-bed, state-of-the-art, pediatric hospital — Children’s Medical Center Dallas. Commitments made by those early pioneers led the way for the Children’s of today. A simple bequest from you can help build a legacy for the Children’s of tomorrow. The charitable bequest provides a way for virtually anyone to express their specific philanthropic wishes. You may make a bequest in a number of ways, including: • A specific dollar amount • A specific asset or group of assets • A percentage of the residual value of the estate Through your will, you can designate whether your gift is to be used for general purposes or to support a specific area or project. The generosity of Tom L. Bradford, Sr., began a legacy of giving that continues to this day in the hearts and lives of those who give to support Children’s. Victor and Rebecca Schmerbeck and Elise and Dwayne Danner, 2007 social chairs for The Children's Trust ChildTimes G 11 Emergency Department clinical pharmacist Brenda Darling, taking one of many calls seeking her professional advice during her shift, leads the only team of pharmacists on the emergency care team among pediatric institutions in the U.S. 12 2007 Issue 3 pharmacists I N T H E EMERGENCY DEPARTMENT ARE UNIQUE TO CHILDREN’S Pharmacist Brenda Darling is a blur as she darts from one assignment in the Emergency Department at Children’s to another. She clocks many miles on an average day, mostly at a racer’s pace. Darling and her staff are unique to U.S. pediatric hospitals: No other children’s healthcare institution has clinical pharmacists on the emergency care team. As the Children’s Emergency Department Pharmacy team leader, Darling heads up a staff of six full-time pharmacists who operate 24 hours a day, 365 days a year. hey perform many services: Working alongside the trauma care teams; educating patients about medications; taking medication histories from patients and their families; consulting with nurses and the medical staff; and double-checking medication orders for both inpatients and for those children being discharged from the ED or First Care, the hospital’s urgent care facility. Being a pharmacist in the ED requires rapid decision-making and the ability to handle multiple complex tasks — the work day is quite different from that of the traditional pharmacist. “If you’re going to be a pharmacist in the Emergency Department, you have to be prepared to be out and about and very hands on,” Darling said. “It either suits you or not — there’s no halfway.” The pace is hectic but controlled, and the T pharmacists bounce from one emergency situation to another. Sometimes though they slow down long enough to reassure parents or guardians that their child is getting the best treatment available, and to give them a hug and some tissues. PHARMACISTS ENSURE FAIL-SAFES FOR DRUG PROCEDURES Having a pharmacist on hand at all times of the day or night ensures a high level of failsafes for the rest of the ED staff. Additionally, their expertise with pharmaceuticals can be crucial to providing the most effective treatment for pediatric patients because dosing levels often must be individualized based on age and weight. Pharmacists have been in the Children’s Emergency Department since a pilot program in 2002, and their role continues to evolve. ChildTimes 13 BEING A PHARMACIST IN THE ED REQUIRES RAPID DECISION-MAKING AND THE ABILITY TO HANDLE MULTIPLE COMPLEX TASKS — THE WORK DAY IS QUITE DIFFERENT FROM THAT OF THE TRADITIONAL PHARMACIST. In addition to the ED itself, the pharmacy staff covers the Radiology Department, where they check contrast agents used for PET and CT scans as well as sedation medications used in imaging procedures, including MRIs. “We come to Radiology whenever they call us,” Darling said. Pharmacists now work closely with medical technologists who perform the imaging procedures in order to improve the safety of medication use in Radiology. The ED pharmacists check the Radiology medication order forms, verify patient allergies to medications, look at the weight of the child who will be under- going the procedure and check their creatinine levels to see if they are within the normal range. Pharmacists then doublecheck the dose being ordered and review the labels. Only then do they sign off on the procedure, Darling said. ED PHARMACISTS WEAR MANY HATS ED pharmacists also are responsible for prescriptions in the urgent care facility at Children’s. Darling estimates pharmacists on her staff double-check and sign off on approximately 85 prescriptions a day for ED patients. Darling additionally oversees the medica- tions for children being transported to Children’s from other healthcare facilities. It is not uncommon for ED pharmacists to be consulted as a source for Transport Services, Darling said. “We provide a multitude of invaluable information to them, when requested, including medication concentration verification and standard serum drug levels. “I wear a lot of different hats, as do all the ED pharmacists,” Darling said. And while she would like to increase the number of pharmacists in the ED, “this is an extremely efficient group; we know what needs to be done and we do it.” Solid organ transplant pharmacist educator teaches life-sustaining skills Hematology-Oncology pharmacy offers highly specialized services Registered pharmacist Velvette McBride spends her career preparing children for life after solid organ transplantation. On any given day, McBride teaches young patients and their families one-on-one about the anti-rejection drugs, antibiotics and other medications that will sustain them for the rest of their lives. Her patients range in age from birth to 18 years. Living with a transplanted organ is a continual balancing act. Something as simple as grapefruit juice or tomatoes can change a drug’s potency or action, and could lead to an adverse event. Because of this, McBride’s teaching is extensive, covering all aspects of a child’s daily activities after his or her discharge from Children’s. McBride instructs each child in exactly when and how to take the many drugs that keep his or her transplanted organ from being rejected by the body: • Can each medication be taken with food? • Which foods or beverages are OK and which are off-limits? • Should a drug be taken before, during or after meals? • Does the drug need to be refrigerated? • Does it taste bad? Is there a way to mask that off taste? • Can the child take over-the-counter medications, vitamins or dietary supplements? • Does the child need supplements to keep his or her electrolytes balanced? • What immunizations should they continue to receive? McBride goes over all of this and more. She also addresses patients’ lifestyle considerations. Can the child be around a sick friend or relative and, if so, how closely? How should they care for their skin to prevent infections or other damage? If the patient is a teenager, McBride discusses alcohol and drug use and sexual activity. McBride also acts as gatekeeper for the child’s prescriptions, ordering all of the necessary medications before the child is discharged and maintaining the list of drugs thereafter for the three local specialty pharmacies that fill the prescriptions. “With every patient and family interaction that I encounter, I am inspired to find creative ways to meet patient needs,” McBride said. “I appreciate that everyone learns differently, and it’s my responsibility to ensure that everything pertaining to the medications has been explained on a level that everyone can understand.” The Hematology-Oncology satellite pharmacy services the Center for Cancer and Blood Disorders ambulatory care clinic as well as the 22-bed inpatient unit, catering to the drug therapy needs of patients with cancer and blood disorders. The need for such specialized pharmacy skills is great. In 2006, the outpatient clinic had more than 12,000 visits and the inpatient unit had more than 7,000 admissions. The pharmacy makes an average of 300 chemotherapy doses per week to treat those patients. “We take pride in being an integral part of the team that helps improve the long- and short-term outlook for patients who often have a very complicated medical need,” said Max Koepsell, a clinical oncology pharmacist at Children’s. The roles of Hematology-Oncology pharmacists include: • Reviewing patient treatments. • Making up the chemotherapy. • Functioning as a resource to medical staff and nurses. • Consulting with physicians on drug therapy. • Educating pharmacy students and new hem-onc nurses. • Providing patient education. “Most of the patients we serve are followed for many years, so we have the opportunity to see the long-term impact of medical care,” Koepsell said. “The close collaborative relationship we have developed with the physicians, nurses and other Center for Cancer and Blood Disorders professionals is unique to our specialty. We work alongside a team of people who respect our input and trust our counsel,” he added. “We are proud to be members of such an outstanding team of professionals.” 14 2007 Issue 3 Central pharmacy is lifeblood of Children’s The Central Pharmacy touches nearly every child who comes to Children’s by supplying oral solid and liquid drugs, sterile medications, intravenous fluids and contrast agents. The pharmacy supplies these therapies to a majority of patients, as well as to Emergency Services and outpatient clinics. Clinical pharmacists who work in patient care areas are responsible for the medication management of their patients, reviewing and entering orders into the pharmacy computer system. These orders are transmitted to the Central Pharmacy, where the medication labels are printed. Fourteen pharmacists and 26 pharmacy technicians staffing the Central Pharmacy verify and fill orders 24 hours a day, seven days a week, using the most up-to-date computerized equipment and barcoding verification systems. In late 2006, the pharmacy installed a new state-of-the art clean room to produce sterile IV drugs in the cleanest environment possible. The Central Pharmacy is critical to the care given at Children’s. Pharmacists and pharmacy techs provide: • 2.1 million doses per year, or 9 million pharmaceutical “pieces” annually. • 140,000-plus doses for Emergency Services every year. • 55,000 to 75,000 drugs repackaged and barcoded each month. • 15,000 sterile syringes filled per week by the Intellifill Robot “Bubba”. • 900 to1,000 suspensions, ointments and capsules compounded per month. • 200 Omnicell drug supply cabinets stocked twice daily. Central Pharmacy’s goal is to send every oral or IV dose of a drug in a “ready to administer” fashion that promotes patient safety. “Most of the doses are sent to the nursing or respiratory care providers ready to go,” said operations manager and pharmacist Alan Lorenzen. “The bar codes on every dose help verify the Five Rights. We want to get patients home and back to their own beds.” The Five Rights of Medication Administration are: right patient; right time and frequency of dosing; right dose; right route of delivery; and right drug. “If you’re going to be a pharmacist in the Emergency Department, you have to be prepared to be out and about and very hands on,” Darling said. “It either suits you or not — there’s no halfway.” ChildTimes 15 Natalie Grubb arrives at Children’s in September 2005 and is diagnosed with acute lymphocytic leukemia. Natalie receives pediatric cancer treatment and once stabilized, is transferred from the Emergency Department to the Pediatric Intensive Care Unit. Natalie develops pancreatitis and diabetes as side effects from one of her cancer drugs, and is cared for by pediatric endocrinologists and gastroenterologists at Children’s. atalie Grubb arrived at Children’s in September 2005 very weak, with swelling throughout her body and a high fever. In fact, the 16-year-old’s organs were failing. She was diagnosed with acute lymphocytic leukemia, a fast-growing cancer of the blood in which the body produces too many immature white blood cells called lymphoblasts. The lymphoblasts squeeze out the production of normal white blood cells, red blood cells and platelets. Natalie’s first stop at Children’s was the Emergency Department, where she was met by a team of doctors and nurses who specialize in treating pediatric cancer. Treating cancer is complicated — even more so when the patient is a child. Drugs and dosages must be closely monitored and adjusted. Side effects of chemotherapy are frequent. The potential cascade of negative consequences from cancer treatment may have an even more profound impact on a child’s health than the original diagnosis. “There were specialists there for every part of her body,” said Jennifer Grubb, Natalie’s mother. Once stabilized, Natalie was transferred from the Emergency Department to the Pediatric Intensive Care Unit. A chaplain from Pastoral Care counseled Mrs. Grubb that Natalie should have last rites, but she refused. “I just knew it wasn’t her time yet,” she said. “God had something else in mind for her.” N NATALIE’S journey Natalie Grubb’s journey through nearly two years of cancer treatment at Children’s has taken the Plano teenager through at least a dozen patient care settings, from the Emergency Department to Ophthalmology, from the Pediatric Intensive Care Unit to Child Life. Because Children’s offers a comprehensive array of specialists, nurses and therapists, all of Natalie’s needs could be met under one roof. 16 2007 Issue 3 THE CASCADE BEGINS Natalie was moved to the 10th floor inpatient Hematology-Oncology unit for continued treatment, where doctors discovered that side effects from one of the cancer drugs she was taking were causing pancreatitis — an inflammation of her pancreas. The pancreatitis led to Natalie’s blood sugar becoming so high that she developed diabetes, which brought her into contact with the Endocrinology department and led to a return trip to the Pediatric ICU. Surgery was considered, but her chances were not deemed positive. “That was the low point for me,” said Danny Grubb, Natalie’s father. With the help of the dedicated medical After weeks of recovery in a hospital bed, Natalie has to re-learn how to walk and receives care from Occupational Therapy and Physical Therapy. staff at Children’s, Natalie pulled through — again. But after weeks of recovery in a hospital bed, Natalie had to re-learn how to walk. For that, she was treated by Occupational Therapy and Physical Therapy specialists. MORE DEPARTMENTS GET INVOLVED Since her arrival, and as the circumstances of her treatment have changed, Natalie has received care from a growing number of clinical departments at Children’s over the course of many months, including: • A gynecological consult after another bad drug reaction. • Dialysis in Nephrology for her damaged kidneys. • Radiation therapy in Radiology in addition to chemotherapy. • An EKG in Cardiology to check for damage to her heart. Natalie receives care from a number of clinical departments at Children’s, including: Gynecology, Nephrology, Radiology, Cardiology, Child Life, Ophthalmology and Ear, Nose and Throat specialists. • Two studies with Research on the effects of new drug therapies. • Visits with therapists from Child Life for post-traumatic stress. • Precautionary visits with Ophthalmology and Ear, Nose and Throat specialists. THE HEALING CONTINUES “Children’s has some of the most amazing doctors and nurses,” Mrs. Grubb said. “Natalie’s illness was so fast-paced that we barely had any time to react before we moved on to the next crisis. As parents, sometimes we’re so exhausted by what’s happening that we’re not even nice to the staff. But the nurses talk to you; they speak softly and get you through the process.” Natalie is currently receiving outpatient treatment at the Center for Cancer and Blood Disorders at Children’s. She knows the pre- Natalie is currently receiving outpatient treatment at the Center for Cancer and Blood Disorders. Her treatment will be finished Jan. 13, 2008. cise day when her treatment will be finished: “I will be done exactly on Jan. 13, 2008.” With her prognosis improving, Natalie has begun moving on with her life. She is learning to drive and started her last two years of high school in August at Plano East High School. Because she missed so much school, including most of her freshman year and part of her sophomore year, Natalie was eligible for tutoring. She worked so hard to catch up that she actually is ahead of the credits she needs to graduate. Natalie said she would like to parlay her interest in science into a career in cancer research or as a surgeon. “Everything happens for a reason,” Natalie said. “You really have no idea what’s important in life until something like this happens. Now, I’m more mature. I know what really matters.” Natalie Grubb presented these portraits to her favorite physician, Dr. Robert Bash, in the Center for Cancer and Blood Disorders on one of her treatment visits. Dr. Bash is a pediatric/hematologyoncology specialist at Children’s and an associate professor of Pediatrics at UT Southwestern. mending the tiniest of hearts Operation performed on El Paso baby a first for Children’s heart team 18 2007 Issue 3 A ALINA DAVILA COUNTS HER BLESSINGS, AMONG THEM THE HEALTHY HEART OF HER 11-MONTH-OLD SON. Last year during Thanksgiving week, Gerardo Chavarria III underwent a life-saving interventional catheterization procedure at Children’s. Weighing just over two pounds and only 12 days old at the time of the procedure, Gerardo was in no condition for a major surgery. But, tiny babies with congenital cardiac defects like Gerardo would suffer debilitating effects or die without intervention. The Heart Center at Children’s, equipped with a Cardiovascular Intensive Care Unit and a team of critical care experts, has the proficiency needed to care for the smallest babies. “In order to successfully operate on the smallest babies, the right mindset is as important as technological advances,” said Dr. Joseph Forbess, chief of Cardiothoracic Surgery at Children’s. “To increase Gerardo’s chances for survival, we utilized an unconventional approach, tailor-made just for him.” Dr. Forbess holds the Pogue Distinguished Chair in Pediatric Cardiac Surgery Research and is an associate professor of Cardiothoracic Surgery at UT Southwestern. Gerardo was born in El Paso, severely premature and weighing less than two pounds. Because of initial respiratory problems, intubation and ventilation were necessary. “It was a very scary time because, like most parents, I never imagined delivering a sick baby,” Davila said. Shortly after birth, Dr. John Plowden, director of the Children’s Heart Center in El Paso, performed an echocardiogram confirming the diagnosis of a patent ductus arteriosus, or PDA, a congenital cardiac defect. Gerardo’s vessel that connects the pulmonary artery with the aorta had failed to close at birth. After Gerardo’s PDA was successfully ligated, he rested in the Neonatal ICU at Del Sol Medical Center. Within a few days, however, Gerardo developed a critical coarctation — a narrowing of the aorta in the same area as the PDA. Dr. Plowden consulted with Dr. Forbess, and on Nov. 18, Gerardo was airlifted to Children’s. Opposite page: Dr. Kristine Guleserian, surgical director of Pediatric Cardiac Transplantation at Children’s, and Dr. Joseph Forbess, chief of Cardiothoracic Surgery at Children’s, operate on Gerardo’s heart. Far left: Gerardo Chavarria III is all smiles a few months after his final procedure. At left: Dr. Thomas Zellers, chief medical officer and pediatric interventional cardiologist at Children’s, and Dr. Vivian Dimas, a pediatric interventional cardiologist at Children’s, discuss Gerardo’s case. TINY HEART, BIG PROCEDURE Shortly after arriving at Children’s, Gerardo’s condition began to decline. An echocardiogram confirmed a severe narrowing of the aorta. Dr. Forbess considered a variety of options, and after consultation with the interventional cardiac catheterization team, it was ultimately decided that a stent could be placed to relieve the obstruction and stabilize Gerardo. The team’s flexible thinking led them to use a stent designed to relieve blockages in tiny coronary arteries which was more suitable for a baby Gerardo’s size. The approach would give Gerardo time to grow before going back in to surgically repair the aorta. This would be a first for the heart team ---the smallest baby ever to undergo the stent procedure at Children’s. Tears streamed down Davila’s face as she listened to Dr. Vivian Dimas, a pediatric interventional cardiologist at Children’s and assistant professor of Pediatrics at UT Southwestern, explain the plan. After a thorough explanation Davila gave the physicians the go-ahead, and they set to work for the procedure that would save Gerardo’s life. Gerardo was prepped and administered anesthesia before Dr. Dimas and Dr. Thomas Zellers, chief medical officer and interventional cardiologist at Children’s and professor of Pediatrics at UT Southwestern, began the procedure to fix his fragile heart. Because of his size, Gerardo presented many challenges. The team relied on landmarks from an X-ray instead of being able to check the position with a confirmatory angiogram, a catheter-based test that provides detailed images of the heart and blood vessels. In exchange of the typical supplies, a smaller and shorter balloon and a different stent were needed to avoid interference with other vessels. But even with the right equipment, a special plan was required for the stent insertion. Normally, a balloon and stent are placed by going up the vessel in the leg artery, but in Gerardo’s case, this would risk severe damage to his artery. After discussing the safest route, the team decided to access the neck artery leading to the brain. Traveling down the vessel required everyone to be in sync. One physician stood at the head and placed the stent while the other was positioned in the middle, inflating the balloon and stent and controlling the catheter. “It was very challenging but rewarding at the same time,” Dr. Zellers said. “Overall, this was a classic example of a team approach to a difficult problem utilizing everyone’s unique talents to accomplish the goal.” They carefully proceeded with one concern on their minds --- blood loss, a significant risk for a baby this small. But, with years of experience in performing balloon dilation of abnormal aortic valves utilizing this approach, they successfully completed the stent deployment in less than 10 minutes. Gerardo was transported to the Cardiovascular ICU in good condition with a minimal amount of blood loss. Dr. Dimas couldn’t wait to update Davila. As she heard the words, “He’s going to be OK,” Davila wept again, but this time they were tears of joy. “We were all thrilled with the outcome,” Dr. Dimas said. “The next day Gerardo’s tests came back normal and at that point, we felt good about everything.” SWEET SUCCESS After recovering, Gerardo spent time at home, where he grew to nearly 12 pounds. Dr. Plowden continued Gerardo’s care in El Paso, and performed an echocardiogram, which determined he was outgrowing the stent. Dr. Plowden alerted Dr. Forbess who agreed it was time for the definitive surgical repair. Davila and Gerardo made the 570-mile trek to Dallas in May. In the pre-surgical area, Davila rocked Gerardo to sleep, her confidence in the team at Children’s never wavering. “When I searched for the best hospital, I was told that Children’s was the one we needed,” Davila said. “Throughout the process, doctors eased my anxiety by using drawings.” Dr. Forbess and Dr. Kristine Guleserian, surgical director of Pediatric Cardiac Transplantation at Children’s and assistant professor of Cardiothoracic Surgery at UT Southwestern, began the last phase of Gerardo’s journey to complete healing. Gerardo lay in the Operating Room again, and once his left chest was opened, they cautiously began the stent removal. “Our biggest concern was to safely get the stent out avoiding too much tissue destruction,” Dr. Forbess said. “We needed to mend the aorta together without any narrowing. We were able to patch the area near the stent with arterial tissue that usually supplies the left arm.” All went as planned. Dr. Forbess said Gerardo will not likely require further heart surgery. FINALLY HOME After a week of recovery, Dr. Forbess declared Gerardo to be in excellent condition and sent him home. Today his development is progressing normally in every aspect. “Gerardo’s journey since birth has been remarkable; the end result is precisely what we were working toward,” Dr. Forbess said. “I foresee him leading a healthy, active life.” Davila couldn’t be happier and looks forward to another memorable Thanksgiving with the biggest blessing of all — her thriving baby boy. ChildTimes 19 hen Jennifer and Chris Hightower learned that their newborn son, Jackson, had a rare chromosomal disorder, they were distraught. A genetic test showed that Jackson, who was born nine weeks early, has Emanuel Syndrome, a rare disorder that can cause cleft palate, gastrointestinal problems and a host of other physiological defects. Shortly after his birth, the Hightowers’ most immediate concern was Jackson’s feeding. Dr. Sanjay Patel, the neonatologist treating Jackson in Odessa, Texas, near the Hightowers’ hometown of Midland, worried that the baby’s cleft palate made it difficult for him to swallow. Dr. Patel referred the Hightowers to the Neonatal Intensive Care Unit at Children’s for what they thought would be a two-day trip to determine whether Jackson needed a feeding tube. The neonatologists at Children’s soon realized Jackson had more pressing problems. “I don’t think there was a specialist we didn’t see,” Mrs. Hightower said. W saving JACKSON The Hightowers brought their infant son to Children’s for a feeding tube. When they arrived at the hospital’s Neonatal Intensive Care Unit, specialists uncovered — and treated — far more than Jackson’s feeding problems. 20 2007 Issue 3 SPECIALIST SUPPORT Access to so many pediatric specialists is not easy to come by. It took a team of caregivers with a wide range of expertise — something the Neonatal ICU at Children’s is uniquely positioned to provide to the most critically ill newborns. “We have a high level of subspecialist support to respond to all needs, so if we find an abnormality in a child, we can respond and provide the very best outcomes,” said Dr. Rashmin Savani, chief of Neonatal-Perinatal Medicine at Children’s and professor of Pediatrics at UT Southwestern. A multidisciplinary team treated a number of Jackson’s conditions. First, the Speech Therapy team confirmed that Jackson’s sucking and swallowing functions were not coordinated enough to tolerate an orthodontic plate, which would have covered the cleft palate and allowed him to feed through the mouth. Instead, he would need surgery for a gastrostomy tube, which is inserted into the stomach through the skin to facilitate feedings. But Jackson’s heart wasn’t strong enough for surgery. An echocardiogram revealed that the valve connecting Jackson’s heart to his lungs was severely narrowed. Dr. Vivian Dimas, a cardiologist at Children’s and assistant professor of Pediatrics at UT Southwestern, dilated Jackson’s cardiopulmonary valve with a tiny balloon. With the valve opened, Jackson’s heart was ready for surgery. But his intestines were not. During an upper GI exam, doctors found Jackson’s bowels were rotated inside his abdomen. If left untreated, the condition could have been fatal. Dr. Stephen Megison, chief of Trauma Services and professor of Pediatric Surgery at UT Southwestern, operated on Jackson to repair his intestines and insert the feeding tube. During Jackson’s hospitalization, doctors noticed his blood pressure was high. An ultrasound of Jackson’s kidneys showed that they were not functioning correctly, causing his blood pressure to rise and putting him at risk for a stroke. Dr. Mouin Seikaly, a nephrologist at Children’s and professor of Pediatrics at UT Southwestern, prescribed a medication to lower Jackson’s blood pressure. Later, a brain scan revealed that the connection between the left and right sides of the baby’s brain was abnormal. While this didn’t require surgery, doctors counseled the Hightowers about Jackson’s neurological function. FAMILY-CENTERED CARE Having a newborn is stressful for any parents. But having a baby with a virtually unheard of syndrome and not knowing all the potential problems is “such a roller coaster of emotions,” Mrs. Hightower said. The Hightowers found a supportive surrogate family at Children’s. As pediatric specialists treated their newborn son, they also were keenly focused on meeting the family’s emotional needs. The Hightowers first witnessed this while Dr. Dimas was determining the best way to treat Jackson’s narrowed cardiopulmonary valve. The balloon used to open up the valve is critical — a balloon that’s too small may not fully open the valve, while a balloon that’s too large could cause the valve to leak. Dr. Dimas, a mother, chose a smaller-size balloon. “Dr. Dimas told us she had a moment where she asked herself, ‘Would I use a larger balloon on my own child?’ And she said, ‘no,’” Mrs. Hightower said. “When a doctor says that, you know her heart is really in it.” The neonatal team involved Mr. Hightower in their morning rounds while they discussed Jackson’s status. Engaging with the team allowed him to better understand what was going on with his son. “They were taking care of my son like a parent would,” Mr. Hightower said. “It wasn’t like they were only doing their job.” Caregivers also were concerned about Abigail, the Hightowers’ 3-year-old daughter who had not yet met her little brother. “We told Abigail that Jackson is in the hospital and he’s getting better,” Mr. Hightower said. “But that’s hard for a 3-year-old to visualize.” Kelly Kinamore, a child life specialist at Children’s, helped the Hightowers make footprints of Jackson’s feet. They sent the prints to Abigail, who hung them on a wall in her room — right next to a photo of her brother. “This is the only way to compassionately take care of people,” Dr. Savani said. “They’re going through so much, and we can help them navigate that with the least amount of turbulence and the most amount of concern and compassion.” FORMING RELATIONSHIPS With Jackson’s most critical needs resolved, the Hightowers returned to Midland. Although Jackson will need ongoing treatment, doctors in his hometown will care for him as he grows. Dr. Savani stays in touch with not only the Hightowers but also with the neonatologist who referred the family to Children’s. The open lines of communication ensure that if Jackson requires care beyond the scope of what is available in Midland-Odessa, Children’s is ready to treat him. “Jackson is the most influential person in my life — and he can’t even talk,” Mr. Hightower said. “The staff at the hospital kept him going. I honestly think that if we hadn’t gone to Children’s, Jackson wouldn’t be here with us.” Dozens of caregivers from a variety of departments treated Jackson Hightower during his stay in the Neonatal ICU at Children’s. Back row, from left: Megan Hall, clinical dietician; Crista E. Wetherington, Ph.D., Pediatric Psychology; Jean Dubois, Respiratory Care; Dr. Mambarath Jaleel, Neonatology; Dr. Prameela Karimi (with arms crossed), Neonatology; Robin Breitzka, Pharm.D., clinical pharmacist; Dr. Rashmin Savani (center, with hands clasped), Neonatology; Ceilia Austin, RN, case manager; Stephanie Matthews, RNC, MSN, NNP, Neonatology; Aimee Dunnam, RN, MSN, CNNP, advanced practice service manager; Elisabeth Lee, clinical dietician; Kelly Kinnamore, child life specialist; Ronda Hefton, RN, MBA, Neonatology/Fetal Heart Program Manager; Beverly Kearnan, RN. Front row, from left: Kathryn Blackman, Occupational Therapy; Dr. Mouin Seikaly, Nephrology; Lorie Malone, MS, CCC-SLP, Speech Pathology; Stacy Vaca, LMSW, clinical social worker. Neonatal Intensive Care Unit at Children’s poised for growth The Neonatal Intensive Care Unit at Children’s is only a sign of things to come. In 2009, the hospital will welcome a larger Neonatal ICU in Tower III, phase II. Leading the growth effort is Dr. Rashmin Savani, chief of Neonatal-Perinatal Medicine at Children’s, professor of Pediatrics and chief of the Division of NeonatalPerinatal Medicine at UT Southwestern. “This is a huge undertaking, and we have full commitment from UT Southwestern, Parkland and Children’s to collaborate and integrate a neonatal program,” Dr. Savani said. The vision is for a program that will provide neonatal care under one division, so that doctors at Children’s, Parkland and UT Southwestern will follow a standard protocol throughout the campus. Children’s already draws on the expertise from the Division of Neonatal-Perinatal Medicine at UT Southwestern, which has extended its physician coverage with 12 neonatologists to the Neonatal ICU at Children’s. Supporting these physicians is a team of neonatal nurse practitioners, neonatal nurses, respiratory therapists and pharmacy support. Plans are also under way to establish the Crystal Charity Ball Family Support Center, a state-of-the-art facility inside the new Neonatal ICU that will address the social and emotional needs of newborns’ families. The mission of the center, established by a generous gift from the Crystal Charity Ball, is to provide space and support for parents, siblings and other family members to lead as normal a life as possible within the Neonatal ICU and to provide hands-on training to parents in preparation for bringing their newborns home. A PASSION FOR SHAPING LIVES, GIVING BACK INSPIRES AWARD HONOREES Many different roads lead volunteers to Children’s. For two couples, Debbie and Ric Scripps and Pam and Ken Sumrow, the journey to serving at Children’s began with personal experiences of their own. The couples were recently honored with the Distinguished Service to Children Award, which has been presented annually to those whose visionary service to children sets them apart from their peers. 22 2007 Issue 3 T he volunteer leadership at Children’s is a top-notch, passionate group,” said Dan Chapman, chairman of the Children’s Medical Center Foundation Board of Trustees. “The work these two couples have accomplished is proof that one family can impact lives in a big way.” INVESTING IN FUTURES Mr. and Mrs. Scripps have shaped the lives of children for years, inspiring others to make a difference. The hope they bring to Children’s stems from their experience at Minneapolis-St. Paul Children’s Hospital when their youngest son, Andy, was treated in the Neonatal Intensive Care Unit. “When we moved to Dallas, volunteering at Children’s was first on my list and it quickly became a passion,” Mrs. Scripps said. “The week I spent with Children’s patients at Camp John Marc cemented my dedication, and I decided then that I will volunteer at the hospital until I can’t walk anymore.” Their steadfast commitment to Children’s began in 1987, and in 2002, the couple pledged $1 million to the wePromise Campaign for Children’s Dallas to help support renovation and construction. Their generosity helped establish a dedicated Neonatal ICU, fund the purchase of new radiology equipment and create an endowment fund in support of Child Life. The duo also has tirelessly given through active leadership roles. Mrs. Scripps has been a mainstay on a number of the hospital’s governing boards and committees for more than 20 years. Mr. Scripps was appointed to the Children’s Board of Trustees in 2001, and serves on several task force initiatives at the hospital. “We are proudest of the fact that Children’s is striving to be preeminent,” Mr. Scripps said. “After 26 years at the hospital, we have found that everyone involved is one big family working together, all for the interest of children.” Opposite page, Christopher J. Durovich, center, president and chief executive officer of Children’s, congratulates Ken and Pam Sumrow and Debbie and Ric Scripps, recipients of the 2007 Distinguished Service to Children Award. For two decades, the families have been affiliated with Children’s through philanthropy and service. FAMILY TIES A united family is something Mr. and Mrs. Sumrow know well. Their strong devotion to one another was evident during the biggest fight of their lives — cancer. Mr. and Mrs. Sumrow experienced Children’s firsthand nearly 20 years ago after their son, Clint, was diagnosed with Ewing’s sarcoma at age 5. Although Clint was considered free of cancer a year later, the Sumrows’ dedication to Children’s remains today. “While Clint was receiving final treatments, I read a brochure about the creative ways people had given back to Children’s,” said Mr. Sumrow, tennis director at High Point Tennis Center. Drawing from this inspiration, Mr. and Mrs. Sumrow created the idea to host a junior tennis tournament, asking players to Tina and Duffy Oyster seek pledges with all of the procelebrate the 2007 Distinguished Service to ceeds going to Children’s. Since Children Award recipithen, the Children Helping ents at the Belo Children Junior Singles Tennis Mansion. Tournament has raised more than $2 million for vital pediatric clinical research and treatment programs designed to fight pediatric cancer. In addition to furthering cancer research efforts, proceeds support the Center for Cancer and Blood Disorders and the After the Cancer Experience program at Children’s. “These two couples have nurtured and strengthened the hospital through their passion, commitment and philanthropy,” said Christopher J. Durovich, president and chief executive officer of Children’s. “They have built on the strong foundation that was started 94 years ago by the enterprising and courageous group of nurses on the front lawn of Parkland hospital. Our honorees understand and place a value on the importance of our future, as their hearts have aligned with the hearts of those we serve.” ChildTimes 23 Palliative Care service enhances quality of care for sickest patients hen a family learns that its child has a life-threatening or lifelimiting illness, the care that it receives has a dramatic impact on their lives. “How we help and treat these children and their families is hugely important,” said Dr. Bob Bash, an oncologist at the Center for Cancer and Blood Disorders at Children’s and associate professor of Pediatrics at UT Southwestern. To ensure that Children’s delivers the best care to such patients and their families, the hospital in 2006 launched the Palliative Care Program. Dr. Bash, who also serves as the medical director for the program, is one of several caregivers on the team. Registered nurses Kaye Schmidt and Michelle Pinker serve as the program’s nursing director and program manager, respectively. In general, palliative care focuses on the comfort and management of symptoms, as well as the emotional, social and spiritual needs of families with children who have life-limiting or chronic conditions. At Children’s, the Palliative Care Program is a consultative service. When an attending physician believes that a patient and his or her family may benefit from the service, he writes for a consult from the Palliative Care Program. After reviewing the patient’s history, Palliative Care requests a family care conference with the child’s family and other caregivers involved in his or her treatment. This includes the primary attending medical team and any other disciplines involved in the child’s care, such as social work, child life, physical therapy, respiratory therapy, psychiatry, pastoral care or other disciplines. This collaborative approach is important so that all caregivers understand the family’s needs and wishes for the child’s care plan, and so the care delivered across all disciplines is consistent. “We don’t replace the child’s primary medical team,” Pinker said. “We’re here only as a consultative service.” The Palliative Care team also may educate the family about comfort measures, decisionmaking, and discuss end-of-life concerns and From left, Kaye Schmidt, Dr. discharge options. If a family needs help workRobert Bash and Michelle ing with a home healthcare company or insurPinker make up the Palliative ance provider, the Palliative Care team can Care team at Children’s. assist. “We’re an advocate for the child and Palliative Care focuses on the comfort, emotional and family,” Pinker said. spiritual needs of families The Palliative Care Program not only with children who have lifelimiting or chronic conditions. improves the quality of care for children and families, but it may also reduce unnecessary costs related to treatments, length of stay, unplanned emergency room visits and admissions. In addition to coordinating care for children with a life-limiting illness, Palliative Care may also be called on to help families when a child dies as a result of sudden trauma. Medical News W 24 2007 Issue 3 Solid Organ Transplant clinical space opens with new director In August, Children’s dedicated a new, centralized clinical and administrative space on the main hospital’s second floor for the Solid Organ Transplant Program. The program now includes heart, kidney, liver and intestinal transplant services along with the resources to care for children whose medical condition may require the transplantation of more than one organ. Dean Henderson, administrative director of the program, is proud of the hospital’s commitment to this highly specialized area of care. “Children’s recognizes that a transplant affects the entire family; we’re committed to providing all our pediatric patients and their families the support they need before, during and after a transplant procedure,” he said. “Our program elevates the quality of pediatric transplant services available in the Dallas area.” In 2006, Children’s became the first pediatric hospital in the nation to combine its solid organ transplant programs into one division. The comprehensive program offers patients the services of a multidisciplinary team — from surgeons to nutritionists to financial counselors — that are all experts in the highly specialized world of transplant care. In addition to the core team, the transplant program will use all of the available medical resources that Children’s has to offer. With the proximity of other local hospitals, the program also offers a unique continuum of care — as the child grows to adulthood, Children’s assists patients in transitioning to qualified adult healthcare programs that provide experienced transplant care. From left, Solid Organ Transplant Program director Dean Henderson, Dr. Mouin Seikaly and program manager Cynthia Crawford cut the ribbon for the program’s new clinical and administrative space Aug. 17. Children’s uses video tool to offer translations for English-limited families For families who do not speak English, talking to nurses and doctors about their child’s illness can be challenging. To bridge the communication gap, Children’s recently introduced a new high-tech tool called MARTTI (My Accessible Real-Time Trusted Interpreter) to several departments at Children’s. MARTTI provides two-way digital video/audio communication, allowing a patient family to hear, see and talk to a remote interpreter live via a wireless computer connection. Each unit has a 17-inch LCD screen, webcam and microphones. The units are either mounted on a pedestal with wheels for portability, or set on a desktop. By clicking a button, a caregiver can connect with an operator from The Language Access Network — the company that developed MARTTI — and explain which language is needed. A TLAN operator then transfers the call to an interpreter. Interpreters for 150 languages, including American Sign Language, are available. “Families appreciate that face-to-face interaction,” said Meagan Gaither, a nurse in Emergency Services who uses MARTII on a daily basis. When a 7-yearold patient and her mother, both of whom are deaf, came to Children’s, Gaither used MARTTI to connect them to an American Sign Language translator. “The mother was so apprecia- From left, Linda Balcioglu of theTranslation Services department, tive she teared up,” Gaither said. and nurse Tonya Bowen demonstrate the MARTII portable unit, Since the devices which allows patient families to hear, see and talk to a live interpreter. were deployed in May in Emergency Services and on floors B4 and B6, Children’s has placed more than 700 calls through MARTTI. Before the units were deployed, caregivers needing an interpreter had to request a translator through Translation Services or use the language line, which provides interpretation over the telephone. A major benefit of the service is that MARTTI allows patients and interpreters to see one another. “Studies indicate that anywhere from 65 to 80 percent of communication is done through body language,” said Edgardo Garcia, director of Translation Services. “This is where the communication takes place.” Children’s Infant Pulmonary Lab testing device first in North Texas From left, Pulmonary ith only 38 Infant Pulmonary Laboratory Laboratory respiratory (IPL) testing devices available in the world therapists Paul Klemm and and only one in North Texas — located at Children’s William Ruiz run tests on the new Infant Pulmonary — the hospital once again is the one that parents Laboratory (IPL) device. turn to when their child needs the best of care. Only 38 IPL testing devices Children’s is the only hospital in North Texas to exist in the world, and Children’s is the only hospital have an IPL testing machine that can measure the in North Texas to have one. function of an infant’s lungs. The IPL provides the most accurate, advanced pediatric pulmonary function testing available — no matter how tiny the patient’s lungs. Early detection of poor lung function in patients 3 years or younger means doctors can provide earlier medical intervention in the treatment of respiratory illnesses, thus avoiding permanent damage to growing tissue. The IPL device allows the medical staff at Children’s to determine how severely lung function is impaired and provides the critical information that doctors need to develop treatment plans. The IPL at Children’s is so highly regarded as a diagnostic testing aid that it has been chosen by the North American Cystic Fibrosis Foundation for use in a national infant lung function study. The Pulmonary Function Laboratory at Children’s offers comprehensive pulmonary function testing for children of all ages; more than 1,200 procedures a month are performed for patients with health issues related to lung function. The new IPL testing device is part of the recent renovation and expansion of the testing lab that was made possible through a generous gift by the Pogue Foundation. How important is it for children to have this kind of testing available? More than 3,000 inpatient hospitalizations and more than 6,000 Emergency Center visits at Children’s are attributed to pulmonary disease-related causes. There are also thousands of outpatient visits each year for conditions ranging from chronic lung disease due to premature birth, asthma and cystic fibrosis. Beginning in early 2008, Children’s Ambulatory Pavilion in Legacy will open a Pulmonary Function Lab which will also have an Infant Pulmonary Laboratory testing device — bringing a total of two IPL devices available exclusively at Children’s. W ChildTimes 25 Volunteer shares connection with patients avid Current’s first interaction with Children’s was as a concerned grandparent, helping his granddaughter fight an infection during her hospital stay in the mid-1990s. Since that time, Current — an asset manager for an air conditioning, heating and plumbing company by trade — has become a volunteer who has amassed more than 1,000 hours of service. “I love it,” Current said. “I wish I was up here even more. If I could, I would work here 60 hours a week.” His adoration of the Children’s staff is extremely evident and is only surpassed by his intense desire to do more for the hospital. Ask all those who come into contact with him — from clinicians and staff to patients and their families — and they will attest to the same. Until November, Current was volunteering two nights a week, usually as a sitter or a volunteer in one of the playrooms. But it was about that time when doctors diagnosed him with colon cancer, and Current was forced to take a seven-month leave of absence from his volunteer duties. That time away from Children’s, Current said, was more painful than any chemotherapy treatment he received. Most of all, Current said he missed the interactions he had with cancer patients — the same ones whom he can now relate to on a more personal level given his recent experiences. “I had to carry a little pump with me for six months, much like what a lot of these kids have to do when they’re receiving cancer treatments,” Current said. “If I could have been here, I could tell them, ‘Hey, look at me. I’m going through the same thing. Don’t worry, we’ll both be just fine.’” Current’s optimism is a beacon of hope for so many. He has since returned to volunteering at Children’s and vows to be back in full swing before too long. “David wanted to jump right back to what he was doing before, but I wanted him to start back slowly,” volunteer coordinator Rebecca McBride said. “He’s just waiting for the word from me.” Current promises to share his story with anyone who asks. This gives him a special connection with the children that separates him from other volunteers. Having cancer has opened his eyes to the struggles that patients at Children’s endure on a daily basis. It has allowed him to be more sympathetic and understanding of their needs while, at the same time, strengthening his resolve to help others at the hospital in any capacity he can. Current’s motivation to return is to be a clown in the annual Neiman Marcus David Current Adolphus Children’s Parade in December. “It bothers me sometimes if I see sick children, but I like to make them laugh and make them forget what’s going on,” Current said. “It is the least I can do, and I wouldn’t trade it for anything. And most times, I think I get more out of it than the children.” Volunteer News D 26 2007 Issue 3 Kirk Pouttu Dad never misses Saturday volunteer hours Kirk Pouttu never misses Saturday morning volunteer hours at Children’s. Pouttu, a sitter from 9 a.m. to noon, said at the end of his shift he always feels like saying to the volunteer coordinators: “How much do I owe you guys for this?” Working as a sitter anywhere he’s needed, Pouttu said he was drawn to volunteer after his daughter, Ellen, was a patient at Children’s in HematologyOncology. That proved to be the catalyst for his decision to volunteer. “I think we were fat, dumb and happy [before Ellen’s illness],” Pouttu said. “It really thrust us into the currents of life. When that happened, I decided it was OK to swim.” Pouttu’s most memorable day was spent with a boy who was watching a movie of kids around a campfire roasting marshmallows. He told Pouttu he’d never had a marshmallow. Rallying to the cause, the volunteer called Food Services, getting them to agree to roast some marshmallows and deliver them. When the boy asked if they could make S’Mores, Pouttu added graham crackers to the delivery order. He and the young patient then wheeled down to the hospital’s Children’s Corner gift shop where they bought a chocolate bar and proceeded with the recipe. Carolyn Simma, weekend volunteer services coordinator, said his visits always are appreciated. “The kids love him,” she said. “Kirk never misses his volunteer work here. He’s just a great guy.” Thursdays with Bennett bring smiles to patients, families and employees n any given Thursday, you can find Bradey Bennett in one of three places at Children’s: the Aikman End Zone, the Krissi Holman Family Resource Library & Children’s Collection or just outside the hospital’s main entrance enjoying his lunch — usually two ham-and-cheese sandwiches — on the bench in front of the playground. No matter where you find him, though, people around him are smiling. That’s precisely what he loves most about volunteering at Children’s — putting smiles on kids’ faces while he’s here. But adults in Bennett’s vicinity, including volunteers, hospital employees and patient family members, usually are smiling, too, thanks to his sense of humor and affable nature. The adolescent patients he interacts with during his morning shift in the Aikman End Zone are only slightly younger than Bennett was when he was a patient at another area hospital 17 years ago. He spent three months in a coma after sustaining a closed-head injury in a car accident during his freshman year at Southern Methodist University. Nearly two decades later, after earning an economics degree and completing two years of law school at SMU, Bennett decided to volunteer. “I realized how much the good Lord has done for me, and I just felt like I needed to give something back,” Bennett said. He chose to volunteer at Children’s because of Dr. Dale Swift, a pediatric neurosurgeon on the medical staff at Children’s who operated on Bennett in the mid-1990s. “He was kind enough to perform an operation on me, and that’s why I chose Children’s.” Bennett said that among all the physicians who treated him after his accident, Dr. Swift was perhaps the most optimistic doctor he had met. Since he started volunteering, Bennett already has contributed more than 200 hours — more than double the amount volunteers are asked to give in one year. Whether he’s playing foosball in the Aikman End Zone, helping patients in the library or waving at other employees in the hospital, he does it in a heartfelt manner that puts others at ease. “He’s funny and upbeat, friendly, very warm and personable,” said Barbara Green, manager of Volunteer Services. “He is just a wonderful asset to us.” O Baxter pulls strings to work at Children’s Terry Baxter often leaves Children’s dusted in glitter. The shimmer is evidence of the hour and a half she spends most Monday nights volunteering in the C4 playroom at Children’s. “If you ever have a bored child, pull out the glitter,” she said. “You can’t go wrong with glitter.” It’s unlikely that any of the children Baxter interacts with at Children’s are bored because she goes out of her way to make sure patients are entertained with crafts, coloring books or games. “Terry brings in coloring pages, little foam cut-outs that have adhesive on one side, or supplies to make doorknob hangers for the kids’ rooms,” said Rebecca McBride, evening volunteer coordinator. “We don’t ask volunteers to bring anything but themselves, so the fact that she brings in crafts is special.” Baxter has been volunteering at Children’s for four years through Junior League, an organization of women committed to volunTerry Baxter teerism. Although Junior League chapters usually give volunteers a new assignment each year, Baxter has pulled strings to make sure she stays at Children’s. This year, the computerized process that randomly assigns Junior League volunteers to different positions in the Dallas area assigned Baxter to an opening outside of Children’s. Baxter called the Junior League chairperson and asked to be reassigned to the hospital. “It’s not that I don’t want to volunteer anywhere else,” she said. “It’s just that I love Children’s.” Despite a career as a legal assistant for a busy Dallas-based law firm, which sometimes has her putting in 9- to 11-hour days, Baxter makes a point to clear her schedule on volunteer nights — even if that means going back to the office after her shift at Children’s. In fact, Baxter’s boss makes sure she leaves the office on time. “He has actually told clients, ‘I’m sorry, but she volunteers at Children’s on Monday nights, and she needs to leave,’” Baxter said. If she knows she won’t be able to make a Monday shift, she tries to make it up on another night during the week. “I feel like this is a job, and they rely on me,” Baxter said. “I believe in Children’s, and the more I’m here and see how everything revolves around making these children better, the more I love it. “It’s not hard to volunteer for something that you feel so strongly toward.” Bradey Bennett ChildTimes 27 OUR LEADERSHIP Children’s Medical Center Dallas is a not-for-profit pediatric hospital governed by a community volunteer board jointly appointed by Children’s Health Services of Texas, Baylor Health Care System and Texas Health Resources. Children’s is affiliated with The University of Texas Southwestern Medical Center at Dallas and is UT Southwestern’s primary pediatric teaching hospital. Children’s is accredited by The Joint Commission and approved by the Council of Medical Education of the American Medical Association and the American Dental Association. Children’s also is accredited by a variety of educational programs in related healthcare fields. Children’s is a member of the American Hospital Association, the Texas Hospital Association, the Children’s Hospital Association of Texas, the National Association of Children’s Hospitals and Related Institutions and the Council of Teaching Hospitals. Children’s Medical Center of Dallas Board of Directors DIRECTORS Chairman John L. Adams Tom Baker William Blase Robert Chereck Michael Dardick Christopher J. Durovich Sandra Estess Kathleen Gibson Richard Knight, Jr. J. Marc Myers Elaine Nelson Marcia Page EX-OFFICIO MEMBERS Joel Allison M. Douglas Baker, M.D. David W. Biegler Michael Brown, M.D. Dan Chapman Robert Foglia, M.D. Douglas Hawthorne Zora Rogers, M.D. Thomas Zellers, M.D. INVITED GUESTS Ron Anderson, M.D. George Lister, M.D. Willis Maddrey, M.D. Gifford Touchstone Kern Wildenthal, M.D., PhD. ASSOCIATES BOARD Peter Altabef Robert M. Farrell Lois Finkelman Monte E. Ford Joyce Houlihan Thomas Leppert William A. McWhirter Albert Niemi, Ph.D. Richard L. Rogers Marcos Ronquillo Paul Sadler John Field Scovell Florence Shapiro Patrick B. Shelby Director of Surgical Services Robert Foglia, M.D. Senior Directors Clara C. Bahner Jolynn Hanson Mazie Jamison Nancy Templin MEDICAL STAFF OFFICERS Immediate Past President William A. Scott, M.D., M.S. President Michael E. Brown, M.D. President-Elect Zora R. Rogers, M.D. Surgical Representative at Large 2007-2009 David Weakley, M.D. Medical Representative at Large 2007-2009 Joe Neely, M.D. Surgical Representative at Large 2006-2007 Steven Leonard, M.D. Medical Representative at Large 2006-2007 Angela Mihalic, M.D. Secretary/Treasurer Pam Okada, M.D. MEDICAL EXECUTIVE COMMITTEE Chairman Thomas Zellers, M.D. Douglas Baker, M.D. Michael Brown, M.D. Zora Rodgers, M.D. Robert Foglia, M.D. Pam Okada, M.D. Joe Neely, M.D. Steven Leonard, M.D. George Lister, M.D. Angela Mihalic, M.D. David Weakley, M.D. William A. Scott, M.D., M.S. Paul Sheeran, M.D. Beverly Rogers, M.D. Nancy K. Rollins, M.D. Carolyn Wilson, D.D.S. Executive Vice President of Development T.W. Hudson Akin MEDICAL EXECUTIVE COMMITTEE EX-OFFICIO MEMBERS Christopher J. Durovich Roy Heyne, M.D. Douglas G. Hock Mary Stowe, RN, MSN Ryan McElroy, M.D. Amy Fowler, M.D. Lauren Gore, M.D. Senior Vice Presidents Ray R. Dziesinski Julio Pérez Fontán, M.D. James W. Herring Douglas G. Hock Patricia U. Winning ADMINISTRATIVE MEMBERS James W. Herring Anne E. Long, RN, JD Fiona Howard Levy, M.D. Anne Roberts, CPCS, CPMSM SENIOR LEADERSHIP President and CEO Christopher J. Durovich Vice Presidents Pamela Arora David G. Biggerstaff Christopher J. Dougherty Brett Daniel Lee Fiona Howard Levy, M.D. Anne E. Long, RN, JD Elizabeth Field MacKay Karen Meador, M.D. Louis C. Saksen Chief Nursing Officer Mary Stowe, RN, MSN Chief Medical Officer Thomas Zellers, M.D. Director of Medical Services M. Douglas Baker, M.D. 28 2007 Issue 3 Children’s Health Services of Texas HONORARY LIFE MEMBERS Gene H. Bishop Lloyd Bowles, Sr. Rawles Fulgham Theodore P. Votteler, M.D. Joel T. Williams, III DIRECTORS Chairman David W. Biegler John L. Adams Paul Bass Ann Goddard Corrigan Christopher J. Durovich Sandra Estess Randi Halsell Richard Knight, Jr. P. Mike McCullough Connie O’Neill Debbie Scripps Barbara Stuart Gifford Touchstone Darrell W. Wootton EX-OFFICIO MEMBERS Dan Chapman Joel T. Williams, III Thomas Zellers, M.D. Children’s Medical Center Foundation Board of Trustees TRUSTEES EMERITUS James J. Farnsworth H. Grady Jordan, Sr. Sarah M. Seay TRUSTEES Chairman Dan Chapman Marilyn Augur Martha Lou Beaird Samuel J. Beard David Beuerlein Sheila Beuerlein Cordelia Boone Charles (Chet) Boortz Lloyd S. Bowles, Jr. Lloyd S. Bowles, Sr. Kitty Boyle Ben Brooks Kathy Brooks Susan E. Brown Barbara Mallory Caraway Bill Carter Ann Goddard Corrigan Marie Crowe R. Brooks Cullum, Jr. Sissy Cullum Scott Dabney Jon Dahlander Ann Delatour David H. Eisenberg Sandra Estess Lance Etcheverry Susan Farris Steve Folsom Gerald J. Ford Kandace Garvey Kenn George Linda Gibbons James B. Goodson Leslie Greco Steven Gruber Cindy M. Gummer Todd Hagemeier Randi Halsell Juli Harrison Susan Hoag Denny Holman Ward Hunt Gene Jones Ken Klaveness Richard Knight, Jr. Tracey Kozmetsky C.S. Lee Anne Logan Dale Hawkins Long George Mason Karen Matthews Albert McClendon Jill McClung P. Mike McCullough Ben David McDavid, Jr. Kimberly McDavid Gail McDonald John P. McNamara Melanie Medanich Jerry M. Meyer Harold Montgomery Vikki Moody Dian Moore Ginny Moore H. Leslie Moore, M.D. Robert Morgan, D.D.S. Randall Muck John B. Muns Burk Murchison Jan Myers Hisashi Nikaidoh, M.D. Crickett Rollins Olmsted Frank O’Neil Stephen C. Owen Teresa Parravano Chris Patrick Pamela Dealey Petty John T. Pickens Claude Prestidge, M.D. Deborah Price, Au.D. Debbie Raynor Ann Duckett Reed Raymond Reed, Ph.D. Richard L. Rogers Steven M. Rudner Mardie Schoellkopf Betty Schultz John Field Scovell Debbie Scripps Ric Scripps John R. Sears, Jr. Mary Louise Sinclair Frank Sloan Sandra Snyder Robert C. Stegall Sally Seay Stout Barbara Stuart Smokey Swenson Michael Tanner Burton Tansky Betty Terrell Richard (Dick) Terrell John P. Thompson, Jr. Gifford Touchstone Suzy Welfelt Jimmy Westcott Joel T. Williams, III Sue Wills Tracy Wolstencroft Laura M. Woodall Darrell W. Wootton Sharon Worrell Terry Worrell Donald Zale EX-OFFICIO MEMBERS David W. Biegler Kathryn Biggers Christopher J. Durovich Cindy McGeogh Nancy Monning Connie O’Neill Rosalyn Parker Jill & Chris Willis Robin Ziegler Foundation Executive Committee Nonprofit Org. U.S. POSTAGE PAID Dallas, Texas Permit No. 3810 1935 Motor Street Dallas, Texas 75235 ADDRESS SERVICE REQUESTED Although we strive to constantly update our address labels, occasional errors and duplications do slip by. 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